Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature / Amy STEDMAN in Journal of Autism and Developmental Disorders, 49-4 (April 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1378-1390 Titre : Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature Type de document : texte imprimé Auteurs : Amy STEDMAN, Auteur ; Briana J. TAYLOR, Auteur ; Michael ERARD, Auteur ; Christine PEURA, Auteur ; Matthew SIEGEL, Auteur Article en page(s) : p.1378-1390 Langues : Anglais (eng) Mots-clés : Autism  Cognitive  Communication  Severely affected Index. décimale : PER Périodiques Résumé : Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991-2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. En ligne : https://dx.doi.org/10.1007/s10803-018-3844-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388 [article] Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature [texte imprimé] / Amy STEDMAN, Auteur ; Briana J. TAYLOR, Auteur ; Michael ERARD, Auteur ; Christine PEURA, Auteur ; Matthew SIEGEL, Auteur . - p.1378-1390. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1378-1390 Mots-clés : Autism  Cognitive  Communication  Severely affected Index. décimale : PER Périodiques Résumé : Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991-2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. En ligne : https://dx.doi.org/10.1007/s10803-018-3844-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388

Mapping the time course of overt emotion dysregulation, self-injurious behavior, and aggression in psychiatrically hospitalized autistic youth: A naturalistic study / Jessie B. NORTHRUP in Autism Research, 15-10 (October 2022)  

Public ISBD [article]  inAutism Research > 15-10 (October 2022) . - p.1855-1867 Titre : Mapping the time course of overt emotion dysregulation, self-injurious behavior, and aggression in psychiatrically hospitalized autistic youth: A naturalistic study Type de document : texte imprimé Auteurs : Jessie B. NORTHRUP, Auteur ; Matthew GOODWIN, Auteur ; Christine B. PEURA, Auteur ; Qi CHEN, Auteur ; Briana J. TAYLOR, Auteur ; Matthew S. SIEGEL, Auteur ; Carla A. MAZEFSKY, Auteur Article en page(s) : p.1855-1867 Langues : Anglais (eng) Mots-clés : aggressive behavior  autism inpatient collection  autism spectrum disorder  emotion dysregulation  self-injurious behavior Index. décimale : PER Périodiques Résumé : Challenges with emotion dysregulation, self-injurious behavior (SIB), and aggression are common in autistic individuals. Prior research on the relationships between these behaviors is limited mainly to cross-sectional correlations of parent-report data. Understanding how emotion dysregulation, SIB, and aggression present and relate to one another in real-time could add to our understanding of the context and function of these behaviors. The present study examined the real-time occurrence and temporal relationships between these behaviors in 53 psychiatrically hospitalized autistic youth. Over 500 hours of behavioral observation occurred during everyday activities in the hospital. Start and stop times for instances of overt emotion dysregulation, SIB, and aggression were coded live using a custom mobile phone app. Results indicated large individual variability in the frequency and duration of these behaviors and their co-occurrence. Both SIB and aggression co-occurred with overt emotion dysregulation at above-chance levels, suggesting a role for emotional distress in the occurrence of these behaviors. However, there was substantial variability within and between individuals in co-occurrence, and SIB and aggression often (and for some individuals, almost always) occurred without overt emotion dysregulation. Relatedly, cross-recurrence quantitative analysis revealed that SIB and aggression preceded emotion dysregulation more often than emotion dysregulation preceded SIB and aggression. Future research, perhaps using ambulatory psychophysiological measures, is needed to understand whether emotion dysregulation may sometimes be present but not easily observed during SIB and aggression. LAY SUMMARY: This study provides insight into how overt emotion dysregulation (i.e., visible distress), aggression, and self-injury unfold in real-time for autistic individuals. Participants were 53 autistic youth staying in a psychiatric hospital. Research staff observed participants in everyday activities on the hospital unit and noted instances of aggression, self-injurious behavior, and emotion dysregulation. Results suggest that aggression and self-injury sometimes occur with visible signs of distress but also often occur without visible distress. In addition, observable distress was more common in the moments after these behaviors than in the moments before. En ligne : http://dx.doi.org/10.1002/aur.2773 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Mapping the time course of overt emotion dysregulation, self-injurious behavior, and aggression in psychiatrically hospitalized autistic youth: A naturalistic study [texte imprimé] / Jessie B. NORTHRUP, Auteur ; Matthew GOODWIN, Auteur ; Christine B. PEURA, Auteur ; Qi CHEN, Auteur ; Briana J. TAYLOR, Auteur ; Matthew S. SIEGEL, Auteur ; Carla A. MAZEFSKY, Auteur . - p.1855-1867. Langues : Anglais (eng) in Autism Research > 15-10 (October 2022) . - p.1855-1867 Mots-clés : aggressive behavior  autism inpatient collection  autism spectrum disorder  emotion dysregulation  self-injurious behavior Index. décimale : PER Périodiques Résumé : Challenges with emotion dysregulation, self-injurious behavior (SIB), and aggression are common in autistic individuals. Prior research on the relationships between these behaviors is limited mainly to cross-sectional correlations of parent-report data. Understanding how emotion dysregulation, SIB, and aggression present and relate to one another in real-time could add to our understanding of the context and function of these behaviors. The present study examined the real-time occurrence and temporal relationships between these behaviors in 53 psychiatrically hospitalized autistic youth. Over 500 hours of behavioral observation occurred during everyday activities in the hospital. Start and stop times for instances of overt emotion dysregulation, SIB, and aggression were coded live using a custom mobile phone app. Results indicated large individual variability in the frequency and duration of these behaviors and their co-occurrence. Both SIB and aggression co-occurred with overt emotion dysregulation at above-chance levels, suggesting a role for emotional distress in the occurrence of these behaviors. However, there was substantial variability within and between individuals in co-occurrence, and SIB and aggression often (and for some individuals, almost always) occurred without overt emotion dysregulation. Relatedly, cross-recurrence quantitative analysis revealed that SIB and aggression preceded emotion dysregulation more often than emotion dysregulation preceded SIB and aggression. Future research, perhaps using ambulatory psychophysiological measures, is needed to understand whether emotion dysregulation may sometimes be present but not easily observed during SIB and aggression. LAY SUMMARY: This study provides insight into how overt emotion dysregulation (i.e., visible distress), aggression, and self-injury unfold in real-time for autistic individuals. Participants were 53 autistic youth staying in a psychiatric hospital. Research staff observed participants in everyday activities on the hospital unit and noted instances of aggression, self-injurious behavior, and emotion dysregulation. Results suggest that aggression and self-injury sometimes occur with visible signs of distress but also often occur without visible distress. In addition, observable distress was more common in the moments after these behaviors than in the moments before. En ligne : http://dx.doi.org/10.1002/aur.2773 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Observed emotional reactivity in response to frustration tasks in psychiatrically hospitalized youth with autism spectrum disorder / Jessie B. NORTHRUP in Autism, 24-4 (May 2020)  

