Creating the Global Criminal Justice Survey: A Questionnaire Designed to Gather Perspectives from the Autism Community and Criminal Justice Professionals / Abigail M. A. LOVE in Journal of Autism and Developmental Disorders, 54-4 (April 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-4 (April 2024) . - p.1425-1437 Titre : Creating the Global Criminal Justice Survey: A Questionnaire Designed to Gather Perspectives from the Autism Community and Criminal Justice Professionals Type de document : texte imprimé Auteurs : Abigail M. A. LOVE, Auteur ; Vicki GIBBS, Auteur ; Dylan S. COOPER, Auteur ; Teal W. BENEVIDES, Auteur ; Melanie C. MOGAVERO, Auteur ; Icylee L. BASKETBILL, Auteur ; Lindsey L. SHEA, Auteur Article en page(s) : p.1425-1437 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic people?s perceptions of their interactions with criminal justice professionals are predominantly negative; however, little is known about the state of interactions on a global scale. To further understanding, a comprehensive stakeholder questionnaire was created. Aspects of reliability and validity including evidence for test content and internal structure were gathered using expert reviews, cognitive interviewing, pilot data collection, and a larger data collection effort (N = 1618). Data was gathered from the autism community through perspectives of parents/caregivers as well as from self-reported autistic adults. Criminal justice professionals included law enforcement officers, corrections professionals, probation and parole officers, forensic psychologists and legal professionals. The scale development process was detailed in order to sufficiently document the initial psychometric evidence and share the steps taken to gain diverse stakeholder input. This study is a critical first step in generating further information to facilitate policy and program development with wide applicability. En ligne : https://doi.org/10.1007/s10803-022-05835-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526 [article] Creating the Global Criminal Justice Survey: A Questionnaire Designed to Gather Perspectives from the Autism Community and Criminal Justice Professionals [texte imprimé] / Abigail M. A. LOVE, Auteur ; Vicki GIBBS, Auteur ; Dylan S. COOPER, Auteur ; Teal W. BENEVIDES, Auteur ; Melanie C. MOGAVERO, Auteur ; Icylee L. BASKETBILL, Auteur ; Lindsey L. SHEA, Auteur . - p.1425-1437. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-4 (April 2024) . - p.1425-1437 Index. décimale : PER Périodiques Résumé : Autistic people?s perceptions of their interactions with criminal justice professionals are predominantly negative; however, little is known about the state of interactions on a global scale. To further understanding, a comprehensive stakeholder questionnaire was created. Aspects of reliability and validity including evidence for test content and internal structure were gathered using expert reviews, cognitive interviewing, pilot data collection, and a larger data collection effort (N = 1618). Data was gathered from the autism community through perspectives of parents/caregivers as well as from self-reported autistic adults. Criminal justice professionals included law enforcement officers, corrections professionals, probation and parole officers, forensic psychologists and legal professionals. The scale development process was detailed in order to sufficiently document the initial psychometric evidence and share the steps taken to gain diverse stakeholder input. This study is a critical first step in generating further information to facilitate policy and program development with wide applicability. En ligne : https://doi.org/10.1007/s10803-022-05835-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526

