Inextricably tied: Nonbinary autistic individuals' views on how their gender identity and autism are connected / Hillary STEINBERG ; Tamara GARFIELD ; Kyle CHVASTA ; Katherine ARDELEANU ; Maci BROWN ; Lindsay SHEA in Autism, 28-12 (December 2024)  

Public ISBD [article]  inAutism > 28-12 (December 2024) . - p.3156-3166 Titre : Inextricably tied: Nonbinary autistic individuals' views on how their gender identity and autism are connected Type de document : Texte imprimé et/ou numérique Auteurs : Hillary STEINBERG, Auteur ; Tamara GARFIELD, Auteur ; Kyle CHVASTA, Auteur ; Katherine ARDELEANU, Auteur ; Maci BROWN, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.3156-3166 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  LGBT  qualitative research  transgender Index. décimale : PER Périodiques Résumé : This study explores the experiences and identities of nonbinary autistic people, an under-researched population. While past studies have posited a co-occurrence of autism and transgender identity, little research focuses specifically on nonbinary autistic adults. This community-based study draws on interview data from 44 nonbinary participants. Participants expressed nuanced and informed understandings of their gender identities, highlighting fluidity and a rejection traditional binary gender roles. Participants discussed the connection of their autistic and nonbinary identities and how their identity is shaped by external forces such as politics, community, and interpersonal relationships. Findings highlight the need for the inclusion of nonbinary autistic people in autism research and for autism services and programming to be affirming of various gender identities. Lay abstract This study explores the experiences and identities of nonbinary autistic people. The relationship between autistic and nonbinary identities has not been researched in detail. Few studies focus specifically on nonbinary autistic adults. We interviewed 44 nonbinary individuals for this study. Participants had thought-out opinions on gender identity and emphasized identifying with fluidity rather than traditional gender roles. Participants discussed the connection of their autistic and nonbinary identities and how it affected how people saw them and how they saw themselves. We have recommendations for programming, policy, and research from these findings. En ligne : https://dx.doi.org/10.1177/13623613241257600 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=543 [article] Inextricably tied: Nonbinary autistic individuals' views on how their gender identity and autism are connected [Texte imprimé et/ou numérique] / Hillary STEINBERG, Auteur ; Tamara GARFIELD, Auteur ; Kyle CHVASTA, Auteur ; Katherine ARDELEANU, Auteur ; Maci BROWN, Auteur ; Lindsay SHEA, Auteur . - p.3156-3166. Langues : Anglais (eng) in Autism > 28-12 (December 2024) . - p.3156-3166 Mots-clés : adults  autism spectrum disorders  LGBT  qualitative research  transgender Index. décimale : PER Périodiques Résumé : This study explores the experiences and identities of nonbinary autistic people, an under-researched population. While past studies have posited a co-occurrence of autism and transgender identity, little research focuses specifically on nonbinary autistic adults. This community-based study draws on interview data from 44 nonbinary participants. Participants expressed nuanced and informed understandings of their gender identities, highlighting fluidity and a rejection traditional binary gender roles. Participants discussed the connection of their autistic and nonbinary identities and how their identity is shaped by external forces such as politics, community, and interpersonal relationships. Findings highlight the need for the inclusion of nonbinary autistic people in autism research and for autism services and programming to be affirming of various gender identities. Lay abstract This study explores the experiences and identities of nonbinary autistic people. The relationship between autistic and nonbinary identities has not been researched in detail. Few studies focus specifically on nonbinary autistic adults. We interviewed 44 nonbinary individuals for this study. Participants had thought-out opinions on gender identity and emphasized identifying with fluidity rather than traditional gender roles. Participants discussed the connection of their autistic and nonbinary identities and how it affected how people saw them and how they saw themselves. We have recommendations for programming, policy, and research from these findings. En ligne : https://dx.doi.org/10.1177/13623613241257600 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=543

