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Parent perceptions of a group telepractice communication intervention for autism / Robyn GARNETT in Autism & Developmental Language Impairments, 7 (January-December 2022)
[article]
Titre : Parent perceptions of a group telepractice communication intervention for autism Type de document : Texte imprimé et/ou numérique Auteurs : Robyn GARNETT, Auteur ; Bronwyn DAVIDSON, Auteur ; Patricia EADIE, Auteur Article en page(s) : 23969415211070127 Langues : Anglais (eng) Mots-clés : Telehealth parent satisfaction autism spectrum disorders parent training early intervention Index. décimale : PER Périodiques Résumé : Background & AimsEstimates suggest that one in 59 children receive a diagnosis of autism and that early intervention can be effective if applied consistently and intensively. Parent implemented intervention can increase intervention consistency and intensity however, availability of providers, geographical factors, time constraints, and parental stress levels can all act as barriers to service access. Limitations in understanding elements that support family engagement can also impact participation in intervention. Telepractice can increase availability of intervention services and decrease the time and costs associated with face-to-face delivery. Research focused on children with autism has shown that telepractice is acceptable to parents. Despite positive findings for telepractice services with individual clients, limited research has been conducted on telepractice services for parent groups; parent perceptions and preferences regarding intervention; and service delivery methods. This research aimed to investigate parent perceptions of a group intervention programme for autism; the telepractice approach; parent and child outcomes; and parental stress. The purpose of the investigation was to build an understanding of parent's intervention preferences to inform future service offerings, increase choice, and support participation.MethodsEleven parents of preschool children with autism participated in a telepractice delivered group training programme called Hanen More Than Words (HMTW). The intervention is traditionally delivered face to face and teaches strategies to facilitate social-communication development in young children.Quantitative and qualitative measures were used to evaluate parent perceptions of the telepractice HMTW intervention. Data were collected via the Parenting Stress Index, HMTW programme evaluation forms, and online parent survey.Quantitative data was analysed using descriptive statistics. Pre- and post-intervention comparisons of parenting stress were conducted using paired T-Tests. Open comment field responses were analysed qualitatively using a directed content analysis.ResultsParents reported high levels of satisfaction with telepractice delivered HMTW across intervention and post programme evaluations. Interactive learning opportunities, group participation, video coaching, individualisation of service, and programme facilitation were identified as key supports to learning.Parents perceived increased insight into the interaction, learning, and behaviour of themselves and their children. They reported positive changes in strategy implementation and confidence. Parents also perceived improvements in their children's communication, responsiveness, interaction, and play following intervention. Parental stress measurements from pre- to post intervention, were not significantly different.ConclusionsTelepractice may reduce service barriers and improve access, particularly with the efficiency of a group delivery approach. Utilising technology to deliver group intervention was acceptable to parents and perceived to have positive outcomes for both parent and child. Further investigation into parent perceptions of intervention types and delivery approaches, could facilitate a broader understanding of family needs with respect to service access and engagement.ImplicationsExpansion of telepractice offerings can increase efficiencies and service choice for families and providers. Limitations in service availability and barriers to service access and engagement, confirm the importance of pursuing ongoing service improvements and evaluating the preferences of service users. Development of standardised tools to measure and compare parent perceptions across intervention types and service delivery approaches would be beneficial. En ligne : http://dx.doi.org/10.1177/23969415211070127 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=460
in Autism & Developmental Language Impairments > 7 (January-December 2022) . - 23969415211070127[article] Parent perceptions of a group telepractice communication intervention for autism [Texte imprimé et/ou numérique] / Robyn GARNETT, Auteur ; Bronwyn DAVIDSON, Auteur ; Patricia EADIE, Auteur . - 23969415211070127.