"Everyone should at least get a Kia": Policymaker perspectives on equity of Medicaid among transition age autistic youth / Kaitlin H. KOFFER MILLER in Research in Autism Spectrum Disorders, 118 (October 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 118 (October 2024) . - 102482 Titre : "Everyone should at least get a Kia": Policymaker perspectives on equity of Medicaid among transition age autistic youth Type de document : texte imprimé Auteurs : Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Sha TAO, Auteur ; David S. MANDELL, Auteur ; Robert I. FIELD, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 102482 Langues : Anglais (eng) Mots-clés : Mixed-methods  Disability  Health care financing  Health policy  Medicaid  Autism  Transition Index. décimale : PER Périodiques Résumé : Background This study examined the challenges faced by transition age autistic youth in accessing Medicaid services, considering the historical focus on children in autism research and services. The study aimed to explore Medicaid enrollment and support for this population. Method The study involved Medicaid and Protection & Advocacy (P&A) representatives from states with varying performance levels in eligibility, access, and service use. Discussions with experts focused on waivers, Early, Periodic, Screening, Detection, and Treatment (EPSDT), and barriers to service access. Results The findings highlighted the need to improve service access for transition age autistic youth. States identified the importance of maximizing EPDST utilization before aging out of childhood systems and pursuing waiver enrollment. These insights emphasized the significance of addressing service gaps during the transition to adulthood. Conclusions The study's implications for practice are substantial. Policymakers and service providers must acknowledge the limitedservice access for autistic individuals as they transition from child systems. The study emphasized the value of strategies like maximizing EPDST utilization and pursuing waivers to ensure ongoing support for autistic youth during their transition to adulthood. By addressing these challenges, practitioners can better meet the needs of transition age autistic individuals and facilitate their access to essential services. En ligne : https://doi.org/10.1016/j.rasd.2024.102482 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540 [article] "Everyone should at least get a Kia": Policymaker perspectives on equity of Medicaid among transition age autistic youth [texte imprimé] / Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Sha TAO, Auteur ; David S. MANDELL, Auteur ; Robert I. FIELD, Auteur ; Lindsay L. SHEA, Auteur . - 102482. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 118 (October 2024) . - 102482 Mots-clés : Mixed-methods  Disability  Health care financing  Health policy  Medicaid  Autism  Transition Index. décimale : PER Périodiques Résumé : Background This study examined the challenges faced by transition age autistic youth in accessing Medicaid services, considering the historical focus on children in autism research and services. The study aimed to explore Medicaid enrollment and support for this population. Method The study involved Medicaid and Protection & Advocacy (P&A) representatives from states with varying performance levels in eligibility, access, and service use. Discussions with experts focused on waivers, Early, Periodic, Screening, Detection, and Treatment (EPSDT), and barriers to service access. Results The findings highlighted the need to improve service access for transition age autistic youth. States identified the importance of maximizing EPDST utilization before aging out of childhood systems and pursuing waiver enrollment. These insights emphasized the significance of addressing service gaps during the transition to adulthood. Conclusions The study's implications for practice are substantial. Policymakers and service providers must acknowledge the limitedservice access for autistic individuals as they transition from child systems. The study emphasized the value of strategies like maximizing EPDST utilization and pursuing waivers to ensure ongoing support for autistic youth during their transition to adulthood. By addressing these challenges, practitioners can better meet the needs of transition age autistic individuals and facilitate their access to essential services. En ligne : https://doi.org/10.1016/j.rasd.2024.102482 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540

Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study / Mark S. SALZER ; Alec BECKER ; David J. VANNESS ; Brian K. LEE ; Dylan S. COOPER ; Jonas VENTIMIGLIA ; Lindsay L. SHEA in Research in Autism Spectrum Disorders, 109 (November 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 109 (November 2023) . - 102278 Titre : Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study Type de document : texte imprimé Auteurs : Mark S. SALZER, Auteur ; Alec BECKER, Auteur ; David J. VANNESS, Auteur ; Brian K. LEE, Auteur ; Dylan S. COOPER, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 102278 Langues : Anglais (eng) Mots-clés : Autism  COVID-19  Community participation  Autistic adults Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has resulted in a continuum of changes in communities that have impacted the lives and health of millions of autistic people. Method To identify community participation changes during COVID-19, we conducted a two-timepoint (2018 and 2022) longitudinal quantitative study involving 116 autistic adults in Pennsylvania to investigate the impact of the pandemic on their community participation. Community participation was measured by the Temple University Community Participation Measure, and the impact of the pandemic was measured by a series of factors related to the COVID-19 pandemic (e.g., healthcare access, transportation, safety, etc.). Results Results of paired sample t-tests did not show changes in participants' total days of participation over the last 30 days, the total number of activities, or percentages of all activities participants considered important and participated in (i.e., breadth ratio) between the timepoints. However, the percentage of activities that were important to participants and in which they reported engaging as much as they wanted to (i.e., sufficiency ratio) reduced significantly. When examining participation outcomes and COVID-19 impact, we found that multiple participation outcomes (i.e., number of activities, breadth ratio, and sufficiency ratio) were negatively associated with the COVID-19 impact. Conclusion Results suggest that the COVID-19 impacts on autistic adults are variable, with those reporting a more significant impact also reporting a significantly lower level of participation. These findings emphasize the importance of individualized planning to support autistic adults to maintain or regain participation in their preferred activities during the pandemic and beyond. En ligne : https://doi.org/10.1016/j.rasd.2023.102278 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517 [article] Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study [texte imprimé] / Mark S. SALZER, Auteur ; Alec BECKER, Auteur ; David J. VANNESS, Auteur ; Brian K. LEE, Auteur ; Dylan S. COOPER, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur . - 102278. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102278 Mots-clés : Autism  COVID-19  Community participation  Autistic adults Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has resulted in a continuum of changes in communities that have impacted the lives and health of millions of autistic people. Method To identify community participation changes during COVID-19, we conducted a two-timepoint (2018 and 2022) longitudinal quantitative study involving 116 autistic adults in Pennsylvania to investigate the impact of the pandemic on their community participation. Community participation was measured by the Temple University Community Participation Measure, and the impact of the pandemic was measured by a series of factors related to the COVID-19 pandemic (e.g., healthcare access, transportation, safety, etc.). Results Results of paired sample t-tests did not show changes in participants' total days of participation over the last 30 days, the total number of activities, or percentages of all activities participants considered important and participated in (i.e., breadth ratio) between the timepoints. However, the percentage of activities that were important to participants and in which they reported engaging as much as they wanted to (i.e., sufficiency ratio) reduced significantly. When examining participation outcomes and COVID-19 impact, we found that multiple participation outcomes (i.e., number of activities, breadth ratio, and sufficiency ratio) were negatively associated with the COVID-19 impact. Conclusion Results suggest that the COVID-19 impacts on autistic adults are variable, with those reporting a more significant impact also reporting a significantly lower level of participation. These findings emphasize the importance of individualized planning to support autistic adults to maintain or regain participation in their preferred activities during the pandemic and beyond. En ligne : https://doi.org/10.1016/j.rasd.2023.102278 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517

Feeling intimidated and uncomfortable: Established and exacerbated educational inequities experienced by black parents of autistic children / Kaitlin H. KOFFER MILLER in Autism Research, 16-5 (May 2023)  

Public ISBD [article]  inAutism Research > 16-5 (May 2023) . - p.1040-1051 Titre : Feeling intimidated and uncomfortable: Established and exacerbated educational inequities experienced by black parents of autistic children Type de document : texte imprimé Auteurs : Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Jonas C. VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : p.1040-1051 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract There are clear racial disparities that impact the education system. To capture the educational experiences of family members of Black autistic children as compared to white autistic children in the United States (US), a mixed methods design was implemented and included semi-structured interviews with family members of children between the ages of 5-12 who participated in a survey. The survey responses were used as attribute data. Twenty-nine interviews were conducted with parents of school-age autistic children. Findings from this study highlight challenges experienced by parents including education service use and engagement during the COVID-19 pandemic, engaging with school personnel, and securing accommodations. The findings from this study illuminate the disparities experienced by Black parents of autistic children directly reported by the parents themselves in comparison to white parents. The themes elucidated in this study have implications for policy, practice, and research to ensure equity in educational settings for Black autistic students and their families. En ligne : http://dx.doi.org/https://doi.org/10.1002/aur.2919 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=503 [article] Feeling intimidated and uncomfortable: Established and exacerbated educational inequities experienced by black parents of autistic children [texte imprimé] / Kaitlin H. KOFFER MILLER, Auteur ; Dylan S. COOPER, Auteur ; Jonas C. VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur . - p.1040-1051. Langues : Anglais (eng) in Autism Research > 16-5 (May 2023) . - p.1040-1051 Index. décimale : PER Périodiques Résumé : Abstract There are clear racial disparities that impact the education system. To capture the educational experiences of family members of Black autistic children as compared to white autistic children in the United States (US), a mixed methods design was implemented and included semi-structured interviews with family members of children between the ages of 5-12 who participated in a survey. The survey responses were used as attribute data. Twenty-nine interviews were conducted with parents of school-age autistic children. Findings from this study highlight challenges experienced by parents including education service use and engagement during the COVID-19 pandemic, engaging with school personnel, and securing accommodations. The findings from this study illuminate the disparities experienced by Black parents of autistic children directly reported by the parents themselves in comparison to white parents. The themes elucidated in this study have implications for policy, practice, and research to ensure equity in educational settings for Black autistic students and their families. En ligne : http://dx.doi.org/https://doi.org/10.1002/aur.2919 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=503

Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research / L. L. SHEA in Autism Research, 14-10 (October 2021)  

Public ISBD [article]  inAutism Research > 14-10 (October 2021) . - p.2053-2060 Titre : Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research Type de document : texte imprimé Auteurs : L. L. SHEA, Auteur ; Dylan S. COOPER, Auteur ; A. B. WILSON, Auteur Article en page(s) : p.2053-2060 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Criminal Law  Criminals  Humans  Prevalence  criminal law  policy  research Index. décimale : PER Périodiques Résumé : Researchers have identified that autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. The prevalence of autism spectrum disorder (ASD) is increasing and generating a comprehensive approach to addressing criminal justice system involvement among autistic individuals is a timely and urgent need. Revisions to an established framework generated for use among individuals with mental health diagnoses, the sequential Intercept Model (SIM), were produced by an international consortium of interdisciplinary stakeholders presenting a new opportunity to identify gaps in ASD research and generate preventive solutions across the criminal justice system. The revised SIM maps each criminal justice system component, or Intercept, and includes paths for the experiences of autistic individuals as victims or witnesses to crimes as well as offenders to catalyze new and interdisciplinary research, policy, and practice efforts. As the field of ASD research continues to grow, the revised SIM is a promising pathway to avoiding siloed research approaches, including diverse autistic voices, and contributing to international dialogue about criminal justice reform at a critical juncture. LAY SUMMARY: Autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. A revised version of the SIM generated by an international consortium provides a cohesive framework to ensure research focused on this topic extends across the criminal justice system. Preventing and improving interactions between autistic individuals and the criminal justice system is an urgent research, policy, and practice need. En ligne : http://dx.doi.org/10.1002/aur.2594 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research [texte imprimé] / L. L. SHEA, Auteur ; Dylan S. COOPER, Auteur ; A. B. WILSON, Auteur . - p.2053-2060. Langues : Anglais (eng) in Autism Research > 14-10 (October 2021) . - p.2053-2060 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Criminal Law  Criminals  Humans  Prevalence  criminal law  policy  research Index. décimale : PER Périodiques Résumé : Researchers have identified that autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. The prevalence of autism spectrum disorder (ASD) is increasing and generating a comprehensive approach to addressing criminal justice system involvement among autistic individuals is a timely and urgent need. Revisions to an established framework generated for use among individuals with mental health diagnoses, the sequential Intercept Model (SIM), were produced by an international consortium of interdisciplinary stakeholders presenting a new opportunity to identify gaps in ASD research and generate preventive solutions across the criminal justice system. The revised SIM maps each criminal justice system component, or Intercept, and includes paths for the experiences of autistic individuals as victims or witnesses to crimes as well as offenders to catalyze new and interdisciplinary research, policy, and practice efforts. As the field of ASD research continues to grow, the revised SIM is a promising pathway to avoiding siloed research approaches, including diverse autistic voices, and contributing to international dialogue about criminal justice reform at a critical juncture. LAY SUMMARY: Autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. A revised version of the SIM generated by an international consortium provides a cohesive framework to ensure research focused on this topic extends across the criminal justice system. Preventing and improving interactions between autistic individuals and the criminal justice system is an urgent research, policy, and practice need. En ligne : http://dx.doi.org/10.1002/aur.2594 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

A response to and caution of "Language is a critical mediator of autistic experiences within the criminal justice system" / Lindsay SHEA in Autism Research, 17-3 (March 2024)  

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Self-reported service needs and barriers reported by autistic adults: Differences by gender identity / Kaitlin H. KOFFER MILLER in Research in Autism Spectrum Disorders, 92 (April 2022)  

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What do we know about autism and policing globally? Preliminary findings from an international effort to examine autism and the criminal justice system / Dylan S. COOPER in Autism Research, 17-10 (October 2024)  

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