Mental health hospitalization and readmission in autistic adults in a national U.S. sample / Joseph WRIGHT ; Samuelle VOLTAIRE ; Tamara GARFIELD ; Anne M. ROUX in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202582 Titre : Mental health hospitalization and readmission in autistic adults in a national U.S. sample Type de document : Texte imprimé et/ou numérique Auteurs : Joseph WRIGHT, Auteur ; Samuelle VOLTAIRE, Auteur ; Tamara GARFIELD, Auteur ; Anne M. ROUX, Auteur Article en page(s) : 202582 Langues : Anglais (eng) Mots-clés : Mental health hospitalization  Readmission  Autism  Adults Index. décimale : PER Périodiques Résumé : Objective The objectives of this study were to, 1) estimate U.S. national rates of mental health hospitalization (MHH) and all-cause readmission, and 2) explore characteristics associated with readmissions for autistic and non-autistic adults. Methods This study used the National Readmission Database (NRD) 2019 to examine 30-day all-cause readmissions following MHH in adults with autism, intellectual disability, ADHD, and mental health conditions. Analysis estimated rates of MHH by group, rates and odds of readmission, and factors associated with readmission. Results More than one-third (36 %) of all admissions for autistic adults in 2019 were MHH, with schizophrenia the most common reason. Of all MHH index events in autistic adults, 17 % had a 30-day all-cause readmission. Readmissions were more common in autistic adults with ID (25 %) than in autistic adults without ID (15 %). Readmission was also slightly more common in female autistic adults (20 %) than male autistic adults (16 %), and autistic females had greater odds of readmission (OR 1.30, 95 % CI 1.09, 1.55) than autistic males, which was not true in non-autistic adults. Initial admission for schizophrenia was associated with increased odds of readmission for all groups (OR 1.37, 95 % CI 1.32, 1.42). Conclusions The complexity of mental health conditions and their care in autistic adults underscores the urgent need for accessible and tailored mental health care services. Addressing these challenges will require collaborative efforts across healthcare sectors to create comprehensive, inclusive, and person-centered approaches to mental health care delivery for autistic adults across often disjointed service sectors. En ligne : https://doi.org/10.1016/j.reia.2025.202582 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Mental health hospitalization and readmission in autistic adults in a national U.S. sample [Texte imprimé et/ou numérique] / Joseph WRIGHT, Auteur ; Samuelle VOLTAIRE, Auteur ; Tamara GARFIELD, Auteur ; Anne M. ROUX, Auteur . - 202582. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202582 Mots-clés : Mental health hospitalization  Readmission  Autism  Adults Index. décimale : PER Périodiques Résumé : Objective The objectives of this study were to, 1) estimate U.S. national rates of mental health hospitalization (MHH) and all-cause readmission, and 2) explore characteristics associated with readmissions for autistic and non-autistic adults. Methods This study used the National Readmission Database (NRD) 2019 to examine 30-day all-cause readmissions following MHH in adults with autism, intellectual disability, ADHD, and mental health conditions. Analysis estimated rates of MHH by group, rates and odds of readmission, and factors associated with readmission. Results More than one-third (36 %) of all admissions for autistic adults in 2019 were MHH, with schizophrenia the most common reason. Of all MHH index events in autistic adults, 17 % had a 30-day all-cause readmission. Readmissions were more common in autistic adults with ID (25 %) than in autistic adults without ID (15 %). Readmission was also slightly more common in female autistic adults (20 %) than male autistic adults (16 %), and autistic females had greater odds of readmission (OR 1.30, 95 % CI 1.09, 1.55) than autistic males, which was not true in non-autistic adults. Initial admission for schizophrenia was associated with increased odds of readmission for all groups (OR 1.37, 95 % CI 1.32, 1.42). Conclusions The complexity of mental health conditions and their care in autistic adults underscores the urgent need for accessible and tailored mental health care services. Addressing these challenges will require collaborative efforts across healthcare sectors to create comprehensive, inclusive, and person-centered approaches to mental health care delivery for autistic adults across often disjointed service sectors. En ligne : https://doi.org/10.1016/j.reia.2025.202582 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Self-identification of autism: Why some autistic adults lack a clinical diagnosis and why this matters for inclusion / Katherine ARDELEANU in Autism, 29-9 (September 2025)  

