Alternative treatments for autism: Prevalence and predictors / Kim M. JONKMAN in Research in Autism Spectrum Disorders, 98 (October 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 98 (October 2022) . - 102046 Titre : Alternative treatments for autism: Prevalence and predictors Type de document : Texte imprimé et/ou numérique Auteurs : Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Wouter G. STAAL, Auteur ; Lotte BENARD, Auteur ; Daniël M. VAN DER DOELEN, Auteur ; Sander BEGEER, Auteur Article en page(s) : 102046 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Complementary and alternative medicine  Complementary health approaches Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous neurodevelopmental disorder for which a large variety of treatments are offered, including alternative treatments. Vaccine-related treatments (treatments falsely claiming to cure autism by addressing its alleged cause: routine childhood vaccines such as MMR) continue to be offered worldwide, despite widespread evidence against the effectiveness and even possible harm related to these treatments. We analysed the use of alternative treatments in two studies: a survey study (N = 1989, autistic adults and parents/legal representatives of individuals with autism) and a clinical care study (N = 4520, patient files from a treatment center for autism). Both studies found a relatively high frequency of alternative treatments (23.0-30.7%) - in children even 46.4% -, mostly in combination with mainstream treatment. In the survey study vaccine-related treatments were used by 3.2% of all individuals with autism (and 6.7% of autistic children), and alternative treatment use was predicted by co-occurring diagnoses, younger age of diagnosis and mainstream treatment use. In the clinical care study, patients who had received treatment from a homeo-/osteopath more often had highly educated parents from Dutch/Western background and were more often enrolled in special education. Alternative treatments are widely used and should be included in treatment guidelines. Parents, practitioners and individuals with autism should be both advised and warned about the benefits and risks of these treatments. More research is needed to better understand the choice for and effect of alternative treatments for autism, and mainstream care should be improved. En ligne : https://doi.org/10.1016/j.rasd.2022.102046 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 [article] Alternative treatments for autism: Prevalence and predictors [Texte imprimé et/ou numérique] / Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Wouter G. STAAL, Auteur ; Lotte BENARD, Auteur ; Daniël M. VAN DER DOELEN, Auteur ; Sander BEGEER, Auteur . - 102046. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 98 (October 2022) . - 102046 Mots-clés : Autism spectrum disorder  Complementary and alternative medicine  Complementary health approaches Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous neurodevelopmental disorder for which a large variety of treatments are offered, including alternative treatments. Vaccine-related treatments (treatments falsely claiming to cure autism by addressing its alleged cause: routine childhood vaccines such as MMR) continue to be offered worldwide, despite widespread evidence against the effectiveness and even possible harm related to these treatments. We analysed the use of alternative treatments in two studies: a survey study (N = 1989, autistic adults and parents/legal representatives of individuals with autism) and a clinical care study (N = 4520, patient files from a treatment center for autism). Both studies found a relatively high frequency of alternative treatments (23.0-30.7%) - in children even 46.4% -, mostly in combination with mainstream treatment. In the survey study vaccine-related treatments were used by 3.2% of all individuals with autism (and 6.7% of autistic children), and alternative treatment use was predicted by co-occurring diagnoses, younger age of diagnosis and mainstream treatment use. In the clinical care study, patients who had received treatment from a homeo-/osteopath more often had highly educated parents from Dutch/Western background and were more often enrolled in special education. Alternative treatments are widely used and should be included in treatment guidelines. Parents, practitioners and individuals with autism should be both advised and warned about the benefits and risks of these treatments. More research is needed to better understand the choice for and effect of alternative treatments for autism, and mainstream care should be improved. En ligne : https://doi.org/10.1016/j.rasd.2022.102046 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490

