Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature / Amy STEDMAN in Journal of Autism and Developmental Disorders, 49-4 (April 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1378-1390 Titre : Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature Type de document : texte imprimé Auteurs : Amy STEDMAN, Auteur ; Briana J. TAYLOR, Auteur ; Michael ERARD, Auteur ; Christine PEURA, Auteur ; Matthew SIEGEL, Auteur Article en page(s) : p.1378-1390 Langues : Anglais (eng) Mots-clés : Autism  Cognitive  Communication  Severely affected Index. décimale : PER Périodiques Résumé : Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991-2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. En ligne : https://dx.doi.org/10.1007/s10803-018-3844-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388 [article] Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature [texte imprimé] / Amy STEDMAN, Auteur ; Briana J. TAYLOR, Auteur ; Michael ERARD, Auteur ; Christine PEURA, Auteur ; Matthew SIEGEL, Auteur . - p.1378-1390. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1378-1390 Mots-clés : Autism  Cognitive  Communication  Severely affected Index. décimale : PER Périodiques Résumé : Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991-2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. En ligne : https://dx.doi.org/10.1007/s10803-018-3844-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388

From Alert Child to Sleepy Adolescent: Age Trends in Chronotype, Social Jetlag, and Sleep Problems in Youth with Autism / Briana J. TAYLOR in Journal of Autism and Developmental Disorders, 54-12 (December 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-12 (December 2024) . - p.4529-4539 Titre : From Alert Child to Sleepy Adolescent: Age Trends in Chronotype, Social Jetlag, and Sleep Problems in Youth with Autism Type de document : texte imprimé Auteurs : Briana J. TAYLOR, Auteur ; Kahsi A. PEDERSEN, Auteur ; Carla A. MAZEFSKY, Auteur ; Martine LAMY, Auteur ; Charles F. REYNOLDS, Auteur ; William R. STRATHMANN, Auteur ; Matthew SIEGEL, Auteur Article en page(s) : p.4529-4539 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Developmental changes in sleep in youth with autism spectrum disorder (ASD) are understudied. In non-ASD youth, adolescents exhibit a "night owl chronotype" (i.e., later sleep/wake timing) and social jetlag (i.e., shifts in sleep timing across school nights and weekends), with corresponding sleep problems. The purpose of this study is to evaluate age trends in chronotype, social jetlag, and sleep problems in high-risk youth with ASD. En ligne : https://doi.org/10.1007/s10803-023-06187-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540 [article] From Alert Child to Sleepy Adolescent: Age Trends in Chronotype, Social Jetlag, and Sleep Problems in Youth with Autism [texte imprimé] / Briana J. TAYLOR, Auteur ; Kahsi A. PEDERSEN, Auteur ; Carla A. MAZEFSKY, Auteur ; Martine LAMY, Auteur ; Charles F. REYNOLDS, Auteur ; William R. STRATHMANN, Auteur ; Matthew SIEGEL, Auteur . - p.4529-4539. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-12 (December 2024) . - p.4529-4539 Index. décimale : PER Périodiques Résumé : Developmental changes in sleep in youth with autism spectrum disorder (ASD) are understudied. In non-ASD youth, adolescents exhibit a "night owl chronotype" (i.e., later sleep/wake timing) and social jetlag (i.e., shifts in sleep timing across school nights and weekends), with corresponding sleep problems. The purpose of this study is to evaluate age trends in chronotype, social jetlag, and sleep problems in high-risk youth with ASD. En ligne : https://doi.org/10.1007/s10803-023-06187-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540

Inpatient Psychiatric Treatment of Serious Behavioral Problems in Children with Autism Spectrum Disorder (ASD): Specialized Versus General Inpatient Units / Briana J. TAYLOR in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1242-1249 Titre : Inpatient Psychiatric Treatment of Serious Behavioral Problems in Children with Autism Spectrum Disorder (ASD): Specialized Versus General Inpatient Units Type de document : texte imprimé Auteurs : Briana J. TAYLOR, Auteur ; Kevin B. SANDERS, Auteur ; Marie KYLE, Auteur ; Kahsi A. PEDERSEN, Auteur ; Jeremy VEENSTRA-VANDERWEELE, Auteur ; Matthew SIEGEL, Auteur Article en page(s) : p.1242-1249 Langues : Anglais (eng) Mots-clés : Autism  Inpatient  Psychiatric hospitalization  