Autistic Adults' Experiences of Diagnosis Disclosure / Yunhe HUANG in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5301-5307 Titre : Autistic Adults' Experiences of Diagnosis Disclosure Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Lauren P LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur Année de publication : 2022 Article en page(s) : p.5301-5307 Langues : Anglais (eng) Mots-clés : Adult  Humans  Disclosure  Autistic Disorder/diagnosis  Autism Spectrum Disorder  Social Stigma  Prejudice  Adults  Autism  Diagnosis  Mixed-methods  Stigma Index. décimale : PER Périodiques Résumé : As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-05384-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Autistic Adults' Experiences of Diagnosis Disclosure [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Lauren P LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur . - 2022 . - p.5301-5307. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5301-5307 Mots-clés : Adult  Humans  Disclosure  Autistic Disorder/diagnosis  Autism Spectrum Disorder  Social Stigma  Prejudice  Adults  Autism  Diagnosis  Mixed-methods  Stigma Index. décimale : PER Périodiques Résumé : As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-05384-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Experiences of Performing Daily Activities in Middle-Aged and Older Autistic Adults: A Qualitative Study / Ye In Jane HWANG in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.2037-2049 Titre : Experiences of Performing Daily Activities in Middle-Aged and Older Autistic Adults: A Qualitative Study Type de document : Texte imprimé et/ou numérique Auteurs : Ye In Jane HWANG, Auteur ; Kitty-Rose FOLEY, Auteur ; Kieran ELLEY, Auteur ; Scott BROWN, Auteur ; Dawn JOY-LEONG, Auteur ; Xue LI, Auteur ; Rachel GROVE, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur ; Lidan ZHENG, Auteur Article en page(s) : p.2037-2049 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This is the first study to investigate instrumental activities of daily living in older autistic adults. We conducted interviews with fifteen adults (mean age=60.1, SD=7.4, range=50-73) from Australia with no intellectual disability. Analysis included both deductive and inductive steps, to categorise responses using the Occupational Performance Model Australia and identify themes across participants' experiences. Strengths and challenges were unique to the individual, as were the methods they had developed to manage tasks. Challenges occurred mostly at the interaction between aspects of the environment (sensory, cognitive, social and cultural) and personal factors such as health conditions and sensory sensitivities. Enhanced person-environment fit is needed, as is a shift in wider sociocultural attitudes to enable comfort and autonomy in later life. En ligne : https://doi.org/10.1007/s10803-022-05473-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501 [article] Experiences of Performing Daily Activities in Middle-Aged and Older Autistic Adults: A Qualitative Study [Texte imprimé et/ou numérique] / Ye In Jane HWANG, Auteur ; Kitty-Rose FOLEY, Auteur ; Kieran ELLEY, Auteur ; Scott BROWN, Auteur ; Dawn JOY-LEONG, Auteur ; Xue LI, Auteur ; Rachel GROVE, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur ; Lidan ZHENG, Auteur . - p.2037-2049. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.2037-2049 Index. décimale : PER Périodiques Résumé : This is the first study to investigate instrumental activities of daily living in older autistic adults. We conducted interviews with fifteen adults (mean age=60.1, SD=7.4, range=50-73) from Australia with no intellectual disability. Analysis included both deductive and inductive steps, to categorise responses using the Occupational Performance Model Australia and identify themes across participants' experiences. Strengths and challenges were unique to the individual, as were the methods they had developed to manage tasks. Challenges occurred mostly at the interaction between aspects of the environment (sensory, cognitive, social and cultural) and personal factors such as health conditions and sensory sensitivities. Enhanced person-environment fit is needed, as is a shift in wider sociocultural attitudes to enable comfort and autonomy in later life. En ligne : https://doi.org/10.1007/s10803-022-05473-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=501

Factor structure and psychometric properties of the brief Connor-Davidson Resilience Scale for adults on the autism spectrum / Ye In Jane HWANG in Autism, 24-6 (August 2020)  

