Barriers to Healthcare for Latinx Autistic Children and Adolescents / Luke P. GROSVENOR ; Ryan J. COHEN ; Nancy P. GORDON ; Maria L. MASSOLO ; Hilda J. CERROS ; Cathleen K. YOSHIDA ; Jennifer L. AMES ; Lisa A. CROEN in Journal of Autism and Developmental Disorders, 55-2 (February 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-2 (February 2025) . - p.605-619 Titre : Barriers to Healthcare for Latinx Autistic Children and Adolescents : Journal of Autism and Developmental Disorders Type de document : texte imprimé Auteurs : Luke P. GROSVENOR, Auteur ; Ryan J. COHEN, Auteur ; Nancy P. GORDON, Auteur ; Maria L. MASSOLO, Auteur ; Hilda J. CERROS, Auteur ; Cathleen K. YOSHIDA, Auteur ; Jennifer L. AMES, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.605-619 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Purpose: To understand the ways in which autistic Latinx children experience disparities in diagnosis, healthcare, and receipt of specialty services. Methods: 417 individuals who identified as Latinx caregivers of autistic children who were members of the same integrated healthcare system in Northern California were surveyed. Responses were analyzed using the child?s insurance coverage (Government or Commercial) and caregiver?s primary language (Spanish or English). Results: Compared to the commercially-insured, government-insured participants accessed several services at a higher rate and were less likely to cite the high cost of co-pays as a barrier. Conclusion: There were no significant differences in service access by language status, but Spanish speakers were more likely to cite health literacy as a barrier to receiving care. En ligne : https://doi.org/10.1007/s10803-023-06229-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548 [article] Barriers to Healthcare for Latinx Autistic Children and Adolescents : Journal of Autism and Developmental Disorders [texte imprimé] / Luke P. GROSVENOR, Auteur ; Ryan J. COHEN, Auteur ; Nancy P. GORDON, Auteur ; Maria L. MASSOLO, Auteur ; Hilda J. CERROS, Auteur ; Cathleen K. YOSHIDA, Auteur ; Jennifer L. AMES, Auteur ; Lisa A. CROEN, Auteur . - p.605-619. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-2 (February 2025) . - p.605-619 Index. décimale : PER Périodiques Résumé : Purpose: To understand the ways in which autistic Latinx children experience disparities in diagnosis, healthcare, and receipt of specialty services. Methods: 417 individuals who identified as Latinx caregivers of autistic children who were members of the same integrated healthcare system in Northern California were surveyed. Responses were analyzed using the child?s insurance coverage (Government or Commercial) and caregiver?s primary language (Spanish or English). Results: Compared to the commercially-insured, government-insured participants accessed several services at a higher rate and were less likely to cite the high cost of co-pays as a barrier. Conclusion: There were no significant differences in service access by language status, but Spanish speakers were more likely to cite health literacy as a barrier to receiving care. En ligne : https://doi.org/10.1007/s10803-023-06229-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=548

Demographic and Clinical Characteristics Associated with Engagement in Behavioral Health Treatment Among Children with Autism Spectrum Disorders / Lisa A. CROEN in Journal of Autism and Developmental Disorders, 47-11 (November 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3347-3357 Titre : Demographic and Clinical Characteristics Associated with Engagement in Behavioral Health Treatment Among Children with Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Lisa A. CROEN, Auteur ; Naomi SHANKUTE, Auteur ; Megan DAVIGNON, Auteur ; Maria L. MASSOLO, Auteur ; Cathleen YOSHIDA, Auteur Article en page(s) : p.3347-3357 Langues : Anglais (eng) Mots-clés : Applied behavior analysis (ABA)  Demographic factors  Treatment adherence  intervention Index. décimale : PER Périodiques Résumé : This study investigates demographic and clinical factors associated with initiation, continuation, and adherence to behavioral health treatment (BHT) among children with autism spectrum disorder. Among 293 insured children referred for applied behavior analysis (ABA) based BHT, 23% never initiated treatment. Among those initiating treatment, 31% discontinued treatment within 1 year of treatment initiation, and only 15% received 80% or more of recommended treatment hours. Younger age at referral to treatment, private health insurance, and receiving more than 10 h/week of BHT were associated with treatment engagement. Co-occurring psychiatric and medical conditions were related to treatment discontinuation among children 5 years or older. These findings suggest specific subgroups that may benefit from additional support with engaging in recommended behavioral health treatment. En ligne : http://dx.doi.org/10.1007/s10803-017-3247-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=324 [article] Demographic and Clinical Characteristics Associated with Engagement in Behavioral Health Treatment Among Children with Autism Spectrum Disorders [texte imprimé] / Lisa A. CROEN, Auteur ; Naomi SHANKUTE, Auteur ; Megan DAVIGNON, Auteur ; Maria L. MASSOLO, Auteur ; Cathleen YOSHIDA, Auteur . - p.3347-3357. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3347-3357 Mots-clés : Applied behavior analysis (ABA)  Demographic factors  Treatment adherence  intervention Index. décimale : PER Périodiques Résumé : This study investigates demographic and clinical factors associated with initiation, continuation, and adherence to behavioral health treatment (BHT) among children with autism spectrum disorder. Among 293 insured children referred for applied behavior analysis (ABA) based BHT, 23% never initiated treatment. Among those initiating treatment, 31% discontinued treatment within 1 year of treatment initiation, and only 15% received 80% or more of recommended treatment hours. Younger age at referral to treatment, private health insurance, and receiving more than 10 h/week of BHT were associated with treatment engagement. Co-occurring psychiatric and medical conditions were related to treatment discontinuation among children 5 years or older. These findings suggest specific subgroups that may benefit from additional support with engaging in recommended behavioral health treatment. En ligne : http://dx.doi.org/10.1007/s10803-017-3247-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=324