Specialized unit Index. décimale : PER Périodiques Résumé : Psychiatric hospitalization of children with autism spectrum disorder (ASD) is common, but there is little comparative information available on different psychiatric hospital treatment models. Children with ASD ages 4-20 were enrolled upon admission to either a specialized (N = 53) or a general child psychiatric unit (N = 27). Caregivers completed the Aberrant Behavioral Checklist-Irritability Sub-scale (ABC-I) at admission, discharge, and 2 months post-discharge and reported information on crisis service utilization 2 months post-discharge. Children treated in the specialized unit had lower ABC-I scores at discharge and 2 months post-discharge (F = 8.98, p = 0.003) and were significantly less likely to experience an ER visit within 2 months post-discharge (X(2) = 5.51, p = 0.019). Specialized inpatient units may be more effective for children with ASD in need of psychiatric hospitalization. En ligne : http://dx.doi.org/10.1007/s10803-018-3816-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386 [article] Inpatient Psychiatric Treatment of Serious Behavioral Problems in Children with Autism Spectrum Disorder (ASD): Specialized Versus General Inpatient Units [texte imprimé] / Briana J. TAYLOR, Auteur ; Kevin B. SANDERS, Auteur ; Marie KYLE, Auteur ; Kahsi A. PEDERSEN, Auteur ; Jeremy VEENSTRA-VANDERWEELE, Auteur ; Matthew SIEGEL, Auteur . - p.1242-1249. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1242-1249 Mots-clés : Autism  Inpatient  Psychiatric hospitalization  Specialized unit Index. décimale : PER Périodiques Résumé : Psychiatric hospitalization of children with autism spectrum disorder (ASD) is common, but there is little comparative information available on different psychiatric hospital treatment models. Children with ASD ages 4-20 were enrolled upon admission to either a specialized (N = 53) or a general child psychiatric unit (N = 27). Caregivers completed the Aberrant Behavioral Checklist-Irritability Sub-scale (ABC-I) at admission, discharge, and 2 months post-discharge and reported information on crisis service utilization 2 months post-discharge. Children treated in the specialized unit had lower ABC-I scores at discharge and 2 months post-discharge (F = 8.98, p = 0.003) and were significantly less likely to experience an ER visit within 2 months post-discharge (X(2) = 5.51, p = 0.019). Specialized inpatient units may be more effective for children with ASD in need of psychiatric hospitalization. En ligne : http://dx.doi.org/10.1007/s10803-018-3816-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386

Insomnia subtypes and clinical impairment in hospitalized children with autism spectrum disorder / Briana J. TAYLOR in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.656-666 Titre : Insomnia subtypes and clinical impairment in hospitalized children with autism spectrum disorder Type de document : texte imprimé Auteurs : Briana J. TAYLOR, Auteur ; Charles F. REYNOLDS, Auteur ; Matthew SIEGEL, Auteur Article en page(s) : p.656-666 Langues : Anglais (eng) Mots-clés : adaptive behavior  autism spectrum disorders  depression  psychiatric comorbidity  sleep Index. décimale : PER Périodiques Résumé : Insomnia subtypes are not well understood in the most severely affected children with autism spectrum disorder. We examined length of hospital stay, autism severity, nonverbal intelligence quotient, and behavioral functioning across insomnia subtypes in 427 psychiatrically hospitalized children with autism spectrum disorder (mean age = 12.8 ± 3.4; 81.3% male). Per parent report, 60% (n = 257) of children had at least one type of insomnia. The distribution of subtypes was difficulty falling asleep (26.1%, n = 67), difficulty staying asleep (24.9%, n = 64), early morning awakening (4.3%, n = 11), and multiple insomnia symptoms (44.7%, n = 115). Difficulty staying asleep and early morning awakenings were associated with longer hospital stays. Early morning awakening was also associated with higher autism symptom severity. In general, children with difficulty staying asleep or multiple insomnia symptoms scored lower on adaptive behaviors (e.g. communication, self-care, socialization) and higher on maladaptive behaviors (e.g. irritability, hyperactivity, emotional reactivity, and emotional dysphoria). Difficulty staying asleep or having multiple insomnia symptoms appears to be most strongly related to impaired behavioral functioning. Conversely, early morning awakenings may be more closely tied with autism spectrum disorder itself. Further research is needed regarding insomnia subtypes at the severe end of the autism spectrum. En ligne : http://dx.doi.org/10.1177/1362361320967524 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Insomnia subtypes and clinical impairment in hospitalized children with autism spectrum disorder [texte imprimé] / Briana J. TAYLOR, Auteur ; Charles F. REYNOLDS, Auteur ; Matthew SIEGEL, Auteur . - p.656-666. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.656-666 Mots-clés : adaptive behavior  autism spectrum disorders  depression  psychiatric comorbidity  sleep Index. décimale : PER Périodiques Résumé : Insomnia subtypes are not well understood in the most severely affected children with autism spectrum disorder. We examined length of hospital stay, autism severity, nonverbal intelligence quotient, and behavioral functioning across insomnia subtypes in 427 psychiatrically hospitalized children with autism spectrum disorder (mean age = 12.8 ± 3.4; 81.3% male). Per parent report, 60% (n = 257) of children had at least one type of insomnia. The distribution of subtypes was difficulty falling asleep (26.1%, n = 67), difficulty staying asleep (24.9%, n = 64), early morning awakening (4.3%, n = 11), and multiple insomnia symptoms (44.7%, n = 115). Difficulty staying asleep and early morning awakenings were associated with longer hospital stays. Early morning awakening was also associated with higher autism symptom severity. In general, children with difficulty staying asleep or multiple insomnia symptoms scored lower on adaptive behaviors (e.g. communication, self-care, socialization) and higher on maladaptive behaviors (e.g. irritability, hyperactivity, emotional reactivity, and emotional dysphoria). Difficulty staying asleep or having multiple insomnia symptoms appears to be most strongly related to impaired behavioral functioning. Conversely, early morning awakenings may be more closely tied with autism spectrum disorder itself. Further research is needed regarding insomnia subtypes at the severe end of the autism spectrum. En ligne : http://dx.doi.org/10.1177/1362361320967524 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Mapping the time course of overt emotion dysregulation, self-injurious behavior, and aggression in psychiatrically hospitalized autistic youth: A naturalistic study / Jessie B. NORTHRUP in Autism Research, 15-10 (October 2022)  

Public ISBD [article]  inAutism Research > 15-10 (October 2022) . - p.1855-1867 Titre : Mapping the time course of overt emotion dysregulation, self-injurious behavior, and aggression in psychiatrically hospitalized autistic youth: A naturalistic study Type de document : texte imprimé Auteurs : Jessie B. NORTHRUP, Auteur ; Matthew GOODWIN, Auteur ; Christine B. PEURA, Auteur ; Qi CHEN, Auteur ; Briana J. TAYLOR, Auteur ; Matthew S. SIEGEL, Auteur ; Carla A. MAZEFSKY, Auteur Article en page(s) : p.1855-1867 Langues : Anglais (eng) Mots-clés : aggressive behavior  autism inpatient collection  autism spectrum disorder  emotion dysregulation  self-injurious behavior Index. décimale : PER Périodiques Résumé : Challenges with emotion dysregulation, self-injurious behavior (SIB), and aggression are common in autistic individuals. Prior research on the relationships between these behaviors is limited mainly to cross-sectional correlations of parent-report data. Understanding how emotion dysregulation, SIB, and aggression present and relate to one another in real-time could add to our understanding of the context and function of these behaviors. The present study examined the real-time occurrence and temporal relationships between these behaviors in 53 psychiatrically hospitalized autistic youth. Over 500 hours of behavioral observation occurred during everyday activities in the hospital. Start and stop times for instances of overt emotion dysregulation, SIB, and aggression were coded live using a custom mobile phone app. Results indicated large individual variability in the frequency and duration of these behaviors and their co-occurrence. Both SIB and aggression co-occurred with overt emotion dysregulation at above-chance levels, suggesting a role for emotional distress in the occurrence of these behaviors. However, there was substantial variability within and between individuals in co-occurrence, and SIB and aggression often (and for some individuals, almost