Public ISBD [article]  inAutism > 24-4 (May 2020) . - p.968-982 Titre : Observed emotional reactivity in response to frustration tasks in psychiatrically hospitalized youth with autism spectrum disorder Type de document : texte imprimé Auteurs : Jessie B. NORTHRUP, Auteur ; Matthew GOODWIN, Auteur ; Joshua MONTRENES, Auteur ; Jessica VEZZOLI, Auteur ; Josh GOLT, Auteur ; Christine B. PEURA, Auteur ; Matthew SIEGEL, Auteur ; Carla A. MAZEFSKY, Auteur Article en page(s) : p.968-982 Langues : Anglais (eng) Mots-clés : Autism Inpatient Collection  adaptive behavior  autism spectrum disorders  emotional reactivity  inpatient  verbal ability Index. décimale : PER Périodiques Résumé : Large emotional reactions (e.g. outbursts, tantrums) can be common and distressing in the lives of individuals with autism spectrum disorder and their families. Most previous research that has examined these types of emotional responses have used questionnaire data or focused only on young children. In addition, very little research has included individuals across a large range of intellectual and functional abilities or individuals with more severe emotional and/or behavioral difficulties. This study examined emotional reactions to frustrating tasks in 6-21-year-olds with autism spectrum disorder who were psychiatrically hospitalized due to emotional and/or behavioral difficulties. We describe change in the amount, intensity, duration, and range of emotional reactions that the participants displayed from a neutral activity to the frustrating tasks and then to a neutral recovery period. We also examined associations between characteristics of the participants and these emotional reactions. We found that younger children displayed more negative emotions across the neutral and frustrating tasks; however, age did not relate to how big their reactions to frustration were. Furthermore, we found that individuals with fewer adaptive skills (i.e. age-appropriate life skills) and minimally verbal individuals had bigger reactions and recovered less following the frustration tasks. The results highlight the importance of examining emotional reactions in individuals with lower verbal and adaptive abilities and for interventions to consider the connection between verbal and adaptive skills and emotional reactions. En ligne : http://dx.doi.org/10.1177/1362361320908108 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 [article] Observed emotional reactivity in response to frustration tasks in psychiatrically hospitalized youth with autism spectrum disorder [texte imprimé] / Jessie B. NORTHRUP, Auteur ; Matthew GOODWIN, Auteur ; Joshua MONTRENES, Auteur ; Jessica VEZZOLI, Auteur ; Josh GOLT, Auteur ; Christine B. PEURA, Auteur ; Matthew SIEGEL, Auteur ; Carla A. MAZEFSKY, Auteur . - p.968-982. Langues : Anglais (eng) in Autism > 24-4 (May 2020) . - p.968-982 Mots-clés : Autism Inpatient Collection  adaptive behavior  autism spectrum disorders  emotional reactivity  inpatient  verbal ability Index. décimale : PER Périodiques Résumé : Large emotional reactions (e.g. outbursts, tantrums) can be common and distressing in the lives of individuals with autism spectrum disorder and their families. Most previous research that has examined these types of emotional responses have used questionnaire data or focused only on young children. In addition, very little research has included individuals across a large range of intellectual and functional abilities or individuals with more severe emotional and/or behavioral difficulties. This study examined emotional reactions to frustrating tasks in 6-21-year-olds with autism spectrum disorder who were psychiatrically hospitalized due to emotional and/or behavioral difficulties. We describe change in the amount, intensity, duration, and range of emotional reactions that the participants displayed from a neutral activity to the frustrating tasks and then to a neutral recovery period. We also examined associations between characteristics of the participants and these emotional reactions. We found that younger children displayed more negative emotions across the neutral and frustrating tasks; however, age did not relate to how big their reactions to frustration were. Furthermore, we found that individuals with fewer adaptive skills (i.e. age-appropriate life skills) and minimally verbal individuals had bigger reactions and recovered less following the frustration tasks. The results highlight the importance of examining emotional reactions in individuals with lower verbal and adaptive abilities and for interventions to consider the connection between verbal and adaptive skills and emotional reactions. En ligne : http://dx.doi.org/10.1177/1362361320908108 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425

