Adapting the Tackling Teenage Training Sex Education Program for Autistic Adults in the US: A Pilot Study / Eileen T. CREHAN in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2108-2123 Titre : Adapting the Tackling Teenage Training Sex Education Program for Autistic Adults in the US: A Pilot Study Type de document : Texte imprimé et/ou numérique Auteurs : Eileen T. CREHAN, Auteur ; Xihan YANG, Auteur ; Simone Dufresne, Auteur ; Jamie BARSTEIN, Auteur ; Laurie STEPHENS, Auteur ; Linda DEKKER, Auteur ; Kirstin GREAVES-LORD, Auteur Article en page(s) : p.2108-2123 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Despite the established need for sexuality and relationship programming for autistic adults, there are extremely limited curricula for this population. This pilot study used an evidence-based sexuality and relationship education program for autistic adolescents (Tackling Teenage Training) as the basis for an adult-focused virtual psychoeducational group. Qualitative feedback, quantitative ratings of the programming, and behavioral surveys from participants were collected. Nine participants completed the program, and corresponding pre and post measures. Highly rated topics, for example gender identity and online dating, were consistent with previous research on what autistic adults want from a sexuality and relationship education program. Future programming should incorporate increased attention to themes and topics highlighted by participants, and should utilize the teaching tools (e.g., role play, peer discussions) identified as useful by the participants. En ligne : https://doi.org/10.1007/s10803-023-05962-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Adapting the Tackling Teenage Training Sex Education Program for Autistic Adults in the US: A Pilot Study [Texte imprimé et/ou numérique] / Eileen T. CREHAN, Auteur ; Xihan YANG, Auteur ; Simone Dufresne, Auteur ; Jamie BARSTEIN, Auteur ; Laurie STEPHENS, Auteur ; Linda DEKKER, Auteur ; Kirstin GREAVES-LORD, Auteur . - p.2108-2123. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2108-2123 Index. décimale : PER Périodiques Résumé : Despite the established need for sexuality and relationship programming for autistic adults, there are extremely limited curricula for this population. This pilot study used an evidence-based sexuality and relationship education program for autistic adolescents (Tackling Teenage Training) as the basis for an adult-focused virtual psychoeducational group. Qualitative feedback, quantitative ratings of the programming, and behavioral surveys from participants were collected. Nine participants completed the program, and corresponding pre and post measures. Highly rated topics, for example gender identity and online dating, were consistent with previous research on what autistic adults want from a sexuality and relationship education program. Future programming should incorporate increased attention to themes and topics highlighted by participants, and should utilize the teaching tools (e.g., role play, peer discussions) identified as useful by the participants. En ligne : https://doi.org/10.1007/s10803-023-05962-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Candidate gene associations with withdrawn behavior / David H. RUBIN in Journal of Child Psychology and Psychiatry, 54-12 (December 2013)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 54-12 (December 2013) . - p.1337-1345 Titre : Candidate gene associations with withdrawn behavior Type de document : Texte imprimé et/ou numérique Auteurs : David H. RUBIN, Auteur ; Robert R. ALTHOFF, Auteur ; Erik A. EHLI, Auteur ; Gareth E. DAVIES, Auteur ; David C. RETTEW, Auteur ; Eileen T. CREHAN, Auteur ; John T. WALKUP, Auteur ; James J. HUDZIAK, Auteur Article en page(s) : p.1337-1345 Langues : Anglais (eng) Mots-clés : Withdrawn behavior  Child Behavior Checklist  Adult Self-Report  behavioral inhibition  social withdrawal Index. décimale : PER Périodiques Résumé : Background Social withdrawal is a core neuropsychiatric phenomenon in developmental psychopathology. Its presence predicts psychopathology across many domains, including depression, psychosis, autism, anxiety, and suicide. Withdrawn behavior is highly heritable, persistent, and characteristically worsens without intervention. To date, few studies have successfully identified genetic associations with withdrawn behavior, despite the abundance of evidence of its heritability. This may be due to reliance of categorical over dimensional measures of the behaviorally inhibited phenotype. The aim of this study is to identify associations between known psychiatric candidate genes and a dimensionally derived measure of withdrawn behavior. Methods Genetic information was collected on 20 single-nucleotide polymorphisms (SNPs) from a custom-designed SNP chip and TAQMAN arrays of 4 variable number of tandem repeat (VNTR) genes for 551 individuals from 187 families. Linear mixed modeling was employed to examine the relationship between genotypes of interest and Child Behavior Checklist (CBCL) Withdrawn Behavior Subscale Score (WBS) while controlling for gender and age through multiple linear regressions. Results Withdrawn behavior was highly associated with polymorphism rs6314 of the serotonin receptor 2A (HTR2A) [p = .009, estimate = 0.310 (bootstrap 95% CI 0.155–0.448), bootstrap p = .001] and