Brief Report: Under-Representation of African Americans in Autism Genetic Research: A Rationale for Inclusion of Subjects Representing Diverse Family Structures / Claudia HILTON in Journal of Autism and Developmental Disorders, 40-5 (May 2010)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 40-5 (May 2010) . - p.633-639 Titre : Brief Report: Under-Representation of African Americans in Autism Genetic Research: A Rationale for Inclusion of Subjects Representing Diverse Family Structures Type de document : texte imprimé Auteurs : Claudia HILTON, Auteur ; John N. CONSTANTINO, Auteur ; Paul T. SHATTUCK, Auteur ; Rolanda A. MAXIM, Auteur ; Robert T. FITZGERALD, Auteur ; Kelley M. JACKSON, Auteur ; Christopher C. BOSWORTH, Auteur ; Daniel H. GESCHWIND, Auteur Année de publication : 2010 Article en page(s) : p.633-639 Langues : Anglais (eng) Mots-clés : Ethnicity African-American Minority-representation Index. décimale : PER Périodiques Résumé : African American children with autism are seriously under-represented in existing genetic registries and biomedical research studies of autism. We estimated the number of African American children with autism in the St. Louis region using CDC surveillance data and present the outcomes of a concerted effort to enroll approximately one-third of that population into either of two large national genetic autism registries. The results revealed that even after traditional barriers to research participation were addressed and all contacted families expressed a willingness to participate, 67% of the reachable families were disqualified from participation because of family structure alone. Comprehensive efforts—including expansion of eligibility to families of diverse structure—are warranted to facilitate the inclusion of African American children in biomedical research. En ligne : http://dx.doi.org/10.1007/s10803-009-0905-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=101 [article] Brief Report: Under-Representation of African Americans in Autism Genetic Research: A Rationale for Inclusion of Subjects Representing Diverse Family Structures [texte imprimé] / Claudia HILTON, Auteur ; John N. CONSTANTINO, Auteur ; Paul T. SHATTUCK, Auteur ; Rolanda A. MAXIM, Auteur ; Robert T. FITZGERALD, Auteur ; Kelley M. JACKSON, Auteur ; Christopher C. BOSWORTH, Auteur ; Daniel H. GESCHWIND, Auteur . - 2010 . - p.633-639. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 40-5 (May 2010) . - p.633-639 Mots-clés : Ethnicity African-American Minority-representation Index. décimale : PER Périodiques Résumé : African American children with autism are seriously under-represented in existing genetic registries and biomedical research studies of autism. We estimated the number of African American children with autism in the St. Louis region using CDC surveillance data and present the outcomes of a concerted effort to enroll approximately one-third of that population into either of two large national genetic autism registries. The results revealed that even after traditional barriers to research participation were addressed and all contacted families expressed a willingness to participate, 67% of the reachable families were disqualified from participation because of family structure alone. Comprehensive efforts—including expansion of eligibility to families of diverse structure—are warranted to facilitate the inclusion of African American children in biomedical research. En ligne : http://dx.doi.org/10.1007/s10803-009-0905-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=101

Effectiveness of physical activity on repetitive behaviors and independence in autistic adults: A systematic review / Hope HACKER ; Kaleigh MAGNANT ; Camila SALAZAR ; Kayla KUBENKA ; Lillian CATES ; Alison HANSEN ; Karen RATCLIFF ; Claudia HILTON in Research in Autism, 126 (August 2025)  

