Alternative treatments for autism: Prevalence and predictors / Kim M. JONKMAN in Research in Autism Spectrum Disorders, 98 (October 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 98 (October 2022) . - 102046 Titre : Alternative treatments for autism: Prevalence and predictors Type de document : texte imprimé Auteurs : Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Wouter G. STAAL, Auteur ; Lotte BENARD, Auteur ; Daniël M. VAN DER DOELEN, Auteur ; Sander BEGEER, Auteur Article en page(s) : 102046 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Complementary and alternative medicine  Complementary health approaches Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous neurodevelopmental disorder for which a large variety of treatments are offered, including alternative treatments. Vaccine-related treatments (treatments falsely claiming to cure autism by addressing its alleged cause: routine childhood vaccines such as MMR) continue to be offered worldwide, despite widespread evidence against the effectiveness and even possible harm related to these treatments. We analysed the use of alternative treatments in two studies: a survey study (N = 1989, autistic adults and parents/legal representatives of individuals with autism) and a clinical care study (N = 4520, patient files from a treatment center for autism). Both studies found a relatively high frequency of alternative treatments (23.0-30.7%) - in children even 46.4% -, mostly in combination with mainstream treatment. In the survey study vaccine-related treatments were used by 3.2% of all individuals with autism (and 6.7% of autistic children), and alternative treatment use was predicted by co-occurring diagnoses, younger age of diagnosis and mainstream treatment use. In the clinical care study, patients who had received treatment from a homeo-/osteopath more often had highly educated parents from Dutch/Western background and were more often enrolled in special education. Alternative treatments are widely used and should be included in treatment guidelines. Parents, practitioners and individuals with autism should be both advised and warned about the benefits and risks of these treatments. More research is needed to better understand the choice for and effect of alternative treatments for autism, and mainstream care should be improved. En ligne : https://doi.org/10.1016/j.rasd.2022.102046 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 [article] Alternative treatments for autism: Prevalence and predictors [texte imprimé] / Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Wouter G. STAAL, Auteur ; Lotte BENARD, Auteur ; Daniël M. VAN DER DOELEN, Auteur ; Sander BEGEER, Auteur . - 102046. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 98 (October 2022) . - 102046 Mots-clés : Autism spectrum disorder  Complementary and alternative medicine  Complementary health approaches Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous neurodevelopmental disorder for which a large variety of treatments are offered, including alternative treatments. Vaccine-related treatments (treatments falsely claiming to cure autism by addressing its alleged cause: routine childhood vaccines such as MMR) continue to be offered worldwide, despite widespread evidence against the effectiveness and even possible harm related to these treatments. We analysed the use of alternative treatments in two studies: a survey study (N = 1989, autistic adults and parents/legal representatives of individuals with autism) and a clinical care study (N = 4520, patient files from a treatment center for autism). Both studies found a relatively high frequency of alternative treatments (23.0-30.7%) - in children even 46.4% -, mostly in combination with mainstream treatment. In the survey study vaccine-related treatments were used by 3.2% of all individuals with autism (and 6.7% of autistic children), and alternative treatment use was predicted by co-occurring diagnoses, younger age of diagnosis and mainstream treatment use. In the clinical care study, patients who had received treatment from a homeo-/osteopath more often had highly educated parents from Dutch/Western background and were more often enrolled in special education. Alternative treatments are widely used and should be included in treatment guidelines. Parents, practitioners and individuals with autism should be both advised and warned about the benefits and risks of these treatments. More research is needed to better understand the choice for and effect of alternative treatments for autism, and mainstream care should be improved. En ligne : https://doi.org/10.1016/j.rasd.2022.102046 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490

