Barriers to Healthcare for Latinx Autistic Children and Adolescents / Luke P. GROSVENOR ; Ryan J. Cohen ; Nancy P. Gordon ; Maria L. MASSOLO ; Hilda J. CERROS ; Cathleen K. YOSHIDA ; Jennifer L. AMES ; Lisa A. CROEN in Journal of Autism and Developmental Disorders, 55-2 (February 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-2 (February 2025) . - p.605-619 Titre : Barriers to Healthcare for Latinx Autistic Children and Adolescents : Journal of Autism and Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Luke P. GROSVENOR, Auteur ; Ryan J. Cohen, Auteur ; Nancy P. Gordon, Auteur ; Maria L. MASSOLO, Auteur ; Hilda J. CERROS, Auteur ; Cathleen K. YOSHIDA, Auteur ; Jennifer L. AMES, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.605-619 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Purpose: To understand the ways in which autistic Latinx children experience disparities in diagnosis, healthcare, and receipt of specialty services. Methods: 417 individuals who identified as Latinx caregivers of autistic children who were members of the same integrated healthcare system in Northern California were surveyed. Responses were analyzed using the child?s insurance coverage (Government or Commercial) and caregiver?s primary language (Spanish or English). Results: Compared to the commercially-insured, government-insured participants accessed several services at a higher rate and were less likely to cite the high cost of co-pays as a barrier. Conclusion: There were no significant differences in service access by language status, but Spanish speakers were more likely to cite health literacy as a barrier to receiving care. En ligne : https://doi.org/10.1007/s10803-023-06229-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548 [article] Barriers to Healthcare for Latinx Autistic Children and Adolescents : Journal of Autism and Developmental Disorders [Texte imprimé et/ou numérique] / Luke P. GROSVENOR, Auteur ; Ryan J. Cohen, Auteur ; Nancy P. Gordon, Auteur ; Maria L. MASSOLO, Auteur ; Hilda J. CERROS, Auteur ; Cathleen K. YOSHIDA, Auteur ; Jennifer L. AMES, Auteur ; Lisa A. CROEN, Auteur . - p.605-619. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-2 (February 2025) . - p.605-619 Index. décimale : PER Périodiques Résumé : Purpose: To understand the ways in which autistic Latinx children experience disparities in diagnosis, healthcare, and receipt of specialty services. Methods: 417 individuals who identified as Latinx caregivers of autistic children who were members of the same integrated healthcare system in Northern California were surveyed. Responses were analyzed using the child?s insurance coverage (Government or Commercial) and caregiver?s primary language (Spanish or English). Results: Compared to the commercially-insured, government-insured participants accessed several services at a higher rate and were less likely to cite the high cost of co-pays as a barrier. Conclusion: There were no significant differences in service access by language status, but Spanish speakers were more likely to cite health literacy as a barrier to receiving care. En ligne : https://doi.org/10.1007/s10803-023-06229-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548

Health Services Utilization Among Children With and Without Autism Spectrum Disorders / Janet R. CUMMINGS in Journal of Autism and Developmental Disorders, 46-3 (March 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.910-920 Titre : Health Services Utilization Among Children With and Without Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Janet R. CUMMINGS, Auteur ; Frances L. LYNCH, Auteur ; Kristal C. RUST, Auteur ; Karen J. COLEMAN, Auteur ; Jeanne M. MADDEN, Auteur ; Ashli A. OWEN-SMITH, Auteur ; Vincent M. YAU, Auteur ; Yinge QIAN, Auteur ; Kathryn A. PEARSON, Auteur ; Phillip M. CRAWFORD, Auteur ; Maria L. MASSOLO, Auteur ; Virginia P. QUINN, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.910-920 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Health care utilization  Preventive services  Children  Adolescents Index. décimale : PER Périodiques Résumé : Using data from multiple health systems (2009–2010) and the largest sample to date, this study compares health services use among youth with and without an autism spectrum disorder (ASD)—including preventive services not previously studied. To examine these differences, we estimated logistic and count data models, controlling for demographic characteristics, comorbid physical health, and mental health conditions. Results indicated that youth with an ASD had greater health care use in many categories, but were less likely to receive important preventive services including flu shots and other vaccinations. An improved understanding of the overall patterns of health care use among this population could enable health systems to facilitate the receipt of appropriate and effective health care. En ligne : http://dx.doi.org/10.1007/s10803-015-2634-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281 [article] Health Services Utilization Among Children With and Without Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Janet R. CUMMINGS, Auteur ; Frances L. LYNCH, Auteur ; Kristal C. RUST, Auteur ; Karen J. COLEMAN, Auteur ; Jeanne M. MADDEN, Auteur ; Ashli A. OWEN-SMITH, Auteur ; Vincent M. YAU, Auteur ; Yinge QIAN, Auteur ; Kathryn A. PEARSON, Auteur ; Phillip M. CRAWFORD, Auteur ; Maria L. MASSOLO, Auteur ; Virginia P. QUINN, Auteur ; Lisa A. CROEN, Auteur . - p.910-920. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.910-920 Mots-clés : Autism spectrum disorders  Health care utilization  Preventive services  Children  Adolescents Index. décimale : PER Périodiques Résumé : Using data from multiple health systems (2009–2010) and the largest sample to date, this study compares health services use among youth with and without an autism spectrum disorder (ASD)—including preventive services not previously studied. To examine these differences, we estimated logistic and count data models, controlling for demographic characteristics, comorbid physical health, and mental health conditions. Results indicated that youth with an ASD had greater health care use in many categories, but were less likely to receive important preventive services including flu shots and other vaccinations. An improved understanding of the overall patterns of health care use among this population could enable health systems to facilitate the receipt of appropriate and effective health care. En ligne : http://dx.doi.org/10.1007/s10803-015-2634-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281

Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study / Jennifer L. AMES in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1850-1861 Titre : Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer L. AMES, Auteur ; Arjun MAHAJAN, Auteur ; Meghan N. DAVIGNON, Auteur ; Maria L. MASSOLO, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.1850-1861 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Transitioning autistic youth from pediatric to adult healthcare requires coordination of multiple stakeholders, including youth, caregivers, and pediatric and adult care providers, whose interests at times overlap but often differ. To understand barriers and facilitators to inclusive transition experiences, we conducted thematic analysis of interviews with 39 stakeholders from the same large, integrated healthcare system. We identified three major themes: (1) Navigating the healthcare transition without guidance, (2) Health consequences of a passive healthcare transition, and (3) Strategies for inclusion and continuous engagement. Facilitators included gradual transition planning, a warm handoff between providers, and support of shared healthcare decision-making. Providers also sought clinical tools and logistical supports such as care coordinators and longer transition-specific visit types to enhance patient-centered care. En ligne : https://doi.org/10.1007/s10803-022-05476-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study [Texte imprimé et/ou numérique] / Jennifer L. AMES, Auteur ; Arjun MAHAJAN, Auteur ; Meghan N. DAVIGNON, Auteur ; Maria L. MASSOLO, Auteur ; Lisa A. CROEN, Auteur . - p.1850-1861. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-5 (May 2023) . - p.1850-1861 Index. décimale : PER Périodiques Résumé : Transitioning autistic youth from pediatric to adult healthcare requires coordination of multiple stakeholders, including youth, caregivers, and pediatric and adult care providers, whose interests at times overlap but often differ. To understand barriers and facilitators to inclusive transition experiences, we conducted thematic analysis of interviews with 39 stakeholders from the same large, integrated healthcare system. We identified three major themes: (1) Navigating the healthcare transition without guidance, (2) Health consequences of a passive healthcare transition, and (3) Strategies for inclusion and continuous engagement. Facilitators included gradual transition planning, a warm handoff between providers, and support of shared healthcare decision-making. Providers also sought clinical tools and logistical supports such as care coordinators and longer transition-specific visit types to enhance patient-centered care. En ligne : https://doi.org/10.1007/s10803-022-05476-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

