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Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults / Goldie A. MCQUAID in Autism Research, 15-8 (August 2022)
[article]
Titre : Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Goldie A. MCQUAID, Auteur ; Colin H. WEISS, Auteur ; Alex Job SAID, Auteur ; Kevin A. PELPHREY, Auteur ; Nancy Raitano LEE, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.1535-1549 Langues : Anglais (eng) Mots-clés : Activities of Daily Living Adult Aged Autism Spectrum Disorder/psychology Autistic Disorder/psychology Female Humans Infant, Newborn Male Quality of Life/psychology Stress, Psychological/complications/epidemiology/psychology adulthood autism perceived stress subjective quality of life Index. décimale : PER Périodiques Résumé : Few studies have examined self-reported perceived stress in autistic adults. Existing studies have included relatively small, predominantly male samples and have not included older autistic adults. Using a large autistic sample (NÂ =Â 713), enriched for individuals designated female at birth (59.3%), and spanning younger, middle, and older adulthood, we examined perceived stress and its associations with independence in activities of daily living and subjective quality of life (QoL). Perceived stress for autistic adults designated male or female at birth was compared to their same birth-sex counterparts in a general population sample. In addition, within the autistic sample, effects of sex designated at birth, age, and their interaction were examined. Regression modeling examined associations between perceived stress and independence in activities of daily living and domains of subjective QoL in autistic adults, after controlling for age, sex designated at birth, and household income. Autistic adults reported significantly greater perceived stress than a general population comparison sample. Relative to autistic adults designated male at birth, those designated female at birth demonstrated significantly elevated perceived stress. Perceived stress contributed significantly to all regression models, with greater perceived stress associated with less independence in activities of daily living, and poorer subjective QoL across all domains-Physical, Psychological, Social, Environment, and Autism-related QoL. Findings are contextualized within the literature documenting that autistic individuals experience elevated underemployment and unemployment, heightened rates of adverse life events, and increased exposure to minority stress. LAY SUMMARY: This study looked at self-reported perceived stress in a large sample of autistic adults. Autistic adults reported more perceived stress than non-autistic adults. Autistic individuals designated female at birth reported higher stress than autistic individuals designated male at birth. In autistic adults, greater perceived stress is related to less independence in activities of daily living and poorer subjective quality of life. En ligne : http://dx.doi.org/10.1002/aur.2779 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483
in Autism Research > 15-8 (August 2022) . - p.1535-1549[article] Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults [Texte imprimé et/ou numérique] / Goldie A. MCQUAID, Auteur ; Colin H. WEISS, Auteur ; Alex Job SAID, Auteur ; Kevin A. PELPHREY, Auteur ; Nancy Raitano LEE, Auteur ; Gregory L. WALLACE, Auteur . - p.1535-1549.
Langues : Anglais (eng)
in Autism Research > 15-8 (August 2022) . - p.1535-1549
Mots-clés : Activities of Daily Living Adult Aged Autism Spectrum Disorder/psychology Autistic Disorder/psychology Female Humans Infant, Newborn Male Quality of Life/psychology Stress, Psychological/complications/epidemiology/psychology adulthood autism perceived stress subjective quality of life Index. décimale : PER Périodiques Résumé : Few studies have examined self-reported perceived stress in autistic adults. Existing studies have included relatively small, predominantly male samples and have not included older autistic adults. Using a large autistic sample (NÂ =Â 713), enriched for individuals designated female at birth (59.3%), and spanning younger, middle, and older adulthood, we examined perceived stress and its associations with independence in activities of daily living and subjective quality of life (QoL). Perceived stress for autistic adults designated male or female at birth was compared to their same birth-sex counterparts in a general population sample. In addition, within the autistic sample, effects of sex designated at birth, age, and their interaction were examined. Regression modeling examined associations between perceived stress and independence in activities of daily living and domains of subjective QoL in autistic adults, after controlling for age, sex designated at birth, and household income. Autistic adults reported significantly greater perceived stress than a general population comparison sample. Relative to autistic adults designated male at birth, those designated female at birth demonstrated significantly elevated perceived stress. Perceived stress contributed significantly to all regression models, with greater perceived stress associated with less independence in activities of daily living, and poorer subjective QoL across all domains-Physical, Psychological, Social, Environment, and Autism-related QoL. Findings are contextualized within the literature documenting that autistic individuals experience elevated underemployment and unemployment, heightened rates of adverse life events, and increased exposure to minority stress. LAY SUMMARY: This study looked at self-reported perceived stress in a large sample of autistic adults. Autistic adults reported more perceived stress than non-autistic adults. Autistic individuals designated female at birth reported higher stress than autistic individuals designated male at birth. In autistic adults, greater perceived stress is related to less independence in activities of daily living and poorer subjective quality of life. En ligne : http://dx.doi.org/10.1002/aur.2779 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 A Pilot Randomized Controlled Trial of a Daily Living Skills Intervention for Adolescents with Autism / A. DUNCAN in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