Langues : Anglais (eng)
in Autism & Developmental Language Impairments > 7 (January-December 2022) . - 23969415211070127
Mots-clés : Telehealth parent satisfaction autism spectrum disorders parent training early intervention Index. décimale : PER Périodiques Résumé : Background & AimsEstimates suggest that one in 59 children receive a diagnosis of autism and that early intervention can be effective if applied consistently and intensively. Parent implemented intervention can increase intervention consistency and intensity however, availability of providers, geographical factors, time constraints, and parental stress levels can all act as barriers to service access. Limitations in understanding elements that support family engagement can also impact participation in intervention. Telepractice can increase availability of intervention services and decrease the time and costs associated with face-to-face delivery. Research focused on children with autism has shown that telepractice is acceptable to parents. Despite positive findings for telepractice services with individual clients, limited research has been conducted on telepractice services for parent groups; parent perceptions and preferences regarding intervention; and service delivery methods. This research aimed to investigate parent perceptions of a group intervention programme for autism; the telepractice approach; parent and child outcomes; and parental stress. The purpose of the investigation was to build an understanding of parent's intervention preferences to inform future service offerings, increase choice, and support participation.MethodsEleven parents of preschool children with autism participated in a telepractice delivered group training programme called Hanen More Than Words (HMTW). The intervention is traditionally delivered face to face and teaches strategies to facilitate social-communication development in young children.Quantitative and qualitative measures were used to evaluate parent perceptions of the telepractice HMTW intervention. Data were collected via the Parenting Stress Index, HMTW programme evaluation forms, and online parent survey.Quantitative data was analysed using descriptive statistics. Pre- and post-intervention comparisons of parenting stress were conducted using paired T-Tests. Open comment field responses were analysed qualitatively using a directed content analysis.ResultsParents reported high levels of satisfaction with telepractice delivered HMTW across intervention and post programme evaluations. Interactive learning opportunities, group participation, video coaching, individualisation of service, and programme facilitation were identified as key supports to learning.Parents perceived increased insight into the interaction, learning, and behaviour of themselves and their children. They reported positive changes in strategy implementation and confidence. Parents also perceived improvements in their children's communication, responsiveness, interaction, and play following intervention. Parental stress measurements from pre- to post intervention, were not significantly different.ConclusionsTelepractice may reduce service barriers and improve access, particularly with the efficiency of a group delivery approach. Utilising technology to deliver group intervention was acceptable to parents and perceived to have positive outcomes for both parent and child. Further investigation into parent perceptions of intervention types and delivery approaches, could facilitate a broader understanding of family needs with respect to service access and engagement.ImplicationsExpansion of telepractice offerings can increase efficiencies and service choice for families and providers. Limitations in service availability and barriers to service access and engagement, confirm the importance of pursuing ongoing service improvements and evaluating the preferences of service users. Development of standardised tools to measure and compare parent perceptions across intervention types and service delivery approaches would be beneficial. En ligne : http://dx.doi.org/10.1177/23969415211070127 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=460 Parent Perspectives of Their Involvement in IEP Development for Children With Autism / Jennifer A. KURTH in Focus on Autism and Other Developmental Disabilities, 35-1 (March 2020)
[article]
Titre : Parent Perspectives of Their Involvement in IEP Development for Children With Autism Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer A. KURTH, Auteur ; Hailey LOVE, Auteur ; Jody PIRTLE, Auteur Article en page(s) : p.36-46 Langues : Anglais (eng) Mots-clés : parent satisfaction collaboration educational decision-making Index. décimale : PER Périodiques Résumé : The present study investigated parents? experiences in making educational decisions for their children with autism and their satisfaction with said outcomes. Parents completed a survey describing (a) their input in educational decisions, (b) satisfaction with school personnel, and (c) satisfaction with their child?s school experience. Sequential regressions revealed parents? satisfaction was generally predicted by their own knowledge of autism, school staff knowledge of autism, parent satisfaction with teachers, and parent relationships with school personnel. In addition, parent input was a significant predictor of satisfaction with their child?s school experience. Finally, open-ended responses indicated that parents experienced many barriers when working with schools and often felt compelled to go outside of the school system to ensure their children received an appropriate education. Implications for teacher preparation and school?parent partnerships are described. En ligne : https://doi.org/10.1177/1088357619842858 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=417
