Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System / Erica SALOMONE in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.859-874 Titre : Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System Type de document : texte imprimé Auteurs : Erica SALOMONE, Auteur ; Camilla FERRANTE, Auteur ; Arianna SALANDIN, Auteur ; Federica FERRARA, Auteur ; Elisabetta TORCHIO, Auteur ; Giulia FOLETTI, Auteur ; Sabrina GHERSI, Auteur ; CST Italy TEAM, Auteur ; WHO CST TEAM, Auteur ; Laura PACIONE, Auteur ; Chiara SERVILI, Auteur Article en page(s) : p.859-874 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Caregivers/education  Child  Family  Feasibility Studies  Humans  World Health Organization  World Health Organization Caregiver Skills Training  autism spectrum disorders  family functioning and support  interventions ? psychosocial/behavioural  neurodevelopmental disorders  parent-mediated  parenting skills programme  pre-school children  qualitative research Index. décimale : PER Périodiques Résumé : Across the globe, children with neurodevelopmental disorders, including autism, have limited access to care through public services. To improve access to care the World Health Organization developed a novel, open-access programme: the Caregiver Skills Training programme. The Caregiver Skills Training consists of nine group sessions and three individual home visits, focused on training the caregiver on how to use everyday play and home routines as opportunities for learning and development. We implemented Caregiver Skills Training in public child neuropsychiatry services in Italy and examined with questionnaires and focus groups how feasible it was to deliver the programme in public health settings and how acceptable and relevant it was for caregiver users. We found that the Caregiver Skills Training was largely considered acceptable and relevant for families and feasible to deliver. We discuss potential solutions to address the specific implementation challenges that were identified, such as strategies to improve training of interventionists and overcome barriers to caregiver participation. En ligne : https://dx.doi.org/10.1177/13623613211035228 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Acceptability and feasibility of the World Health Organization's Caregiver Skills Training implemented in the Italian National Health System [texte imprimé] / Erica SALOMONE, Auteur ; Camilla FERRANTE, Auteur ; Arianna SALANDIN, Auteur ; Federica FERRARA, Auteur ; Elisabetta TORCHIO, Auteur ; Giulia FOLETTI, Auteur ; Sabrina GHERSI, Auteur ; CST Italy TEAM, Auteur ; WHO CST TEAM, Auteur ; Laura PACIONE, Auteur ; Chiara SERVILI, Auteur . - p.859-874. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.859-874 Mots-clés : Autism Spectrum Disorder  Caregivers/education  Child  Family  Feasibility Studies  Humans  World Health Organization  World Health Organization Caregiver Skills Training  autism spectrum disorders  family functioning and support  interventions ? psychosocial/behavioural  neurodevelopmental disorders  parent-mediated  parenting skills programme  pre-school children  qualitative research Index. décimale : PER Périodiques Résumé : Across the globe, children with neurodevelopmental disorders, including autism, have limited access to care through public services. To improve access to care the World Health Organization developed a novel, open-access programme: the Caregiver Skills Training programme. The Caregiver Skills Training consists of nine group sessions and three individual home visits, focused on training the caregiver on how to use everyday play and home routines as opportunities for learning and development. We implemented Caregiver Skills Training in public child neuropsychiatry services in Italy and examined with questionnaires and focus groups how feasible it was to deliver the programme in public health settings and how acceptable and relevant it was for caregiver users. We found that the Caregiver Skills Training was largely considered acceptable and relevant for families and feasible to deliver. We discuss potential solutions to address the specific implementation challenges that were identified, such as strategies to improve training of interventionists and overcome barriers to caregiver