Health Services Utilization Among Children With and Without Autism Spectrum Disorders / Janet R. CUMMINGS in Journal of Autism and Developmental Disorders, 46-3 (March 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.910-920 Titre : Health Services Utilization Among Children With and Without Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Janet R. CUMMINGS, Auteur ; Frances L. LYNCH, Auteur ; Kristal C. RUST, Auteur ; Karen J. COLEMAN, Auteur ; Jeanne M. MADDEN, Auteur ; Ashli A. OWEN-SMITH, Auteur ; Vincent M. YAU, Auteur ; Yinge QIAN, Auteur ; Kathryn A. PEARSON, Auteur ; Phillip M. CRAWFORD, Auteur ; Maria L. MASSOLO, Auteur ; Virginia P. QUINN, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.910-920 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Health care utilization  Preventive services  Children  Adolescents Index. décimale : PER Périodiques Résumé : Using data from multiple health systems (2009–2010) and the largest sample to date, this study compares health services use among youth with and without an autism spectrum disorder (ASD)—including preventive services not previously studied. To examine these differences, we estimated logistic and count data models, controlling for demographic characteristics, comorbid physical health, and mental health conditions. Results indicated that youth with an ASD had greater health care use in many categories, but were less likely to receive important preventive services including flu shots and other vaccinations. An improved understanding of the overall patterns of health care use among this population could enable health systems to facilitate the receipt of appropriate and effective health care. En ligne : http://dx.doi.org/10.1007/s10803-015-2634-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281 [article] Health Services Utilization Among Children With and Without Autism Spectrum Disorders [texte imprimé] / Janet R. CUMMINGS, Auteur ; Frances L. LYNCH, Auteur ; Kristal C. RUST, Auteur ; Karen J. COLEMAN, Auteur ; Jeanne M. MADDEN, Auteur ; Ashli A. OWEN-SMITH, Auteur ; Vincent M. YAU, Auteur ; Yinge QIAN, Auteur ; Kathryn A. PEARSON, Auteur ; Phillip M. CRAWFORD, Auteur ; Maria L. MASSOLO, Auteur ; Virginia P. QUINN, Auteur ; Lisa A. CROEN, Auteur . - p.910-920. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.910-920 Mots-clés : Autism spectrum disorders  Health care utilization  Preventive services  Children  Adolescents Index. décimale : PER Périodiques Résumé : Using data from multiple health systems (2009–2010) and the largest sample to date, this study compares health services use among youth with and without an autism spectrum disorder (ASD)—including preventive services not previously studied. To examine these differences, we estimated logistic and count data models, controlling for demographic characteristics, comorbid physical health, and mental health conditions. Results indicated that youth with an ASD had greater health care use in many categories, but were less likely to receive important preventive services including flu shots and other vaccinations. An improved understanding of the overall patterns of health care use among this population could enable health systems to facilitate the receipt of appropriate and effective health care. En ligne : http://dx.doi.org/10.1007/s10803-015-2634-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281