[article]
Titre : A Pilot Randomized Controlled Trial of a Daily Living Skills Intervention for Adolescents with Autism Type de document : Texte imprimé et/ou numérique Auteurs : A. DUNCAN, Auteur ; J. MEINZEN-DERR, Auteur ; L. A. RUBLE, Auteur ; C. FASSLER, Auteur ; L. J. STARK, Auteur Article en page(s) : p.938-949 Langues : Anglais (eng) Mots-clés : Activities of Daily Living Adolescent Autism Spectrum Disorder/therapy Autistic Disorder/therapy Humans Pilot Projects Adolescents Autism spectrum disorder Daily living skills Goal attainment scale Intervention Index. décimale : PER Périodiques Résumé : Adolescents with autism spectrum disorder (ASD) without an intellectual disability have daily living skills (DLS) impairments. An initial feasibility pilot of Surviving and Thriving in the Real World (STRW), a group intervention that targets DLS, demonstrated significant improvements. A pilot RCT of STRW was conducted to extend these findings. Twelve adolescents with ASD were randomized to the treatment or waitlist groups. The treatment group had significant DLS improvements on the Vineland Adaptive Behavior Scales, 3rd Edition and the DLS goal attainment scale. Four adolescents from the waitlist crossed over and completed STRW. Entire sample analyses with 10 participants demonstrated large DLS gains. Results provide further evidence of the efficacy of STRW for closing the gap between DLS and chronological age. En ligne : http://dx.doi.org/10.1007/s10803-021-04993-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.938-949[article] A Pilot Randomized Controlled Trial of a Daily Living Skills Intervention for Adolescents with Autism [Texte imprimé et/ou numérique] / A. DUNCAN, Auteur ; J. MEINZEN-DERR, Auteur ; L. A. RUBLE, Auteur ; C. FASSLER, Auteur ; L. J. STARK, Auteur . - p.938-949.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.938-949
Mots-clés : Activities of Daily Living Adolescent Autism Spectrum Disorder/therapy Autistic Disorder/therapy Humans Pilot Projects Adolescents Autism spectrum disorder Daily living skills Goal attainment scale Intervention Index. décimale : PER Périodiques Résumé : Adolescents with autism spectrum disorder (ASD) without an intellectual disability have daily living skills (DLS) impairments. An initial feasibility pilot of Surviving and Thriving in the Real World (STRW), a group intervention that targets DLS, demonstrated significant improvements. A pilot RCT of STRW was conducted to extend these findings. Twelve adolescents with ASD were randomized to the treatment or waitlist groups. The treatment group had significant DLS improvements on the Vineland Adaptive Behavior Scales, 3rd Edition and the DLS goal attainment scale. Four adolescents from the waitlist crossed over and completed STRW. Entire sample analyses with 10 participants demonstrated large DLS gains. Results provide further evidence of the efficacy of STRW for closing the gap between DLS and chronological age. En ligne : http://dx.doi.org/10.1007/s10803-021-04993-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 Engagement in Vocational Activities Promotes Behavioral Development for Adults with Autism Spectrum Disorders / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 44-6 (June 2014)
[article]
Titre : Engagement in Vocational Activities Promotes Behavioral Development for Adults with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Julie LOUNDS TAYLOR, Auteur ; Leann E. SMITH, Auteur ; Marsha R. MAILICK, Auteur Article en page(s) : p.1447-1460 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Adult Vocation Autism symptoms Behavior problems Activities of daily living Index. décimale : PER Périodiques Résumé : This study examined the bidirectional relations over time between behavioral functioning (autism symptoms, maladaptive behaviors, activities of daily living) and vocational/educational activities of adults with autism spectrum disorders (ASD). Participants were 153 adults with ASD (M age = 30.2 years) who were part of a larger longitudinal study. Data were collected at two time points separated by 5.5 years. Cross-lag models were used, which accounted for stability over time while testing both directions of cross-lagged effects. Results suggested that greater vocational independence and engagement was related to subsequent reductions in autism symptoms and maladaptive behaviors, and improvements in activities of daily living. Relations between earlier behavioral variables (symptoms, behaviors, and activities of daily living) and later vocational independence were not statistically significant. En ligne : http://dx.doi.org/10.1007/s10803-013-2010-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233
in Journal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1447-1460[article] Engagement in Vocational Activities Promotes Behavioral Development for Adults with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Julie LOUNDS TAYLOR, Auteur ; Leann E. SMITH, Auteur ; Marsha R. MAILICK, Auteur . - p.1447-1460.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1447-1460
