An Examination of Social Skills, Friendship Quality, and Loneliness for Adults with Williams Syndrome / Marisa H. FISHER in Journal of Autism and Developmental Disorders, 50-10 (October 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3649-3660 Titre : An Examination of Social Skills, Friendship Quality, and Loneliness for Adults with Williams Syndrome Type de document : texte imprimé Auteurs : Marisa H. FISHER, Auteur ; Cynde K. JOSOL, Auteur ; Carolyn M. SHIVERS, Auteur Article en page(s) : p.3649-3660 Langues : Anglais (eng) Mots-clés : Friendship  Loneliness  Social skills  Williams Syndrome Index. décimale : PER Périodiques Résumé : Individuals with Williams Syndrome (WS) are hypersocial, overfriendly, and experience social skills deficits that may adversely impact their social outcomes. This study examined the relation between social skills, friendship quality, and feelings of loneliness for adults with WS as reported by 114 parent-adult with WS dyads. Results indicate that although most friends do not live close-by, adults with WS have good quality friendships and do not report high feelings of loneliness. Positive friendship qualities were found to partially mediate the relationship between social skills impairments and social feelings of loneliness. Findings indicate that although adults with WS experience social skills deficits and struggle to maintain friendships in their immediate community, they still report positive friendship qualities and low feelings of loneliness. En ligne : http://dx.doi.org/10.1007/s10803-020-04416-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] An Examination of Social Skills, Friendship Quality, and Loneliness for Adults with Williams Syndrome [texte imprimé] / Marisa H. FISHER, Auteur ; Cynde K. JOSOL, Auteur ; Carolyn M. SHIVERS, Auteur . - p.3649-3660. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3649-3660 Mots-clés : Friendship  Loneliness  Social skills  Williams Syndrome Index. décimale : PER Périodiques Résumé : Individuals with Williams Syndrome (WS) are hypersocial, overfriendly, and experience social skills deficits that may adversely impact their social outcomes. This study examined the relation between social skills, friendship quality, and feelings of loneliness for adults with WS as reported by 114 parent-adult with WS dyads. Results indicate that although most friends do not live close-by, adults with WS have good quality friendships and do not report high feelings of loneliness. Positive friendship qualities were found to partially mediate the relationship between social skills impairments and social feelings of loneliness. Findings indicate that although adults with WS experience social skills deficits and struggle to maintain friendships in their immediate community, they still report positive friendship qualities and low feelings of loneliness. En ligne : http://dx.doi.org/10.1007/s10803-020-04416-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Brief Report: Sibling Feelings Toward their Brother or Sister With or Without Autism or Intellectual Disability / Carolyn M. SHIVERS in Journal of Autism and Developmental Disorders, 49-1 (January 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.404-409 Titre : Brief Report: Sibling Feelings Toward their Brother or Sister With or Without Autism or Intellectual Disability Type de document : texte imprimé Auteurs : Carolyn M. SHIVERS, Auteur ; Casey MCGREGOR, Auteur Article en page(s) : p.404-409 Langues : Anglais (eng) Mots-clés : Adolescence  Autism spectrum disorder  Intellectual and developmental disabilities  Siblings Index. décimale : PER Périodiques Résumé : The present study examined 97 adolescent siblings of individuals with autism spectrum disorder (ASD), intellectual and developmental disabilities (IDD), or no disabilities. Siblings reported on their feelings toward their brother or sister (anxiety, hostility, and positive affect), and parents reported on general optimism, child behavior problems, and perceptions of how the child impacts the family, including the sibling. There were no differences between siblings of individuals with ASD and siblings of individuals with IDD on any sibling self-reported feelings toward their brother or sister, though parents of individuals with ASD reported significantly less optimism and more negative perception of the child's impact on the family than did parents of children with IDD or no disability. En ligne : http://dx.doi.org/10.1007/s10803-018-3694-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377 [article] Brief Report: Sibling Feelings Toward their Brother or Sister With or Without Autism or Intellectual Disability [texte imprimé] / Carolyn M. SHIVERS, Auteur ; Casey MCGREGOR, Auteur . - p.404-409. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.404-409 Mots-clés : Adolescence  Autism spectrum disorder  Intellectual and developmental disabilities  Siblings Index. décimale : PER Périodiques Résumé : The present study examined 97 adolescent siblings of individuals with autism spectrum disorder (ASD), intellectual and developmental disabilities (IDD), or no disabilities. Siblings reported on their feelings toward their brother or sister (anxiety, hostility, and positive affect), and parents reported on general optimism, child behavior problems, and perceptions of how the child impacts the family, including the sibling. There were no differences between siblings of individuals with ASD and siblings of individuals with IDD on any sibling self-reported feelings toward their brother or sister, though parents of individuals with ASD reported significantly less optimism and more negative perception of the child's impact on the family than did parents of children with IDD or no disability. En ligne : http://dx.doi.org/10.1007/s10803-018-3694-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=377