Public ISBD [article]  inAutism > 24-6 (August 2020) . - p.1572-1577 Titre : Factor structure and psychometric properties of the brief Connor-Davidson Resilience Scale for adults on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Mirko ULJAREVIC, Auteur Article en page(s) : p.1572-1577 Langues : Anglais (eng) Mots-clés : adults  factor analysis  mental health  mental wellbeing  resilience  validation Index. décimale : PER Périodiques Résumé : Adults on the autism spectrum experience high rates of anxiety and depression, and may be particularly vulnerable to difficult and traumatic life experiences, which may contribute to the development and maintenance of these conditions. Resilience is an increasingly popular concept in research, which describes the ability to 'bounce back' following difficult emotional experiences, and the flexibility to adapt to stressful and demanding situations. The Connor-Davidson Resilience Scale has been used predominantly in studies involving non-autistic adults to measure resilience. While resilience is a potentially important concept for autistic adults, the suitability of the 10-item version of the Connor-Davidson Resilience Scale for use with adults on the spectrum has not yet been studied. In this short report, we investigate whether the Connor-Davidson Resilience Scale 10 is a valid measure to use with this population, and its relationship with other measures of mental well- or ill-being. Participants were 95 autistic adults with a mean age of 44 (63% female) who completed measures of resilience, autism symptoms, depression, anxiety and mental wellbeing. Overall, the findings indicate that the Connor-Davidson Resilience Scale 10 may be reliably used with autistic adults to measure trait resilience, which is associated with positive wellbeing and may serve as a protective factor from negative mental wellbeing. Future studies may use the Connor-Davidson Resilience Scale 10 to investigate resilience as a protective factor from negative mental health outcomes in response to traumatic and adverse emotional events for which autistic individuals may be particularly susceptible. En ligne : http://dx.doi.org/10.1177/1362361320908095 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 [article] Factor structure and psychometric properties of the brief Connor-Davidson Resilience Scale for adults on the autism spectrum [Texte imprimé et/ou numérique] / Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Mirko ULJAREVIC, Auteur . - p.1572-1577. Langues : Anglais (eng) in Autism > 24-6 (August 2020) . - p.1572-1577 Mots-clés : adults  factor analysis  mental health  mental wellbeing  resilience  validation Index. décimale : PER Périodiques Résumé : Adults on the autism spectrum experience high rates of anxiety and depression, and may be particularly vulnerable to difficult and traumatic life experiences, which may contribute to the development and maintenance of these conditions. Resilience is an increasingly popular concept in research, which describes the ability to 'bounce back' following difficult emotional experiences, and the flexibility to adapt to stressful and demanding situations. The Connor-Davidson Resilience Scale has been used predominantly in studies involving non-autistic adults to measure resilience. While resilience is a potentially important concept for autistic adults, the suitability of the 10-item version of the Connor-Davidson Resilience Scale for use with adults on the spectrum has not yet been studied. In this short report, we investigate whether the Connor-Davidson Resilience Scale 10 is a valid measure to use with this population, and its relationship with other measures of mental well- or ill-being. Participants were 95 autistic adults with a mean age of 44 (63% female) who completed measures of resilience, autism symptoms, depression, anxiety and mental wellbeing. Overall, the findings indicate that the Connor-Davidson Resilience Scale 10 may be reliably used with autistic adults to measure trait resilience, which is associated with positive wellbeing and may serve as a protective factor from negative mental wellbeing. Future studies may use the Connor-Davidson Resilience Scale 10 to investigate resilience as a protective factor from negative mental health outcomes in response to traumatic and adverse emotional events for which autistic individuals may be particularly susceptible. En ligne : http://dx.doi.org/10.1177/1362361320908095 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428

Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours / Ye In Jane HWANG in Autism, 24-2 (February 2020)  

Public ISBD [article]  inAutism > 24-2 (February 2020) . - p.411-422 Titre : Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours Type de document : Texte imprimé et/ou numérique Auteurs : Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian TROLLOR, Auteur Article en page(s) : p.411-422 Langues : Anglais (eng) Mots-clés : adults  anxiety  intolerance of uncertainty  repetitive behaviours  sensory sensitivities Index. décimale : PER Périodiques Résumé : Anxiety is present in high rates in both children and adults on the autism spectrum. An increasing number of studies have highlighted the potentially important role that intolerance of uncertainty may have in anxiety for those on the spectrum, as well as their interrelationships with sensory sensitivities and repetitive behaviours. In response to a lack of studies involving adults, this study examined self-report survey data regarding intolerance of uncertainty, sensory sensitivities, repetitive behaviours and anxiety in a sample of 176 adults on the autism spectrum (mean age = 42). Intolerance of uncertainty and anxiety were both found to be elevated relative to non-autistic adults (N = 116) and significant, positive correlations were found between intolerance of uncertainty, anxiety, repetitive behaviours and sensory sensitivities in those on the spectrum. Intolerance of uncertainty was found to be a significant mediator between sensory sensitivities and anxiety, as well as between anxiety and insistence on sameness behaviours. These results were not sensitive to age. Intolerance of uncertainty is an important factor to be considered in the conceptualisation and management of elevated rates of anxiety for adults on the autism spectrum. En ligne : http://dx.doi.org/10.1177/1362361319868907 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415 [article] Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours [Texte imprimé et/ou numérique] / Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian TROLLOR, Auteur . - p.411-422. Langues : Anglais (eng) in Autism > 24-2 (February 2020) . - p.411-422 Mots-clés : adults  anxiety  intolerance of uncertainty  repetitive behaviours  sensory sensitivities Index. décimale : PER Périodiques Résumé : Anxiety is present in high rates in both children and adults on the autism spectrum. An increasing number of studies have highlighted the potentially important role that intolerance of uncertainty may have in anxiety for those on the spectrum, as well as their interrelationships with sensory sensitivities and repetitive behaviours. In response to a lack of studies involving adults, this study examined self-report survey data regarding intolerance of uncertainty, sensory sensitivities, repetitive behaviours and anxiety in a sample of 176 adults on the autism spectrum (mean age = 42). Intolerance of uncertainty and anxiety were both found to be elevated relative to non-autistic adults (N = 116) and significant, positive correlations were found between intolerance of uncertainty, anxiety, repetitive behaviours and sensory sensitivities in those on the spectrum. Intolerance of uncertainty was found to be a significant mediator between sensory sensitivities and anxiety, as well as between anxiety and insistence on sameness behaviours. These results were not sensitive to age. Intolerance of uncertainty is an important factor to be considered in the conceptualisation and management of elevated rates of anxiety for adults on the autism spectrum. En ligne : http://dx.doi.org/10.1177/1362361319868907 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415

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