in Focus on Autism and Other Developmental Disabilities > 35-1 (March 2020) . - p.36-46[article] Parent Perspectives of Their Involvement in IEP Development for Children With Autism [Texte imprimé et/ou numérique] / Jennifer A. KURTH, Auteur ; Hailey LOVE, Auteur ; Jody PIRTLE, Auteur . - p.36-46.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 35-1 (March 2020) . - p.36-46
Mots-clés : parent satisfaction collaboration educational decision-making Index. décimale : PER Périodiques Résumé : The present study investigated parents? experiences in making educational decisions for their children with autism and their satisfaction with said outcomes. Parents completed a survey describing (a) their input in educational decisions, (b) satisfaction with school personnel, and (c) satisfaction with their child?s school experience. Sequential regressions revealed parents? satisfaction was generally predicted by their own knowledge of autism, school staff knowledge of autism, parent satisfaction with teachers, and parent relationships with school personnel. In addition, parent input was a significant predictor of satisfaction with their child?s school experience. Finally, open-ended responses indicated that parents experienced many barriers when working with schools and often felt compelled to go outside of the school system to ensure their children received an appropriate education. Implications for teacher preparation and school?parent partnerships are described. En ligne : https://doi.org/10.1177/1088357619842858 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=417 Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom / Laura CRANE in Autism, 20-2 (February 2016)
[article]
Titre : Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom Type de document : Texte imprimé et/ou numérique Auteurs : Laura CRANE, Auteur ; James W CHESTER, Auteur ; Lorna GODDARD, Auteur ; Lucy A HENRY, Auteur ; Elisabeth HILL, Auteur Article en page(s) : p.153-162 Langues : Anglais (eng) Mots-clés : autism autism spectrum disorder diagnosis parent satisfaction support survey Index. décimale : PER Périodiques Résumé : A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child’s development before they sought professional help. On average, there was a delay of around 3.5?years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents. En ligne : http://dx.doi.org/10.1177/1362361315573636 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278
in Autism > 20-2 (February 2016) . - p.153-162[article] Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom [Texte imprimé et/ou numérique] / Laura CRANE, Auteur ; James W CHESTER, Auteur ; Lorna GODDARD, Auteur ; Lucy A HENRY, Auteur ; Elisabeth HILL, Auteur . - p.153-162.
Langues : Anglais (eng)
in Autism > 20-2 (February 2016) . - p.153-162
Mots-clés : autism autism spectrum disorder diagnosis parent satisfaction support survey Index. décimale : PER Périodiques Résumé : A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child’s development before they sought professional help. On average, there was a delay of around 3.5?years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents. En ligne : http://dx.doi.org/10.1177/1362361315573636 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278 Siblings of children with autism: Predictors of adjustment / Tessa L. HESSE in Research in Autism Spectrum Disorders, 7-11 (November 2013)
[article]
Titre : Siblings of children with autism: Predictors of adjustment Type de document : Texte imprimé et/ou numérique Auteurs : Tessa L. HESSE, Auteur ; Christina M. DANKO, Auteur ; Karen S. BUDD, Auteur Article en page(s) : p.1323-1331 Langues : Anglais (eng) Mots-clés : Adjustment Siblings Autism spectrum disorder Parents Sibling adjustment Parent satisfaction Index. décimale : PER Périodiques Résumé : Abstract As the prevalence of autism increases, so does the need to examine the effects of autism on family members of children with autism. The current study evaluated possible predictors of adjustment in siblings of children with autism. Aspects of the parents’ functioning as caregivers for a child with autism were examined to determine whether they predicted the adjustment of the child's sibling. Two hundred caregivers of 4–10-year-old children with autism who had at least one sibling without autism participated by filling out questionnaires online. Parental satisfaction with the role of caregiver for the child with autism was negatively correlated with difficulties in sibling adjustment, and it was the only significant predictor of sibling adjustment in a hierarchical regression analysis. Parental stress and parental self-efficacy were not unique contributors to sibling adjustment when other parental variables were considered. No significant relationship was found between parental therapy involvement and sibling adjustment, or between parental educational involvement and sibling adjustment. The lack of parental involvement as a predictor of sibling adjustment adds new findings to the current literature, which had found such a relationship in a previous study with a smaller sample. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.07.024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=215