Exploring experiences of vaccine-related and alternative treatments for individuals with autism: A qualitative study / Kim M. JONKMAN in Research in Autism Spectrum Disorders, 106 (August 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 106 (August 2023) . - 102204 Titre : Exploring experiences of vaccine-related and alternative treatments for individuals with autism: A qualitative study Type de document : Texte imprimé et/ou numérique Auteurs : Kim M. JONKMAN, Auteur ; Maria LIVANOU, Auteur ; Manna A. ALMA, Auteur ; Lotte BENARD, Auteur ; Sander BEGEER, Auteur ; Elisa BACK, Auteur Année de publication : 2023 Article en page(s) : 102204 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Complementary and alternative medicine  Complementary health approaches  Qualitative study Index. décimale : PER Périodiques Résumé : Some alternative treatments wrongly suggest that routine childhood vaccines cause autism resulting in vaccine skepticism and false claims about curing autism. In the present study we explore the experiences of vaccine-related and alternative treatments of autistic individuals. Semi-structured interviews were conducted with autistic adults (n = 3), parents of autistic children (n = 5) and parents of autistic adults (n = 5). Thematic analysis showed five themes: (1) reasons for choosing alternative treatment, (2) treatment content, (3) experiences with alternative care, (4) outcomes of the vaccine-related treatment and (5) future directions for treating autism. Both positive (holistic approach, time and attention) and negative aspects (false claims about vaccines and curability of autism) were found. Improved support and guidelines could reduce ineffective and harmful alternative treatments for autism. En ligne : https://doi.org/10.1016/j.rasd.2023.102204 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509 [article] Exploring experiences of vaccine-related and alternative treatments for individuals with autism: A qualitative study [Texte imprimé et/ou numérique] / Kim M. JONKMAN, Auteur ; Maria LIVANOU, Auteur ; Manna A. ALMA, Auteur ; Lotte BENARD, Auteur ; Sander BEGEER, Auteur ; Elisa BACK, Auteur . - 2023 . - 102204. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 106 (August 2023) . - 102204 Mots-clés : Autism spectrum disorder  Complementary and alternative medicine  Complementary health approaches  Qualitative study Index. décimale : PER Périodiques Résumé : Some alternative treatments wrongly suggest that routine childhood vaccines cause autism resulting in vaccine skepticism and false claims about curing autism. In the present study we explore the experiences of vaccine-related and alternative treatments of autistic individuals. Semi-structured interviews were conducted with autistic adults (n = 3), parents of autistic children (n = 5) and parents of autistic adults (n = 5). Thematic analysis showed five themes: (1) reasons for choosing alternative treatment, (2) treatment content, (3) experiences with alternative care, (4) outcomes of the vaccine-related treatment and (5) future directions for treating autism. Both positive (holistic approach, time and attention) and negative aspects (false claims about vaccines and curability of autism) were found. Improved support and guidelines could reduce ineffective and harmful alternative treatments for autism. En ligne : https://doi.org/10.1016/j.rasd.2023.102204 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509

Predicting intervention use in autistic children: Demographic and autism-specific characteristics / Kim M. JONKMAN in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.428-442 Titre : Predicting intervention use in autistic children: Demographic and autism-specific characteristics Type de document : Texte imprimé et/ou numérique Auteurs : Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Sander BEGEER, Auteur Article en page(s) : p.428-442 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  interventions – pharmacologic  interventions – psychosocial/behavioural  treatment use Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous diagnosis with symptoms that present in different ways. There is a large variety of interventions for autistic individuals. However, little is known about who chooses which specific interventions. We aimed to explore intervention prevalence and predict intervention use, based on demographic and autism-specific characteristics. This study used data on autistic children (N=1464, aged 1 “17 years) from the Netherlands Autism Register. Most children (88%) had received therapies, and about half had received medication. Intervention use was mostly related to additional factors (lower IQ, special education and co-occurring diagnoses). Children with a lower IQ received less therapies, children attending special education or with a co-occurring diagnosis received more therapies. Children in special education or with a co-occurring diagnosis were more likely to receive several types of therapy and medication. Older age, higher IQ and being female were related to more guideline (autism-specific) or mainstream (targeting co-occurring problems) therapy use. Lower parental education was related to more mainstream medication use. More severe sensory issues increased the chance of other medication use. Other autism-specific characteristics (autism severity, social skills, repetitive and restrictive behaviours) were not related to intervention use. More transdiagnostic interventions should be available for children with autism who have additional difficulties. En ligne : http://dx.doi.org/10.1177/13623613221102748 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Predicting intervention use in autistic children: Demographic and autism-specific characteristics [Texte imprimé et/ou numérique] / Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Sander BEGEER, Auteur . - p.428-442. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.428-442 Mots-clés : autism spectrum disorders  health services  interventions – pharmacologic  interventions – psychosocial/behavioural  treatment use Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous diagnosis with symptoms that present in different ways. There is a large variety of interventions for autistic individuals. However, little is known about who chooses which specific interventions. We aimed to explore intervention prevalence and predict intervention use, based on demographic and autism-specific characteristics. This study used data on autistic children (N=1464, aged 1 “17 years) from the Netherlands Autism Register. Most children (88%) had received therapies, and about half had received medication. Intervention use was mostly related to additional factors (lower IQ, special education and co-occurring diagnoses). Children with a lower IQ received less therapies, children attending special education or with a co-occurring diagnosis received more therapies. Children in special education or with a co-occurring diagnosis were more likely to receive several types of therapy and medication. Older age, higher IQ and being female were related to more guideline (autism-specific) or mainstream (targeting co-occurring problems) therapy use. Lower parental education was related to more mainstream medication use. More severe sensory issues increased the chance of other medication use. Other autism-specific characteristics (autism severity, social skills, repetitive and restrictive behaviours) were not related to intervention use. More transdiagnostic interventions should be available for children with autism who have additional difficulties. En ligne : http://dx.doi.org/10.1177/13623613221102748 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

