Discrimination and victimization as mediators between social support and psychological distress in autistic adults / Nuria JEANNERET in Research in Autism Spectrum Disorders, 98 (October 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 98 (October 2022) . - 102038 Titre : Discrimination and victimization as mediators between social support and psychological distress in autistic adults Type de document : texte imprimé Auteurs : Nuria JEANNERET, Auteur ; Isabelle COURCY, Auteur ; Vicky CARON, Auteur ; Mathieu GIROUX, Auteur ; Lucila GUERRERO, Auteur ; Mélanie OUIMET, Auteur ; Baudouin FORGEOT D'ARC, Auteur ; Isabelle SOULIERES, Auteur Article en page(s) : 102038 Langues : Anglais (eng) Mots-clés : Access mental health  Personal support network  Psychosocial services  Health services  Rights  Wellbeing Index. décimale : PER Périodiques Résumé : Background The mental health of autistic adults is a critical concern. The aim of this study is to gain a better understanding of how access to professional and social support combines with the experience of discrimination and victimization to explain psychological distress in autistic adults. Method A cross-sectional online survey was conducted to provide information on psychological distress (Kessler K6), characteristics of the personal social support network, utilization and access to social and professional support, diagnosis and health conditions, and socio-demographic characteristics of the respondents. Two-hundred and twenty-two (222) autistic adults from Quebec (Canada) completed the survey. Result The results indicate high rates of psychological distress (51%), significant unmet support needs and many barriers to accessing psychosocial and health services. Four independent serial multiple mediator models confirm that social support and experiences of discrimination and victimization statistically mediate the relationship between professional support and psychological distress. Conclusions This study contributes to the understanding of the role of social support in the development of mental health difficulties in autistic people. Several courses of action are proposed, such as the implementation of structural corrective measures for access to services (e.g., limiting waiting times), design of service settings to limit possible sources of hypersensitivity, diversification of appointment methods (telehealth), making general service providers aware of the specific realities and characteristics of autism, greater consideration of the social aspects that influence mental health, the development of peer support programs, and the adoption of a positive and non-ableist view of autism in training programs. En ligne : https://doi.org/10.1016/j.rasd.2022.102038 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 [article] Discrimination and victimization as mediators between social support and psychological distress in autistic adults [texte imprimé] / Nuria JEANNERET, Auteur ; Isabelle COURCY, Auteur ; Vicky CARON, Auteur ; Mathieu GIROUX, Auteur ; Lucila GUERRERO, Auteur ; Mélanie OUIMET, Auteur ; Baudouin FORGEOT D'ARC, Auteur ; Isabelle SOULIERES, Auteur . - 102038. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 98 (October 2022) . - 102038 Mots-clés : Access mental health  Personal support network  Psychosocial services  Health services  Rights  Wellbeing Index. décimale : PER Périodiques Résumé : Background The mental health of autistic adults is a critical concern. The aim of this study is to gain a better understanding of how access to professional and social support combines with the experience of discrimination and victimization to explain psychological distress in autistic adults. Method A cross-sectional online survey was conducted to provide information on psychological distress (Kessler K6), characteristics of the personal social support network, utilization and access to social and professional support, diagnosis and health conditions, and socio-demographic characteristics of the respondents. Two-hundred and twenty-two (222) autistic adults from Quebec (Canada) completed the survey. Result The results indicate high rates of psychological distress (51%), significant unmet support needs and many barriers to accessing psychosocial and health services. Four independent serial multiple mediator models confirm that social support and experiences of discrimination and victimization statistically mediate the relationship between professional support and psychological distress. Conclusions This study contributes to the understanding of the role of social support in the development of mental health difficulties in autistic people. Several courses of action are proposed, such as the implementation of structural corrective measures for access to services (e.g., limiting waiting times), design of service settings to limit possible sources of hypersensitivity, diversification of appointment methods (telehealth), making general service providers aware of the specific realities and characteristics of autism, greater consideration of the social aspects that influence mental health, the development of peer support programs, and the adoption of a positive and non-ableist view of autism in training programs. En ligne : https://doi.org/10.1016/j.rasd.2022.102038 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490