Public ISBD [article]  inResearch in Autism > 126 (August 2025) . - p.202641 Titre : Effectiveness of physical activity on repetitive behaviors and independence in autistic adults: A systematic review Type de document : texte imprimé Auteurs : Hope HACKER, Auteur ; Kaleigh MAGNANT, Auteur ; Camila SALAZAR, Auteur ; Kayla KUBENKA, Auteur ; Lillian CATES, Auteur ; Alison HANSEN, Auteur ; Karen RATCLIFF, Auteur ; Claudia HILTON, Auteur Article en page(s) : p.202641 Langues : Anglais (eng) Mots-clés : Physical activity  Repetitive behaviors  Independence  Participation  Activities of daily living  Autonomy Index. décimale : PER Périodiques Résumé : Importance A higher frequency of disruptive repetitive behaviors is associated with a decrease in independence, lowering the quality of life among autistic adults. Objective Summarize existing literature examining the effectiveness of physical activity on disruptive repetitive behaviors and decreased independence in autistic adults. Data sources Review registered in PROSPERO (ID: CRD42023448585). Databases searched on July 11th, 2023, included Medline, CINAHL, PsycInfo, and Scopus. Study selection and data collection Guidelines from the Preferred Reporting Items for Systematic Reviews and Meta-Analyses were used for data abstraction. Peer-reviewed articles published globally were evaluated. Nine met the inclusion criteria. Studies completed with autistic children were excluded due to the recent systematic reviews that have been conducted on this topic. A total of 469 participants were assessed. Risk-of-bias assessments were performed. Studies were divided by outcome, repetitive behaviors, and independence. Findings Participation in moderate to vigorous intensity physical activity was shown to reduce repetitive behaviors and increase independence in activities of daily living or an autonomous completion of routines. Small sample size, challenges recruiting adult participants, and lack of consistency in the studies limited the strength of the findings. Conclusions and relevance Results from this systematic review provide moderate evidence to support the use of physical activity in reducing repetitive behaviors and increasing independence in autistic adults. Physical activity interventions at a moderate to vigorous intensity for at least 20 min, twice a week is a treatment option to consider targeting these outcomes. What this article adds Provides information helpful in determining the usefulness of physical activity as an intervention for autistic adults. En ligne : https://doi.org/10.1016/j.reia.2025.202641 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=565 [article] Effectiveness of physical activity on repetitive behaviors and independence in autistic adults: A systematic review [texte imprimé] / Hope HACKER, Auteur ; Kaleigh MAGNANT, Auteur ; Camila SALAZAR, Auteur ; Kayla KUBENKA, Auteur ; Lillian CATES, Auteur ; Alison HANSEN, Auteur ; Karen RATCLIFF, Auteur ; Claudia HILTON, Auteur . - p.202641. Langues : Anglais (eng) in Research in Autism > 126 (August 2025) . - p.202641 Mots-clés : Physical activity  Repetitive behaviors  Independence  Participation  Activities of daily living  Autonomy Index. décimale : PER Périodiques Résumé : Importance A higher frequency of disruptive repetitive behaviors is associated with a decrease in independence, lowering the quality of life among autistic adults. Objective Summarize existing literature examining the effectiveness of physical activity on disruptive repetitive behaviors and decreased independence in autistic adults. Data sources Review registered in PROSPERO (ID: CRD42023448585). Databases searched on July 11th, 2023, included Medline, CINAHL, PsycInfo, and Scopus. Study selection and data collection Guidelines from the Preferred Reporting Items for Systematic Reviews and Meta-Analyses were used for data abstraction. Peer-reviewed articles published globally were evaluated. Nine met the inclusion criteria. Studies completed with autistic children were excluded due to the recent systematic reviews that have been conducted on this topic. A total of 469 participants were assessed. Risk-of-bias assessments were performed. Studies were divided by outcome, repetitive behaviors, and independence. Findings Participation in moderate to vigorous intensity physical activity was shown to reduce repetitive behaviors and increase independence in activities of daily living or an autonomous completion of routines. Small sample size, challenges recruiting adult participants, and lack of consistency in the studies limited the strength of the findings. Conclusions and relevance Results from this systematic review provide moderate evidence to support the use of physical activity in reducing repetitive behaviors and increasing independence in autistic adults. Physical activity interventions at a moderate to vigorous intensity for at least 20 min, twice a week is a treatment option to consider targeting these outcomes. What this article adds Provides information helpful in determining the usefulness of physical activity as an intervention for autistic adults. En ligne : https://doi.org/10.1016/j.reia.2025.202641 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=565