Public ISBD [article]  inAutism > 29-9 (September 2025) . - p.2344-2355 Titre : Self-identification of autism: Why some autistic adults lack a clinical diagnosis and why this matters for inclusion Type de document : Texte imprimé et/ou numérique Auteurs : Katherine ARDELEANU, Auteur ; Hillary STEINBERG, Auteur ; Tamara GARFIELD, Auteur ; Samuelle VOLTAIRE, Auteur ; Lindsay SHEA, Auteur ; Maci BROWN, Auteur ; Kyle CHVASTA, Auteur ; Catherine Do TAN, Auteur Article en page(s) : p.2344-2355 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  diagnosis  policy  qualitative research  queer  transgender Index. décimale : PER Périodiques Résumé : Autism research and services have historically focused on individuals with a formal autism diagnosis. However, activists and self-advocates in the United States recognize that there are financial and clinical barriers impeding access to formal diagnostic evaluations for autism. Research also suggests that groups on the margins of autism, specifically those who are not White, young, or assigned male at birth, receive later diagnoses, if diagnosed at all. In particular, individuals who are autistic and LGTBQ+ are likely to not be afforded opportunities to be assessed and diagnosed. We conducted interviews with 65 queer and transgender autistic adults who either self-identified as autistic or had a formal autism diagnosis about their experiences with and perceptions of autism diagnosis. We found that participants derived a sense of meaning and affirmation from their autistic diagnosis and/or identity, faced significant barriers and deterrents to diagnosis, and experienced invalidation as both a barrier to and product of diagnosis. We argue that self-identified autistic individuals provide valuable context and data for many of the social processes and preferences reported by autistic people. We offer recommendations for research and services, specifically that many should not require formal autism diagnoses of participants.Lay abstract Most autism research and services focus on individuals with formal autism diagnoses. However, autism activists and self-advocates have raised awareness about the challenges that can prevent individuals from seeking or getting an autism diagnosis. We interviewed 65 queer and transgender adults who either self-identified as autistic without a formal diagnosis or who had a formal autism diagnosis. We found that participants made meaning of their autistic diagnosis and/or identity and found affirmation in this, faced significant barriers and deterrents to getting diagnosed, and experienced invalidation as both a barrier to and product of diagnosis. Due to the challenges that individuals face in getting a diagnosis, we recommend that researchers and advocates consider including self-identified autistic individuals in research and services. En ligne : https://dx.doi.org/10.1177/13623613241297222 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] Self-identification of autism: Why some autistic adults lack a clinical diagnosis and why this matters for inclusion [Texte imprimé et/ou numérique] / Katherine ARDELEANU, Auteur ; Hillary STEINBERG, Auteur ; Tamara GARFIELD, Auteur ; Samuelle VOLTAIRE, Auteur ; Lindsay SHEA, Auteur ; Maci BROWN, Auteur ; Kyle CHVASTA, Auteur ; Catherine Do TAN, Auteur . - p.2344-2355. Langues : Anglais (eng) in Autism > 29-9 (September 2025) . - p.2344-2355 Mots-clés : adults  autism spectrum disorders  diagnosis  policy  qualitative research  queer  transgender Index. décimale : PER Périodiques Résumé : Autism research and services have historically focused on individuals with a formal autism diagnosis. However, activists and self-advocates in the United States recognize that there are financial and clinical barriers impeding access to formal diagnostic evaluations for autism. Research also suggests that groups on the margins of autism, specifically those who are not White, young, or assigned male at birth, receive later diagnoses, if diagnosed at all. In particular, individuals who are autistic and LGTBQ+ are likely to not be afforded opportunities to be assessed and diagnosed. We conducted interviews with 65 queer and transgender autistic adults who either self-identified as autistic or had a formal autism diagnosis about their experiences with and perceptions of autism diagnosis. We found that participants derived a sense of meaning and affirmation from their autistic diagnosis and/or identity, faced significant barriers and deterrents to diagnosis, and experienced invalidation as both a barrier to and product