Nor weak ties, nor strong ties: Personal support networks and relations between autistic peers / Isabelle COURCY in Autism, 30-1 (January 2026)  

Public ISBD [article]  inAutism > 30-1 (January 2026) . - p.97-110 Titre : Nor weak ties, nor strong ties: Personal support networks and relations between autistic peers Type de document : texte imprimé Auteurs : Isabelle COURCY, Auteur ; Noémie CUSSON, Auteur ; Nuria JEANNERET, Auteur Article en page(s) : p.97-110 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  family functioning and support  qualitative research Index. décimale : PER Périodiques Résumé : The aim of this study is to analyze egocentric social networks of 31 autistic adults in Québec (Canada). We examined the composition of their proximal personal support network and the role of support shared among autistic peers. A mixed method analysis was used. An egocentric network questionnaire that included qualitative prompts was conducted to gather participants’ interpretations and reference systems, facilitating an understanding of networks’ multidimensional aspect. A reflexive thematic analysis was conducted with a subset of the data from the qualitative prompts. Three main themes were identified: (1) interference in social interactions, (2) mutual acknowledgment, and (3) social engagement in the community. Most participants (n = 21) mentioned autistic peers, but although these peers may have provided support, participants rarely identified them as being part of their proximal personal support network. Results nevertheless highlight the importance of peer support for several participants, which can refer to the concept of “weak ties,” but they differ from it by the exchanges of emotional support, which are normally expected from “strong” ties.Lay abstract Social support is recognized as an important predictor of quality of life in autistic and neurodivergent people. However, few studies have explored in detail the composition of support networks in autistic adults. Moreover, research on social networks in the field of autism has mainly focused on the support networks of experts and parents. This article presents the results of a study that analyzed the composition of the support network of 31 autistic adults and examined the role of autistic peer support in their network. Interviews were conducted with the participants. Most of them (n = 21) mentioned autistic peers in their social network. Although these peers provided unique types of support, participants rarely identified them as close friends or relatives. Nevertheless, the results underline the importance of peer support for participants, which often presented itself as empathetic listening, the sharing of advice to deal with everyday life issues and company for recreational activities. This study shows that we should not underestimate the support that can be provided by people who share a common experience, even if they are not considered close friends. It paves the way to thinking about how communities and professionals, such as social workers and educators, can support opportunities and facilitate spaces that foster peer support. En ligne : https://dx.doi.org/10.1177/13623613251369908 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=578 [article] Nor weak ties, nor strong ties: Personal support networks and relations between autistic peers [texte imprimé] / Isabelle COURCY, Auteur ; Noémie CUSSON, Auteur ; Nuria JEANNERET, Auteur . - p.97-110. Langues : Anglais (eng) in Autism > 30-1 (January 2026) . - p.97-110 Mots-clés : adults  autism spectrum disorders  family functioning and support  qualitative research Index. décimale : PER Périodiques Résumé : The aim of this study is to analyze egocentric social networks of 31 autistic adults in Québec (Canada). We examined the composition of their proximal personal support network and the role of support shared among autistic peers. A mixed method analysis was used. An egocentric network questionnaire that included qualitative prompts was conducted to gather participants’ interpretations and reference systems, facilitating an understanding of networks’ multidimensional aspect. A reflexive thematic analysis was conducted with a subset of the data from the qualitative prompts. Three main themes were identified: (1) interference in social interactions, (2) mutual acknowledgment, and (3) social engagement in the community. Most participants (n = 21) mentioned autistic peers, but although these peers may have provided support, participants rarely identified them as being part of their proximal personal support network. Results nevertheless highlight the importance of peer support for several participants, which can refer to the concept of “weak ties,” but they differ from it by the exchanges of emotional support, which are normally expected from “strong” ties.Lay abstract Social support is recognized as an important predictor of quality of life in autistic and neurodivergent people. However, few studies have explored in detail the composition of support networks in autistic adults. Moreover, research on social networks in the field of autism has mainly focused on the support networks of experts and parents. This article presents