Adolescent boys with an autism spectrum disorder and their experience of sexuality: An interpretative phenomenological analysis / Jeroen DEWINTER in Autism, 21-1 (January 2017)  

Public ISBD [article]  inAutism > 21-1 (January 2017) . - p.75-82 Titre : Adolescent boys with an autism spectrum disorder and their experience of sexuality: An interpretative phenomenological analysis Type de document : texte imprimé Auteurs : Jeroen DEWINTER, Auteur ; Hanna Van PARYS, Auteur ; Robert R.J.M. VERMEIREN, Auteur ; Chijs VAN NIEUWENHUIZEN, Auteur Article en page(s) : p.75-82 Langues : Anglais (eng) Mots-clés : adolescents  autism  interpretative phenomenological analysis  qualitative research  sexuality Index. décimale : PER Périodiques Résumé : This qualitative study explored how adolescent boys with autism spectrum disorder experience their sexuality. Previous research has demonstrated that sexuality is a developmental task for boys with autism spectrum disorder, as it is for their peers. Case studies have suggested a relation between autism spectrum disorder and atypical sexual development; empirical studies on this subject, however, are scant and inconsistent. This study is based on interviews with eight boys, aged 16–20 years, with Asperger’s disorder or autistic disorder. Interpretative phenomenological analysis of the data revealed three major themes relating to (a) how they experience sexual feelings, think about sexuality and think about themselves as sexual beings; (b) how they perceive messages relating to sexuality in their surroundings; and (c) how they experience finding and having a partner and partnered sex. We believe that attention to these themes is needed in assessment, education and further research. En ligne : http://dx.doi.org/10.1177/1362361315627134 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297 [article] Adolescent boys with an autism spectrum disorder and their experience of sexuality: An interpretative phenomenological analysis [texte imprimé] / Jeroen DEWINTER, Auteur ; Hanna Van PARYS, Auteur ; Robert R.J.M. VERMEIREN, Auteur ; Chijs VAN NIEUWENHUIZEN, Auteur . - p.75-82. Langues : Anglais (eng) in Autism > 21-1 (January 2017) . - p.75-82 Mots-clés : adolescents  autism  interpretative phenomenological analysis  qualitative research  sexuality Index. décimale : PER Périodiques Résumé : This qualitative study explored how adolescent boys with autism spectrum disorder experience their sexuality. Previous research has demonstrated that sexuality is a developmental task for boys with autism spectrum disorder, as it is for their peers. Case studies have suggested a relation between autism spectrum disorder and atypical sexual development; empirical studies on this subject, however, are scant and inconsistent. This study is based on interviews with eight boys, aged 16–20 years, with Asperger’s disorder or autistic disorder. Interpretative phenomenological analysis of the data revealed three major themes relating to (a) how they experience sexual feelings, think about sexuality and think about themselves as sexual beings; (b) how they perceive messages relating to sexuality in their surroundings; and (c) how they experience finding and having a partner and partnered sex. We believe that attention to these themes is needed in assessment, education and further research. En ligne : http://dx.doi.org/10.1177/1362361315627134 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297