of diagnosis. We argue that self-identified autistic individuals provide valuable context and data for many of the social processes and preferences reported by autistic people. We offer recommendations for research and services, specifically that many should not require formal autism diagnoses of participants.Lay abstract Most autism research and services focus on individuals with formal autism diagnoses. However, autism activists and self-advocates have raised awareness about the challenges that can prevent individuals from seeking or getting an autism diagnosis. We interviewed 65 queer and transgender adults who either self-identified as autistic without a formal diagnosis or who had a formal autism diagnosis. We found that participants made meaning of their autistic diagnosis and/or identity and found affirmation in this, faced significant barriers and deterrents to getting diagnosed, and experienced invalidation as both a barrier to and product of diagnosis. Due to the challenges that individuals face in getting a diagnosis, we recommend that researchers and advocates consider including self-identified autistic individuals in research and services. En ligne : https://dx.doi.org/10.1177/13623613241297222 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

Vocational Rehabilitation Service Utilization and Employment Outcomes Among Secondary Students on the Autism Spectrum / Anne M ROUX in Journal of Autism and Developmental Disorders, 51-1 (January 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-1 (January 2021) . - p.212-226 Titre : Vocational Rehabilitation Service Utilization and Employment Outcomes Among Secondary Students on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Anne M ROUX, Auteur ; Jessica E. RAST, Auteur ; Kristy A. ANDERSON, Auteur ; Tamara GARFIELD, Auteur ; Paul T SHATTUCK, Auteur Article en page(s) : p.212-226 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Employment  Secondary students  Service utilization  Transition-age youth  Vocational rehabilitation Index. décimale : PER Périodiques Résumé : U.S. policy interventions encourage earlier provision of Vocational Rehabilitation (VR) services to support students and youth with disabilities such as autism spectrum disorder (ASD) during the transition from school to work. We analyzed Rehabilitation Services Administration (RSA-911) data using multivariable logistic regression to determine the association of VR services receipt with employment outcomes for students ages 16-21, same-age non-student youth and young adults with ASD. Students with autism received job-related services (job search, job placement, and on-the-job supports) at rates significantly below comparison groups, even though odds of successful employment at VR exit were significantly higher if they received these services. Findings suggest that rates of employment among students with autism might be improved with intentional delivery of job-related services. En ligne : http://dx.doi.org/10.1007/s10803-020-04533-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437 [article] Vocational Rehabilitation Service Utilization and Employment Outcomes Among Secondary Students on the Autism Spectrum [Texte imprimé et/ou numérique] / Anne M ROUX, Auteur ; Jessica E. RAST, Auteur ; Kristy A. ANDERSON, Auteur ; Tamara GARFIELD, Auteur ; Paul T SHATTUCK, Auteur . - p.212-226. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-1 (January 2021) . - p.212-226 Mots-clés : Autism spectrum disorder  Employment  Secondary students  Service utilization  Transition-age youth  Vocational rehabilitation Index. décimale : PER Périodiques Résumé : U.S. policy interventions encourage earlier provision of Vocational Rehabilitation (VR) services to support students and youth with disabilities such as autism spectrum disorder (ASD) during the transition from school to work. We analyzed Rehabilitation Services Administration (RSA-911) data using multivariable logistic regression to determine the association of VR services receipt with employment outcomes for students ages 16-21, same-age non-student youth and young adults with ASD. Students with autism received job-related services (job search, job placement, and on-the-job supports) at rates significantly below comparison groups, even though odds of successful employment at VR exit were significantly higher if they received these services. Findings suggest that rates of employment among students with autism might be improved with intentional delivery of job-related services. En ligne : http://dx.doi.org/10.1007/s10803-020-04533-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437

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