Fit club: Outcomes from 35-minute daily exercise program for autistic adolescents / Claudia HILTON in Research in Autism Spectrum Disorders, 119 (January 2025)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 119 (January 2025) . - p.102504 Titre : Fit club: Outcomes from 35-minute daily exercise program for autistic adolescents Type de document : texte imprimé Auteurs : Claudia HILTON, Auteur ; Diane M. COLLINS, Auteur ; Julie JONES, Auteur ; Joanne FLANAGAN, Auteur ; Cora CARILLO, Auteur ; Karen RATCLIFF, Auteur Article en page(s) : p.102504 Langues : Anglais (eng) Mots-clés : Physical fitness  Executive function  Social responsiveness  Body mass index  Cognitive flexibility  School Index. décimale : PER Périodiques Résumé : Background Autistic children and adolescents have academic performance challenges and are often reluctant to participate in physical activities. Executive function (EF) abilities generally remain stable or worsen as autistic children get older and obesity and lack of physical fitness are frequent concerns experienced by these individuals. Finding ways to address these concerns has the potential to improve outcomes in autistic youth. Method We conducted a 12-month, repeated-measures study to examine the effectiveness of a mandatory 35-minute daily school physical activity intervention involving low to moderate exertion for autistic adolescents (n = 29). Changes in fitness, EF, social responsiveness, and restrictive and repetitive behaviors were examined. Results Significant improvements were seen in fitness, EF areas (specifically cognitive flexibility and planning/organizing), restrictive and repetitive behaviors and social responsiveness. Conclusion Findings suggest that participation in a mandatory daily 35-minute physical activity program with low to moderate exertion is feasible and may contribute to improved EF, fitness, restricted and repetitive behavior, and social responsiveness in autistic adolescents. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102504 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545 [article] Fit club: Outcomes from 35-minute daily exercise program for autistic adolescents [texte imprimé] / Claudia HILTON, Auteur ; Diane M. COLLINS, Auteur ; Julie JONES, Auteur ; Joanne FLANAGAN, Auteur ; Cora CARILLO, Auteur ; Karen RATCLIFF, Auteur . - p.102504. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 119 (January 2025) . - p.102504 Mots-clés : Physical fitness  Executive function  Social responsiveness  Body mass index  Cognitive flexibility  School Index. décimale : PER Périodiques Résumé : Background Autistic children and adolescents have academic performance challenges and are often reluctant to participate in physical activities. Executive function (EF) abilities generally remain stable or worsen as autistic children get older and obesity and lack of physical fitness are frequent concerns experienced by these individuals. Finding ways to address these concerns has the potential to improve outcomes in autistic youth. Method We conducted a 12-month, repeated-measures study to examine the effectiveness of a mandatory 35-minute daily school physical activity intervention involving low to moderate exertion for autistic adolescents (n = 29). Changes in fitness, EF, social responsiveness, and restrictive and repetitive behaviors were examined. Results Significant improvements were seen in fitness, EF areas (specifically cognitive flexibility and planning/organizing), restrictive and repetitive behaviors and social responsiveness. Conclusion Findings suggest that participation in a mandatory daily 35-minute physical activity program with low to moderate exertion is feasible and may contribute to improved EF, fitness, restricted and repetitive behavior, and social responsiveness in autistic adolescents. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102504 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545

Flourishing in children with autism spectrum disorders / Claudia HILTON in Autism Research, 12-6 (June 2019)  