Brief Report: Gender Identity Differences in Autistic Adults: Associations with Perceptual and Socio-cognitive Profiles / Reubs J. WALSH in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4070-4078 Titre : Brief Report: Gender Identity Differences in Autistic Adults: Associations with Perceptual and Socio-cognitive Profiles Type de document : texte imprimé Auteurs : Reubs J. WALSH, Auteur ; Lydia KRABBENDAM, Auteur ; Jeroen DEWINTER, Auteur ; Sander BEGEER, Auteur Article en page(s) : p.4070-4078 Langues : Anglais (eng) Mots-clés : Autism  Bayesian cognition  Gender dysphoria  Gender identity  Perception  Transgender Index. décimale : PER Périodiques Résumé : Prior research has shown an elevation in autism traits and diagnoses in individuals seen for gender related consultation and in participants self-identifying as transgender. To investigate this relationship between autism and gender identity from a new angle, we compared the self-reported autism traits and sensory differences between participants with autism who did or did not identify with their assigned sex (i.e. cisgender or trans and non-binary, respectively). We found broad elevation of most cognitive autism traits in the trans and non-binary group (those who identified with a gender other than their assigned gender), and lower visual and auditory hypersensitivity. We contrast these data to existing hypotheses and propose a role for autistic resistance to social conditioning. En ligne : http://dx.doi.org/10.1007/s10803-018-3702-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] Brief Report: Gender Identity Differences in Autistic Adults: Associations with Perceptual and Socio-cognitive Profiles [texte imprimé] / Reubs J. WALSH, Auteur ; Lydia KRABBENDAM, Auteur ; Jeroen DEWINTER, Auteur ; Sander BEGEER, Auteur . - p.4070-4078. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4070-4078 Mots-clés : Autism  Bayesian cognition  Gender dysphoria  Gender identity  Perception  Transgender Index. décimale : PER Périodiques Résumé : Prior research has shown an elevation in autism traits and diagnoses in individuals seen for gender related consultation and in participants self-identifying as transgender. To investigate this relationship between autism and gender identity from a new angle, we compared the self-reported autism traits and sensory differences between participants with autism who did or did not identify with their assigned sex (i.e. cisgender or trans and non-binary, respectively). We found broad elevation of most cognitive autism traits in the trans and non-binary group (those who identified with a gender other than their assigned gender), and lower visual and auditory hypersensitivity. We contrast these data to existing hypotheses and propose a role for autistic resistance to social conditioning. En ligne : http://dx.doi.org/10.1007/s10803-018-3702-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

Gender identity development in autistic individuals: An interview study / Robin MICHIELS in Autism, 30-4 (April 2026)  