the results of a study that analyzed the composition of the support network of 31 autistic adults and examined the role of autistic peer support in their network. Interviews were conducted with the participants. Most of them (n = 21) mentioned autistic peers in their social network. Although these peers provided unique types of support, participants rarely identified them as close friends or relatives. Nevertheless, the results underline the importance of peer support for participants, which often presented itself as empathetic listening, the sharing of advice to deal with everyday life issues and company for recreational activities. This study shows that we should not underestimate the support that can be provided by people who share a common experience, even if they are not considered close friends. It paves the way to thinking about how communities and professionals, such as social workers and educators, can support opportunities and facilitate spaces that foster peer support. En ligne : https://dx.doi.org/10.1177/13623613251369908 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=578

Sociocultural context and autistics' quality of life: A comparison between Québec and France / Vicky CARON in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.900-913 Titre : Sociocultural context and autistics' quality of life: A comparison between Québec and France Type de document : texte imprimé Auteurs : Vicky CARON, Auteur ; Nuria JEANNERET, Auteur ; Mathieu GIROUX, Auteur ; Lucila GUERRERO, Auteur ; Mélanie OUIMET, Auteur ; Baudouin FORGEOT D'ARC, Auteur ; Isabelle SOULIERES, Auteur ; Isabelle COURCY, Auteur Article en page(s) : p.900-913 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder  Humans  Interpersonal Relations  Quality of Life  Quebec  adults  autism spectrum  environmental factors  gender  psychiatric comorbidity  stigma  work  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : What is already known about the topic? Quality of life refers to how people perceive aspects of their life such as physical health, material security, and interpersonal relationships. Studies have reported lower quality of life among autistic individuals than in the general population.What does this article contribute? This article contributes to a better understanding of quality of life and its measures from the point of view of autistic adults. By comparing two groups of French-speaking autistic adults from two different places (France and Québec-Canada), this research shows that the perception of quality of life and its determining factors differ for autistic adults living in each country. The Québec group reported a superior quality of life, and some quality of life predictors were different in each group. The social experience of autism-related stigmatization, however, was a powerful predictor of quality of life for all.Implications for practice, research, and policy To promote a higher quality of life for autistic people, it is important to consider the sociocultural context and implement awareness programs and public campaigns aimed at identifying and countering stigmatization processes. En ligne : https://dx.doi.org/10.1177/13623613211035229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Sociocultural context and autistics' quality of life: A comparison between Québec and France [texte imprimé] / Vicky CARON, Auteur ; Nuria JEANNERET, Auteur ; Mathieu GIROUX, Auteur ; Lucila GUERRERO, Auteur ; Mélanie OUIMET, Auteur ; Baudouin FORGEOT D'ARC, Auteur ; Isabelle SOULIERES, Auteur ; Isabelle COURCY, Auteur . - p.900-913. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.900-913 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder  Humans  Interpersonal Relations  Quality of Life  Quebec  adults  autism spectrum  environmental factors  gender  psychiatric comorbidity  stigma  work  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : What is already known about the topic? Quality of life refers to how people perceive aspects of their life such as physical health, material security, and interpersonal relationships. Studies have reported lower quality of life among autistic individuals than in the general population.What does this article contribute? This article contributes to a better understanding of quality of life and its measures from the point of view of autistic adults. By comparing two groups of French-speaking autistic adults from two different places (France and Québec-Canada), this research shows that the perception of quality of life and its determining factors differ for autistic adults living in each country. The Québec group reported a superior quality of life, and some quality of life predictors were different in each group. The social experience of autism-related stigmatization, however, was a powerful predictor of quality of life for all.Implications for practice, research, and policy To promote a higher quality of life for autistic people, it is important to consider the sociocultural context and implement awareness programs and public campaigns aimed at identifying and countering stigmatization processes. En ligne : https://dx.doi.org/10.1177/13623613211035229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

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