in Research in Autism Spectrum Disorders > 7-11 (November 2013) . - p.1323-1331[article] Siblings of children with autism: Predictors of adjustment [Texte imprimé et/ou numérique] / Tessa L. HESSE, Auteur ; Christina M. DANKO, Auteur ; Karen S. BUDD, Auteur . - p.1323-1331.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 7-11 (November 2013) . - p.1323-1331
Mots-clés : Adjustment Siblings Autism spectrum disorder Parents Sibling adjustment Parent satisfaction Index. décimale : PER Périodiques Résumé : Abstract As the prevalence of autism increases, so does the need to examine the effects of autism on family members of children with autism. The current study evaluated possible predictors of adjustment in siblings of children with autism. Aspects of the parents’ functioning as caregivers for a child with autism were examined to determine whether they predicted the adjustment of the child's sibling. Two hundred caregivers of 4–10-year-old children with autism who had at least one sibling without autism participated by filling out questionnaires online. Parental satisfaction with the role of caregiver for the child with autism was negatively correlated with difficulties in sibling adjustment, and it was the only significant predictor of sibling adjustment in a hierarchical regression analysis. Parental stress and parental self-efficacy were not unique contributors to sibling adjustment when other parental variables were considered. No significant relationship was found between parental therapy involvement and sibling adjustment, or between parental educational involvement and sibling adjustment. The lack of parental involvement as a predictor of sibling adjustment adds new findings to the current literature, which had found such a relationship in a previous study with a smaller sample. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.07.024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=215 Short report: Experiences of Caregivers Participating in a Telehealth Evaluation of Development for Infants (TEDI) / Meagan R. TALBOTT in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Short report: Experiences of Caregivers Participating in a Telehealth Evaluation of Development for Infants (TEDI) Type de document : Texte imprimé et/ou numérique Auteurs : Meagan R. TALBOTT, Auteur ; Ellisa LANG, Auteur ; Felipe AVILA, Auteur ; Sarah DUFEK, Auteur ; Gregory S. YOUNG, Auteur Année de publication : 2022 Article en page(s) : p.5266-5273 Langues : Anglais (eng) Mots-clés : Infant Humans Caregivers Autism Spectrum Disorder/diagnosis Pandemics covid-19 Telemedicine/methods Asd Autism Parent satisfaction Prodromal autism Screening Telehealth Telehealth assessment Index. décimale : PER Périodiques Résumé : A growing literature supports the feasibility and validity of telehealth-based assessments for autism spectrum disorder (ASD). Better understanding families' experiences is crucial for sustained use beyond the COVID-19 pandemic. This study qualitatively examines caregiver experiences with the Telehealth Evaluation of Development for Infants (TEDI) protocol to better understand benefits and challenges of telehealth-based evaluations. Caregivers (N=32) completed an online survey following a telehealth-based evaluation with their 6-12 month-old infants. Open-ended text responses to queries about perceived benefits, challenges, and suggestions for future adaptations were coded. Most caregivers reported positive experiences with minor feedback relating to tailoring of individual needs. Responses suggest the TEDI is a feasible approach and provide guidance for components of successful telehealth evaluations more broadly. En ligne : http://dx.doi.org/10.1007/s10803-022-05607-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5266-5273[article] Short report: Experiences of Caregivers Participating in a Telehealth Evaluation of Development for Infants (TEDI) [Texte imprimé et/ou numérique] / Meagan R. TALBOTT, Auteur ; Ellisa LANG, Auteur ; Felipe AVILA, Auteur ; Sarah DUFEK, Auteur ; Gregory S. YOUNG, Auteur . - 2022 . - p.5266-5273.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5266-5273
Mots-clés : Infant Humans Caregivers Autism Spectrum Disorder/diagnosis Pandemics covid-19 Telemedicine/methods Asd Autism Parent satisfaction Prodromal autism Screening Telehealth Telehealth assessment Index. décimale : PER Périodiques Résumé : A growing literature supports the feasibility and validity of telehealth-based assessments for autism spectrum disorder (ASD). Better understanding families' experiences is crucial for sustained use beyond the COVID-19 pandemic. This study qualitatively examines caregiver experiences with the Telehealth Evaluation of Development for Infants (TEDI) protocol to better understand benefits and challenges of telehealth-based evaluations. Caregivers (N=32) completed an online survey following a telehealth-based evaluation with their 6-12 month-old infants. Open-ended text responses to queries about perceived benefits, challenges, and suggestions for future adaptations were coded. Most caregivers reported positive experiences with minor feedback relating to tailoring of individual needs. Responses suggest the TEDI is a feasible approach and provide guidance for components of successful telehealth evaluations more broadly. En ligne : http://dx.doi.org/10.1007/s10803-022-05607-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489