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"We are exhausted, worn out, and broken": Understanding the impact of service satisfaction on caregiver well-being / Janet MCLAUGHLIN ; Margaret SCHNEIDER in Autism Research, 16-11 (November 2023)
[article]
Titre : "We are exhausted, worn out, and broken": Understanding the impact of service satisfaction on caregiver well-being Type de document : Texte imprimé et/ou numérique Auteurs : Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur Article en page(s) : p.2198-2207 Langues : Anglais (eng) Mots-clés : autism policy qualitative quantitative service satisfaction well-being Index. décimale : PER Périodiques Résumé : Abstract Few studies exist that have examined the impact of service-related factors and system-level disruptions (i.e., the pandemic) on families of autistic children in Canada using large sample sizes. To address this gap, the goal of this research was to examine the impact of satisfaction with autism services on caregiver stress, controlling for important demographic variables, such as family income, marital status, and child level of support needs. The impact of navigating and accessing services on parent well-being was also explored. A total of 1810 primary caregivers of autistic children or youth living in Ontario, Canada completed a survey with both closed- and open-ended questions in the summer of 2021. A hierarchical multiple regression was conducted to examine the impact of satisfaction with autism services on caregiver stress. Open-ended responses on the survey from a subset of the sample (n?=?637) were coded using thematic analysis to understand the impact of navigating and accessing services on parent well-being. Satisfaction with services significantly predicted caregiver stress after controlling for marital support, family income, and child level of support needs. Qualitative analysis revealed impacts of navigating and accessing services in three areas: (1) Physical, (2) Emotional/Psychological, and (3) Financial Well-being. Understanding parent perceptions of satisfaction with services can shed light on strategies for improving services that support parent well-being. En ligne : https://doi.org/10.1002/aur.3024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517
in Autism Research > 16-11 (November 2023) . - p.2198-2207[article] "We are exhausted, worn out, and broken": Understanding the impact of service satisfaction on caregiver well-being [Texte imprimé et/ou numérique] / Janet MCLAUGHLIN, Auteur ; Margaret SCHNEIDER, Auteur . - p.2198-2207.
Langues : Anglais (eng)
in Autism Research > 16-11 (November 2023) . - p.2198-2207
Mots-clés : autism policy qualitative quantitative service satisfaction well-being Index. décimale : PER Périodiques Résumé : Abstract Few studies exist that have examined the impact of service-related factors and system-level disruptions (i.e., the pandemic) on families of autistic children in Canada using large sample sizes. To address this gap, the goal of this research was to examine the impact of satisfaction with autism services on caregiver stress, controlling for important demographic variables, such as family income, marital status, and child level of support needs. The impact of navigating and accessing services on parent well-being was also explored. A total of 1810 primary caregivers of autistic children or youth living in Ontario, Canada completed a survey with both closed- and open-ended questions in the summer of 2021. A hierarchical multiple regression was conducted to examine the impact of satisfaction with autism services on caregiver stress. Open-ended responses on the survey from a subset of the sample (n?=?637) were coded using thematic analysis to understand the impact of navigating and accessing services on parent well-being. Satisfaction with services significantly predicted caregiver stress after controlling for marital support, family income, and child level of support needs. Qualitative analysis revealed impacts of navigating and accessing services in three areas: (1) Physical, (2) Emotional/Psychological, and (3) Financial Well-being. Understanding parent perceptions of satisfaction with services can shed light on strategies for improving services that support parent well-being. En ligne : https://doi.org/10.1002/aur.3024 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517 Predictors of Satisfaction with Autism Treatment Services During COVID-19 / Emily F. FERGUSON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : Predictors of Satisfaction with Autism Treatment Services During COVID-19 Type de document : Texte imprimé et/ou numérique Auteurs : Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Harrison FEERST, Auteur ; Ty W. VERNON, Auteur Article en page(s) : p.3686-3697 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy covid-19 Caregivers/psychology Child Humans Pandemics Personal Satisfaction Autism spectrum disorder Covid-19 Caregivers Emotion regulation Service satisfaction Telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has created unprecedented challenges and disruptions for autistic individuals receiving specialized treatment services. This caregiver-report survey study (n=339) explored predictors of satisfaction with autism services during COVID-19 to improve perceived support for these families. Specifically, we investigated whether service delivery medium (telehealth vs. in person), child's emotional functioning, and caregiver stress would predict satisfaction with the most highly utilized services. Satisfaction ratings for ABA/behavioral, speech/language, and occupational therapy were lower when delivered via telehealth as compared to in person. Caregivers who reported higher emotional dysregulation in their children were less satisfied with behavioral therapy services. These results provide a critical caregiver-informed perspective on factors influencing satisfaction with specialized autism services during COVID-19. En ligne : http://dx.doi.org/10.1007/s10803-021-05232-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3686-3697[article] Predictors of Satisfaction with Autism Treatment Services During COVID-19 [Texte imprimé et/ou numérique] / Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Harrison FEERST, Auteur ; Ty W. VERNON, Auteur . - p.3686-3697.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3686-3697
Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy covid-19 Caregivers/psychology Child Humans Pandemics Personal Satisfaction Autism spectrum disorder Covid-19 Caregivers Emotion regulation Service satisfaction Telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has created unprecedented challenges and disruptions for autistic individuals receiving specialized treatment services. This caregiver-report survey study (n=339) explored predictors of satisfaction with autism services during COVID-19 to improve perceived support for these families. Specifically, we investigated whether service delivery medium (telehealth vs. in person), child's emotional functioning, and caregiver stress would predict satisfaction with the most highly utilized services. Satisfaction ratings for ABA/behavioral, speech/language, and occupational therapy were lower when delivered via telehealth as compared to in person. Caregivers who reported higher emotional dysregulation in their children were less satisfied with behavioral therapy services. These results provide a critical caregiver-informed perspective on factors influencing satisfaction with specialized autism services during COVID-19. En ligne : http://dx.doi.org/10.1007/s10803-021-05232-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485