3 recherche sur le mot-clé 'parental concerns'

Parental concerns of children with ASD by age: A qualitative analysis / Danika PFEIFFER in Research in Autism Spectrum Disorders, 86 (August 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 86 (August 2021) . - 101817 Titre : Parental concerns of children with ASD by age: A qualitative analysis Type de document : Texte imprimé et/ou numérique Auteurs : Danika PFEIFFER, Auteur ; Calliope HOLINGUE, Auteur ; Emily DILLON, Auteur ; Luke G. KALB, Auteur ; Rachel REETZKE, Auteur ; Rebecca LANDA, Auteur Article en page(s) : 101817 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Parental concerns  Children  Age  Qualitative Index. décimale : PER Périodiques Résumé : Background Eliciting parents’ concerns about their children is an important initial step in the ASD diagnostic process. This information is often collected through forced-choice questionnaires utilizing professional terminology and may limit the potential concerns that can be reported. Parent concern studies to date have largely used deductive qualitative methods with only one age group of children. Inductive qualitative studies are needed to examine parental concerns of children with ASD across age groups with one coding scheme. Method We used an inductive qualitative analysis process to analyze concerns reported by parents of children ages 1–11 years on intake forms (n = 455) at an urban outpatient ASD specialty clinic. Analyses were based on three age groups (toddler, preschooler, middle childhood). Results Using conventional content analysis, 12 categories of concerns emerged from parents’ responses: communication, social, behavioral/emotional, cognition, life skills, atypical behaviors, sensory, academic, health, seeking diagnostic clarity or resources, developmental, and motor skills. We found that parents reported the same concerns about their children across age groups in six of the 12 categories. The biggest difference in reported concerns across age groups was that parents of children in the preschooler and middle childhood groups reported a greater number of concerns related to mental health than parents of toddlers. Conclusion Our analysis yields specific information about similarities and differences in parents’ concerns depending on their child’s age. Ensuring that ASD evaluations are tailored to children’s unique needs has implications for timely diagnosis and access to care. En ligne : https://doi.org/10.1016/j.rasd.2021.101817 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Parental concerns of children with ASD by age: A qualitative analysis [Texte imprimé et/ou numérique] / Danika PFEIFFER, Auteur ; Calliope HOLINGUE, Auteur ; Emily DILLON, Auteur ; Luke G. KALB, Auteur ; Rachel REETZKE, Auteur ; Rebecca LANDA, Auteur . - 101817. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 86 (August 2021) . - 101817 Mots-clés : Autism spectrum disorders  Parental concerns  Children  Age  Qualitative Index. décimale : PER Périodiques Résumé : Background Eliciting parents’ concerns about their children is an important initial step in the ASD diagnostic process. This information is often collected through forced-choice questionnaires utilizing professional terminology and may limit the potential concerns that can be reported. Parent concern studies to date have largely used deductive qualitative methods with only one age group of children. Inductive qualitative studies are needed to examine parental concerns of children with ASD across age groups with one coding scheme. Method We used an inductive qualitative analysis process to analyze concerns reported by parents of children ages 1–11 years on intake forms (n = 455) at an urban outpatient ASD specialty clinic. Analyses were based on three age groups (toddler, preschooler, middle childhood). Results Using conventional content analysis, 12 categories of concerns emerged from parents’ responses: communication, social, behavioral/emotional, cognition, life skills, atypical behaviors, sensory, academic, health, seeking diagnostic clarity or resources, developmental, and motor skills. We found that parents reported the same concerns about their children across age groups in six of the 12 categories. The biggest difference in reported concerns across age groups was that parents of children in the preschooler and middle childhood groups reported a greater number of concerns related to mental health than parents of toddlers. Conclusion Our analysis yields specific information about similarities and differences in parents’ concerns depending on their child’s age. Ensuring that ASD evaluations are tailored to children’s unique needs has implications for timely diagnosis and access to care. En ligne : https://doi.org/10.1016/j.rasd.2021.101817 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Diary Reports of Concerns in Mothers of Infant Siblings of Children with