always) occurred without overt emotion dysregulation. Relatedly, cross-recurrence quantitative analysis revealed that SIB and aggression preceded emotion dysregulation more often than emotion dysregulation preceded SIB and aggression. Future research, perhaps using ambulatory psychophysiological measures, is needed to understand whether emotion dysregulation may sometimes be present but not easily observed during SIB and aggression. LAY SUMMARY: This study provides insight into how overt emotion dysregulation (i.e., visible distress), aggression, and self-injury unfold in real-time for autistic individuals. Participants were 53 autistic youth staying in a psychiatric hospital. Research staff observed participants in everyday activities on the hospital unit and noted instances of aggression, self-injurious behavior, and emotion dysregulation. Results suggest that aggression and self-injury sometimes occur with visible signs of distress but also often occur without visible distress. In addition, observable distress was more common in the moments after these behaviors than in the moments before. En ligne : http://dx.doi.org/10.1002/aur.2773 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Mapping the time course of overt emotion dysregulation, self-injurious behavior, and aggression in psychiatrically hospitalized autistic youth: A naturalistic study [texte imprimé] / Jessie B. NORTHRUP, Auteur ; Matthew GOODWIN, Auteur ; Christine B. PEURA, Auteur ; Qi CHEN, Auteur ; Briana J. TAYLOR, Auteur ; Matthew S. SIEGEL, Auteur ; Carla A. MAZEFSKY, Auteur . - p.1855-1867. Langues : Anglais (eng) in Autism Research > 15-10 (October 2022) . - p.1855-1867 Mots-clés : aggressive behavior  autism inpatient collection  autism spectrum disorder  emotion dysregulation  self-injurious behavior Index. décimale : PER Périodiques Résumé : Challenges with emotion dysregulation, self-injurious behavior (SIB), and aggression are common in autistic individuals. Prior research on the relationships between these behaviors is limited mainly to cross-sectional correlations of parent-report data. Understanding how emotion dysregulation, SIB, and aggression present and relate to one another in real-time could add to our understanding of the context and function of these behaviors. The present study examined the real-time occurrence and temporal relationships between these behaviors in 53 psychiatrically hospitalized autistic youth. Over 500 hours of behavioral observation occurred during everyday activities in the hospital. Start and stop times for instances of overt emotion dysregulation, SIB, and aggression were coded live using a custom mobile phone app. Results indicated large individual variability in the frequency and duration of these behaviors and their co-occurrence. Both SIB and aggression co-occurred with overt emotion dysregulation at above-chance levels, suggesting a role for emotional distress in the occurrence of these behaviors. However, there was substantial variability within and between individuals in co-occurrence, and SIB and aggression often (and for some individuals, almost always) occurred without overt emotion dysregulation. Relatedly, cross-recurrence quantitative analysis revealed that SIB and aggression preceded emotion dysregulation more often than emotion dysregulation preceded SIB and aggression. Future research, perhaps using ambulatory psychophysiological measures, is needed to understand whether emotion dysregulation may sometimes be present but not easily observed during SIB and aggression. LAY SUMMARY: This study provides insight into how overt emotion dysregulation (i.e., visible distress), aggression, and self-injury unfold in real-time for autistic individuals. Participants were 53 autistic youth staying in a psychiatric hospital. Research staff observed participants in everyday activities on the hospital unit and noted instances of aggression, self-injurious behavior, and emotion dysregulation. Results suggest that aggression and self-injury sometimes occur with visible signs of distress but also often occur without visible distress. In addition, observable distress was more common in the moments after these behaviors than in the moments before. En ligne : http://dx.doi.org/10.1002/aur.2773 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Sleep Problems in Autism Spectrum Disorder / Briana J. TAYLOR ; Stefanie ZAVODNY JACKSON

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