Appropriateness, Acceptability, and Feasibility of a Neurodiversity-Based Self-determination Program for Autistic Adults / T. A. Meridian MCDONALD in Journal of Autism and Developmental Disorders, 53-8 (August 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-8 (August 2023) . - p.2933-2953 Titre : Appropriateness, Acceptability, and Feasibility of a Neurodiversity-Based Self-determination Program for Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : T. A. Meridian MCDONALD, Auteur ; Salima LALANI, Auteur ; Ivy CHEN, Auteur ; Claire M. COTTON, Auteur ; Lydia MACDONALD, Auteur ; Lana J. BOURSOULIAN, Auteur ; Jiahao WANG, Auteur ; Beth A. MALOW, Auteur Article en page(s) : p.2933-2953 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Published self-determination programs do not adequately address the needs of autistic adults. We designed a multi-component self-determination program, grounded in the neurodiversity paradigm, to help autistic adults achieve goals to improve their quality of life. The first phase involved 5 days of psychoeducation, practice, and social events; the second phase included 3 months of telecoaching; and the third phase included follow-up. Thirty-four university students coached 31 autistic adults on three evolving goals. On average, participants completed one goal per week. Most participants were satisfied with the program. We found that the program was appropriate, acceptable, and feasible. This program is a promising approach to helping autistic adults gain self-determination skills and improve their quality of life. En ligne : https://doi.org/10.1007/s10803-022-05598-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508 [article] Appropriateness, Acceptability, and Feasibility of a Neurodiversity-Based Self-determination Program for Autistic Adults [Texte imprimé et/ou numérique] / T. A. Meridian MCDONALD, Auteur ; Salima LALANI, Auteur ; Ivy CHEN, Auteur ; Claire M. COTTON, Auteur ; Lydia MACDONALD, Auteur ; Lana J. BOURSOULIAN, Auteur ; Jiahao WANG, Auteur ; Beth A. MALOW, Auteur . - p.2933-2953. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-8 (August 2023) . - p.2933-2953 Index. décimale : PER Périodiques Résumé : Published self-determination programs do not adequately address the needs of autistic adults. We designed a multi-component self-determination program, grounded in the neurodiversity paradigm, to help autistic adults achieve goals to improve their quality of life. The first phase involved 5 days of psychoeducation, practice, and social events; the second phase included 3 months of telecoaching; and the third phase included follow-up. Thirty-four university students coached 31 autistic adults on three evolving goals. On average, participants completed one goal per week. Most participants were satisfied with the program. We found that the program was appropriate, acceptable, and feasible. This program is a promising approach to helping autistic adults gain self-determination skills and improve their quality of life. En ligne : https://doi.org/10.1007/s10803-022-05598-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508

Mind the NIH-Funding Gap: Structural Discrimination in Physical Health-Related Research for Cognitively Able Autistic Adults / T. A. Meridian MCDONALD in Journal of Autism and Developmental Disorders, 54-4 (April 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-4 (April 2024) . - p.1411-1424 Titre : Mind the NIH-Funding Gap: Structural Discrimination in Physical Health-Related Research for Cognitively Able Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : T. A. Meridian MCDONALD, Auteur ; Audrey SCUDDER, Auteur Article en page(s) : p.1411-1424 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic adults experience disparities in physical health and health care access. A major barrier to addressing these disparities is a lack of federal funding for research on this topic. In seeking funding from the National Institutes of Health (NIH), we discovered nodes that contribute to structural discrimination in physical health-related research for autistic adults. To examine this structural discrimination, we systematically searched funded research on all physical health-disparity conditions in autistic adults using NIH RePORTER. Among 61 unique studies, none focused on improving the relevant physical health condition through intervention, programs, or services for autistic adults. Thus, we need updated policies and procedures that support research on physical health disparities in populations with developmental or mental health conditions. En ligne : https://doi.org/10.1007/s10803-022-05856-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526 [article] Mind the NIH-Funding Gap: Structural Discrimination in Physical Health-Related Research for Cognitively Able Autistic Adults [Texte imprimé et/ou numérique] / T. A. Meridian MCDONALD, Auteur ; Audrey SCUDDER, Auteur . - p.1411-1424. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-4 (April 2024) . - p.1411-1424 Index. décimale : PER Périodiques Résumé : Autistic adults experience disparities in physical health and health care access. A major barrier to addressing these disparities is a lack of federal funding for research on this topic. In seeking funding from the National Institutes of Health (NIH), we discovered nodes that contribute to structural discrimination in physical health-related research for autistic adults. To examine this structural discrimination, we systematically searched funded research on all physical health-disparity conditions in autistic adults using NIH RePORTER. Among 61 unique studies, none focused on improving the relevant physical health condition through intervention, programs, or services for autistic adults. Thus, we need updated policies and procedures that support research on physical health disparities in populations with developmental or mental health conditions. En ligne : https://doi.org/10.1007/s10803-022-05856-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526

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