"Everyone should at least get a Kia": Policymaker perspectives on equity of Medicaid among transition age autistic youth / Kaitlin H. KOFFER MILLER in Research in Autism Spectrum Disorders, 118 (October 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 118 (October 2024) . - 102482 Titre : "Everyone should at least get a Kia": Policymaker perspectives on equity of Medicaid among transition age autistic youth Type de document : Texte imprimé et/ou numérique Auteurs : Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Sha TAO, Auteur ; David S. MANDELL, Auteur ; Robert I. FIELD, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 102482 Langues : Anglais (eng) Mots-clés : Mixed-methods  Disability  Health care financing  Health policy  Medicaid  Autism  Transition Index. décimale : PER Périodiques Résumé : Background This study examined the challenges faced by transition age autistic youth in accessing Medicaid services, considering the historical focus on children in autism research and services. The study aimed to explore Medicaid enrollment and support for this population. Method The study involved Medicaid and Protection & Advocacy (P&A) representatives from states with varying performance levels in eligibility, access, and service use. Discussions with experts focused on waivers, Early, Periodic, Screening, Detection, and Treatment (EPSDT), and barriers to service access. Results The findings highlighted the need to improve service access for transition age autistic youth. States identified the importance of maximizing EPDST utilization before aging out of childhood systems and pursuing waiver enrollment. These insights emphasized the significance of addressing service gaps during the transition to adulthood. Conclusions The study's implications for practice are substantial. Policymakers and service providers must acknowledge the limitedservice access for autistic individuals as they transition from child systems. The study emphasized the value of strategies like maximizing EPDST utilization and pursuing waivers to ensure ongoing support for autistic youth during their transition to adulthood. By addressing these challenges, practitioners can better meet the needs of transition age autistic individuals and facilitate their access to essential services. En ligne : https://doi.org/10.1016/j.rasd.2024.102482 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540 [article] "Everyone should at least get a Kia": Policymaker perspectives on equity of Medicaid among transition age autistic youth [Texte imprimé et/ou numérique] / Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Sha TAO, Auteur ; David S. MANDELL, Auteur ; Robert I. FIELD, Auteur ; Lindsay L. SHEA, Auteur . - 102482. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 118 (October 2024) . - 102482 Mots-clés : Mixed-methods  Disability  Health care financing  Health policy  Medicaid  Autism  Transition Index. décimale : PER Périodiques Résumé : Background This study examined the challenges faced by transition age autistic youth in accessing Medicaid services, considering the historical focus on children in autism research and services. The study aimed to explore Medicaid enrollment and support for this population. Method The study involved Medicaid and Protection & Advocacy (P&A) representatives from states with varying performance levels in eligibility, access, and service use. Discussions with experts focused on waivers, Early, Periodic, Screening, Detection, and Treatment (EPSDT), and barriers to service access. Results The findings highlighted the need to improve service access for transition age autistic youth. States identified the importance of maximizing EPDST utilization before aging out of childhood systems and pursuing waiver enrollment. These insights emphasized the significance of addressing service gaps during the transition to adulthood. Conclusions The study's implications for practice are substantial. Policymakers and service providers must acknowledge the limitedservice access for autistic individuals as they transition from child systems. The study emphasized the value of strategies like maximizing EPDST utilization and pursuing waivers to ensure ongoing support for autistic youth during their transition to adulthood. By addressing these challenges, practitioners can better meet the needs of transition age autistic individuals and facilitate their access to essential services. En ligne : https://doi.org/10.1016/j.rasd.2024.102482 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540

Feeling intimidated and uncomfortable: Established and exacerbated educational inequities experienced by black parents of autistic children / Kaitlin H. KOFFER MILLER in Autism Research, 16-5 (May 2023)  

