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Auteur Helen LEE |
Documents disponibles écrits par cet auteur (3)



Evidence map of Spanish language parent- and self-report screening and diagnostic tools for autism spectrum disorder / Michaela DUBAY in Research in Autism Spectrum Disorders, 102 (April 2023)
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Titre : Evidence map of Spanish language parent- and self-report screening and diagnostic tools for autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Michaela DUBAY, Auteur ; Helen LEE, Auteur ; Ruben PALOMO, Auteur Article en page(s) : p.102117 Langues : Anglais (eng) Mots-clés : ASD Assessment Translation Cultural adaptation Empirical testing Index. décimale : PER Périodiques Résumé : Background With increasing interests in identification and diagnosis of autism spectrum disorder (ASD) across the world, a number of screening and diagnostic tools have been developed and translated from one language to another in varying qualities. In particular, many tools have been made available in Spanish to meet the needs of the world?s large Spanish-speaking populations. Critical examination of such Spanish language tools, in the areas of development and translation as well as empirical testing, is necessary to determine the quality of these tools, including their validity and reliability in the target population. The aim of the present review is to provide a comprehensive evidence map of screening and diagnostic tools for ASD in Spanish, especially with regards to the aspects of development/translation and empirical testing. Method A total of 48 Spanish versions of 21 instruments met study criteria for analysis after conducting multiple searches through nine key databases, grey literature, and by contacting authors, translators, and publishers. Results Results showed that a significant number of translations lacked translational process details in published locations and a majority of the studies used a traditional forward-backward approach rather than cultural adaptation procedures. About half of the translations did not provide necessary empirical evidence to support clinical utility of their translated tool. Conclusions Future studies are recommended to take more rigorous, culturally adaptive translational approach and test instruments in local populations to ensure their psychometric validities. En ligne : https://doi.org/10.1016/j.rasd.2023.102117 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501
in Research in Autism Spectrum Disorders > 102 (April 2023) . - p.102117[article] Evidence map of Spanish language parent- and self-report screening and diagnostic tools for autism spectrum disorder [Texte imprimé et/ou numérique] / Michaela DUBAY, Auteur ; Helen LEE, Auteur ; Ruben PALOMO, Auteur . - p.102117.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 102 (April 2023) . - p.102117
Mots-clés : ASD Assessment Translation Cultural adaptation Empirical testing Index. décimale : PER Périodiques Résumé : Background With increasing interests in identification and diagnosis of autism spectrum disorder (ASD) across the world, a number of screening and diagnostic tools have been developed and translated from one language to another in varying qualities. In particular, many tools have been made available in Spanish to meet the needs of the world?s large Spanish-speaking populations. Critical examination of such Spanish language tools, in the areas of development and translation as well as empirical testing, is necessary to determine the quality of these tools, including their validity and reliability in the target population. The aim of the present review is to provide a comprehensive evidence map of screening and diagnostic tools for ASD in Spanish, especially with regards to the aspects of development/translation and empirical testing. Method A total of 48 Spanish versions of 21 instruments met study criteria for analysis after conducting multiple searches through nine key databases, grey literature, and by contacting authors, translators, and publishers. Results Results showed that a significant number of translations lacked translational process details in published locations and a majority of the studies used a traditional forward-backward approach rather than cultural adaptation procedures. About half of the translations did not provide necessary empirical evidence to support clinical utility of their translated tool. Conclusions Future studies are recommended to take more rigorous, culturally adaptive translational approach and test instruments in local populations to ensure their psychometric validities. En ligne : https://doi.org/10.1016/j.rasd.2023.102117 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501 Scoping review of behavioral coding measures used to evaluate parent responsiveness of children with autism or elevated risk of autism / Thelma E UZONYI in Autism, 27-7 (October 2023)
