Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder / Carla A. MAZEFSKY in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3736-3746 Titre : Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Carla A. MAZEFSKY, Auteur ; Taylor N. DAY, Auteur ; Matthew SIEGEL, Auteur ; Susan W. WHITE, Auteur ; Lan YU, Auteur ; Paul A. PILKONIS, Auteur Article en page(s) : p.3736-3746 Langues : Anglais (eng) Mots-clés : Autism Inpatient Collection  Autism spectrum disorder (ASD)  Emotion regulation  Patient-Reported Outcomes Measurement Information System (PROMIS(R))  Psychiatric inpatients  Questionnaire development Index. décimale : PER Périodiques Résumé : The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability. En ligne : http://dx.doi.org/10.1007/s10803-016-2907-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder [texte imprimé] / Carla A. MAZEFSKY, Auteur ; Taylor N. DAY, Auteur ; Matthew SIEGEL, Auteur ; Susan W. WHITE, Auteur ; Lan YU, Auteur ; Paul A. PILKONIS, Auteur . - p.3736-3746. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3736-3746 Mots-clés : Autism Inpatient Collection  Autism spectrum disorder (ASD)  Emotion regulation  Patient-Reported Outcomes Measurement Information System (PROMIS(R))  Psychiatric inpatients  Questionnaire development Index. décimale : PER Périodiques Résumé : The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability. En ligne : http://dx.doi.org/10.1007/s10803-016-2907-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

The emotion dysregulation inventory: Psychometric properties and item response theory calibration in an autism spectrum disorder sample / Carla A. MAZEFSKY in Autism Research, 11-6 (June 2018)  

Public ISBD [article]  inAutism Research > 11-6 (June 2018) . - p.928-941 Titre : The emotion dysregulation inventory: Psychometric properties and item response theory calibration in an autism spectrum disorder sample Type de document : texte imprimé Auteurs : Carla A. MAZEFSKY, Auteur ; Lan YU, Auteur ; Susan W. WHITE, Auteur ; Matthew SIEGEL, Auteur ; Paul A. PILKONIS, Auteur Article en page(s) : p.928-941 Langues : Anglais (eng) Mots-clés : Promis(r)  assessment  autism spectrum disorder  emotion regulation  irritability  item response theory  questionnaire Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) often present with prominent emotion dysregulation that requires treatment but can be difficult to measure. The Emotion Dysregulation Inventory (EDI) was created using methods developed by the Patient-Reported Outcomes Measurement Information System (PROMIS((R)) ) to capture observable indicators of poor emotion regulation. Caregivers of 1,755 youth with ASD completed 66 candidate EDI items, and the final 30 items were selected based on classical test theory and item response theory (IRT) analyses. The analyses identified two factors: (a) Reactivity, characterized by intense, rapidly escalating, sustained, and poorly regulated negative emotional reactions, and (b) Dysphoria, characterized by anhedonia, sadness, and nervousness. The final items did not show differential item functioning (DIF) based on gender, age, intellectual ability, or verbal ability. Because the final items were calibrated using IRT, even a small number of items offers high precision, minimizing respondent burden. IRT co-calibration of the EDI with related measures demonstrated its superiority in assessing the severity of emotion dysregulation with as few as seven items. Validity of the EDI was supported by expert review, its association with related constructs (e.g., anxiety and depression symptoms, aggression), higher scores in psychiatric inpatients with ASD compared to a community ASD sample, and demonstration of test-retest stability and sensitivity to change. In sum, the EDI provides an efficient and sensitive method to measure emotion dysregulation for clinical assessment, monitoring, and research in youth with ASD of any level of cognitive or verbal ability. Autism Res 2018, 11: 928-941. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: This paper describes a new measure of poor emotional control called the Emotion Dysregulation Inventory (EDI). Caregivers of 1,755 youth with ASD completed candidate items, and advanced statistical techniques were applied to identify the best final items. The EDI is unique because it captures common emotional problems in ASD and is appropriate for both nonverbal and verbal youth. It is an efficient and sensitive measure for use in clinical assessments, monitoring, and research with youth with ASD. En ligne : http://dx.doi.org/10.1002/aur.1947 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=366 [article] The emotion dysregulation inventory: Psychometric properties and item response theory calibration in an autism spectrum disorder sample [texte imprimé] / Carla A. MAZEFSKY, Auteur ; Lan YU, Auteur ; Susan W. WHITE, Auteur ; Matthew SIEGEL, Auteur ; Paul A. PILKONIS, Auteur . - p.928-941. Langues : Anglais (eng) in Autism Research > 11-6 (June 2018) . - p.928-941 Mots-clés : Promis(r)  assessment  autism spectrum disorder  emotion regulation  irritability  item response theory  questionnaire Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) often present with prominent emotion dysregulation that requires treatment but can be difficult to measure. The Emotion Dysregulation Inventory (EDI) was created using methods developed by the Patient-Reported Outcomes Measurement Information System (PROMIS((R)) ) to capture observable indicators of poor emotion regulation. Caregivers of 1,755 youth with ASD completed 66 candidate EDI items, and the final 30 items were selected based on classical test theory and item response theory (IRT) analyses. The analyses identified two factors: (a) Reactivity, characterized by intense, rapidly escalating, sustained, and poorly regulated negative emotional reactions, and (b) Dysphoria, characterized by anhedonia, sadness, and nervousness. The final items did not show differential item functioning (DIF) based on gender, age, intellectual ability, or verbal ability. Because the final items were calibrated using IRT, even a small number of items offers high precision, minimizing respondent burden. IRT co-calibration of the EDI with related measures demonstrated its superiority in assessing the severity of emotion dysregulation with as few as seven items. Validity of the EDI was supported by expert review, its association with related constructs (e.g., anxiety and depression symptoms, aggression), higher scores in psychiatric inpatients with ASD compared to a community ASD sample, and demonstration of test-retest stability and sensitivity to change. In sum, the EDI provides an efficient and sensitive method to measure emotion dysregulation for clinical assessment, monitoring, and research in youth with ASD of any level of cognitive or verbal ability. Autism Res 2018, 11: 928-941. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: This paper describes a new measure of poor emotional control called the Emotion Dysregulation Inventory (EDI). Caregivers of 1,755 youth with ASD completed candidate items, and advanced statistical techniques were applied to identify the best final items. The EDI is unique because it captures common emotional problems in ASD and is appropriate for both nonverbal and verbal youth. It is an efficient and sensitive measure for use in clinical assessments, monitoring, and research with youth with ASD. En ligne : http://dx.doi.org/10.1002/aur.1947 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=366