Autism Across the First Year of Life / Meagan R. TALBOTT in Journal of Autism and Developmental Disorders, 45-7 (July 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2187-2199 Titre : Diary Reports of Concerns in Mothers of Infant Siblings of Children with Autism Across the First Year of Life Type de document : Texte imprimé et/ou numérique Auteurs : Meagan R. TALBOTT, Auteur ; Charles A. NELSON, Auteur ; Helen TAGER-FLUSBERG, Auteur Année de publication : 2015 Article en page(s) : p.2187-2199 Langues : Anglais (eng) Mots-clés : High risk infant siblings  Parental concerns  Autism  Home-based measures Index. décimale : PER Périodiques Résumé : We examined the home-based concerns reported by mothers of infant siblings of children with autism across the first year of life. At all three ages measured, mothers of high-risk infants were significantly more likely than mothers of low-risk infants to report language, social communication, and restricted and repetitive behavior concerns but were not more likely to report general, medically based concerns. At 6 and 9 months of age, maternal concerns were poorly related to infant or family variables. At 12 months of age, there were moderate correlations between maternal concerns and infant behavior, and concerns were associated with the proband’s autism symptoms and mothers’ concurrent depressive symptoms. These findings highlight the need to examine high-risk infants’ development in the family context. En ligne : http://dx.doi.org/10.1007/s10803-015-2383-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261 [article] Diary Reports of Concerns in Mothers of Infant Siblings of Children with Autism Across the First Year of Life [Texte imprimé et/ou numérique] / Meagan R. TALBOTT, Auteur ; Charles A. NELSON, Auteur ; Helen TAGER-FLUSBERG, Auteur . - 2015 . - p.2187-2199. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2187-2199 Mots-clés : High risk infant siblings  Parental concerns  Autism  Home-based measures Index. décimale : PER Périodiques Résumé : We examined the home-based concerns reported by mothers of infant siblings of children with autism across the first year of life. At all three ages measured, mothers of high-risk infants were significantly more likely than mothers of low-risk infants to report language, social communication, and restricted and repetitive behavior concerns but were not more likely to report general, medically based concerns. At 6 and 9 months of age, maternal concerns were poorly related to infant or family variables. At 12 months of age, there were moderate correlations between maternal concerns and infant behavior, and concerns were associated with the proband’s autism symptoms and mothers’ concurrent depressive symptoms. These findings highlight the need to examine high-risk infants’ development in the family context. En ligne : http://dx.doi.org/10.1007/s10803-015-2383-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261

Utilization of the Maternal and Child Health Handbook in Early Identification of Autism Spectrum Disorder and Other Neurodevelopmental Disorders / Tomoya HIROTA in Autism Research, 14-3 (March 2021)  

Public ISBD [article]  inAutism Research > 14-3 (March 2021) . - p.551-559 Titre : Utilization of the Maternal and Child Health Handbook in Early Identification of Autism Spectrum Disorder and Other Neurodevelopmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Tomoya HIROTA, Auteur ; Somer L. BISHOP, Auteur ; Masaki ADACHI, Auteur ; Amy SHUI, Auteur ; Michio TAKAHASHI, Auteur ; Hiroyuki MORI, Auteur ; Kazuhiko NAKAMURA, Auteur Article en page(s) : p.551-559 Langues : Anglais (eng) Mots-clés : developmental milestones  early identification  neurodevelopmental disorders  parental concerns  universal healthcare Index. décimale : PER Périodiques Résumé : There is relatively little information about prospectively reported developmental milestones from caregivers of children who go on to be diagnosed with neurodevelopmental disorders (NDDs), including autism spectrum disorder (ASD). The current study examined rates of early skill attainment in 5-year-old children who participated in a comprehensive in-person assessment for NDDs in Hirosaki in Japan. Developmental milestone data were extracted from their Maternal and Child Health Handbook (MCHH), a booklet distributed to all pregnant women as part of universal health care. Seven hundred and twenty children underwent the assessment, among whom 455 received one or more NDD diagnoses (ASD: n = 124, non-ASD NDD: n = 331). Developmental skills were organized into four domains (motor, social interaction, communication, self-help), and the cumulative number of potential delays in each domain was calculated for each participant within three different age ranges (by 12?months, by 24?months, and by 36?months). Even by age 12?months, children with ASD/NDDs showed more potential delays across domains