Healthcare service utilization and cost among transition-age youth with autism spectrum disorder and other special healthcare needs / Jennifer L. AMES in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.705-718 Titre : Healthcare service utilization and cost among transition-age youth with autism spectrum disorder and other special healthcare needs Type de document : texte imprimé Auteurs : Jennifer L. AMES, Auteur ; Maria L. MASSOLO, Auteur ; Meghan N. DAVIGNON, Auteur ; Yinge QIAN, Auteur ; Lisa A. CROEN, Auteur Article en page(s) : p.705-718 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  transition Index. décimale : PER Périodiques Résumé : Youth with autism spectrum disorder often have complex medical needs. Disruptions of healthcare during the transition from pediatric to adult healthcare may put youth with autism spectrum disorder at higher risk of medical emergencies and high medical costs. To understand healthcare utilization during the transition years, we conducted a study among transition-age youth (14-25 years old) receiving healthcare at Kaiser Permanente Northern California during 2014-2015. We examined differences in healthcare utilization and costs among youth with autism spectrum disorder (n = 4123), attention deficit and hyperactivity disorder (n = 20,6015), diabetes mellitus (n = 2156), and general population controls (n = 20,615). Analyses were also stratified by age and sex. Youth with autism spectrum disorder had the highest utilization of outpatient primary care, mental health, and psychotropic medications and the lowest utilization of obstetrics/gynecology and urgent care. Costs for youth with autism spectrum disorder were higher than those for attention deficit and hyperactivity disorder and general population peers and lower than for diabetes mellitus. Healthcare utilization patterns varied by age. Transition-age youth with autism spectrum disorder generally used healthcare at higher rates relative to attention deficit and hyperactivity disorder and general population peers but at similar or lower rates than diabetes mellitus peers, indicating this group's complex combination of psychiatric and medical healthcare needs. The relatively high utilization of psychiatric services and low utilization of women's health services in transition-age youth with autism spectrum disorder may have implications for long-term health and warrants additional research. En ligne : http://dx.doi.org/10.1177/1362361320931268 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Healthcare service utilization and cost among transition-age youth with autism spectrum disorder and other special healthcare needs [texte imprimé] / Jennifer L. AMES, Auteur ; Maria L. MASSOLO, Auteur ; Meghan N. DAVIGNON, Auteur ; Yinge QIAN, Auteur ; Lisa A. CROEN, Auteur . - p.705-718. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.705-718 Mots-clés : autism spectrum disorders  health services  transition Index. décimale : PER Périodiques Résumé : Youth with autism spectrum disorder often have complex medical needs. Disruptions of healthcare during the transition from pediatric to adult healthcare may put youth with autism spectrum disorder at higher risk of medical emergencies and high medical costs. To understand healthcare utilization during the transition years, we conducted a study among transition-age youth (14-25 years old) receiving healthcare at Kaiser Permanente Northern California during 2014-2015. We examined differences in healthcare utilization and costs among youth with autism spectrum disorder (n = 4123), attention deficit and hyperactivity disorder (n = 20,6015), diabetes mellitus (n = 2156), and general population controls (n = 20,615). Analyses were also stratified by age and sex. Youth with autism spectrum disorder had the highest utilization of outpatient primary care, mental health, and psychotropic medications and the lowest utilization of obstetrics/gynecology and urgent care. Costs for youth with autism spectrum disorder were higher than those for attention deficit and hyperactivity disorder and general population peers and lower than for diabetes mellitus. Healthcare utilization patterns varied by age. Transition-age youth with autism spectrum disorder generally used healthcare at higher rates relative to attention deficit and hyperactivity disorder and general population peers but at similar or lower rates than diabetes mellitus peers, indicating this group's complex combination of psychiatric and medical healthcare needs. The relatively high utilization of psychiatric services and low utilization of women's health services in transition-age youth with autism spectrum disorder may have implications for long-term health and warrants additional research. En ligne : http://dx.doi.org/10.1177/1362361320931268 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Infant siblings and the investigation of autism risk factors / Craig J. NEWSCHAFFER in Journal of Neurodevelopmental Disorders, 4-1 (December 2012)  