The Relationships, Employment, Autonomy, and Life Satisfaction (REALS) Measures for Autistic Adults and Adults With Other Intellectual and Developmental Disabilities: Psychometric Testing of the Self-Report and Proxy Versions / Caitlin M. CONNER in Autism Research, 18-3 (March 2025)  

Public ISBD [article]  inAutism Research > 18-3 (March 2025) . - p.583-603 Titre : The Relationships, Employment, Autonomy, and Life Satisfaction (REALS) Measures for Autistic Adults and Adults With Other Intellectual and Developmental Disabilities: Psychometric Testing of the Self-Report and Proxy Versions Type de document : texte imprimé Auteurs : Caitlin M. CONNER, Auteur ; Lan YU, Auteur ; Kristen T. MACKENZIE, Auteur ; Katharine N. ZEGLEN, Auteur ; Elizabeth RUTENBERG, Auteur ; Paul A. PILKONIS, Auteur ; Shaun M. EACK, Auteur ; Carla A. MAZEFSKY, Auteur Article en page(s) : p.583-603 Langues : Anglais (eng) Mots-clés : adult outcomes  autism  intellectual and developmental disabilities  measurement Index. décimale : PER Périodiques Résumé : ABSTRACT Research and clinical work demonstrate that adults with intellectual and developmental disabilities (IDDs; including autistic adults and adults with other IDDs) struggle with key outcomes in adult life, including social relationships, employment, autonomy, and life satisfaction. However, few validated measures exist to measure these outcomes in adults with IDDs. The Relationships, Employment, Autonomy, and Life Satisfaction (REALS) Measures were created using methods developed by the Patient-Reported Outcomes Measurement Information System (PROMIS) to assess these outcomes. Large item pools were generated for the four domains, and, in field testing, 875 adults with IDDs (90% autistic; 18.4% with intellectual disability or a non-autism IDD) and 911 proxy reporters (caregivers; 79% autistic; 48.3% with intellectual disability or a non-autism IDD) completed 108 and 74 items, respectively, using response options capturing frequency, level of support needed, and satisfaction. The structure and item content of the REALS Measures were determined through an iterative process using both classical test theory and item response theory analyses. The final versions include 19 self-report and 14 proxy-report measures, with a range of 3 to 14 items each. The measures have excellent psychometric properties, high precision, and acceptable respondent burden. Thus, they are applicable for service provision, clinical, and research arenas for autistic adults and adults with other IDDs, though additional testing in IDD is warranted and evidence supporting self-report use in IDD is more limited. En ligne : https://doi.org/10.1002/aur.70002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] The Relationships, Employment, Autonomy, and Life Satisfaction (REALS) Measures for Autistic Adults and Adults With Other Intellectual and Developmental Disabilities: Psychometric Testing of the Self-Report and Proxy Versions [texte imprimé] / Caitlin M. CONNER, Auteur ; Lan YU, Auteur ; Kristen T. MACKENZIE, Auteur ; Katharine N. ZEGLEN, Auteur ; Elizabeth RUTENBERG, Auteur ; Paul A. PILKONIS, Auteur ; Shaun M. EACK, Auteur ; Carla A. MAZEFSKY, Auteur . - p.583-603. Langues : Anglais (eng) in Autism Research > 18-3 (March 2025) . - p.583-603 Mots-clés : adult outcomes  autism  intellectual and developmental disabilities  measurement Index. décimale : PER Périodiques Résumé : ABSTRACT Research and clinical work demonstrate that adults with intellectual and developmental disabilities (IDDs; including autistic adults and adults with other IDDs) struggle with key outcomes in adult life, including social relationships, employment, autonomy, and life satisfaction. However, few validated measures exist to measure these outcomes in adults with IDDs. The Relationships, Employment, Autonomy, and Life Satisfaction (REALS) Measures were created using methods developed by the Patient-Reported Outcomes Measurement Information System (PROMIS) to assess these outcomes. Large item pools were generated for the four domains, and, in field testing, 875 adults with IDDs (90% autistic; 18.4% with intellectual disability or a non-autism IDD) and 911 proxy reporters (caregivers; 79% autistic; 48.3% with intellectual disability or a non-autism IDD) completed 108 and 74 items, respectively, using response options capturing frequency, level of support needed, and satisfaction. The structure and item content of the REALS Measures were determined through an iterative process using both classical test theory and item response theory analyses. The final versions include 19 self-report and 14 proxy-report measures, with a range of 3 to 14 items each. The measures have excellent psychometric properties, high precision, and acceptable respondent burden. Thus, they are applicable for service provision, clinical, and research arenas for autistic adults and adults with other IDDs, though additional testing in IDD is warranted and evidence supporting self-report use in IDD is more limited. En ligne : https://doi.org/10.1002/aur.70002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

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