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Auteur Dena GASSNER
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Documents disponibles écrits par cet auteur (5)
Faire une suggestion Affiner la rechercheAnti-ableist language is fully compatible with high-quality autism research: Response to Singer et al. (2023) / Heini M. NATRI in Autism Research, 16-4 (April 2023)
Titre : Interventions to address health outcomes among autistic adults: A systematic review Type de document : texte imprimé Auteurs : Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Jasmine M. ERVES, Auteur ; Taylor M. HAZLEWOOD, Auteur ; M. Caroline KING, Auteur ; Lisa MORGAN, Auteur ; Lauren E. MURPHY, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Sarah M. RUTLEDGE, Auteur ; Savannah P. WELCH, Auteur ; Karl WITTIG, Auteur Article en page(s) : p.1345-1359 Langues : Anglais (eng) Mots-clés : adult autism spectrum disorder intervention systematic review Index. décimale : PER Périodiques Résumé : Autistic adults have more health problems then their same-aged peers. Yet little research has been conducted that focuses on addressing these health problems. In order to guide future research, it is important to know what intervention studies have been done to improve health outcomes among autistic adults. The project team and student assistants read studies that were published between 2007 and 2018 in the online research database, PubMed. We looked for studies published in English, which were peer-reviewed and included (1) an intervention, (2) an outcome that was related to health, and (3) a study group that included autistic adults. We did not include studies that had outcomes about employment (unless there was a health outcome), studies about caregivers or caregiving, or expert opinions about interventions. Of 778 reviewed articles, 19 studies met all of the criteria above. Within these studies, two approaches were found to have emerging evidence for their use in autistic adults: cognitive behavioral interventions and mindfulness-based approaches for improved mental health outcomes. The remaining intervention approaches did not have enough articles to support their use. Many of the outcomes were about reduced symptoms of co-occurring mental health diagnoses (e.g. reduced anxiety, depression). Most of the participants in these studies were male and did not have intellectual disability. Most study participants were adults younger than 40. There are not many intervention studies that address health outcomes among autistic adults. More research is needed on interventions which are desired by the adult autism community and address preferred health outcomes such as increased quality of life or well-being. En ligne : http://dx.doi.org/10.1177/1362361320913664 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Autism > 24-6 (August 2020) . - p.1345-1359[article] Interventions to address health outcomes among autistic adults: A systematic review [texte imprimé] / Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Jasmine M. ERVES, Auteur ; Taylor M. HAZLEWOOD, Auteur ; M. Caroline KING, Auteur ; Lisa MORGAN, Auteur ; Lauren E. MURPHY, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Sarah M. RUTLEDGE, Auteur ; Savannah P. WELCH, Auteur ; Karl WITTIG, Auteur . - p.1345-1359.
Langues : Anglais (eng)
in Autism > 24-6 (August 2020) . - p.1345-1359
Mots-clés : adult autism spectrum disorder intervention systematic review Index. décimale : PER Périodiques Résumé : Autistic adults have more health problems then their same-aged peers. Yet little research has been conducted that focuses on addressing these health problems. In order to guide future research, it is important to know what intervention studies have been done to improve health outcomes among autistic adults. The project team and student assistants read studies that were published between 2007 and 2018 in the online research database, PubMed. We looked for studies published in English, which were peer-reviewed and included (1) an intervention, (2) an outcome that was related to health, and (3) a study group that included autistic adults. We did not include studies that had outcomes about employment (unless there was a health outcome), studies about caregivers or caregiving, or expert opinions about interventions. Of 778 reviewed articles, 19 studies met all of the criteria above. Within these studies, two approaches were found to have emerging evidence for their use in autistic adults: cognitive behavioral interventions and mindfulness-based approaches for improved mental health outcomes. The remaining intervention approaches did not have enough articles to support their use. Many of the outcomes were about reduced symptoms of co-occurring mental health diagnoses (e.g. reduced anxiety, depression). Most of the participants in these studies were male and did not have intellectual disability. Most study participants were adults younger than 40. There are not many intervention studies that address health outcomes among autistic adults. More research is needed on interventions which are desired by the adult autism community and address preferred health outcomes such as increased quality of life or well-being. En ligne : http://dx.doi.org/10.1177/1362361320913664 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
Titre : Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project Type de document : texte imprimé Auteurs : Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; Kate PALMER, Auteur ; Patricia DUNCAN, Auteur ; Alex PLANK, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Becca Lory HECTOR, Auteur ; Lisa MORGAN, Auteur ; Lindsey NEBEKER, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Karl WITTIG, Auteur ; Steven S. COUGHLIN, Auteur Article en page(s) : p.822-833 Langues : Anglais (eng) Mots-clés : autism autistic mental health mental health outcomes participatory action research priorities stakeholder Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320908410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
in Autism > 24-4 (May 2020) . - p.822-833[article] Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project [texte imprimé] / Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; Kate PALMER, Auteur ; Patricia DUNCAN, Auteur ; Alex PLANK, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Becca Lory HECTOR, Auteur ; Lisa MORGAN, Auteur ; Lindsey NEBEKER, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Karl WITTIG, Auteur ; Steven S. COUGHLIN, Auteur . - p.822-833.
