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In Our Own Words: The Complex Sensory Experiences of Autistic Adults / K. MACLENNAN in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : In Our Own Words: The Complex Sensory Experiences of Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : K. MACLENNAN, Auteur ; S. O'BRIEN, Auteur ; Teresa TAVASSOLI, Auteur Article en page(s) : p.3061-3075 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/complications Autistic Disorder/complications Humans Quality of Life Surveys and Questionnaires Autism Autistic Participatory Qualitative Sensory content of this article. Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience sensory reactivity differences. Sensory hyperreactivity is frequently researched, whilst hyporeactivity and seeking, and experiences across domains, e.g., vision, are often neglected. Therefore, we aimed to understand more about the sensory experiences of autistic adults. We conducted a mixed-methods study, co-produced with stakeholders; recruiting 49 autistic adults who completed an online survey. Firstly, quantitative results and content analysis enhanced our understanding of sensory input/contexts associated with sensory hyperreactivity, hyporeactivity, and seeking across modalities. Secondly, thematic analysis developed themes relating to 'Outcomes', 'Control', 'Tolerance and management', and 'The role of other people', informing a theoretical model of sensory reactivity differences in autistic adults. These findings have implications for support services and improving quality of life for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05186-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3061-3075[article] In Our Own Words: The Complex Sensory Experiences of Autistic Adults [Texte imprimé et/ou numérique] / K. MACLENNAN, Auteur ; S. O'BRIEN, Auteur ; Teresa TAVASSOLI, Auteur . - p.3061-3075.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3061-3075
Mots-clés : Adult Autism Spectrum Disorder/complications Autistic Disorder/complications Humans Quality of Life Surveys and Questionnaires Autism Autistic Participatory Qualitative Sensory content of this article. Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience sensory reactivity differences. Sensory hyperreactivity is frequently researched, whilst hyporeactivity and seeking, and experiences across domains, e.g., vision, are often neglected. Therefore, we aimed to understand more about the sensory experiences of autistic adults. We conducted a mixed-methods study, co-produced with stakeholders; recruiting 49 autistic adults who completed an online survey. Firstly, quantitative results and content analysis enhanced our understanding of sensory input/contexts associated with sensory hyperreactivity, hyporeactivity, and seeking across modalities. Secondly, thematic analysis developed themes relating to 'Outcomes', 'Control', 'Tolerance and management', and 'The role of other people', informing a theoretical model of sensory reactivity differences in autistic adults. These findings have implications for support services and improving quality of life for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05186-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project / Teal W. BENEVIDES in Autism, 24-4 (May 2020)
[article]
Titre : Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project Type de document : Texte imprimé et/ou numérique Auteurs : Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; Kate PALMER, Auteur ; Patricia DUNCAN, Auteur ; Alex PLANK, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Becca Lory HECTOR, Auteur ; Lisa MORGAN, Auteur ; Lindsey NEBEKER, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Karl WITTIG, Auteur ; Steven S. COUGHLIN, Auteur Article en page(s) : p.822-833 Langues : Anglais (eng) Mots-clés : autism autistic mental health mental health outcomes participatory action research priorities stakeholder Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320908410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
in Autism > 24-4 (May 2020) . - p.822-833[article] Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project [Texte imprimé et/ou numérique] / Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; Kate PALMER, Auteur ; Patricia DUNCAN, Auteur ; Alex PLANK, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Becca Lory HECTOR, Auteur ; Lisa MORGAN, Auteur ; Lindsey NEBEKER, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Karl WITTIG, Auteur ; Steven S. COUGHLIN, Auteur . - p.822-833.
Langues : Anglais (eng)
in Autism > 24-4 (May 2020) . - p.822-833
Mots-clés : autism autistic mental health mental health outcomes participatory action research priorities stakeholder Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320908410 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 Brief Report: A Pilot Study Examining the Effects of PEERS® for Adolescents Telehealth for Autistic Adolescents / Elyse J. ADLER in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Brief Report: A Pilot Study Examining the Effects of PEERS® for Adolescents Telehealth for Autistic Adolescents Type de document : Texte imprimé et/ou numérique Auteurs : Elyse J. ADLER, Auteur ; Hillary K. SCHILTZ, Auteur ; Danielle M. GLAD, Auteur ; Sarah A. LEHMAN, Auteur ; Sara K. PARDEJ, Auteur ; Rachel E. STANLEY, Auteur ; Amy V. VAN HECKE, Auteur Année de publication : 2022 Article en page(s) : p.5491-5499 Langues : Anglais (eng) Mots-clés : Adolescent Humans Pilot Projects Autistic Disorder/therapy Autism Spectrum Disorder Pandemics covid-19 Telemedicine Autism Autistic Covid-19 Peers® Social skills Telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic sparked a worldwide transition to providing online services overnight, highlighting the urgent need for empirically supported telehealth interventions. The current study examined the effects of PEERS® for Adolescents Telehealth, an adaptation from the original social skills intervention developed for in-person provision, among 22 autistic adolescents and their caregivers. To evaluate the intervention, caregivers completed questionnaires assessing core autistic features and frequency of get-togethers. Adolescents completed questionnaires measuring social knowledge and frequency of get-togethers. Improvements in social skills knowledge, increased get-togethers, and decreased core autistic symptoms were evident. Preliminary results suggest PEERS® for Adolescents Telehealth improves social competence, as found for the in-person version. Further research exploring the equivalence of telehealth to in-person social skills intervention is recommended. En ligne : http://dx.doi.org/10.1007/s10803-022-05666-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5491-5499[article] Brief Report: A Pilot Study Examining the Effects of PEERS® for Adolescents Telehealth for Autistic Adolescents [Texte imprimé et/ou numérique] / Elyse J. ADLER, Auteur ; Hillary K. SCHILTZ, Auteur ; Danielle M. GLAD, Auteur ; Sarah A. LEHMAN, Auteur ; Sara K. PARDEJ, Auteur ; Rachel E. STANLEY, Auteur ; Amy V. VAN HECKE, Auteur . - 2022 . - p.5491-5499.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5491-5499