Diagnoses and characteristics of autism spectrum disorders in children with Prader-Willi syndrome / Elisabeth M. DYKENS in Journal of Neurodevelopmental Disorders, 9-1 (December 2017)  

Public ISBD [article]  inJournal of Neurodevelopmental Disorders > 9-1 (December 2017) . - p.18 Titre : Diagnoses and characteristics of autism spectrum disorders in children with Prader-Willi syndrome Type de document : texte imprimé Auteurs : Elisabeth M. DYKENS, Auteur ; Elizabeth ROOF, Auteur ; Hailee HUNT-HAWKINS, Auteur ; Nathan DANKNER, Auteur ; Evon B. LEE, Auteur ; Carolyn M. SHIVERS, Auteur ; Christopher DANIELL, Auteur ; Soo-Jeong KIM, Auteur Article en page(s) : p.18 Langues : Anglais (eng) Mots-clés : ASD screeners  Autism spectrum disorder (ASD)  Best-estimate diagnoses  Insistence on sameness  Prader-Willi syndrome (PWS)  Repetitive behavior  Social impairment Index. décimale : PER Périodiques Résumé : BACKGROUND: A small percentage of people with autism spectrum disorders (ASD) have alterations in chromosome 15q11.2-q3, the critical region for Prader-Willi syndrome (PWS). Data are limited, however, on the rates and characteristics of ASD in PWS. Previous estimates of ASD in PWS (25 to 41%) are questionable as they are based solely on autism screeners given to parents. Inaccurate diagnoses of ASD in PWS can mislead intervention and future research. METHODS: One hundred forty-six children and youth with PWS aged 4 to 21 years (M = 11) were assessed with the Autism Diagnostic Observation Schedule-2 (ADOS-2). An expert clinical team-made best-estimate ASD diagnoses based on ADOS-2 videotapes, calibrated severity scores, and children's developmental histories and indices of current functioning. Children were also administered the Kaufman Brief Intelligence Test-2, and parents completed the Repetitive Behavior Scale-Revised and Vineland Adaptive Behavior Scales. Scores were compared across children with PWS + ASD versus PWS only. The performance of an ASD screener, the Social Communication Questionnaire (SCQ) and the ADOS-2 were evaluated in relation to best-estimate diagnoses. RESULTS: Best-estimate diagnoses of ASD were made in 18 children, or 12.3% of the sample, and the majority of them had the maternal uniparental disomy (mUPD) PWS genetic subtype. Compared to the PWS-only group, children with PWS + ASD had lower verbal and composite IQ's and adaptive daily living and socialization skills, as well as elevated stereotypies and restricted interests. Regardless of ASD status, compulsivity and insistence on sameness in routines or events were seen in 76-100% of children and were robustly correlated with lower adaptive functioning. The SCQ yielded a 29-49% chance that screen-positive cases will indeed have ASD. The ADOS-2 had higher sensitivity, specificity and predictive values. Communication problems were seen in children who were ADOS-2 positive but deemed not to have ASD by the clinical team. CONCLUSIONS: Autism screeners should not be the sole index of probable ASD in PWS; children need to be directly observed and evaluated. Compulsivity and insistence on sameness are salient in PWS and likely impede adaptive functioning. Most children with PWS only evidenced sub-threshold problems in social interactions that could signal risks for other psychopathologies. En ligne : http://dx.doi.org/10.1186/s11689-017-9200-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=350 [article] Diagnoses and characteristics of autism spectrum disorders in children with Prader-Willi syndrome [texte imprimé] / Elisabeth M. DYKENS, Auteur ; Elizabeth ROOF, Auteur ; Hailee HUNT-HAWKINS, Auteur ; Nathan DANKNER, Auteur ; Evon B. LEE, Auteur ; Carolyn M. SHIVERS, Auteur ; Christopher DANIELL, Auteur ; Soo-Jeong KIM, Auteur . - p.18. Langues : Anglais (eng) in Journal of Neurodevelopmental Disorders > 9-1 (December 2017) . - p.18 Mots-clés : ASD screeners  Autism spectrum disorder (ASD)  Best-estimate diagnoses  Insistence on sameness  Prader-Willi syndrome (PWS)  Repetitive behavior  Social impairment Index. décimale : PER Périodiques Résumé : BACKGROUND: A small percentage of people with autism spectrum disorders (ASD) have alterations in chromosome 15q11.2-q3, the critical region for Prader-Willi syndrome (PWS). Data are limited, however, on the rates and characteristics of ASD in PWS. Previous estimates of ASD in PWS (25 to 41%) are questionable as they are based solely on autism screeners given to parents. Inaccurate diagnoses of ASD in PWS can mislead intervention and future research. METHODS: One hundred forty-six children and youth with PWS aged 4 to 21 years (M = 11) were assessed with the Autism Diagnostic Observation Schedule-2 (ADOS-2). An expert clinical team-made best-estimate ASD diagnoses based on ADOS-2 videotapes, calibrated severity scores, and children's developmental histories and indices of current functioning. Children were also administered the Kaufman Brief Intelligence Test-2, and parents completed the Repetitive Behavior Scale-Revised and Vineland Adaptive Behavior Scales. Scores were compared across children with PWS + ASD versus PWS only. The performance of an ASD screener, the Social Communication Questionnaire (SCQ) and the ADOS-2 were evaluated in relation to best-estimate diagnoses. RESULTS: Best-estimate diagnoses of ASD were made in 18 children, or 12.3% of the sample, and the majority of them had the maternal uniparental disomy (mUPD) PWS genetic subtype. Compared to the PWS-only group, children with PWS + ASD had lower verbal and composite IQ's and adaptive daily living and socialization skills, as well as elevated stereotypies and restricted interests. Regardless of ASD status, compulsivity and insistence on sameness in routines or events were seen in 76-100% of children and were robustly correlated with lower adaptive functioning. The SCQ yielded a 29-49% chance that screen-positive cases will indeed have ASD. The ADOS-2 had higher sensitivity, specificity and predictive values. Communication problems were seen in children who were ADOS-2 positive but deemed not to have ASD by the clinical team. CONCLUSIONS: Autism screeners should not be the sole index of probable ASD in PWS; children need to be directly observed and evaluated. Compulsivity and insistence on sameness are salient in PWS and likely impede adaptive functioning. Most children with PWS only evidenced sub-threshold problems in social interactions that could signal risks for other psychopathologies. En ligne : http://dx.doi.org/10.1186/s11689-017-9200-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=350