participation. En ligne : https://dx.doi.org/10.1177/13623613211035228 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia / Bethlehem TEKOLA in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.51-63 Titre : Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia Type de document : texte imprimé Auteurs : Bethlehem TEKOLA, Auteur ; Fikirte GIRMA, Auteur ; Mersha KINFE, Auteur ; Rehana ABDURAHMAN, Auteur ; Markos TESFAYE, Auteur ; Zemi YENUS, Auteur ; Erica SALOMONE, Auteur ; Laura PACIONE, Auteur ; Abebaw FEKADU, Auteur ; Chiara SERVILI, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur Article en page(s) : p.51-63 Langues : Anglais (eng) Mots-clés : Ethiopia  caregivers  developmental delay  developmental disorders  parent-mediated  parenting skills programme  qualitative Index. décimale : PER Périodiques Résumé : The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361319848532 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia [texte imprimé] / Bethlehem TEKOLA, Auteur ; Fikirte GIRMA, Auteur ; Mersha KINFE, Auteur ; Rehana ABDURAHMAN, Auteur ; Markos TESFAYE, Auteur ; Zemi YENUS, Auteur ; Erica SALOMONE, Auteur ; Laura PACIONE, Auteur ; Abebaw FEKADU, Auteur ; Chiara SERVILI, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur . - p.51-63. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.51-63 Mots-clés : Ethiopia  caregivers  developmental delay  developmental disorders  parent-mediated  parenting skills programme  qualitative Index. décimale : PER Périodiques Résumé : The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361319848532 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews / Gauri DIVAN in Journal of Child Psychology and Psychiatry, 62-5 (May 2021)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 62-5 (May 2021) . - p.514-535 Titre : Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews Type de document : texte imprimé Auteurs : Gauri DIVAN, Auteur ; Supriya BHAVNANI, Auteur ; Kathy LEADBITTER, Auteur ; Ceri ELLIS, Auteur ; Jayashree DASGUPTA, Auteur ; Amina ABUBAKAR, Auteur ; Mayada ELSABBAGH, Auteur ; Syed Usman HAMDANI, Auteur ; Chiara SERVILI, Auteur ; Vikram PATEL, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.514-535 Langues : Anglais (eng) Mots-clés : Autism  detection gap  low- and middle-income countries  low-resource settings  scoping review  treatment gap Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism presents with similar prevalence and core impairments in diverse populations. We conducted a scoping review of reviews to determine key barriers and innovative strategies which can contribute to attaining universal health coverage (UHC), from early detection to effective interventions for autism in low- and middle-income countries (LAMIC). METHODS: A systematic literature search of review articles was conducted. Reviews relevant to the study research question were included if they incorporated papers from LAMIC and focused on children ( En ligne : http://dx.doi.org/10.1111/jcpp.13404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews [texte imprimé] / Gauri DIVAN, Auteur ; Supriya BHAVNANI, Auteur ; Kathy LEADBITTER, Auteur ; Ceri ELLIS, Auteur ; Jayashree DASGUPTA, Auteur ; Amina ABUBAKAR, Auteur ; Mayada ELSABBAGH, Auteur ; Syed Usman HAMDANI, Auteur ; Chiara SERVILI, Auteur ; Vikram PATEL, Auteur ; Jonathan GREEN, Auteur . - p.514-535. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 62-5 (May 2021) . - p.514-535 Mots-clés : Autism  detection gap  low- and middle-income countries  low-resource settings  scoping review  treatment gap Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism presents with similar prevalence and core impairments in diverse populations. We conducted a scoping review of reviews to determine key barriers and innovative strategies which can contribute to attaining universal health coverage (UHC), from early detection to effective interventions for autism in low- and middle-income countries (LAMIC). METHODS: A systematic literature search of review articles was conducted. Reviews relevant to the study research question were included if they incorporated papers from LAMIC and focused on children ( En ligne : http://dx.doi.org/10.1111/jcpp.13404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