Public ISBD [article]  inAutism Research > 16-5 (May 2023) . - p.1040-1051 Titre : Feeling intimidated and uncomfortable: Established and exacerbated educational inequities experienced by black parents of autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Jonas C. VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : p.1040-1051 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract There are clear racial disparities that impact the education system. To capture the educational experiences of family members of Black autistic children as compared to white autistic children in the United States (US), a mixed methods design was implemented and included semi-structured interviews with family members of children between the ages of 5-12 who participated in a survey. The survey responses were used as attribute data. Twenty-nine interviews were conducted with parents of school-age autistic children. Findings from this study highlight challenges experienced by parents including education service use and engagement during the COVID-19 pandemic, engaging with school personnel, and securing accommodations. The findings from this study illuminate the disparities experienced by Black parents of autistic children directly reported by the parents themselves in comparison to white parents. The themes elucidated in this study have implications for policy, practice, and research to ensure equity in educational settings for Black autistic students and their families. En ligne : http://dx.doi.org/https://doi.org/10.1002/aur.2919 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=503 [article] Feeling intimidated and uncomfortable: Established and exacerbated educational inequities experienced by black parents of autistic children [Texte imprimé et/ou numérique] / Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Jonas C. VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur . - p.1040-1051. Langues : Anglais (eng) in Autism Research > 16-5 (May 2023) . - p.1040-1051 Index. décimale : PER Périodiques Résumé : Abstract There are clear racial disparities that impact the education system. To capture the educational experiences of family members of Black autistic children as compared to white autistic children in the United States (US), a mixed methods design was implemented and included semi-structured interviews with family members of children between the ages of 5-12 who participated in a survey. The survey responses were used as attribute data. Twenty-nine interviews were conducted with parents of school-age autistic children. Findings from this study highlight challenges experienced by parents including education service use and engagement during the COVID-19 pandemic, engaging with school personnel, and securing accommodations. The findings from this study illuminate the disparities experienced by Black parents of autistic children directly reported by the parents themselves in comparison to white parents. The themes elucidated in this study have implications for policy, practice, and research to ensure equity in educational settings for Black autistic students and their families. En ligne : http://dx.doi.org/https://doi.org/10.1002/aur.2919 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=503

Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research / L. L. SHEA in Autism Research, 14-10 (October 2021)  

Public ISBD [article]  inAutism Research > 14-10 (October 2021) . - p.2053-2060 Titre : Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research Type de document : Texte imprimé et/ou numérique Auteurs : L. L. SHEA, Auteur ; Dylan S. COOPER, Auteur ; A. B. WILSON, Auteur Article en page(s) : p.2053-2060 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Criminal Law  Criminals  Humans  Prevalence  criminal law  policy  research Index. décimale : PER Périodiques Résumé : Researchers have identified that autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. The prevalence of autism spectrum disorder (ASD) is increasing and generating a comprehensive approach to addressing criminal justice system involvement among autistic individuals is a timely and urgent need. Revisions to an established framework generated for use among individuals with mental health diagnoses, the sequential Intercept Model (SIM), were produced by an international consortium of interdisciplinary stakeholders presenting a new opportunity to identify gaps in ASD research and generate preventive solutions across the criminal justice system. The revised SIM maps each criminal justice system component, or Intercept, and includes paths for the experiences of autistic individuals as victims or witnesses to crimes as well as offenders to catalyze new and interdisciplinary research, policy, and practice efforts. As the field of ASD research continues to grow, the revised SIM is a promising pathway to avoiding siloed research approaches, including diverse autistic voices, and contributing to international dialogue about criminal justice reform at a critical juncture. LAY SUMMARY: Autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. A revised version of the SIM generated by an international consortium provides a cohesive framework to ensure research focused on this topic extends across the criminal justice system. Preventing and improving interactions between autistic individuals and the criminal justice system is an urgent research, policy, and practice need. En ligne : http://dx.doi.org/10.1002/aur.2594 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research [Texte imprimé et/ou numérique] / L. L. SHEA, Auteur ; Dylan S. COOPER, Auteur ; A. B. WILSON, Auteur . - p.2053-2060. Langues : Anglais (eng) in Autism Research > 14-10 (October 2021) . - p.2053-2060 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Criminal Law  Criminals  Humans  Prevalence  criminal law  policy  research Index. décimale : PER Périodiques Résumé : Researchers have identified that autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. The prevalence of autism spectrum disorder (ASD) is increasing and generating a comprehensive approach to addressing criminal justice system involvement among autistic individuals is a timely and urgent need. Revisions to an established framework generated for use among individuals with mental health diagnoses, the sequential Intercept Model (SIM), were produced by an international consortium of interdisciplinary stakeholders presenting a new opportunity to identify gaps in ASD research and generate preventive solutions across the criminal justice system. The revised SIM maps each criminal justice system component, or Intercept, and includes paths for the experiences of autistic individuals as victims or witnesses to crimes as well as offenders to catalyze new and interdisciplinary research, policy, and practice efforts. As the field of ASD research continues to grow, the revised SIM is a promising pathway to avoiding siloed research approaches, including diverse autistic voices, and contributing to international dialogue about criminal justice reform at a critical juncture. LAY SUMMARY: Autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. A revised version of the SIM generated by an international consortium provides a cohesive framework to ensure research focused on this topic extends across the criminal justice system. Preventing and improving interactions between autistic individuals and the criminal justice system is an urgent research, policy, and practice need. En ligne : http://dx.doi.org/10.1002/aur.2594 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