Public ISBD [article]  inAutism > 30-4 (April 2026) . - p.1000-1013 Titre : Gender identity development in autistic individuals: An interview study Type de document : texte imprimé Auteurs : Robin MICHIELS, Auteur ; Marie GROFFI, Auteur ; Jeroen DEWINTER, Auteur ; Ilse NOENS, Auteur ; Paul ENZLIN, Auteur Article en page(s) : p.1000-1013 Langues : Anglais (eng) Mots-clés : Autism  gender development  gender identity  lived experiences  participatory research  qualitative longitudinal analysis  qualitative research Index. décimale : PER Périodiques Résumé : Autistic individuals report more gender-related questions and gender incongruence compared to non-autistic peers. However, research on gender identity in autistic individuals lacks longitudinal perspectives and underrepresents cisgender males. This study explored how both cisgender autistic individuals and trans and gender-diverse (TGD) autistic individuals experienced their gender identity development in a broad sense. Fifteen autistic adults (aged 27–52) participated in semi-structured interviews. Data were analyzed using a qualitative longitudinal approach combining phenomenological and process analyses, guided by the Qualitative Analysis Guide of Leuven (QUAGOL). The autistic community was involved in developing research questions, study design, interpreting and discussing results. Phenomenological analysis revealed three themes: (1) exploring a comfortable identity; (2) negotiating oneself with others; and (3) interacting with societal perspectives on gender. Process analysis identified three themes: (1) learning by experience; (2) gender identity development takes time and is demanding; and (3) changing perspectives on gender. Gender-related questions shaped by individual, environmental, and societal factors were present in both cisgender and TGD autistic individuals, though convergence and divergence existed. Gender identity development was experienced as intertwined with autism and demanding, emphasizing the need for supportive environments, peer connections, and appropriate timing and conceptualization of autism diagnoses to foster positive gender identity development.Lay Abstract How both cisgender autistic people and trans and gender-diverse autistic people talk about their gender identity development.Why was this study done?Not everyone feels they have a gender identity, but everyone goes through a development in which gender identity plays a part. Some people experience a difference between their sex assigned at birth and how they experience their current gender. Here, we refer to this small group as trans and gender-diverse and to those whose gender aligns with their assigned sex as cisgender. An increasing number of studies show that autistic people identify more often as trans and gender-diverse compared to the general population but also autistic cis persons can have questions about gender. However, little research on gender identity in autistic individuals had looked at how their sense of gender developed. So, we wondered how autistic adults experienced their gender and how this changed while growing up.How was the study conducted?We interviewed 15 autistic adults between 27 and 52 years old about their gender identity development. In the interviews, we focused on (1) how autistic people described their sense of gender and (2) how their sense of gender changed over time.What did the study find?For both cisgender autistic individuals and trans and gender-diverse autistic individuals, gender identity development was a personal journey. We found three key themes: (1) exploring an identity that feels right as an individual; (2) in social situations, finding a balance between personal identity and others’ expectations; and (3) in society, interacting with social views on gender. We also found three themes related to changes over time: (1) people learning by experience; (2) gender identity development takes time and is demanding; and (3) perspectives on gender change over time. However, variety existed in how these themes were expressed and experienced.Why is this important?Interviewees shared how autism and identity, including gender identity, intertwined. For some, this was challenging. This shows how adequate information and support on gender and autism, and connections with other autistic people can contribute to a positive gender identity development. Also, a well-timed autism diagnosis and positive views on autism can further support this development. En ligne : https://dx.doi.org/10.1177/13623613261421391 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=584 [article] Gender identity development in autistic individuals: An interview study [texte imprimé] / Robin MICHIELS, Auteur ; Marie GROFFI, Auteur ; Jeroen DEWINTER, Auteur ; Ilse NOENS, Auteur ; Paul ENZLIN, Auteur . - p.1000-1013. Langues : Anglais (eng) in Autism > 30-4 (April 2026) . - p.1000-1013 Mots-clés : Autism  gender development  gender identity  lived experiences  participatory research  qualitative longitudinal analysis  qualitative research Index. décimale : PER Périodiques Résumé : Autistic individuals report more gender-related questions and gender incongruence compared to non-autistic peers. However, research on gender identity in autistic individuals lacks longitudinal perspectives and underrepresents cisgender males. This study explored how both cisgender autistic individuals and trans and gender-diverse (TGD) autistic individuals experienced their gender identity development in a broad sense. Fifteen autistic adults (aged 27–52) participated in semi-structured interviews. Data were analyzed using a qualitative longitudinal approach combining phenomenological and process analyses, guided by the Qualitative Analysis Guide of Leuven (QUAGOL). The autistic community was involved in developing research questions, study design, interpreting and discussing results. Phenomenological analysis revealed three themes: (1) exploring a comfortable identity; (2) negotiating oneself with others; and (3) interacting with societal perspectives on gender. Process analysis identified three themes: (1) learning by experience; (2) gender identity development takes time and is demanding; and (3) changing perspectives on gender. Gender-related questions shaped by individual, environmental, and societal factors were present in both cisgender and TGD autistic individuals, though convergence and divergence existed. Gender identity development was experienced as intertwined with autism and demanding, emphasizing the need for supportive environments, peer connections, and appropriate timing and conceptualization of autism diagnoses to foster positive gender identity development.Lay Abstract How both cisgender autistic people and trans and gender-diverse autistic people talk about their gender identity development.Why was this study done?Not everyone feels they have a gender identity, but everyone goes through a development in which gender identity plays a part. Some people experience a difference between their sex assigned at birth and how they experience their current gender. Here, we refer to this small group as trans and gender-diverse and to those whose gender aligns with their assigned sex as cisgender. An increasing number of studies show that autistic people identify more often as trans and gender-diverse compared to the general population but also autistic cis persons can have questions about gender. However, little research on gender identity in autistic individuals had looked at how their sense of gender developed. So, we wondered how autistic adults experienced their gender and how this changed while growing up.How was the study conducted?We interviewed 15 autistic adults between 27 and 52 years old about their gender identity development. In the interviews, we focused on (1) how autistic people described their sense of gender and (2) how their sense of gender changed over time.What did the study find?For both cisgender autistic individuals and trans and gender-diverse autistic individuals, gender identity development was a personal journey. We found three key themes: (1) exploring an identity that feels right as an individual; (2) in social situations, finding a balance between personal identity and others’ expectations; and (3) in society, interacting with social views on gender. We also found three themes related to changes over time: (1) people learning by experience; (2) gender identity development takes time and is demanding; and (3) perspectives on gender change over time. However, variety existed in how these themes were expressed and experienced.Why is this important?Interviewees shared how autism and identity, including gender identity, intertwined. For some, this was challenging. This shows how adequate information and support on gender and autism, and connections with other autistic people can contribute to a positive gender identity development. Also, a well-timed autism diagnosis and positive views on autism can further support this development. En ligne : https://dx.doi.org/10.1177/13623613261421391 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=584

