Parent-child concordance on the Pubertal Development Scale in typically developing and autistic youth / Ann CLAWSON in Research in Autism Spectrum Disorders, 77 (September 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 77 (September 2020) . - 101610 Titre : Parent-child concordance on the Pubertal Development Scale in typically developing and autistic youth Type de document : texte imprimé Auteurs : Ann CLAWSON, Auteur ; John F. STRANG, Auteur ; Gregory L. WALLACE, Auteur ; Veronica GOMEZ-LOBO, Auteur ; Allison JACK, Auteur ; Sara J. WEBB, Auteur ; Kevin A. PELPHREY, Auteur Article en page(s) : 101610 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder (ASD)  Puberty  Pubertal Development Scale Index. décimale : PER Périodiques Résumé : Background Characterizing puberty in autism spectrum disorder (ASD) is critical given the direct impacts of pubertal progression on neural, cognitive, and physical maturation. Limited information is available about the utility and parent-child concordance of the self-report and parent-report Pubertal Development Scale (PDS) in ASD, an economical and easily administered measure. Method The primary aim of this study was to examine the concordance between self-report and parent-report PDS ratings in autistic males and females ages 8–17y compared to typically developing (TD) youth, including using the PDS to derive informant-based estimates of adrenal and gonadal development. We hypothesized that there would be greater parent-youth discrepancies in pubertal ratings among autistic males. Our second aim was exploratory; we examined whether individual characteristics impact PDS concordance and hypothesized that lower intellectual and adaptive skills, higher autistic traits, and reduced self-awareness/monitoring would correlate with lower concordance. Results There were no significant diagnostic group differences in parent-youth concordance for overall PDS scores among males and females. Autistic males had significantly lower inter-item agreement with their parents than TD males and had lower agreement for both adrenal and gonadal aspects of pubertal maturation (adrenal κ = .48; gonadal κ = .55). Conclusions The PDS is a feasible measure in ASD. Greater parent-youth discrepancies in autistic males may be due to reduced parental awareness or reduced insight into pubertal maturation among autistic males. Future research is needed to further elucidate individual and/or environmental characteristics that influence youth- and parent-reported PDS scores, including differences in self-perception and insight. En ligne : https://doi.org/10.1016/j.rasd.2020.101610 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Parent-child concordance on the Pubertal Development Scale in typically developing and autistic youth [texte imprimé] / Ann CLAWSON, Auteur ; John F. STRANG, Auteur ; Gregory L. WALLACE, Auteur ; Veronica GOMEZ-LOBO, Auteur ; Allison JACK, Auteur ; Sara J. WEBB, Auteur ; Kevin A. PELPHREY, Auteur . - 101610. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 77 (September 2020) . - 101610 Mots-clés : Autism spectrum disorder (ASD)  Puberty  Pubertal Development Scale Index. décimale : PER Périodiques Résumé : Background Characterizing puberty in autism spectrum disorder (ASD) is critical given the direct impacts of pubertal progression on neural, cognitive, and physical maturation. Limited information is available about the utility and parent-child concordance of the self-report and parent-report Pubertal Development Scale (PDS) in ASD, an economical and easily administered measure. Method The primary aim of this study was to examine the concordance between self-report and parent-report PDS ratings in autistic males and females ages 8–17y compared to typically developing (TD) youth, including using the PDS to derive informant-based estimates of adrenal and gonadal development. We hypothesized that there would be greater parent-youth discrepancies in pubertal ratings among autistic males. Our second aim was exploratory; we examined whether individual characteristics impact PDS concordance and hypothesized that lower intellectual and adaptive skills, higher autistic traits, and reduced self-awareness/monitoring would correlate with lower concordance. Results There were no significant diagnostic group differences in parent-youth concordance for overall PDS scores among males and females. Autistic males had significantly lower inter-item