Prevalence and predictors of complementary and alternative medicine use in a large insured sample of children with Autism Spectrum Disorders / Ashli A. OWEN-SMITH in Research in Autism Spectrum Disorders, 17 (September 2015)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 17 (September 2015) . - p.40-51 Titre : Prevalence and predictors of complementary and alternative medicine use in a large insured sample of children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Ashli A. OWEN-SMITH, Auteur ; Stephen BENT, Auteur ; Frances L. LYNCH, Auteur ; Karen J. COLEMAN, Auteur ; Vincent M. YAU, Auteur ; Kathryn A. PEARSON, Auteur ; Maria L. MASSOLO, Auteur ; Virginia QUINN, Auteur ; Lisa A. CROEN, Auteur Année de publication : 2015 Article en page(s) : p.40-51 Langues : Anglais (eng) Mots-clés : Complementary and alternative medicine  Autism spectrum disorders  Drug interactions Index. décimale : PER Périodiques Résumé : AbstractPurpose The purpose of the present study was to examine the prevalence and predictors of complementary and alternative medicine (CAM) use as well as parental perceptions of CAM efficacy in a large, geographically diverse sample of children with Autism Spectrum Disorders (ASD). Methodology Data were obtained from a web-based survey administered to parents of children with ASD at four sites participating in the Mental Health Research Network (MHRN). The web survey obtained information about services and treatments received by children with ASD as well as the caregivers’ experiences with having a child with ASD. Results Approximately 88% of the sample had either used CAM in the past or had recently used some type of CAM. The following characteristics were associated with CAM use: greater parental education, younger child age, a mix of regular and special classroom settings and prescription drug use in the past three months. Conclusions The use of CAM was very prevalent in this large, geographically diverse sample of children with ASD. It is critical that providers be prepared to discuss the advantages and potential side effects with families to help them make well-informed health care decisions and prevent possible CAM-drug interactions. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.05.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263 [article] Prevalence and predictors of complementary and alternative medicine use in a large insured sample of children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Ashli A. OWEN-SMITH, Auteur ; Stephen BENT, Auteur ; Frances L. LYNCH, Auteur ; Karen J. COLEMAN, Auteur ; Vincent M. YAU, Auteur ; Kathryn A. PEARSON, Auteur ; Maria L. MASSOLO, Auteur ; Virginia QUINN, Auteur ; Lisa A. CROEN, Auteur . - 2015 . - p.40-51. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 17 (September 2015) . - p.40-51 Mots-clés : Complementary and alternative medicine  Autism spectrum disorders  Drug interactions Index. décimale : PER Périodiques Résumé : AbstractPurpose The purpose of the present study was to examine the prevalence and predictors of complementary and alternative medicine (CAM) use as well as parental perceptions of CAM efficacy in a large, geographically diverse sample of children with Autism Spectrum Disorders (ASD). Methodology Data were obtained from a web-based survey administered to parents of children with ASD at four sites participating in the Mental Health Research Network (MHRN). The web survey obtained information about services and treatments received by children with ASD as well as the caregivers’ experiences with having a child with ASD. Results Approximately 88% of the sample had either used CAM in the past or had recently used some type of CAM. The following characteristics were associated with CAM use: greater parental education, younger child age, a mix of regular and special classroom settings and prescription drug use in the past three months. Conclusions The use of CAM was very prevalent in this large, geographically diverse sample of children with ASD. It is critical that providers be prepared to discuss the advantages and potential side effects with families to help them make well-informed health care decisions and prevent possible CAM-drug interactions. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.05.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263

Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity / Jeroen DEWINTER in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.770-779 Titre : Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity Type de document : Texte imprimé et/ou numérique Auteurs : Jeroen DEWINTER, Auteur ; Morénike Giwa ONAIWU, Auteur ; Maria L. MASSOLO, Auteur ; Reid CAPLAN, Auteur ; Els VAN BENEDEN, Auteur ; Nikki BRÖRMANN, Auteur ; Eileen T. CREHAN, Auteur ; Lisa A. CROEN, Auteur ; Susan FAJA, Auteur ; Dena L. GASSNER, Auteur ; Laura GRAHAM HOLMES, Auteur ; Cat HUGHES, Auteur ; Morrigan HUNTER, Auteur ; Monique HUYSAMEN, Auteur ; Paola JELONCHE, Auteur ; Meng-Chuan LAI, Auteur ; Ilse NOENS, Auteur ; Heta PUKKI, Auteur ; Mark A. STOKES, Auteur ; John F. STRANG, Auteur ; Anna IR VAN DER MIESEN, Auteur Article en page(s) : p.770-779 Langues : Anglais (eng) Mots-clés : autism  gender diversity  policy  recommendations  sexual health  sexuality Index. décimale : PER Périodiques Résumé : This short report presents recommendations to promote health and well-being relating to sexuality and gender diversity in autistic individuals. The recommendations were developed based on the latest available scientific knowledge coupled with a community-driven approach. An international group of autistic and non-autistic experts in the fields of autism, sexuality, and gender diversity and autistic advocates worked together to develop the initial recommendations; these recommendations were subsequently checked within the wider community through an online survey. Out of the original 11 recommendations, eight were rated above a consensus threshold. The final recommendations cover three themes: (1) providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; (2) improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and (3) meaningful inclusion of the autism community in future research that addresses well-being related to sexuality, relationships, and gender diversity. The recommendations emphasize the need for additional awareness and offer cues to parents, professionals, and policymakers to promote sexual health and well-being of autistic individuals. Lay Abstract In this article, we propose recommendations on what we can do to promote that autistic people can enjoy their sexuality and gender identity, because that contributes to overall well-being. First, we briefly summarize the existing research on sexuality and gender diversity in autistic individuals. Next, we propose recommendations for how to promote sexual and gender diversity-related health and well-being. Based on what is known about sexuality, gender diversity, and relationships in autistic adolescents and adults, we convened an international group of autistic and non-autistic researchers, advocates, parents, and professionals to develop recommendations to promote sexual and gender health in autistic people. The resulting recommendations were checked through an online survey distributed to autistic people across the world. The online participants endorsed the importance of eight final recommendations related to: 1.Providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; 2.Improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and 3.Meaningfully including the autism community in future research that addresses well-being relating to sexuality, relationships, and gender diversity. These community-driven recommendations aim to promote sexual health and well-being in autistic individuals internationally. En ligne : https://dx.doi.org/10.1177/13623613231188349 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity [Texte imprimé et/ou numérique] / Jeroen DEWINTER, Auteur ; Morénike Giwa ONAIWU, Auteur ; Maria L. MASSOLO, Auteur ; Reid CAPLAN, Auteur ; Els VAN BENEDEN, Auteur ; Nikki BRÖRMANN, Auteur ; Eileen T. CREHAN, Auteur ; Lisa A. CROEN, Auteur ; Susan FAJA, Auteur ; Dena L. GASSNER, Auteur ; Laura GRAHAM HOLMES, Auteur ; Cat HUGHES, Auteur ; Morrigan HUNTER, Auteur ; Monique HUYSAMEN, Auteur ; Paola JELONCHE, Auteur ; Meng-Chuan LAI, Auteur ; Ilse NOENS, Auteur ; Heta PUKKI, Auteur ; Mark A. STOKES, Auteur ; John F. STRANG, Auteur ; Anna IR VAN DER MIESEN, Auteur . - p.770-779. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.770-779 Mots-clés : autism  gender diversity  policy  recommendations  sexual health  sexuality Index. décimale : PER Périodiques Résumé : This short report presents recommendations to promote health and well-being relating to sexuality and gender diversity in autistic individuals. The recommendations were developed based on the latest available scientific knowledge coupled with a community-driven approach. An international group of autistic and non-autistic experts in the fields of autism, sexuality, and gender diversity and autistic advocates worked together to develop the initial recommendations; these recommendations were subsequently checked within the wider community through an online survey. Out of the original 11 recommendations, eight were rated above a consensus threshold. The final recommendations cover three themes: (1) providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; (2) improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and (3) meaningful inclusion of the autism community in future research that addresses well-being related to sexuality, relationships, and gender diversity. The recommendations emphasize the need for additional awareness and offer cues to parents, professionals, and policymakers to promote sexual health and well-being of autistic individuals. Lay Abstract In this article, we propose recommendations on what we can do to promote that autistic people can enjoy their sexuality and gender identity, because that contributes to overall well-being. First, we briefly summarize the existing research on sexuality and gender diversity in autistic individuals. Next, we propose recommendations for how to promote sexual and gender diversity-related health and well-being. Based on what is known about sexuality, gender diversity, and relationships in autistic adolescents and adults, we convened an international group of autistic and non-autistic researchers, advocates, parents, and professionals to develop recommendations to promote sexual and gender health in autistic people. The resulting recommendations were checked through an online survey distributed to autistic people across the world. The online participants endorsed the importance of eight final recommendations related to: 1.Providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; 2.Improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and 3.Meaningfully including the autism community in future research that addresses well-being relating to sexuality, relationships, and gender diversity. These community-driven recommendations aim to promote sexual health and well-being in autistic individuals internationally. En ligne : https://dx.doi.org/10.1177/13623613231188349 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

A Study of Physician Knowledge and Experience with Autism in Adults in a Large Integrated Healthcare System / Ousseny ZERBO in Journal of Autism and Developmental Disorders, 45-12 (December 2015)  

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The health status of adults on the autism spectrum / Lisa A. CROEN in Autism, 19-7 (October 2015)  

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