Langues : Anglais (eng)
in Autism > 24-4 (May 2020) . - p.822-833
Mots-clés : autism autistic mental health mental health outcomes participatory action research priorities stakeholder Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320908410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
Titre : Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity Type de document : texte imprimé Auteurs : Jeroen DEWINTER, Auteur ; Morénike Giwa ONAIWU, Auteur ; Maria L. MASSOLO, Auteur ; Reid CAPLAN, Auteur ; Els VAN BENEDEN, Auteur ; Nikki BRÖRMANN, Auteur ; Eileen T. CREHAN, Auteur ; Lisa A. CROEN, Auteur ; Susan FAJA, Auteur ; Dena GASSNER, Auteur ; Laura GRAHAM HOLMES, Auteur ; Cat HUGHES, Auteur ; Morrigan HUNTER, Auteur ; Monique HUYSAMEN, Auteur ; Paola JELONCHE, Auteur ; Meng-Chuan LAI, Auteur ; Ilse NOENS, Auteur ; Heta PUKKI, Auteur ; Mark A. STOKES, Auteur ; John F. STRANG, Auteur ; Anna VAN DER MIESEN, Auteur Article en page(s) : p.770-779 Langues : Anglais (eng) Mots-clés : autism gender diversity policy recommendations sexual health sexuality Index. décimale : PER Périodiques Résumé : This short report presents recommendations to promote health and well-being relating to sexuality and gender diversity in autistic individuals. The recommendations were developed based on the latest available scientific knowledge coupled with a community-driven approach. An international group of autistic and non-autistic experts in the fields of autism, sexuality, and gender diversity and autistic advocates worked together to develop the initial recommendations; these recommendations were subsequently checked within the wider community through an online survey. Out of the original 11 recommendations, eight were rated above a consensus threshold. The final recommendations cover three themes: (1) providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; (2) improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and (3) meaningful inclusion of the autism community in future research that addresses well-being related to sexuality, relationships, and gender diversity. The recommendations emphasize the need for additional awareness and offer cues to parents, professionals, and policymakers to promote sexual health and well-being of autistic individuals. Lay Abstract In this article, we propose recommendations on what we can do to promote that autistic people can enjoy their sexuality and gender identity, because that contributes to overall well-being. First, we briefly summarize the existing research on sexuality and gender diversity in autistic individuals. Next, we propose recommendations for how to promote sexual and gender diversity-related health and well-being. Based on what is known about sexuality, gender diversity, and relationships in autistic adolescents and adults, we convened an international group of autistic and non-autistic researchers, advocates, parents, and professionals to develop recommendations to promote sexual and gender health in autistic people. The resulting recommendations were checked through an online survey distributed to autistic people across the world. The online participants endorsed the importance of eight final recommendations related to: 1.Providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; 2.Improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and 3.Meaningfully including the autism community in future research that addresses well-being relating to sexuality, relationships, and gender diversity. These community-driven recommendations aim to promote sexual health and well-being in autistic individuals internationally. En ligne : https://dx.doi.org/10.1177/13623613231188349 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
in Autism > 28-3 (March 2024) . - p.770-779[article] Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity [texte imprimé] / Jeroen DEWINTER, Auteur ; Morénike Giwa ONAIWU, Auteur ; Maria L. MASSOLO, Auteur ; Reid CAPLAN, Auteur ; Els VAN BENEDEN, Auteur ; Nikki BRÖRMANN, Auteur ; Eileen T. CREHAN, Auteur ; Lisa A. CROEN, Auteur ; Susan FAJA, Auteur ; Dena GASSNER, Auteur ; Laura GRAHAM HOLMES, Auteur ; Cat HUGHES, Auteur ; Morrigan HUNTER, Auteur ; Monique HUYSAMEN, Auteur ; Paola JELONCHE, Auteur ; Meng-Chuan LAI, Auteur ; Ilse NOENS, Auteur ; Heta PUKKI, Auteur ; Mark A. STOKES, Auteur ; John F. STRANG, Auteur ; Anna VAN DER MIESEN, Auteur . - p.770-779.