Life Satisfaction Among Mothers of Individuals with Prader-Willi Syndrome / Carolyn M. SHIVERS in Journal of Autism and Developmental Disorders, 46-6 (June 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-6 (June 2016) . - p.2126-2137 Titre : Life Satisfaction Among Mothers of Individuals with Prader-Willi Syndrome Type de document : texte imprimé Auteurs : Carolyn M. SHIVERS, Auteur ; Caroline L. LEONCZYK, Auteur ; Elisabeth M. DYKENS, Auteur Article en page(s) : p.2126-2137 Langues : Anglais (eng) Mots-clés : Prader-Willi syndrome  Life satisfaction  Mothers  Coping Index. décimale : PER Périodiques Résumé : Mothers of individuals with Prader-Willi syndrome (PWS) often experience numerous stressors, even when compared to mothers of children with other intellectual and developmental disabilities. Despite this, these mothers show great variability in self-reported life satisfaction. Using data from a longitudinal study of individuals with PWS and their families, the present study analyzed factors related to maternal life satisfaction, both cross-sectionally and over time. Results show that both child factors (e.g., behavior problems, hyperphagia) and maternal factors (e.g., stress, coping style) were significantly related to maternal life satisfaction. However, none of the tested variables predicted change in life satisfaction over time. Research and practice implications are discussed. En ligne : http://dx.doi.org/10.1007/s10803-016-2741-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288 [article] Life Satisfaction Among Mothers of Individuals with Prader-Willi Syndrome [texte imprimé] / Carolyn M. SHIVERS, Auteur ; Caroline L. LEONCZYK, Auteur ; Elisabeth M. DYKENS, Auteur . - p.2126-2137. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-6 (June 2016) . - p.2126-2137 Mots-clés : Prader-Willi syndrome  Life satisfaction  Mothers  Coping Index. décimale : PER Périodiques Résumé : Mothers of individuals with Prader-Willi syndrome (PWS) often experience numerous stressors, even when compared to mothers of children with other intellectual and developmental disabilities. Despite this, these mothers show great variability in self-reported life satisfaction. Using data from a longitudinal study of individuals with PWS and their families, the present study analyzed factors related to maternal life satisfaction, both cross-sectionally and over time. Results show that both child factors (e.g., behavior problems, hyperphagia) and maternal factors (e.g., stress, coping style) were significantly related to maternal life satisfaction. However, none of the tested variables predicted change in life satisfaction over time. Research and practice implications are discussed. En ligne : http://dx.doi.org/10.1007/s10803-016-2741-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288

Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis / Gloria K. LEE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1936-1947 Titre : Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis Type de document : texte imprimé Auteurs : Gloria K. LEE, Auteur ; Katarina KRIZOVA, Auteur ; Carolyn M. SHIVERS, Auteur Article en page(s) : p.1936-1947 Langues : Anglais (eng) Mots-clés : caregiving strain  coping  mental health  service needs Index. décimale : PER Périodiques Résumé : This study investigated the relationships among caregiving strain, coping, and mental health among caregivers of individuals with autism spectrum disorder (ASD) and the mediational moderation of caregiver needs. One hundred and ninety-three caregivers of individuals with ASD completed an online survey. Results showed that maladaptive coping behaviors were significant in mediating the relationship between strain and mental health. Professional service and emotional caregiving needs moderated the relationship between maladaptive coping and mental health at times of high caregiving strain, but not involvement, health information, and instrumental support needs. Results highlighted the negative effect of maladaptive coping, as well as professional service and emotional support needs were salient in moderating coping and mental health in times of high caregiving strain. En ligne : http://dx.doi.org/10.1177/1362361319833678 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis [texte imprimé] / Gloria K. LEE, Auteur ; Katarina KRIZOVA, Auteur ; Carolyn M. SHIVERS, Auteur . - p.1936-1947. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1936-1947 Mots-clés : caregiving strain  coping  mental health  service needs Index. décimale : PER Périodiques Résumé : This study investigated the relationships among caregiving strain, coping, and mental health among caregivers of individuals with autism spectrum disorder (ASD) and the mediational moderation of caregiver needs. One hundred and ninety-three caregivers of individuals with ASD completed an online survey. Results showed that maladaptive coping behaviors were significant in mediating the relationship between strain and mental health. Professional service and emotional caregiving needs moderated the relationship between maladaptive coping and mental health at times of high caregiving strain, but not involvement, health information, and instrumental support needs. Results highlighted the negative effect of maladaptive coping, as well as professional service and emotional support needs were salient in moderating coping and mental health in times of high caregiving strain. En ligne : http://dx.doi.org/10.1177/1362361319833678 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Patterns and Predictors of Anxiety Among Siblings of Children with Autism Spectrum Disorders / Carolyn M. SHIVERS in Journal of Autism and Developmental Disorders, 43-6 (June 2013)  

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Psychometric Properties and Utility of the Social Vulnerability Questionnaire for Individuals with Intellectual and Developmental Disabilities / Marisa H. FISHER in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

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Religiosity, Spirituality, and Socioemotional Functioning in Mothers of Children with Autism Spectrum Disorder / Naomi V. EKAS in Journal of Autism and Developmental Disorders, 39-5 (May 2009)  

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Self-reported stress among adolescent siblings of individuals with autism spectrum disorder and Down syndrome / Carolyn M. SHIVERS in Autism, 23-1 (January 2019)  

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Sibling Involvement in Interventions for Individuals with Autism Spectrum Disorders: A Systematic Review / Carolyn M. SHIVERS in Journal of Autism and Developmental Disorders, 45-3 (March 2015)  

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