Exploring experiences of vaccine-related and alternative treatments for individuals with autism: A qualitative study / Kim M. JONKMAN in Research in Autism Spectrum Disorders, 106 (August 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 106 (August 2023) . - 102204 Titre : Exploring experiences of vaccine-related and alternative treatments for individuals with autism: A qualitative study Type de document : texte imprimé Auteurs : Kim M. JONKMAN, Auteur ; Maria LIVANOU, Auteur ; Manna A. ALMA, Auteur ; Lotte BENARD, Auteur ; Sander BEGEER, Auteur ; Elisa BACK, Auteur Année de publication : 2023 Article en page(s) : 102204 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Complementary and alternative medicine  Complementary health approaches  Qualitative study Index. décimale : PER Périodiques Résumé : Some alternative treatments wrongly suggest that routine childhood vaccines cause autism resulting in vaccine skepticism and false claims about curing autism. In the present study we explore the experiences of vaccine-related and alternative treatments of autistic individuals. Semi-structured interviews were conducted with autistic adults (n = 3), parents of autistic children (n = 5) and parents of autistic adults (n = 5). Thematic analysis showed five themes: (1) reasons for choosing alternative treatment, (2) treatment content, (3) experiences with alternative care, (4) outcomes of the vaccine-related treatment and (5) future directions for treating autism. Both positive (holistic approach, time and attention) and negative aspects (false claims about vaccines and curability of autism) were found. Improved support and guidelines could reduce ineffective and harmful alternative treatments for autism. En ligne : https://doi.org/10.1016/j.rasd.2023.102204 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509 [article] Exploring experiences of vaccine-related and alternative treatments for individuals with autism: A qualitative study [texte imprimé] / Kim M. JONKMAN, Auteur ; Maria LIVANOU, Auteur ; Manna A. ALMA, Auteur ; Lotte BENARD, Auteur ; Sander BEGEER, Auteur ; Elisa BACK, Auteur . - 2023 . - 102204. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 106 (August 2023) . - 102204 Mots-clés : Autism spectrum disorder  Complementary and alternative medicine  Complementary health approaches  Qualitative study Index. décimale : PER Périodiques Résumé : Some alternative treatments wrongly suggest that routine childhood vaccines cause autism resulting in vaccine skepticism and false claims about curing autism. In the present study we explore the experiences of vaccine-related and alternative treatments of autistic individuals. Semi-structured interviews were conducted with autistic adults (n = 3), parents of autistic children (n = 5) and parents of autistic adults (n = 5). Thematic analysis showed five themes: (1) reasons for choosing alternative treatment, (2) treatment content, (3) experiences with alternative care, (4) outcomes of the vaccine-related treatment and (5) future directions for treating autism. Both positive (holistic approach, time and attention) and negative aspects (false claims about vaccines and curability of autism) were found. Improved support and guidelines could reduce ineffective and harmful alternative treatments for autism. En ligne : https://doi.org/10.1016/j.rasd.2023.102204 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509

Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis / Tim ZIERMANS ; Iris RAPOPORT ; Kim M. JONKMAN ; Hilde M. GEURTS in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1431-1445 Titre : Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis Type de document : texte imprimé Auteurs : Tim ZIERMANS, Auteur ; Iris RAPOPORT, Auteur ; Kim M. JONKMAN, Auteur ; Hilde M. GEURTS, Auteur Article en page(s) : p.1431-1445 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  interventions  pharmacologic  psychiatric comorbidity  psychosocial/behavioral Index. décimale : PER Périodiques Résumé : To improve mental health care for autistic adults, a better understanding of their real-world intervention use is required. The aim of this study is to investigate individual differences in the intervention trajectories of autistic adults, by examining longitudinal patterns of therapy, counseling, and medication use. Self-reported intervention use of 445 autistic adults (18-87 years) across at least five consecutive measurements (2015-2021) was collected to identify clusters using sequence analysis and hierarchical clustering. Sensitivity analyses and cross-method validation (group-based multivariate trajectory modeling) were used to verify the obtained clusters. Four out of five obtained clusters had sufficient internal consistency and were replicated. These four clusters had distinct intervention trajectories (least intervention, mostly counseling, mostly medication, mixed use) and differed on several demographic variables. Most notably, the "mixed cluster" contained relatively more females and individuals with self-reported co-occurring psychiatric conditions. Many autistic adults used interventions, although they varied in type and