Mots-clés : Autism spectrum disorder Adult Vocation Autism symptoms Behavior problems Activities of daily living Index. décimale : PER Périodiques Résumé : This study examined the bidirectional relations over time between behavioral functioning (autism symptoms, maladaptive behaviors, activities of daily living) and vocational/educational activities of adults with autism spectrum disorders (ASD). Participants were 153 adults with ASD (M age = 30.2 years) who were part of a larger longitudinal study. Data were collected at two time points separated by 5.5 years. Cross-lag models were used, which accounted for stability over time while testing both directions of cross-lagged effects. Results suggested that greater vocational independence and engagement was related to subsequent reductions in autism symptoms and maladaptive behaviors, and improvements in activities of daily living. Relations between earlier behavioral variables (symptoms, behaviors, and activities of daily living) and later vocational independence were not statistically significant. En ligne : http://dx.doi.org/10.1007/s10803-013-2010-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) / D. V. CHAN in Journal of Autism and Developmental Disorders, 51-7 (July 2021)
[article]
Titre : Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) Type de document : Texte imprimé et/ou numérique Auteurs : D. V. CHAN, Auteur ; M. R. KLINGER, Auteur ; K. A. ADKISSON, Auteur ; L. G. KLINGER, Auteur Article en page(s) : p.2531-2537 Langues : Anglais (eng) Mots-clés : Activities of Daily Living Adult Autism Spectrum Disorder/epidemiology Community Participation Female Geographic Information Systems Humans Male Adults Autism spectrum disorder Community participation Geographic information systems (GIS) Services Foundation, the Organization for Autism Research, The University of North Carolina at Chapel Hill Junior Faculty Development Award and the University Research Council. Laura Klinger received research grants from Autism Speaks (#8316) and the Foundation of Hope. Index. décimale : PER Périodiques Résumé : A geographic information system (GIS) approach systematically assessed whether population density and distribution of community resources contributed to caregiver reported community participation outcomes for 124 adults with autism spectrum disorder (ASD). Regression analyses examined whether GIS measures predicted community participation in areas of social activities and use of services, while also accounting for adult age, conversation ability, and daily living skills (DLS). Results indicated that in addition to person factors of greater DLS and better conversation ability, access to specific community features, such as bus stops, contributed to improved participation. Unexpectedly, population density where one lived made minimal contribution to participation outcomes, except in getting together with friends outside of organized activities. En ligne : http://dx.doi.org/10.1007/s10803-020-04660-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2531-2537[article] Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) [Texte imprimé et/ou numérique] / D. V. CHAN, Auteur ; M. R. KLINGER, Auteur ; K. A. ADKISSON, Auteur ; L. G. KLINGER, Auteur . - p.2531-2537.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2531-2537
Mots-clés : Activities of Daily Living Adult Autism Spectrum Disorder/epidemiology Community Participation Female Geographic Information Systems Humans Male Adults Autism spectrum disorder Community participation Geographic information systems (GIS) Services Foundation, the Organization for Autism Research, The University of North Carolina at Chapel Hill Junior Faculty Development Award and the University Research Council. Laura Klinger received research grants from Autism Speaks (#8316) and the Foundation of Hope. Index. décimale : PER Périodiques Résumé : A geographic information system (GIS) approach systematically assessed whether population density and distribution of community resources contributed to caregiver reported community participation outcomes for 124 adults with autism spectrum disorder (ASD). Regression analyses examined whether GIS measures predicted community participation in areas of social activities and use of services, while also accounting for adult age, conversation ability, and daily living skills (DLS). Results indicated that in addition to person factors of greater DLS and better conversation ability, access to specific community features, such as bus stops, contributed to improved participation. Unexpectedly, population density where one lived made minimal contribution to participation outcomes, except in getting together with friends outside of organized activities. En ligne : http://dx.doi.org/10.1007/s10803-020-04660-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware / S. SRINIVASAN in Autism Research, 14-8 (August 2021)
[article]