Pilot Randomized Controlled Trial of the WHO Caregiver Skills Training in Public Health Services in Italy / Erica SALOMONE in Journal of Autism and Developmental Disorders, 52-10 (October 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4286-4300 Titre : Pilot Randomized Controlled Trial of the WHO Caregiver Skills Training in Public Health Services in Italy Type de document : texte imprimé Auteurs : Erica SALOMONE, Auteur ; Michele SETTANNI, Auteur ; Helen MCCONACHIE, Auteur ; Katharine SUMA, Auteur ; Federica FERRARA, Auteur ; Giulia FOLETTI, Auteur ; Arianna SALANDIN, Auteur ; WHO CST TEAM, Auteur ; Chiara SERVILI, Auteur ; Lauren B. ADAMSON, Auteur Article en page(s) : p.4286-4300 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Caregiver skills training  Parenting education  Parent–Child relations  Public health  Randomized controlled trial  responsible for the views expressed in this article and they do not necessarily  represent the views, decisions or policies of the institutions with which they  are affiliated. Index. décimale : PER Périodiques Résumé : Parents of children with ASD (N=86; mean age 44.8 months; 67 boys) were randomized to either WHO Caregiver Skills Training (CST) delivered in public health settings in Italy or enhanced treatment-as-usual. Primary blinded outcomes were 3-months post-intervention change scores of autism severity and engagement during caregiver-child interaction. CST was highly acceptable to caregivers and feasibly delivered by trained local clinicians. Intention-to-treat analysis showed a large and significant effect on parent skills supporting joint engagement and a smaller significant effect on flow of interaction. Expected changes in child autism severity and joint engagement did not meet statistical significance. Analysis of secondary outcomes showed a significant effect on parenting stress, self-efficacy, and child gestures. Strategies to improve the effectiveness of CST are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-05297-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Pilot Randomized Controlled Trial of the WHO Caregiver Skills Training in Public Health Services in Italy [texte imprimé] / Erica SALOMONE, Auteur ; Michele SETTANNI, Auteur ; Helen MCCONACHIE, Auteur ; Katharine SUMA, Auteur ; Federica FERRARA, Auteur ; Giulia FOLETTI, Auteur ; Arianna SALANDIN, Auteur ; WHO CST TEAM, Auteur ; Chiara SERVILI, Auteur ; Lauren B. ADAMSON, Auteur . - p.4286-4300. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4286-4300 Mots-clés : Autism spectrum disorders  Caregiver skills training  Parenting education  Parent–Child relations  Public health  Randomized controlled trial  responsible for the views expressed in this article and they do not necessarily  represent the views, decisions or policies of the institutions with which they  are affiliated. Index. décimale : PER Périodiques Résumé : Parents of children with ASD (N=86; mean age 44.8 months; 67 boys) were randomized to either WHO Caregiver Skills Training (CST) delivered in public health settings in Italy or enhanced treatment-as-usual. Primary blinded outcomes were 3-months post-intervention change scores of autism severity and engagement during caregiver-child interaction. CST was highly acceptable to caregivers and feasibly delivered by trained local clinicians. Intention-to-treat analysis showed a large and significant effect on parent skills supporting joint engagement and a smaller significant effect on flow of interaction. Expected changes in child autism severity and joint engagement did not meet statistical significance. Analysis of secondary outcomes showed a significant effect on parenting stress, self-efficacy, and child gestures. Strategies to improve the effectiveness of CST are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-05297-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