Public ISBD [article]  inJournal of Neurodevelopmental Disorders > 4-1 (December 2012) . - p.7 Titre : Infant siblings and the investigation of autism risk factors Type de document : texte imprimé Auteurs : Craig J. NEWSCHAFFER, Auteur ; Lisa A. CROEN, Auteur ; M. Daniele FALLIN, Auteur ; Irva HERTZ-PICCIOTTO, Auteur ; Danh V. NGUYEN, Auteur ; Nora L. LEE, Auteur ; Carmen A. BERRY, Auteur ; Homayoon FARZADEGAN, Auteur ; H. Nicole HESS, Auteur ; Rebecca LANDA, Auteur ; Susan E. LEVY, Auteur ; Maria L. MASSOLO, Auteur ; Stacey C. MEYERER, Auteur ; Sandra M. MOHAMMED, Auteur ; McKenzie C. OLIVER, Auteur ; Sally OZONOFF, Auteur ; Juhi PANDEY, Auteur ; Adam SCHROEDER, Auteur ; Kristine M. SHEDD-WISE, Auteur Article en page(s) : p.7 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Infant sibling studies have been at the vanguard of autism spectrum disorders (ASD) research over the past decade, providing important new knowledge about the earliest emerging signs of ASD and expanding our understanding of the developmental course of this complex disorder. Studies focused on siblings of children with ASD also have unrealized potential for contributing to ASD etiologic research. Moving targeted time of enrollment back from infancy toward conception creates tremendous opportunities for optimally studying risk factors and risk biomarkers during the pre-, peri- and neonatal periods. By doing so, a traditional sibling study, which already incorporates close developmental follow-up of at-risk infants through the third year of life, is essentially reconfigured as an enriched-risk pregnancy cohort study. This review considers the enriched-risk pregnancy cohort approach of studying infant siblings in the context of current thinking on ASD etiologic mechanisms. It then discusses the key features of this approach and provides a description of the design and implementation strategy of one major ASD enriched-risk pregnancy cohort study: the Early Autism Risk Longitudinal Investigation (EARLI). En ligne : http://dx.doi.org/10.1186/1866-1955-4-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=344 [article] Infant siblings and the investigation of autism risk factors [texte imprimé] / Craig J. NEWSCHAFFER, Auteur ; Lisa A. CROEN, Auteur ; M. Daniele FALLIN, Auteur ; Irva HERTZ-PICCIOTTO, Auteur ; Danh V. NGUYEN, Auteur ; Nora L. LEE, Auteur ; Carmen A. BERRY, Auteur ; Homayoon FARZADEGAN, Auteur ; H. Nicole HESS, Auteur ; Rebecca LANDA, Auteur ; Susan E. LEVY, Auteur ; Maria L. MASSOLO, Auteur ; Stacey C. MEYERER, Auteur ; Sandra M. MOHAMMED, Auteur ; McKenzie C. OLIVER, Auteur ; Sally OZONOFF, Auteur ; Juhi PANDEY, Auteur ; Adam SCHROEDER, Auteur ; Kristine M. SHEDD-WISE, Auteur . - p.7. Langues : Anglais (eng) in Journal of Neurodevelopmental Disorders > 4-1 (December 2012) . - p.7 Index. décimale : PER Périodiques Résumé : Infant sibling studies have been at the vanguard of autism spectrum disorders (ASD) research over the past decade, providing important new knowledge about the earliest emerging signs of ASD and expanding our understanding of the developmental course of this complex disorder. Studies focused on siblings of children with ASD also have unrealized potential for contributing to ASD etiologic research. Moving targeted time of enrollment back from infancy toward conception creates tremendous opportunities for optimally studying risk factors and risk biomarkers during the pre-, peri- and neonatal periods. By doing so, a traditional sibling study, which already incorporates close developmental follow-up of at-risk infants through the third year of life, is essentially reconfigured as an enriched-risk pregnancy cohort study. This review considers the enriched-risk pregnancy cohort approach of studying infant siblings in the context of current thinking on ASD etiologic mechanisms. It then discusses the key features of this approach and provides a description of the design and implementation strategy of one major ASD enriched-risk pregnancy cohort study: the Early Autism Risk Longitudinal Investigation (EARLI). En ligne : http://dx.doi.org/10.1186/1866-1955-4-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=344

Opportunities for Inclusion and Engagement in the Transition of Autistic Youth from Pediatric to Adult Healthcare: A Qualitative Study / Jennifer L. AMES in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

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Prevalence and predictors of complementary and alternative medicine use in a large insured sample of children with Autism Spectrum Disorders / Ashli A. OWEN-SMITH in Research in Autism Spectrum Disorders, 17 (September 2015)  

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Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity / Jeroen DEWINTER in Autism, 28-3 (March 2024)  

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A Study of Physician Knowledge and Experience with Autism in Adults in a Large Integrated Healthcare System / Ousseny ZERBO in Journal of Autism and Developmental Disorders, 45-12 (December 2015)  

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The health status of adults on the autism spectrum / Lisa A. CROEN in Autism, 19-7 (October 2015)  

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The impact of autism spectrum disorder on parent employment: Results from the r-Kids study / Frances L. LYNCH in Autism Research, 16-3 (March 2023)  

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Transitioning youth with autism spectrum disorders and other special health care needs into adult primary care: A provider survey / Jennifer L. AMES in Autism, 25-3 (April 2021)  

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