Mots-clés : Adolescent Humans Pilot Projects Autistic Disorder/therapy Autism Spectrum Disorder Pandemics covid-19 Telemedicine Autism Autistic Covid-19 Peers® Social skills Telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic sparked a worldwide transition to providing online services overnight, highlighting the urgent need for empirically supported telehealth interventions. The current study examined the effects of PEERS® for Adolescents Telehealth, an adaptation from the original social skills intervention developed for in-person provision, among 22 autistic adolescents and their caregivers. To evaluate the intervention, caregivers completed questionnaires assessing core autistic features and frequency of get-togethers. Adolescents completed questionnaires measuring social knowledge and frequency of get-togethers. Improvements in social skills knowledge, increased get-togethers, and decreased core autistic symptoms were evident. Preliminary results suggest PEERS® for Adolescents Telehealth improves social competence, as found for the in-person version. Further research exploring the equivalence of telehealth to in-person social skills intervention is recommended. En ligne : http://dx.doi.org/10.1007/s10803-022-05666-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates / Vicki GIBBS in Research in Autism Spectrum Disorders, 89 (November 2021)
[article]
Titre : Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates Type de document : Texte imprimé et/ou numérique Auteurs : Vicki GIBBS, Auteur ; Jennie HUDSON, Auteur ; Ye In HWANG, Auteur ; Sam ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : 101866 Langues : Anglais (eng) Mots-clés : Autistic Sexual violence Physical violence Victimisation Autistic traits Emotion regulation Index. décimale : PER Périodiques Résumé : Background Research has repeatedly demonstrated that people with disabilities, particularly intellectual disabilities, experience violence at higher rates compared to people without disabilities. There have been fewer studies of violence amongst Autistic people with most focused on abuse and peer victimisation during childhood. Many of these studies include large numbers of children with intellectual disability making it difficult to infer whether autistic traits confer any increased risk for violence. Method A cross-sectional survey design was employed to compare rates of reported childhood and recent physical and sexual violence, degree of traumatic impact, and tendency to confide in others amongst 245 Autistic adults without intellectual disability and 49 non-Autistic adults. We also examined whether autistic traits and emotion regulation were associated with experiences of reported violence. Results A higher proportion of Autistic adults reported experiencing sexual and physical violence during childhood. There was no difference in recent violence or traumatic impact, however Autistic adults were more likely to report they had never confided in anyone about their experience/s. Autistic traits (but not emotion regulation difficulties) were a significant predictor of experiencing violence. Conclusions The findings provide further evidence that Autistic people experience higher rates of physical and sexual violence and this cannot be attributed solely to the risk that is conferred by co-occurring intellectual disability. This information is important for policy makers and service providers so that steps can be taken to protect Autistic people from exposure to violence however further research is needed to better understand the extent and nature of violence experienced by Autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101866 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458
in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101866[article] Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates [Texte imprimé et/ou numérique] / Vicki GIBBS, Auteur ; Jennie HUDSON, Auteur ; Ye In HWANG, Auteur ; Sam ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur . - 101866.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101866
Mots-clés : Autistic Sexual violence Physical violence Victimisation Autistic traits Emotion regulation Index. décimale : PER Périodiques Résumé : Background Research has repeatedly demonstrated that people with disabilities, particularly intellectual disabilities, experience violence at higher rates compared to people without disabilities. There have been fewer studies of violence amongst Autistic people with most focused on abuse and peer victimisation during childhood. Many of these studies include large numbers of children with intellectual disability making it difficult to infer whether autistic traits confer any increased risk for violence. Method A cross-sectional survey design was employed to compare rates of reported childhood and recent physical and sexual violence, degree of traumatic impact, and tendency to confide in others amongst 245 Autistic adults without intellectual disability and 49 non-Autistic adults. We also examined whether autistic traits and emotion regulation were associated with experiences of reported violence. Results A higher proportion of Autistic adults reported experiencing sexual and physical violence during childhood. There was no difference in recent violence or traumatic impact, however Autistic adults were more likely to report they had never confided in anyone about their experience/s. Autistic traits (but not emotion regulation difficulties) were a significant predictor of experiencing violence. Conclusions The findings provide further evidence that Autistic people experience higher rates of physical and sexual violence and this cannot be attributed solely to the risk that is conferred by co-occurring intellectual disability. This information is important for policy makers and service providers so that steps can be taken to protect Autistic people from exposure to violence however further research is needed to better understand the extent and nature of violence experienced by Autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101866 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 'We've come a very, very, long way' Overcoming stigma of autism: An interpretative phenomenological analysis within the UK Jewish community / David Ariel SHER in Autism, 26-8 (November 2022)