compared to those who received no NDD diagnosis. However, differences between those with ASD and those with non-ASD NDDs were not apparent until 24?months for social interaction and communication, and 36?months for self-help. These findings provide insights into specific behaviors that could be used to screen for ASD and other NDDs. In addition, the present study indicates the potential utility of the MCHH as a broadband screening tool to educate parents about what to look for in charting their child's early development. LAY SUMMARY: The present study examined prospectively charted developmental milestones from home-based records used as part of universal health care in 720 5-year-old children from Hirosaki, Japan. All children participated in a comprehensive evaluation to determine if they met criteria for a neurodevelopmental disorder (NDD), including autism spectrum disorder (ASD). Compared to those who received no NDD diagnosis, children with NDDs exhibited higher rates of potential delays across developmental domains, including social interaction, communication, and self-help. For some children, these delays were apparent before the age of 12?months. Differences between diagnostic groups became even more pronounced by 24 and 36?months, well before the average age of diagnosis. This suggests that home-based records can be useful tools to educate caregivers about what to look for in charting their child's early development and could assist with early screening efforts. En ligne : http://dx.doi.org/10.1002/aur.2442 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443 [article] Utilization of the Maternal and Child Health Handbook in Early Identification of Autism Spectrum Disorder and Other Neurodevelopmental Disorders [Texte imprimé et/ou numérique] / Tomoya HIROTA, Auteur ; Somer L. BISHOP, Auteur ; Masaki ADACHI, Auteur ; Amy SHUI, Auteur ; Michio TAKAHASHI, Auteur ; Hiroyuki MORI, Auteur ; Kazuhiko NAKAMURA, Auteur . - p.551-559. Langues : Anglais (eng) in Autism Research > 14-3 (March 2021) . - p.551-559 Mots-clés : developmental milestones  early identification  neurodevelopmental disorders  parental concerns  universal healthcare Index. décimale : PER Périodiques Résumé : There is relatively little information about prospectively reported developmental milestones from caregivers of children who go on to be diagnosed with neurodevelopmental disorders (NDDs), including autism spectrum disorder (ASD). The current study examined rates of early skill attainment in 5-year-old children who participated in a comprehensive in-person assessment for NDDs in Hirosaki in Japan. Developmental milestone data were extracted from their Maternal and Child Health Handbook (MCHH), a booklet distributed to all pregnant women as part of universal health care. Seven hundred and twenty children underwent the assessment, among whom 455 received one or more NDD diagnoses (ASD: n = 124, non-ASD NDD: n = 331). Developmental skills were organized into four domains (motor, social interaction, communication, self-help), and the cumulative number of potential delays in each domain was calculated for each participant within three different age ranges (by 12?months, by 24?months, and by 36?months). Even by age 12?months, children with ASD/NDDs showed more potential delays across domains compared to those who received no NDD diagnosis. However, differences between those with ASD and those with non-ASD NDDs were not apparent until 24?months for social interaction and communication, and 36?months for self-help. These findings provide insights into specific behaviors that could be used to screen for ASD and other NDDs. In addition, the present study indicates the potential utility of the MCHH as a broadband screening tool to educate parents about what to look for in charting their child's early development. LAY SUMMARY: The present study examined prospectively charted developmental milestones from home-based records used as part of universal health care in 720 5-year-old children from Hirosaki, Japan. All children participated in a comprehensive evaluation to determine if they met criteria for a neurodevelopmental disorder (NDD), including autism spectrum disorder (ASD). Compared to those who received no NDD diagnosis, children with NDDs exhibited higher rates of potential delays across developmental domains, including social interaction, communication, and self-help. For some children, these delays were apparent before the age of 12?months. Differences between diagnostic groups became even more pronounced by 24 and 36?months, well before the average age of diagnosis. This suggests that home-based records can be useful tools to educate caregivers about what to look for in charting their child's early development and could assist with early screening efforts. En ligne : http://dx.doi.org/10.1002/aur.2442 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443