The effectiveness of an attention-based intervention for school-aged autistic children with anger regulating problems: A randomized controlled trial / Pamela CLIFFORD in Autism Research, 15-10 (October 2022)  

Public ISBD [article]  inAutism Research > 15-10 (October 2022) . - p.1971-1984 Titre : The effectiveness of an attention-based intervention for school-aged autistic children with anger regulating problems: A randomized controlled trial Type de document : Texte imprimé et/ou numérique Auteurs : Pamela CLIFFORD, Auteur ; Carolien GEVERS, Auteur ; Kim M. JONKMAN, Auteur ; Frits BOER, Auteur ; Sander BEGEER, Auteur Article en page(s) : p.1971-1984 Langues : Anglais (eng) Mots-clés : Affect/emotion  Behavioral intervention  Children  Clinical Trials  Intervention  Treatment research Index. décimale : PER Périodiques Résumé : Anger regulation is a challenge for children with autism spectrum disorders (ASD). We investigated if attention-based cognitive behavioral treatment, based on mindfulness cognitive therapy (MBCT) and dialectical behavior therapy (DBT), reduces aggressive behavior and improves anger coping in school-aged autistic children (n = 51). Children were randomized to an active-control or a treatment condition. The treatment included nine weekly sessions attention-based individual therapy. Parents in both conditions received three weekly psychoeducation group sessions to heighten awareness of expressed emotion (EE). For aggressive behavior, treatment reduced temper tantrums and arguing. No effect was found on destroying things and physical violence. For anger coping, treatment increased adaptive coping strategies of diffusion and social support seeking, but had no effect on assertion, rumination, and maladaptive coping direct anger out and avoidance. Treatment did not impact secondary outcome measures concerning children's quality of life (QoL) and parental stress-levels and psychological well-being. In conclusion, school-aged autistic children are able to acquire self-regulation skills reducing temper tantrums and arguing and increasing the use of adaptive anger coping strategies. The intervention shows potential to improve behavior and regulation, but little transfer to other domains. Limitations and future directions involving the child's social environment, including parents, siblings, and teachers are discussed. LAY SUMMARY: Children on the autism spectrum often show aggressive behavior. Treatment can train children to be more aware of their emotions. This study found that this can help reducing temper tantrums and arguing and increasing some coping skills, though no impact was found on several other domains of aggression and coping. En ligne : http://dx.doi.org/10.1002/aur.2800 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] The effectiveness of an attention-based intervention for school-aged autistic children with anger regulating problems: A randomized controlled trial [Texte imprimé et/ou numérique] / Pamela CLIFFORD, Auteur ; Carolien GEVERS, Auteur ; Kim M. JONKMAN, Auteur ; Frits BOER, Auteur ; Sander BEGEER, Auteur . - p.1971-1984. Langues : Anglais (eng) in Autism Research > 15-10 (October 2022) . - p.1971-1984 Mots-clés : Affect/emotion  Behavioral intervention  Children  Clinical Trials  Intervention  Treatment research Index. décimale : PER Périodiques Résumé : Anger regulation is a challenge for children with autism spectrum disorders (ASD). We investigated if attention-based cognitive behavioral treatment, based on mindfulness cognitive therapy (MBCT) and dialectical behavior therapy (DBT), reduces aggressive behavior and improves anger coping in school-aged autistic children (n = 51). Children were randomized to an active-control or a treatment condition. The treatment included nine weekly sessions attention-based individual therapy. Parents in both conditions received three weekly psychoeducation group sessions to heighten awareness of expressed emotion (EE). For aggressive behavior, treatment reduced temper tantrums and arguing. No effect was found on destroying things and physical violence. For anger coping, treatment increased adaptive coping strategies of diffusion and social support seeking, but had no effect on assertion, rumination, and maladaptive coping direct anger out and avoidance. Treatment did not impact secondary outcome measures concerning children's quality of life (QoL) and parental stress-levels and psychological well-being. In conclusion, school-aged autistic children are able to acquire self-regulation skills reducing temper tantrums and arguing and increasing the use of adaptive anger coping strategies. The intervention shows potential to improve behavior and regulation, but little transfer to other domains. Limitations and future directions involving the child's social environment, including parents, siblings, and teachers are discussed. LAY SUMMARY: Children on the autism spectrum often show aggressive behavior. Treatment can train children to be more aware of their emotions. This study found that this can help reducing temper tantrums and arguing and increasing some coping skills, though no impact was found on several other domains of aggression and coping. En ligne : http://dx.doi.org/10.1002/aur.2800 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

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