Self-reported service needs and barriers reported by autistic adults: Differences by gender identity / Kaitlin H. KOFFER MILLER in Research in Autism Spectrum Disorders, 92 (April 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 92 (April 2022) . - 101916 Titre : Self-reported service needs and barriers reported by autistic adults: Differences by gender identity Type de document : Texte imprimé et/ou numérique Auteurs : Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Wei SONG, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 101916 Langues : Anglais (eng) Mots-clés : ASD  Survey  Service needs  Service barriers  Access  Gender Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is a lifelong disorder that is diagnosed nearly four times as frequently in men than women. Gender distinctions are evolving beyond traditional man and woman binaries. It remains unclear if and how these distinctions may impact autistic individuals. The goal of this research was to examine reported service needs and barriers to accessing services among autistic adults by gender identity (man, woman, and other gender). Method Data were generated from a statewide needs assessment survey that included quantitative and qualitative data collection that identified the needs of autistic individuals of all ages and their family members and caregivers. Results The results of this study are among the first to document barriers to service access reported by autistic adults across men, women, and other gender adults. This study also found that other gender autistic adults were more likely to report unmet needs for counseling services than autistic men, and both autistic women and other gender adults in this sample reported multiple barriers to receiving needed services as compared to their male counterparts. Conclusions Both women and other gender adults were more likely to report multiple barriers to needed services than men including transportation and scheduling. This study is one of the largest to explore the service barriers of autistic adults by gender differences. En ligne : https://doi.org/10.1016/j.rasd.2022.101916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Self-reported service needs and barriers reported by autistic adults: Differences by gender identity [Texte imprimé et/ou numérique] / Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Wei SONG, Auteur ; Lindsay L. SHEA, Auteur . - 101916. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 92 (April 2022) . - 101916 Mots-clés : ASD  Survey  Service needs  Service barriers  Access  Gender Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is a lifelong disorder that is diagnosed nearly four times as frequently in men than women. Gender distinctions are evolving beyond traditional man and woman binaries. It remains unclear if and how these distinctions may impact autistic individuals. The goal of this research was to examine reported service needs and barriers to accessing services among autistic adults by gender identity (man, woman, and other gender). Method Data were generated from a statewide needs assessment survey that included quantitative and qualitative data collection that identified the needs of autistic individuals of all ages and their family members and caregivers. Results The results of this study are among the first to document barriers to service access reported by autistic adults across men, women, and other gender adults. This study also found that other gender autistic adults were more likely to report unmet needs for counseling services than autistic men, and both autistic women and other gender adults in this sample reported multiple barriers to receiving needed services as compared to their male counterparts. Conclusions Both women and other gender adults were more likely to report multiple barriers to needed services than men including transportation and scheduling. This study is one of the largest to explore the service barriers of autistic adults by gender differences. En ligne : https://doi.org/10.1016/j.rasd.2022.101916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

---

1 (1 - 4 / 4)