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Titre : Scoping review of behavioral coding measures used to evaluate parent responsiveness of children with autism or elevated risk of autism Type de document : Texte imprimé et/ou numérique Auteurs : Thelma E UZONYI, Auteur ; Alaina C GRISSOM, Auteur ; Ranita V ANDERSON, Auteur ; Helen LEE, Auteur ; Sarah TOWNER-WRIGHT, Auteur ; Elizabeth R CRAIS, Auteur ; Linda R WATSON, Auteur ; Rebecca J LANDA, Auteur Article en page(s) : p.1856-1875 Langues : Anglais (eng) Mots-clés : autism spectrum disorders observational coding parent responsiveness Index. décimale : PER Périodiques Résumé : Various aspects of parent responsiveness are associated with child outcomes, such as play, language, and social development. However, behavioral coding methods used to measure parent responsiveness vary widely, making comparison of results across studies difficult. The purpose of this scoping review was to summarize current behavioral coding methods used in measuring parent responsiveness to children with autism or elevated likelihood of autism, synthesize the reported metrics used, and highlight the strengths and weaknesses in the reporting standards of available literature. A total of 101 articles met criteria for the review and were analyzed for metrics in demographics, coding system development and accessibility, characteristics of measured responsiveness, reliability, and validity. Results revealed variations in observational procedures, forms of measurement, and specific aspects of responsiveness measured. Details necessary for study replication or extension often were missing, such as parent demographics, clear definitions of parent responsiveness, and coder training procedures. The scoping review results reflect the wide variety of behavioral coding systems used and the inconsistent reporting in published literature on this topic. A case for a best practice model for behavioral coding metrics and reporting standards within parent responsiveness is presented in the discussion.Lay abstractThe topic of how parents react (e.g., how they talk and act) to their child with autism or elevated likelihood of autism, often called parent responsiveness, has been studied by researchers for over 50?years. Many methods for measuring behaviors around parent responsiveness have been created depending on what researchers were interested in discovering. For example, some include only the behaviors that the parent does/says in reacting to something the child does/says. Other systems look at all behaviors in a period of time between child and parent (e.g., who talked/acted first, how much the child or parent said/did). The purpose of this article was to provide a summary of how and what researchers looked at around parent responsiveness, describe the strengths and barriers of these approaches, and suggest a "best practices" method of looking at parent responsiveness. The model suggested could make it more possible to look across studies to compare study methods and results. The model could be used in the future by researchers, clinicians, and policymakers to provide more effective services to children and their families. En ligne : http://dx.doi.org/10.1177/13623613231152641 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510
in Autism > 27-7 (October 2023) . - p.1856-1875[article] Scoping review of behavioral coding measures used to evaluate parent responsiveness of children with autism or elevated risk of autism [Texte imprimé et/ou numérique] / Thelma E UZONYI, Auteur ; Alaina C GRISSOM, Auteur ; Ranita V ANDERSON, Auteur ; Helen LEE, Auteur ; Sarah TOWNER-WRIGHT, Auteur ; Elizabeth R CRAIS, Auteur ; Linda R WATSON, Auteur ; Rebecca J LANDA, Auteur . - p.1856-1875.