Titre : Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware Type de document : Texte imprimé et/ou numérique Auteurs : S. SRINIVASAN, Auteur ; A. EKBLADH, Auteur ; B. FREEDMAN, Auteur ; Anjana N. BHAT, Auteur Article en page(s) : p.1736-1758 Langues : Anglais (eng) Mots-clés : Activities of Daily Living Adolescent Autism Spectrum Disorder/therapy Caregivers Child Counseling Delaware Health Services Accessibility Health Services Needs and Demand Humans Needs Assessment Autism Spectrum Disorder caregivers children and youth family support healthcare needs assessment unmet needs declare. Index. décimale : PER Périodiques Résumé : The study aimed to collect data from families of children and youth with Autism Spectrum Disorder (ASD) in the state of Delaware, USA to understand their ongoing needs and challenges in accessing child healthcare and family support services. We analyzed responses from 263 caregivers of children and youth with ASD from 3 to 24?years using a statewide needs assessment survey. Over 50% caregivers indicated having unmet needs relative to both child/youth healthcare services and family support services. Between 24 and 38% caregivers expressed unmet needs for healthcare services such as social skills training, speech-language therapy, behavioral intervention, and occupational therapy for their child and 20-24% expressed needs for family support services such as respite care, parent/sibling support groups, counseling, and babysitting support. Additionally, number of prior early interventions received, limitations in accessing healthcare services, and unmet needs for family support services significantly predicted child/youth unmet healthcare needs. Greater ASD severity and difficulties accessing child/youth healthcare services predicted participant's functional dependence on caregivers for activities of daily living. Together, these findings call for designing holistic, family-centered interventions that address needs of both children and youth with ASD and their families. LAY SUMMARY: A statewide needs assessment survey of caregivers of children and youth with ASD revealed that 50% responders had unmet needs relative to both child/youth healthcare services and family support services. Number of prior services received, limitations in accessing healthcare, and unmet needs for family support are linked to child/youth unmet healthcare needs. Severity of autism and difficulties accessing child/youth healthcare are associated with participant's functional dependence. Together, these findings call for placing the family at the heart of the service system in ASD. En ligne : http://dx.doi.org/10.1002/aur.2514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-8 (August 2021) . - p.1736-1758[article] Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware [Texte imprimé et/ou numérique] / S. SRINIVASAN, Auteur ; A. EKBLADH, Auteur ; B. FREEDMAN, Auteur ; Anjana N. BHAT, Auteur . - p.1736-1758.
Langues : Anglais (eng)
in Autism Research > 14-8 (August 2021) . - p.1736-1758
Mots-clés : Activities of Daily Living Adolescent Autism Spectrum Disorder/therapy Caregivers Child Counseling Delaware Health Services Accessibility Health Services Needs and Demand Humans Needs Assessment Autism Spectrum Disorder caregivers children and youth family support healthcare needs assessment unmet needs declare. Index. décimale : PER Périodiques Résumé : The study aimed to collect data from families of children and youth with Autism Spectrum Disorder (ASD) in the state of Delaware, USA to understand their ongoing needs and challenges in accessing child healthcare and family support services. We analyzed responses from 263 caregivers of children and youth with ASD from 3 to 24?years using a statewide needs assessment survey. Over 50% caregivers indicated having unmet needs relative to both child/youth healthcare services and family support services. Between 24 and 38% caregivers expressed unmet needs for healthcare services such as social skills training, speech-language therapy, behavioral intervention, and occupational therapy for their child and 20-24% expressed needs for family support services such as respite care, parent/sibling support groups, counseling, and babysitting support. Additionally, number of prior early interventions received, limitations in accessing healthcare services, and unmet needs for family support services significantly predicted child/youth unmet healthcare needs. Greater ASD severity and difficulties accessing child/youth healthcare services predicted participant's functional dependence on caregivers for activities of daily living. Together, these findings call for designing holistic, family-centered interventions that address needs of both children and youth with ASD and their families. LAY SUMMARY: A statewide needs assessment survey of caregivers of children and youth with ASD revealed that 50% responders had unmet needs relative to both child/youth healthcare services and family support services. Number of prior services received, limitations in accessing healthcare, and unmet needs for family support are linked to child/youth unmet healthcare needs. Severity of autism and difficulties accessing child/youth healthcare are associated with participant's functional dependence. Together, these findings call for placing the family at the heart of the service system in ASD. En ligne : http://dx.doi.org/10.1002/aur.2514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 Relationship Between Symptom Severity and Caregiver Burden Experienced by Parents of Adults With Autism / Christina N. MARSACK-TOPOLEWSKI in Focus on Autism and Other Developmental Disabilities, 36-1 (March 2021)
PermalinkSelf-reported memory of autistic young adults and associated real-world outcomes / Goldie A. MCQUAID ; Gregory L. WALLACE ; Nancy Raitano LEE in Research in Autism Spectrum Disorders, 109 (November 2023)
PermalinkTwenty-year longitudinal birth cohort study of individuals diagnosed with autism spectrum disorder before seven years of age / Mitsuaki IWASA in Journal of Child Psychology and Psychiatry, 63-12 (December 2022)
PermalinkComparison of Adaptive Functioning Measures in Adolescents with Autism Spectrum Disorder Without Intellectual Disability / L. TAMM in Journal of Autism and Developmental Disorders, 52-3 (March 2022)
PermalinkAging Well on the Autism Spectrum: An Examination of the Dominant Model of Successful Aging / Ye In HWANG in Journal of Autism and Developmental Disorders, 50-7 (July 2020)
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