Langues : Anglais (eng)
in Autism > 28-3 (March 2024) . - p.770-779
Mots-clés : autism gender diversity policy recommendations sexual health sexuality Index. décimale : PER Périodiques Résumé : This short report presents recommendations to promote health and well-being relating to sexuality and gender diversity in autistic individuals. The recommendations were developed based on the latest available scientific knowledge coupled with a community-driven approach. An international group of autistic and non-autistic experts in the fields of autism, sexuality, and gender diversity and autistic advocates worked together to develop the initial recommendations; these recommendations were subsequently checked within the wider community through an online survey. Out of the original 11 recommendations, eight were rated above a consensus threshold. The final recommendations cover three themes: (1) providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; (2) improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and (3) meaningful inclusion of the autism community in future research that addresses well-being related to sexuality, relationships, and gender diversity. The recommendations emphasize the need for additional awareness and offer cues to parents, professionals, and policymakers to promote sexual health and well-being of autistic individuals. Lay Abstract In this article, we propose recommendations on what we can do to promote that autistic people can enjoy their sexuality and gender identity, because that contributes to overall well-being. First, we briefly summarize the existing research on sexuality and gender diversity in autistic individuals. Next, we propose recommendations for how to promote sexual and gender diversity-related health and well-being. Based on what is known about sexuality, gender diversity, and relationships in autistic adolescents and adults, we convened an international group of autistic and non-autistic researchers, advocates, parents, and professionals to develop recommendations to promote sexual and gender health in autistic people. The resulting recommendations were checked through an online survey distributed to autistic people across the world. The online participants endorsed the importance of eight final recommendations related to: 1.Providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; 2.Improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and 3.Meaningfully including the autism community in future research that addresses well-being relating to sexuality, relationships, and gender diversity. These community-driven recommendations aim to promote sexual health and well-being in autistic individuals internationally. En ligne : https://dx.doi.org/10.1177/13623613231188349 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
Titre : The INSAR Community Collaborator Request: Using community-academic partnerships to enhance outcomes of participatory autism research Type de document : texte imprimé Auteurs : Patrick DWYER, Auteur ; Dena GASSNER, Auteur ; Melanie HEYWORTH, Auteur ; Zachary J. WILLIAMS, Auteur Article en page(s) : p.2071-2076 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Participatory approaches, in which researchers work together with members of the autism community (e.g., autistic people, family members, caregivers, or other stakeholders) to design, conduct, and disseminate research, have become increasingly prominent within the field of autism research over the past decade. Despite growing academic and community interest in conducting participatory studies, stakeholder collaboration remains infrequent in autism research, at least partially due to systemic barriers. To help reduce barriers to engaging in participatory autism research, the International Society for Autism Research (INSAR) Autistic Researchers Committee has launched the INSAR Community Collaborator Request (ICCR; https://www.autism-insar.org/page/iccr), a platform on the INSAR website that allows autism researchers conducting participatory research to seek out stakeholder collaborators from the autism community (including both autistic people and their family members/caregivers, as relevant to a given research project). Interested stakeholders also have the opportunity to subscribe to ICCR posts, allowing them to be alerted of new opportunities for collaboration and potentially increasing their involvement in autism research. Overall, the ICCR provides a venue to connect autism researchers with potential community collaborators, reducing barriers to participatory autism research and increasing the frequency of successful community-academic partnerships within the field. We are hopeful that in the long term, such changes will lead to greater alignment between research outputs and the goals of the greater autism community, and consequently an increase in the overall quality and relevance of autism research. En ligne : https://doi.org/10.1002/aur.3027 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517
in Autism Research > 16-11 (November 2023) . - p.2071-2076[article] The INSAR Community Collaborator Request: Using community-academic partnerships to enhance outcomes of participatory autism research [texte imprimé] / Patrick DWYER, Auteur ; Dena GASSNER, Auteur ; Melanie HEYWORTH, Auteur ; Zachary J. WILLIAMS, Auteur . - p.2071-2076.
Langues : Anglais (eng)
in Autism Research > 16-11 (November 2023) . - p.2071-2076
Index. décimale : PER Périodiques Résumé : Abstract Participatory approaches, in which researchers work together with members of the autism community (e.g., autistic people, family members, caregivers, or other stakeholders) to design, conduct, and disseminate research, have become increasingly prominent within the field of autism research over the past decade. Despite growing academic and community interest in conducting participatory studies, stakeholder collaboration remains infrequent in autism research, at least partially due to systemic barriers. To help reduce barriers to engaging in participatory autism research, the International Society for Autism Research (INSAR) Autistic Researchers Committee has launched the INSAR Community Collaborator Request (ICCR; https://www.autism-insar.org/page/iccr), a platform on the INSAR website that allows autism researchers conducting participatory research to seek out stakeholder collaborators from the autism community (including both autistic people and their family members/caregivers, as relevant to a given research project). Interested stakeholders also have the opportunity to subscribe to ICCR posts, allowing them to be alerted of new opportunities for collaboration and potentially increasing their involvement in autism research. Overall, the ICCR provides a venue to connect autism researchers with potential community collaborators, reducing barriers to participatory autism research and increasing the frequency of successful community-academic partnerships within the field. We are hopeful that in the long term, such changes will lead to greater alignment between research outputs and the goals of the greater autism community, and consequently an increase in the overall quality and relevance of autism research. En ligne : https://doi.org/10.1002/aur.3027 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517