INSAR Special Interest Group Report: Stakeholder Perspectives on Priorities for Future Research on Autism, Sexuality, and Intimate Relationships / Jeroen DEWINTER in Autism Research, 13-8 (August 2020)  

Public ISBD [article]  inAutism Research > 13-8 (August 2020) . - p.1248-1257 Titre : INSAR Special Interest Group Report: Stakeholder Perspectives on Priorities for Future Research on Autism, Sexuality, and Intimate Relationships Type de document : texte imprimé Auteurs : Jeroen DEWINTER, Auteur ; Anna I.R. VAN DER MIESEN, Auteur ; Laura G. HOLMES, Auteur Article en page(s) : p.1248-1257 Langues : Anglais (eng) Mots-clés : autism  community-based participatory research  education  gender identity  health  quality of life  sexuality Index. décimale : PER Périodiques Résumé : The number of empirical studies on sexuality and intimate relationships in autistic people has grown over the last years with the increasing awareness that sexuality and intimate relationships are an important part of life and well-being for autistic people. Further, expression and enjoyment of sexuality is a fundamental, basic human right. This paper reports on needs for future research in this area based on the input of autistic adults, researchers, and other stakeholders (e.g., parents and professionals). Utilizing the nominal group technique, 65 individuals participated in eight groups in which they brainstormed on research questions they deemed most important. Responses were categorized into themes and ranked according to importance based on the level of priority attributed by participants. Findings suggest that future research should focus on developing ways to support sexual and relationship well-being and getting a better understanding of sexuality and relationships in autistic people. Also, attention was drawn to the need for studying the influence of stereotypical societal views, and stigma. Finally, the importance of participatory research to include perspectives of autistic people in research and practice was stressed. LAY SUMMARY: Sexuality and romantic relationships are part of daily life for most people, including autistic people. For this study, groups of autistic people, professionals, and autism researchers discussed which research on autism, sexuality, and relationships is needed and can help autistic adolescents and adults. The group discussions revealed that more research is needed on how to support well-being relating to romantic relationships and sexuality in autistic people and how the people around them can contribute to this. Therefore, we also need to learn more about how autistic people of all ages and throughout their lives experience sexuality and relationships. Finally, the need for attention to the role of stereotypical ideas and stigma about autism, sexuality, and relationships was pointed out. Attention to the experiences of autistic people can help professionals, researchers, and policy makers to offer and organize attuned support and do relevant research. Autism Res 2020, 13: 1248-1257. © 2020 The Authors. Autism Research published by International Society for Autism Research published by Wiley Periodicals LLC. En ligne : http://dx.doi.org/10.1002/aur.2340 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430 [article] INSAR Special Interest Group Report: Stakeholder Perspectives on Priorities for Future Research on Autism, Sexuality, and Intimate Relationships [texte imprimé] / Jeroen DEWINTER, Auteur ; Anna I.R. VAN DER MIESEN, Auteur ; Laura G. HOLMES, Auteur . - p.1248-1257. Langues : Anglais (eng) in Autism Research > 13-8 (August 2020) . - p.1248-1257 Mots-clés : autism  community-based participatory research  education  gender identity  health  quality of life  sexuality Index. décimale : PER Périodiques Résumé : The number of empirical studies on sexuality and intimate relationships in autistic people has grown over the last years with the increasing awareness that sexuality and intimate relationships are an important part of life and well-being for autistic people. Further, expression and enjoyment of sexuality is a fundamental, basic human right. This paper reports on needs for future research in this area based on the input of autistic adults, researchers, and other stakeholders (e.g., parents and professionals). Utilizing the nominal group technique, 65 individuals participated in eight groups in which they brainstormed on research questions they deemed most important. Responses were categorized into themes and ranked according to importance based on the level of priority attributed by participants. Findings suggest that future research should focus on developing ways to support sexual and relationship well-being and getting a better understanding of sexuality and relationships in autistic people. Also, attention was drawn to the need for studying the influence of stereotypical societal views, and stigma. Finally, the importance of participatory research to include perspectives of autistic people in research and practice was stressed. LAY SUMMARY: Sexuality and romantic relationships are part of daily life for most people, including autistic people. For this study, groups of autistic people, professionals, and autism researchers discussed which research on autism, sexuality, and relationships is needed and can help autistic adolescents and adults. The group discussions revealed that more research is needed on how to support well-being relating to romantic relationships and sexuality in autistic people and how the people around them can contribute to this. Therefore, we also need to learn more about how autistic people of all ages and throughout their lives experience sexuality and relationships. Finally, the need for attention to the role of stereotypical ideas and stigma about autism, sexuality, and relationships was pointed out. Attention to the experiences of autistic people can help professionals, researchers, and policy makers to offer and organize attuned support and do relevant research. Autism Res 2020, 13: 1248-1257. © 2020 The Authors. Autism Research published by International Society for Autism Research published by Wiley Periodicals LLC. En ligne : http://dx.doi.org/10.1002/aur.2340 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430