duration of intervention use. This reflects the clinical complexity of tailoring intervention approaches and highlights that accessible and multidisciplinary care is essential to adequately support autistic adults. An important next step is to investigate whether available interventions sufficiently support autistic females and those with co-occurring psychiatric conditions.Lay abstract Many autistic adults experience co-occurring mental health problems, which have a negative effect on their well-being and result in increased use of mental health services. To improve mental healthcare for autistic adults, a better understanding is needed of what type of support they use in real life. Clinical guidelines recommend three kinds of mental health interventions: therapy, counseling, and medication. We investigated the use of these types of interventions in a sample of 445 autistic adults (aged 18-87 years) across a 5-to-7-year period. We found evidence for four different patterns of intervention use, or so-called subgroups: (1) least intervention use, (2) mostly counseling, (3) mostly medication, and (4) mixed intervention use. The group with mixed intervention use consisted of relatively more females and individuals with co-occurring psychiatric conditions, especially compared to the subgroup with the least intervention use. It appeared that many, but not all, autistic individuals used mental health services for an extended period. However, there was considerable variability in the type, combination, and duration of intervention use. This means that determining the optimal support for autistic adults is often a complex task, which requires collaboration of clinical experts and autistic individuals themselves, to make informed decisions. En ligne : https://dx.doi.org/10.1177/13623613241304513 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis [texte imprimé] / Tim ZIERMANS, Auteur ; Iris RAPOPORT, Auteur ; Kim M. JONKMAN, Auteur ; Hilde M. GEURTS, Auteur . - p.1431-1445. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1431-1445 Mots-clés : autism spectrum disorders  health services  interventions  pharmacologic  psychiatric comorbidity  psychosocial/behavioral Index. décimale : PER Périodiques Résumé : To improve mental health care for autistic adults, a better understanding of their real-world intervention use is required. The aim of this study is to investigate individual differences in the intervention trajectories of autistic adults, by examining longitudinal patterns of therapy, counseling, and medication use. Self-reported intervention use of 445 autistic adults (18-87 years) across at least five consecutive measurements (2015-2021) was collected to identify clusters using sequence analysis and hierarchical clustering. Sensitivity analyses and cross-method validation (group-based multivariate trajectory modeling) were used to verify the obtained clusters. Four out of five obtained clusters had sufficient internal consistency and were replicated. These four clusters had distinct intervention trajectories (least intervention, mostly counseling, mostly medication, mixed use) and differed on several demographic variables. Most notably, the "mixed cluster" contained relatively more females and individuals with self-reported co-occurring psychiatric conditions. Many autistic adults used interventions, although they varied in type and duration of intervention use. This reflects the clinical complexity of tailoring intervention approaches and highlights that accessible and multidisciplinary care is essential to adequately support autistic adults. An important next step is to investigate whether available interventions sufficiently support autistic females and those with co-occurring psychiatric conditions.Lay abstract Many autistic adults experience co-occurring mental health problems, which have a negative effect on their well-being and result in increased use of mental health services. To improve mental healthcare for autistic adults, a better understanding is needed of what type of support they use in real life. Clinical guidelines recommend three kinds of mental health interventions: therapy, counseling, and medication. We investigated the use of these types of interventions in a sample of 445 autistic adults (aged 18-87 years) across a 5-to-7-year period. We found evidence for four different patterns of intervention use, or so-called subgroups: (1) least intervention use, (2) mostly counseling, (3) mostly medication, and (4) mixed intervention use. The group with mixed intervention use consisted of relatively more females and individuals with co-occurring psychiatric conditions, especially compared to the subgroup with the least intervention use. It appeared that many, but not all, autistic individuals used mental health services for an extended period. However, there was considerable variability in the type, combination, and duration of intervention use. This