Sleep Problems and Their Relationship to Maladaptive Behavior Severity in Psychiatrically Hospitalized Children with Autism Spectrum Disorder (ASD) / Elise M. SANNAR in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3720-3726 Titre : Sleep Problems and Their Relationship to Maladaptive Behavior Severity in Psychiatrically Hospitalized Children with Autism Spectrum Disorder (ASD) Type de document : texte imprimé Auteurs : Elise M. SANNAR, Auteur ; Tamara PALKA, Auteur ; Carol BERESFORD, Auteur ; Christine PEURA, Auteur ; Desmond KAPLAN, Auteur ; Mary VERDI, Auteur ; Matthew SIEGEL, Auteur ; Shir KAPLAN, Auteur ; Marco GRADOS, Auteur Article en page(s) : p.3720-3726 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Behavior problems  Children and adolescents  Sleep Index. décimale : PER Périodiques Résumé : We examined the relationship between sleep duration and awakenings to Aberrant Behavior Checklist-Community (ABC-C) and Autism Diagnostic Observation Schedule (ADOS-2) scores in hospitalized youth with ASD and behavioral disturbance. Participants included 106 patients with a stay of at least 10 nights. Sleep in the hospital was recorded by staff observation. Higher scores on the ABC-C (irritability, stereotypy, and hyperactivity subscales) at admission were significantly associated with fewer minutes slept during the last five nights of hospitalization. There was no association between total awakenings and ABC-C scores or ADOS-2 comparison scores. Improved understanding of the relationship between sleep quality and maladaptive behavior in this challenging cohort of patients with ASD is vital to the definition and design of future effective interventions. En ligne : http://dx.doi.org/10.1007/s10803-017-3362-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Sleep Problems and Their Relationship to Maladaptive Behavior Severity in Psychiatrically Hospitalized Children with Autism Spectrum Disorder (ASD) [texte imprimé] / Elise M. SANNAR, Auteur ; Tamara PALKA, Auteur ; Carol BERESFORD, Auteur ; Christine PEURA, Auteur ; Desmond KAPLAN, Auteur ; Mary VERDI, Auteur ; Matthew SIEGEL, Auteur ; Shir KAPLAN, Auteur ; Marco GRADOS, Auteur . - p.3720-3726. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3720-3726 Mots-clés : Autism spectrum disorder  Behavior problems  Children and adolescents  Sleep Index. décimale : PER Périodiques Résumé : We examined the relationship between sleep duration and awakenings to Aberrant Behavior Checklist-Community (ABC-C) and Autism Diagnostic Observation Schedule (ADOS-2) scores in hospitalized youth with ASD and behavioral disturbance. Participants included 106 patients with a stay of at least 10 nights. Sleep in the hospital was recorded by staff observation. Higher scores on the ABC-C (irritability, stereotypy, and hyperactivity subscales) at admission were significantly associated with fewer minutes slept during the last five nights of hospitalization. There was no association between total awakenings and ABC-C scores or ADOS-2 comparison scores. Improved understanding of the relationship between sleep quality and maladaptive behavior in this challenging cohort of patients with ASD is vital to the definition and design of future effective interventions. En ligne : http://dx.doi.org/10.1007/s10803-017-3362-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

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