Langues : Anglais (eng)
in Autism > 27-7 (October 2023) . - p.1856-1875
Mots-clés : autism spectrum disorders observational coding parent responsiveness Index. décimale : PER Périodiques Résumé : Various aspects of parent responsiveness are associated with child outcomes, such as play, language, and social development. However, behavioral coding methods used to measure parent responsiveness vary widely, making comparison of results across studies difficult. The purpose of this scoping review was to summarize current behavioral coding methods used in measuring parent responsiveness to children with autism or elevated likelihood of autism, synthesize the reported metrics used, and highlight the strengths and weaknesses in the reporting standards of available literature. A total of 101 articles met criteria for the review and were analyzed for metrics in demographics, coding system development and accessibility, characteristics of measured responsiveness, reliability, and validity. Results revealed variations in observational procedures, forms of measurement, and specific aspects of responsiveness measured. Details necessary for study replication or extension often were missing, such as parent demographics, clear definitions of parent responsiveness, and coder training procedures. The scoping review results reflect the wide variety of behavioral coding systems used and the inconsistent reporting in published literature on this topic. A case for a best practice model for behavioral coding metrics and reporting standards within parent responsiveness is presented in the discussion.Lay abstractThe topic of how parents react (e.g., how they talk and act) to their child with autism or elevated likelihood of autism, often called parent responsiveness, has been studied by researchers for over 50?years. Many methods for measuring behaviors around parent responsiveness have been created depending on what researchers were interested in discovering. For example, some include only the behaviors that the parent does/says in reacting to something the child does/says. Other systems look at all behaviors in a period of time between child and parent (e.g., who talked/acted first, how much the child or parent said/did). The purpose of this article was to provide a summary of how and what researchers looked at around parent responsiveness, describe the strengths and barriers of these approaches, and suggest a "best practices" method of looking at parent responsiveness. The model suggested could make it more possible to look across studies to compare study methods and results. The model could be used in the future by researchers, clinicians, and policymakers to provide more effective services to children and their families. En ligne : http://dx.doi.org/10.1177/13623613231152641 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 Sensory Reactivity at 1 and 2 Years Old is Associated with ASD Severity During the Preschool Years / Rebecca GRZADZINSKI in Journal of Autism and Developmental Disorders, 50-11 (November 2020)
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Titre : Sensory Reactivity at 1 and 2 Years Old is Associated with ASD Severity During the Preschool Years Type de document : Texte imprimé et/ou numérique Auteurs : Rebecca GRZADZINSKI, Auteur ; Kevin DONOVAN, Auteur ; Kinh TRUONG, Auteur ; Sallie W. NOWELL, Auteur ; Helen LEE, Auteur ; John SIDERIS, Auteur ; Lauren M. TURNER-BROWN, Auteur ; Grace T. BARANEK, Auteur ; Linda R. WATSON, Auteur Article en page(s) : p.3895-3904 Langues : Anglais (eng) Mots-clés : Autism Autism Spectrum Disorder Sensory Severity Toddlers Index. décimale : PER Périodiques Résumé : Children with Autism Spectrum Disorder (ASD) often display atypical sensory reactivity within the first years of life, prior to a diagnosis. This study examined sensory reactivity patterns at 14 months, changes from 14 to 23 months, and later ASD severity at 3 to 5 years of age in children (n?=?87) at elevated likelihood of ASD. Results indicated that observed hyporeactivity at 14 months and increases from 14 to 23 months were related to higher ASD severity during the preschool years. Parent report of hyperreactivity at 14 months was associated with higher ASD severity in the RRB domain during the preschool years. Early hypo and hyperreactivity may predict later severity of ASD and aid in subtyping and developing individualized treatments. En ligne : http://dx.doi.org/10.1007/s10803-020-04432-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432
in Journal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.3895-3904[article] Sensory Reactivity at 1 and 2 Years Old is Associated with ASD Severity During the Preschool Years [Texte imprimé et/ou numérique] / Rebecca GRZADZINSKI, Auteur ; Kevin DONOVAN, Auteur ; Kinh TRUONG, Auteur ; Sallie W. NOWELL, Auteur ; Helen LEE, Auteur ; John SIDERIS, Auteur ; Lauren M. TURNER-BROWN, Auteur ; Grace T. BARANEK, Auteur ; Linda R. WATSON, Auteur . - p.3895-3904.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.3895-3904
Mots-clés : Autism Autism Spectrum Disorder Sensory Severity Toddlers Index. décimale : PER Périodiques Résumé : Children with Autism Spectrum Disorder (ASD) often display atypical sensory reactivity within the first years of life, prior to a diagnosis. This study examined sensory reactivity patterns at 14 months, changes from 14 to 23 months, and later ASD severity at 3 to 5 years of age in children (n?=?87) at elevated likelihood of ASD. Results indicated that observed hyporeactivity at 14 months and increases from 14 to 23 months were related to higher ASD severity during the preschool years. Parent report of hyperreactivity at 14 months was associated with higher ASD severity in the RRB domain during the preschool years. Early hypo and hyperreactivity may predict later severity of ASD and aid in subtyping and developing individualized treatments. En ligne : http://dx.doi.org/10.1007/s10803-020-04432-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432