means that determining the optimal support for autistic adults is often a complex task, which requires collaboration of clinical experts and autistic individuals themselves, to make informed decisions. En ligne : https://dx.doi.org/10.1177/13623613241304513 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Predicting intervention use in autistic children: Demographic and autism-specific characteristics / Kim M. JONKMAN in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.428-442 Titre : Predicting intervention use in autistic children: Demographic and autism-specific characteristics Type de document : texte imprimé Auteurs : Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Sander BEGEER, Auteur Article en page(s) : p.428-442 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  interventions – pharmacologic  interventions – psychosocial/behavioural  treatment use Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous diagnosis with symptoms that present in different ways. There is a large variety of interventions for autistic individuals. However, little is known about who chooses which specific interventions. We aimed to explore intervention prevalence and predict intervention use, based on demographic and autism-specific characteristics. This study used data on autistic children (N=1464, aged 1 “17 years) from the Netherlands Autism Register. Most children (88%) had received therapies, and about half had received medication. Intervention use was mostly related to additional factors (lower IQ, special education and co-occurring diagnoses). Children with a lower IQ received less therapies, children attending special education or with a co-occurring diagnosis received more therapies. Children in special education or with a co-occurring diagnosis were more likely to receive several types of therapy and medication. Older age, higher IQ and being female were related to more guideline (autism-specific) or mainstream (targeting co-occurring problems) therapy use. Lower parental education was related to more mainstream medication use. More severe sensory issues increased the chance of other medication use. Other autism-specific characteristics (autism severity, social skills, repetitive and restrictive behaviours) were not related to intervention use. More transdiagnostic interventions should be available for children with autism who have additional difficulties. En ligne : http://dx.doi.org/10.1177/13623613221102748 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Predicting intervention use in autistic children: Demographic and autism-specific characteristics [texte imprimé] / Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Sander BEGEER, Auteur . - p.428-442. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.428-442 Mots-clés : autism spectrum disorders  health services  interventions – pharmacologic  interventions – psychosocial/behavioural  treatment use Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous diagnosis with symptoms that present in different ways. There is a large variety of interventions for autistic individuals. However, little is known about who chooses which specific interventions. We aimed to explore intervention prevalence and predict intervention use, based on demographic and autism-specific characteristics. This study used data on autistic children (N=1464, aged 1 “17 years) from the Netherlands Autism Register. Most children (88%) had received therapies, and about half had received medication. Intervention use was mostly related to additional factors (lower IQ, special education and co-occurring diagnoses). Children with a lower IQ received less therapies, children attending special education or with a co-occurring diagnosis received more therapies. Children in special education or with a co-occurring diagnosis were more likely to receive several types of therapy and medication. Older age, higher IQ and being female were related to more guideline (autism-specific) or mainstream (targeting co-occurring problems) therapy use. Lower parental education was related to more mainstream medication use. More severe sensory issues increased the chance of other medication use. Other autism-specific characteristics (autism severity, social skills, repetitive and restrictive behaviours) were not related to intervention use. More transdiagnostic interventions should be available for children with autism who have additional difficulties. En ligne : http://dx.doi.org/10.1177/13623613221102748 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

The effectiveness of an attention-based intervention for school-aged autistic children with anger regulating problems: A randomized controlled trial / Pamela CLIFFORD in Autism Research, 15-10 (October 2022)  