agreement with their parents than TD males and had lower agreement for both adrenal and gonadal aspects of pubertal maturation (adrenal κ = .48; gonadal κ = .55). Conclusions The PDS is a feasible measure in ASD. Greater parent-youth discrepancies in autistic males may be due to reduced parental awareness or reduced insight into pubertal maturation among autistic males. Future research is needed to further elucidate individual and/or environmental characteristics that influence youth- and parent-reported PDS scores, including differences in self-perception and insight. En ligne : https://doi.org/10.1016/j.rasd.2020.101610 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

"They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents / John F. STRANG in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4039-4055 Titre : "They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents Type de document : texte imprimé Auteurs : John F. STRANG, Auteur ; Meredith D. POWERS, Auteur ; Megan KNAUSS, Auteur ; Ely SIBARIUM, Auteur ; Scott F. LEIBOWITZ, Auteur ; Lauren KENWORTHY, Auteur ; Eleonora SADIKOVA, Auteur ; Shannon WYSS, Auteur ; Laura WILLING, Auteur ; Reid CAPLAN, Auteur ; Noor PERVEZ, Auteur ; Joel NOWAK, Auteur ; Dena GOHARI, Auteur ; Veronica GOMEZ-LOBO, Auteur ; David CALL, Auteur ; Laura G. ANTHONY, Auteur Article en page(s) : p.4039-4055 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Autistic  Gender dysphoria  Gender minority  Gender nonbinary  Gender-diverse  Neurodiversity  Transgender Index. décimale : PER Périodiques Résumé : Despite research exploring autism in gender-diverse adolescents, no studies have elicited these individuals' perspectives. In-depth interviews with 22 well-characterized autistic gender-diverse adolescents revealed critical themes, including: recollections of pre-pubertal gender nonconformity; vivid experiences of gender dysphoria; a fear of social gender expression due to perceived animosity toward transgender people; and specific challenges that result from the interplay of gender diversity and neurodiversity. During the ~ 22 month study social gender affirmation increased in six participants and gender dysphoria attenuated in four participants. Given the ethical imperative to understand and prioritize the voiced perspectives and needs of autistic gender minority adolescents as well as the discovery of shared themes and experiences in this population, results should inform clinical research approaches and priorities. En ligne : http://dx.doi.org/10.1007/s10803-018-3723-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] "They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents [texte imprimé] / John F. STRANG, Auteur ; Meredith D. POWERS, Auteur ; Megan KNAUSS, Auteur ; Ely SIBARIUM, Auteur ; Scott F. LEIBOWITZ, Auteur ; Lauren KENWORTHY, Auteur ; Eleonora SADIKOVA, Auteur ; Shannon WYSS, Auteur ; Laura WILLING, Auteur ; Reid CAPLAN, Auteur ; Noor PERVEZ, Auteur ; Joel NOWAK, Auteur ; Dena GOHARI, Auteur ; Veronica GOMEZ-LOBO, Auteur ; David CALL, Auteur ; Laura G. ANTHONY, Auteur . - p.4039-4055. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4039-4055 Mots-clés : Autism spectrum disorder  Autistic  Gender dysphoria  Gender minority  Gender nonbinary  Gender-diverse  Neurodiversity  Transgender Index. décimale : PER Périodiques Résumé : Despite research exploring autism in gender-diverse adolescents, no studies have elicited these individuals' perspectives. In-depth interviews with 22 well-characterized autistic gender-diverse adolescents revealed critical themes, including: recollections of pre-pubertal gender nonconformity; vivid experiences of gender dysphoria; a fear of social gender expression due to perceived animosity toward transgender people; and specific challenges that result from the interplay of gender diversity and neurodiversity. During the ~ 22 month study social gender affirmation increased in six participants and gender dysphoria attenuated in four participants. Given the ethical imperative to understand and prioritize the voiced perspectives and needs of autistic gender minority adolescents as well as the discovery of shared themes and experiences in this population, results should inform clinical research approaches and priorities. En ligne : http://dx.doi.org/10.1007/s10803-018-3723-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

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