[article]
Titre : 'We've come a very, very, long way' Overcoming stigma of autism: An interpretative phenomenological analysis within the UK Jewish community Type de document : Texte imprimé et/ou numérique Auteurs : David Ariel SHER, Auteur ; Jenny L. GIBSON, Auteur ; Hannah Ella SHER, Auteur Article en page(s) : p.2066-2083 Langues : Anglais (eng) Mots-clés : Child Humans Autistic Disorder Jews Autism Spectrum Disorder Social Stigma United Kingdom Jewish autism autistic qualitative stigma research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : Autistic people contend with high levels of stigma in a wide array of cultures worldwide. There is a scarcity of literature on stigma in relation to autism in faith communities, with some limited research on this issue in Christian, Muslim and Hindu populations. There is virtually no research focussing on this topic in Jewish communities and to our knowledge, none at all within UK Jewish contexts. In this study, we aimed to explore experiences of stigma towards autism and sought views on what steps have and can be taken to reduce such stigma. Using an interpretative phenomenological analysis approach, we conducted semi-structured interviews with 10 participants within the UK Jewish community, including parents, rabbis, SENDCos, teachers, and headmasters of autistic children in both mainstream and specialist autistic schools. Interviews were conducted over 2 months in 2020. During analysis, 5 superordinate (central) themes and 13 subordinate themes were abstracted from the data. Superordinate themes included 'Stigma not specific to the Jewish community'; 'Considerable strides made'; 'More a lack of knowledge or denial than stigma'; 'Fear of stigma is a real concern but not widely prevalent'; and 'Potent factors that reduce stigma in the Jewish community'. We recommend workshops for greater awareness and training for teachers and parents on autism and autistic children's experiences. We also recommend the formation of specialist autism schools in other communities and promotion of positive narratives concerning autistic people, as this successfully reduced stigma within the Jewish community. En ligne : http://dx.doi.org/10.1177/13623613221075099 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism > 26-8 (November 2022) . - p.2066-2083[article] 'We've come a very, very, long way' Overcoming stigma of autism: An interpretative phenomenological analysis within the UK Jewish community [Texte imprimé et/ou numérique] / David Ariel SHER, Auteur ; Jenny L. GIBSON, Auteur ; Hannah Ella SHER, Auteur . - p.2066-2083.
Langues : Anglais (eng)
in Autism > 26-8 (November 2022) . - p.2066-2083
Mots-clés : Child Humans Autistic Disorder Jews Autism Spectrum Disorder Social Stigma United Kingdom Jewish autism autistic qualitative stigma research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : Autistic people contend with high levels of stigma in a wide array of cultures worldwide. There is a scarcity of literature on stigma in relation to autism in faith communities, with some limited research on this issue in Christian, Muslim and Hindu populations. There is virtually no research focussing on this topic in Jewish communities and to our knowledge, none at all within UK Jewish contexts. In this study, we aimed to explore experiences of stigma towards autism and sought views on what steps have and can be taken to reduce such stigma. Using an interpretative phenomenological analysis approach, we conducted semi-structured interviews with 10 participants within the UK Jewish community, including parents, rabbis, SENDCos, teachers, and headmasters of autistic children in both mainstream and specialist autistic schools. Interviews were conducted over 2 months in 2020. During analysis, 5 superordinate (central) themes and 13 subordinate themes were abstracted from the data. Superordinate themes included 'Stigma not specific to the Jewish community'; 'Considerable strides made'; 'More a lack of knowledge or denial than stigma'; 'Fear of stigma is a real concern but not widely prevalent'; and 'Potent factors that reduce stigma in the Jewish community'. We recommend workshops for greater awareness and training for teachers and parents on autism and autistic children's experiences. We also recommend the formation of specialist autism schools in other communities and promotion of positive narratives concerning autistic people, as this successfully reduced stigma within the Jewish community. En ligne : http://dx.doi.org/10.1177/13623613221075099 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 Barriers to healthcare for Australian autistic adults / Georgia BRUCE ; Janelle WEISE ; Caroline J. MILLS ; Julian N. TROLLOR ; Kristy COXON in Autism, 28-2 (February 2024)
PermalinkChasing the conversation: Autistic experiences of speech perception / Alexandra STURROCK in Autism & Developmental Language Impairments, 7 (January-December 2022)
PermalinkMeasurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults / Sarah A. CASSIDY in Journal of Autism and Developmental Disorders, 50-10 (October 2020)
Permalink"They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents / J. F. STRANG in Journal of Autism and Developmental Disorders, 48-12 (December 2018)
PermalinkSensory processing in 16p11.2 deletion and 16p11.2 duplication / Harriet SMITH in Autism Research, 15-11 (November 2022)
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