Public ISBD [article]  inAutism Research > 15-10 (October 2022) . - p.1971-1984 Titre : The effectiveness of an attention-based intervention for school-aged autistic children with anger regulating problems: A randomized controlled trial Type de document : texte imprimé Auteurs : Pamela CLIFFORD, Auteur ; Carolien GEVERS, Auteur ; Kim M. JONKMAN, Auteur ; Frits BOER, Auteur ; Sander BEGEER, Auteur Article en page(s) : p.1971-1984 Langues : Anglais (eng) Mots-clés : Affect/emotion  Behavioral intervention  Children  Clinical Trials  Intervention  Treatment research Index. décimale : PER Périodiques Résumé : Anger regulation is a challenge for children with autism spectrum disorders (ASD). We investigated if attention-based cognitive behavioral treatment, based on mindfulness cognitive therapy (MBCT) and dialectical behavior therapy (DBT), reduces aggressive behavior and improves anger coping in school-aged autistic children (n = 51). Children were randomized to an active-control or a treatment condition. The treatment included nine weekly sessions attention-based individual therapy. Parents in both conditions received three weekly psychoeducation group sessions to heighten awareness of expressed emotion (EE). For aggressive behavior, treatment reduced temper tantrums and arguing. No effect was found on destroying things and physical violence. For anger coping, treatment increased adaptive coping strategies of diffusion and social support seeking, but had no effect on assertion, rumination, and maladaptive coping direct anger out and avoidance. Treatment did not impact secondary outcome measures concerning children's quality of life (QoL) and parental stress-levels and psychological well-being. In conclusion, school-aged autistic children are able to acquire self-regulation skills reducing temper tantrums and arguing and increasing the use of adaptive anger coping strategies. The intervention shows potential to improve behavior and regulation, but little transfer to other domains. Limitations and future directions involving the child's social environment, including parents, siblings, and teachers are discussed. LAY SUMMARY: Children on the autism spectrum often show aggressive behavior. Treatment can train children to be more aware of their emotions. This study found that this can help reducing temper tantrums and arguing and increasing some coping skills, though no impact was found on several other domains of aggression and coping. En ligne : http://dx.doi.org/10.1002/aur.2800 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] The effectiveness of an attention-based intervention for school-aged autistic children with anger regulating problems: A randomized controlled trial [texte imprimé] / Pamela CLIFFORD, Auteur ; Carolien GEVERS, Auteur ; Kim M. JONKMAN, Auteur ; Frits BOER, Auteur ; Sander BEGEER, Auteur . - p.1971-1984. Langues : Anglais (eng) in Autism Research > 15-10 (October 2022) . - p.1971-1984 Mots-clés : Affect/emotion  Behavioral intervention  Children  Clinical Trials  Intervention  Treatment research Index. décimale : PER Périodiques Résumé : Anger regulation is a challenge for children with autism spectrum disorders (ASD). We investigated if attention-based cognitive behavioral treatment, based on mindfulness cognitive therapy (MBCT) and dialectical behavior therapy (DBT), reduces aggressive behavior and improves anger coping in school-aged autistic children (n = 51). Children were randomized to an active-control or a treatment condition. The treatment included nine weekly sessions attention-based individual therapy. Parents in both conditions received three weekly psychoeducation group sessions to heighten awareness of expressed emotion (EE). For aggressive behavior, treatment reduced temper tantrums and arguing. No effect was found on destroying things and physical violence. For anger coping, treatment increased adaptive coping strategies of diffusion and social support seeking, but had no effect on assertion, rumination, and maladaptive coping direct anger out and avoidance. Treatment did not impact secondary outcome measures concerning children's quality of life (QoL) and parental stress-levels and psychological well-being. In conclusion, school-aged autistic children are able to acquire self-regulation skills reducing temper tantrums and arguing and increasing the use of adaptive anger coping strategies. The intervention shows potential to improve behavior and regulation, but little transfer to other domains. Limitations and future directions involving the child's social environment, including parents, siblings, and teachers are discussed. LAY SUMMARY: Children on the autism spectrum often show aggressive behavior. Treatment can train children to be more aware of their emotions. This study found that this can help reducing temper tantrums and arguing and increasing some coping skills, though no impact was found on several other domains of aggression and coping. En ligne : http://dx.doi.org/10.1002/aur.2800 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

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