Public ISBD [article]  inAutism Research > 12-6 (June 2019) . - p.952-966 Titre : Flourishing in children with autism spectrum disorders Type de document : texte imprimé Auteurs : Claudia HILTON, Auteur ; K. RATCLIFF, Auteur ; Diane M. COLLINS, Auteur ; J. FLANAGAN, Auteur ; I. HONG, Auteur Année de publication : 2019 Article en page(s) : p.952-966 Langues : Anglais (eng) Mots-clés : autism  behavioral control  flourishing  large data  school motivation  social competence Index. décimale : PER Périodiques Résumé : Flourishing is an indicator of positive mental health and is important for children's development and well-being. We used variables from the National Survey of Children's Health 2016 as indicators of flourishing (difficulty making friends, is bullied, bullies others, shares ideas with family, argues, finishes tasks, does all homework, shows curiosity, stays calm, and cares about doing well in school) to compare differences in parent perceptions of their children with and without autism spectrum disorder (ASD). We anticipate that these findings will help identify intervention targets to support the well-being of individuals with ASD. Children between 6 and 17 years of age, without intellectual disability, brain injury, cerebral palsy, or Down syndrome were included. Total participants were 34,171 controls (male/female = 17,116/17,155) and 812 with ASD (male/female = 668/144). Factor analysis resulted in three-factor structures (social competence, behavioral control, and school motivation) with good model fit (root mean square error of approximation = 0.08, comparative fit index = 0.92, Tucker-Lewis index = 0.89). The multivariate regression model and propensity score with inverse probability of treatment weighting (PS-IPTW) method revealed that children with ASD had lower scores in the social competence and behavioral control factors compared to the control group (all P < 0.05). However, no significant differences were found in the school motivation factor between the two groups (P > 0.05) in both multivariate regression model and PS-IPTW method. Findings suggest that social competence and behavioral control are indicators of flourishing and are important intervention targets to increase flourishing among children with ASD. Autism Res 2019, 12: 952-966. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Flourishing is an indicator of positive mental health and is important for children's development and well-being. We used variables from The National Survey of Children's Health 2016 to examine differences in parent perceptions of the indicators of flourishing (difficulty making friends, is bullied, bullies others, shares ideas with family, argues, finishes tasks, does all homework, shows curiosity, stays calm, and cares about doing well in school) between children with and without autism spectrum disorders (ASD). We anticipate that this information will help to identify therapeutic targets to support the well-being of individuals with ASD. Children between 6 and 17 years old, without intellectual disability (ID), brain injury (BI), cerebral palsy (CP), or Down syndrome (DS) were included. From the total (N = 50,212), we excluded children under age 6 (n = 14,494), those who once, but do not currently have ASD (n = 81), and those with ID (n = 432), BI (n = 170), CP (n = 35), and DS (n = 17), resulting in 34,983 records used. Total participants, age 6-17 years, were 34,171 controls (male/female = 17,116/17,155) and 812 with ASD (male/female = 668/144). Factor analysis resulted in the identification of three flourishing categories among the indicator variables (social competence, behavioral control, and school motivation). Children with ASD had lower scores in the social competence and behavioral control factors compared to the control group. However, there were no significant differences in the school motivation factor between the two groups. Findings suggest that social competence and behavioral control are indicators of flourishing and are important intervention targets to increase flourishing among children with ASD. En ligne : https://dx.doi.org/10.1002/aur.2097 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] Flourishing in children with autism spectrum disorders [texte imprimé] / Claudia HILTON, Auteur ; K. RATCLIFF, Auteur ; Diane M. COLLINS, Auteur ; J. FLANAGAN, Auteur ; I. HONG, Auteur . - 2019 . - p.952-966. Langues : Anglais (eng) in Autism Research > 12-6 (June 2019) . - p.952-966 Mots-clés : autism  behavioral control  flourishing  large data  school motivation  social competence Index. décimale : PER Périodiques Résumé : Flourishing is an indicator of positive mental health and is important for children's development and well-being. We used variables from the National Survey of Children's Health 2016 as indicators of flourishing (difficulty making friends, is bullied, bullies others, shares ideas with family, argues, finishes tasks, does all homework, shows curiosity, stays calm, and cares about doing well in school) to compare differences in parent perceptions of their children with and without autism spectrum disorder (ASD). We anticipate that these findings will help identify intervention targets to support the well-being of individuals with ASD. Children between 6 and 17 years of age, without intellectual disability, brain injury, cerebral palsy, or Down syndrome were included. Total participants were 34,171 controls (male/female = 17,116/17,155) and 812 with ASD (male/female = 668/144). Factor analysis resulted in three-factor structures (social competence, behavioral control, and school motivation) with good model fit (root mean square error of approximation = 0.08, comparative fit index = 0.92, Tucker-Lewis index = 0.89). The multivariate regression model and propensity score with inverse probability of treatment weighting (PS-IPTW) method revealed that children with ASD had lower scores in the social competence and behavioral control factors compared to the control group (all P < 0.05). However, no significant differences were found in the school motivation factor between the two groups (P > 0.05) in both multivariate regression model and PS-IPTW method. Findings suggest that social competence and behavioral control are indicators of flourishing and are important intervention targets to increase flourishing among children with ASD. Autism Res 2019, 12: 952-966. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Flourishing is an indicator of positive mental health and is important for children's development and well-being. We used variables from The National Survey of Children's Health 2016 to examine differences in parent perceptions of the indicators of flourishing (difficulty making friends, is bullied, bullies others, shares ideas with family, argues, finishes tasks, does all homework, shows curiosity, stays calm, and cares about doing well in school) between children with and without autism spectrum disorders (ASD). We anticipate that this information will help to identify therapeutic targets to support the well-being of individuals with ASD. Children between 6 and 17 years old, without intellectual disability (ID), brain injury (BI), cerebral palsy (CP), or Down syndrome (DS) were included. From the total (N = 50,212), we excluded children under age 6 (n = 14,494), those who once, but do not currently have ASD (n = 81), and those with ID (n = 432), BI (n = 170), CP (n = 35), and DS (n = 17), resulting in 34,983 records used. Total participants, age 6-17 years, were 34,171 controls (male/female = 17,116/17,155) and 812 with ASD (male/female = 668/144). Factor analysis resulted in the identification of three flourishing categories among the indicator variables (social competence, behavioral control, and school motivation). Children with ASD had lower scores in the social competence and behavioral control factors compared to the control group. However, there were no significant differences in the school motivation factor between the two groups. Findings suggest that social competence and behavioral control are indicators of flourishing and are important intervention targets to increase flourishing among children with ASD. En ligne : https://dx.doi.org/10.1002/aur.2097 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