A review of screening tools for the identification of autism spectrum disorders and developmental delay in infants and young children: recommendations for use in low- and middle-income countries / Marguerite MARLOW in Autism Research, 12-2 (February 2019)  

Public ISBD [article]  inAutism Research > 12-2 (February 2019) . - p.176-199 Titre : A review of screening tools for the identification of autism spectrum disorders and developmental delay in infants and young children: recommendations for use in low- and middle-income countries Type de document : texte imprimé Auteurs : Marguerite MARLOW, Auteur ; Chiara SERVILI, Auteur ; Mark TOMLINSON, Auteur Article en page(s) : p.176-199 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  developmental disability  developmental monitoring  low- and middle-income countries  screening tools Index. décimale : PER Périodiques Résumé : Without intervention, developmental delay (DD) and autism spectrum disorders (ASDs) severely restrict children from reaching their developmental potential. Monitoring child development through the use of screening tools can help identify children who need further assessment or intervention. Screening has been widely encouraged to identify children with ASD or DD, and a large variety of screening instruments are suggested in the literature. There is a lack of consensus around which screening tools are most effective, especially where tools are used in cultures other than those in which they were created. We conducted a review of the literature for screening tools for DD and autism to make recommendations for tool selection and use in low- and middle-income countries (LMIC). We included 99 screening tools in the review and created profiles for each tool to evaluate their properties and determine which tools could be effectively used in various LMIC. Our review identified a substantial number (35 for DD and 6 for ASD) of screening tools from LMIC. We identified 10 tools which show promise for use across settings; these tools are brief, low-cost and can be implemented by paraprofessionals or lay community health workers. Routine screening is an important first step toward addressing the need for services in LMIC, but high-quality tools take time to be conceptualized, developed, piloted, and validated, before implementation can happen. A focus on improving the scientific rigor of early detection approaches and on enhancing the reach to underserved populations should be prioritized. Autism Res 2019, 12: 176-199 (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Screening tools are short questionnaires or brief assessments used to identify children at risk of a developmental disability such as autism. Many screening tools exist, but there is uncertainty about which tools work best in non-Western cultures or low-resource settings. We reviewed over 90 screening tools to identify which tools can be easily used in these settings. Selecting tools that are affordable and easy to use will make it easier to identify and support children with developmental difficulties. En ligne : http://dx.doi.org/10.1002/aur.2033 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 [article] A review of screening tools for the identification of autism spectrum disorders and developmental delay in infants and young children: recommendations for use in low- and middle-income countries [texte imprimé] / Marguerite MARLOW, Auteur ; Chiara SERVILI, Auteur ; Mark TOMLINSON, Auteur . - p.176-199. Langues : Anglais (eng) in Autism Research > 12-2 (February 2019) . - p.176-199 Mots-clés : autism spectrum disorders  developmental disability  developmental monitoring  low- and middle-income countries  screening tools Index. décimale : PER Périodiques Résumé : Without intervention, developmental delay (DD) and autism spectrum disorders (ASDs) severely restrict children from reaching their developmental potential. Monitoring child development through the use of screening tools can help identify children who need further assessment or intervention. Screening has been widely encouraged to identify children with ASD or DD, and a large variety of screening instruments are suggested in the literature. There is a lack of consensus around which screening tools are most effective, especially where tools are used in cultures other than those in which they were created. We conducted a review of the literature for screening tools for DD and autism to make recommendations for tool selection and use in low- and middle-income countries (LMIC). We included 99 screening tools in the review and created profiles for each tool to evaluate their properties and determine which tools could be effectively used in various LMIC. Our review identified a substantial number (35 for DD and 6 for ASD) of screening tools from LMIC. We identified 10 tools which show promise for use across settings; these tools are brief, low-cost and can be implemented by paraprofessionals or lay community health workers. Routine screening is an important first step toward addressing the need for services in LMIC, but high-quality tools take time to be conceptualized, developed, piloted, and validated, before implementation can happen. A focus on improving the scientific rigor of early detection approaches and on enhancing the reach to underserved populations should be prioritized. Autism Res 2019, 12: 176-199 (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Screening tools are short questionnaires or brief assessments used to identify children at risk of a developmental disability such as autism. Many screening tools exist, but there is uncertainty about which tools work best in non-Western cultures or low-resource settings. We reviewed over 90 screening tools to identify which tools can be easily used in these settings. Selecting tools that are affordable and easy to use will make it easier to identify and support children with developmental difficulties. En ligne : http://dx.doi.org/10.1002/aur.2033 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383

Supporting Caregivers Remotely During a Pandemic: Comparison of WHO Caregiver Skills Training Delivered Online Versus in Person in Public Health Settings in Italy / Paola SORGATO ; Mariachiara FIORAVANTI ; Laura PACIONE ; Giuseppe Maurizio ARDUINO ; Sabrina GHERSI ; Maria Luisa SCATTONI ; Camilla CHIESA ; Donatella ELIA ; Elisabetta GONELLA ; Sara RIZZO ; Arianna SALANDIN ; Felicity L. BROWN ; Stephanie SHIRE ; Chiara SERVILI ; Erica SALOMONE ; CST Italy TEAM ; WHO CST TEAM in Journal of Autism and Developmental Disorders, 54-2 (February 2024)  

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Treatment mechanism of the WHO caregiver skills training intervention for autism delivered in community settings / Katharine SUMA ; Lauren B. ADAMSON ; Helen MCCONACHIE ; Chiara SERVILI ; Erica SALOMONE in Autism Research, 17-1 (January 2024)  

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World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India / Koyeli SENGUPTA in Journal of Autism and Developmental Disorders, 53-4 (April 2023)  

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