Parental Awareness of Sexual Experience in Adolescent Boys With Autism Spectrum Disorder / Jeroen DEWINTER in Journal of Autism and Developmental Disorders, 46-2 (February 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.713-719 Titre : Parental Awareness of Sexual Experience in Adolescent Boys With Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Jeroen DEWINTER, Auteur ; Robert R.J.M. VERMEIREN, Auteur ; I. VANWESENBEECK, Auteur ; Chijs VAN NIEUWENHUIZEN, Auteur Année de publication : 2016 Article en page(s) : p.713-719 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Adolescence  Sexuality  Parental awareness Index. décimale : PER Périodiques Résumé : Parent report and adolescent self-report data on lifetime sexual experience in adolescents with ASD were compared in 43 parent-adolescent dyads. Parents tended to underestimate the lifetime sexual experience of their sons, particularly solo sexual experiences such as masturbation and experience with orgasm. Parental underestimation and unawareness of adolescents’ sexual experience may influence communication and education about sex and sexuality in families. These findings have implications for the interpretation of earlier research, based on parent and caregiver reports, on sexuality in adolescents with ASD. En ligne : http://dx.doi.org/10.1007/s10803-015-2622-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280 [article] Parental Awareness of Sexual Experience in Adolescent Boys With Autism Spectrum Disorder [texte imprimé] / Jeroen DEWINTER, Auteur ; Robert R.J.M. VERMEIREN, Auteur ; I. VANWESENBEECK, Auteur ; Chijs VAN NIEUWENHUIZEN, Auteur . - 2016 . - p.713-719. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-2 (February 2016) . - p.713-719 Mots-clés : Autism spectrum disorder  Adolescence  Sexuality  Parental awareness Index. décimale : PER Périodiques Résumé : Parent report and adolescent self-report data on lifetime sexual experience in adolescents with ASD were compared in 43 parent-adolescent dyads. Parents tended to underestimate the lifetime sexual experience of their sons, particularly solo sexual experiences such as masturbation and experience with orgasm. Parental underestimation and unawareness of adolescents’ sexual experience may influence communication and education about sex and sexuality in families. These findings have implications for the interpretation of earlier research, based on parent and caregiver reports, on sexuality in adolescents with ASD. En ligne : http://dx.doi.org/10.1007/s10803-015-2622-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=280

Psychosexual Problems, Sexual Deviance, and Promoting Sexual Health in Autistic Adolescents and Adults / Jeroen DEWINTER ; Lennart PEDERSEN ; Olive HEALY ; Mark A. STOKES

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Qualitative Research in the Journal of Autism and Developmental Disorders / Gerrit I. VAN SCHALKWYK in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

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Sexual Orientation, Gender Identity, and Romantic Relationships in Adolescents and Adults with Autism Spectrum Disorder / Jeroen DEWINTER in Journal of Autism and Developmental Disorders, 47-9 (September 2017)  

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Sexuality in Adolescent Boys with Autism Spectrum Disorder: Self-reported Behaviours and Attitudes / Jeroen DEWINTER in Journal of Autism and Developmental Disorders, 45-3 (March 2015)  

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Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity / Jeroen DEWINTER in Autism, 28-3 (March 2024)  

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