Leisure Activity Enjoyment of Children with Autism Spectrum Disorders / Megan EVERSOLE in Journal of Autism and Developmental Disorders, 46-1 (January 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-1 (January 2016) . - p.10-20 Titre : Leisure Activity Enjoyment of Children with Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Megan EVERSOLE, Auteur ; Diane M. COLLINS, Auteur ; Amol KARMARKAR, Auteur ; Lisa COLTON, Auteur ; Jill PHILLIPS QUINN, Auteur ; Rita KARSBAEK, Auteur ; Jessica REINKEN JOHNSON, Auteur ; Nicolle Patricia CALLIER, Auteur ; Claudia HILTON, Auteur Année de publication : 2016 Article en page(s) : p.10-20 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Activity enjoyment  Motivation Index. décimale : PER Périodiques Résumé : Enjoyment is a fundamental component of activity participation. This study compared leisure activity enjoyment experienced by typically developing children (TD; n = 64) and those with autism spectrum disorders (ASD; n = 67) from age 6 to 13. The TD children enjoyed formal and physical activities significantly more than the children with ASD. Symptom severity was negatively related to enjoyment of overall, formal, physical and social activities. Older children with ASD enjoyed overall, informal, recreational, and self-improvement activities significantly less than younger children, but no differences were seen across TD age groups. Children with ASD enjoyed swimming significantly more than TD children. Understanding patterns of activity enjoyment is useful for being better able to address a child’s motivation to participate in various life activities. En ligne : http://dx.doi.org/10.1007/s10803-015-2529-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278 [article] Leisure Activity Enjoyment of Children with Autism Spectrum Disorders [texte imprimé] / Megan EVERSOLE, Auteur ; Diane M. COLLINS, Auteur ; Amol KARMARKAR, Auteur ; Lisa COLTON, Auteur ; Jill PHILLIPS QUINN, Auteur ; Rita KARSBAEK, Auteur ; Jessica REINKEN JOHNSON, Auteur ; Nicolle Patricia CALLIER, Auteur ; Claudia HILTON, Auteur . - 2016 . - p.10-20. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-1 (January 2016) . - p.10-20 Mots-clés : Autism spectrum disorders  Activity enjoyment  Motivation Index. décimale : PER Périodiques Résumé : Enjoyment is a fundamental component of activity participation. This study compared leisure activity enjoyment experienced by typically developing children (TD; n = 64) and those with autism spectrum disorders (ASD; n = 67) from age 6 to 13. The TD children enjoyed formal and physical activities significantly more than the children with ASD. Symptom severity was negatively related to enjoyment of overall, formal, physical and social activities. Older children with ASD enjoyed overall, informal, recreational, and self-improvement activities significantly less than younger children, but no differences were seen across TD age groups. Children with ASD enjoyed swimming significantly more than TD children. Understanding patterns of activity enjoyment is useful for being better able to address a child’s motivation to participate in various life activities. En ligne : http://dx.doi.org/10.1007/s10803-015-2529-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278

Leisure Participation Patterns for School Age Youth with Autism Spectrum Disorders: Findings from the 2016 National Survey of Children’s Health / Karen RATCLIFF in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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Motor impairment in sibling pairs concordant and discordant for autism spectrum disorders / Claudia LIST HILTON in Autism, 16-4 (July 2012)  

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Participation Difficulties in Autism Spectrum Disorders and Intellectual Disabilities: Findings from the 2011 Survey of Pathway to Diagnosis and Services / Claudia HILTON in Journal of Autism and Developmental Disorders, 51-4 (April 2021)  

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Relationship between motor skill impairment and severity in children with Asperger syndrome / Claudia HILTON in Research in Autism Spectrum Disorders, 1-4 (October/December 2007)  

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Relationship between social competence and sensory processing in children with high functioning autism spectrum disorders / Claudia HILTON in Research in Autism Spectrum Disorders, 1-2 (April/June 2007)  

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Sensory Responsiveness as a Predictor of Social Severity in Children with High Functioning Autism Spectrum Disorders / Claudia HILTON in Journal of Autism and Developmental Disorders, 40-8 (August 2010)  

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Sensory Responsiveness in Siblings of Children with Autism Spectrum Disorders / Claudia HILTON in Journal of Autism and Developmental Disorders, 46-12 (December 2016)  

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