rs1800544 of the alpha 2-adrenergic (ADRA2A) [p = .001, estimate = ?0.310 (bootstrap 95% CI ?0.479 to ?0.126), bootstrap p = .001] genes after correction for gender and age. The association between withdrawn behavior and ADRA2A was stronger for younger children. Conclusions HTR2A and ADRA2A genes are associated with withdrawn behavior. This reinforces the role of catecholaminergic genes in the heritability of withdrawn behavior. En ligne : http://dx.doi.org/10.1111/jcpp.12108 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=219 [article] Candidate gene associations with withdrawn behavior [Texte imprimé et/ou numérique] / David H. RUBIN, Auteur ; Robert R. ALTHOFF, Auteur ; Erik A. EHLI, Auteur ; Gareth E. DAVIES, Auteur ; David C. RETTEW, Auteur ; Eileen T. CREHAN, Auteur ; John T. WALKUP, Auteur ; James J. HUDZIAK, Auteur . - p.1337-1345. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 54-12 (December 2013) . - p.1337-1345 Mots-clés : Withdrawn behavior  Child Behavior Checklist  Adult Self-Report  behavioral inhibition  social withdrawal Index. décimale : PER Périodiques Résumé : Background Social withdrawal is a core neuropsychiatric phenomenon in developmental psychopathology. Its presence predicts psychopathology across many domains, including depression, psychosis, autism, anxiety, and suicide. Withdrawn behavior is highly heritable, persistent, and characteristically worsens without intervention. To date, few studies have successfully identified genetic associations with withdrawn behavior, despite the abundance of evidence of its heritability. This may be due to reliance of categorical over dimensional measures of the behaviorally inhibited phenotype. The aim of this study is to identify associations between known psychiatric candidate genes and a dimensionally derived measure of withdrawn behavior. Methods Genetic information was collected on 20 single-nucleotide polymorphisms (SNPs) from a custom-designed SNP chip and TAQMAN arrays of 4 variable number of tandem repeat (VNTR) genes for 551 individuals from 187 families. Linear mixed modeling was employed to examine the relationship between genotypes of interest and Child Behavior Checklist (CBCL) Withdrawn Behavior Subscale Score (WBS) while controlling for gender and age through multiple linear regressions. Results Withdrawn behavior was highly associated with polymorphism rs6314 of the serotonin receptor 2A (HTR2A) [p = .009, estimate = 0.310 (bootstrap 95% CI 0.155–0.448), bootstrap p = .001] and rs1800544 of the alpha 2-adrenergic (ADRA2A) [p = .001, estimate = ?0.310 (bootstrap 95% CI ?0.479 to ?0.126), bootstrap p = .001] genes after correction for gender and age. The association between withdrawn behavior and ADRA2A was stronger for younger children. Conclusions HTR2A and ADRA2A genes are associated with withdrawn behavior. This reinforces the role of catecholaminergic genes in the heritability of withdrawn behavior. En ligne : http://dx.doi.org/10.1111/jcpp.12108 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=219

Psychometric Properties of Psychosexual Functioning Survey Among Autistic and Non-autistic Adults: Adapting the Self-Report Teen Transition Inventory to the U.S. Context / Xihan YANG in Journal of Autism and Developmental Disorders, 54-12 (December 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-12 (December 2024) . - p.4555-4570 Titre : Psychometric Properties of Psychosexual Functioning Survey Among Autistic and Non-autistic Adults: Adapting the Self-Report Teen Transition Inventory to the U.S. Context Type de document : Texte imprimé et/ou numérique Auteurs : Xihan YANG, Auteur ; Linda DEKKER, Auteur ; Kirstin GREAVES-LORD, Auteur ; Eileen T. CREHAN, Auteur Article en page(s) : p.4555-4570 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Psychosexual functioning is an important aspect of human development and relationships. A previous study investigated psychosexual functioning of autistic adolescents using the Teen Transition Inventory (TTI), but there is a lack of comprehensive measurement of psychosexual functioning among autistic and non-autistic (NA) adults. To address this gap, the current study adapted the self-report TTI to the Psychosexual Functioning Survey (PSFS) and presented it to 131 autistic (n = 59) and NA adults (n = 72) in the U.S. Comparisons of psychometric properties between the original TTI and the PSFS are shared; the developmental relevancy among some items was changed, and the alphas indicated a difference in the content of certain scales. Differences emerged between autistic and NA adults in both the intra- and interpersonal domains of psychosexual functioning, but not in sexual and intimate behaviors. The findings suggest the persistence of differences from adolescence to adulthood between autistic and NA people and highlight the importance of understanding the unique experiences of adults in psychosexual functioning relative to diagnostic status. En ligne : https://doi.org/10.1007/s10803-023-06170-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540 [article] Psychometric Properties of Psychosexual Functioning Survey Among Autistic and Non-autistic Adults: Adapting the Self-Report Teen Transition Inventory to the U.S. Context [Texte imprimé et/ou numérique] / Xihan YANG, Auteur ; Linda DEKKER, Auteur ; Kirstin GREAVES-LORD, Auteur ; Eileen T. CREHAN, Auteur . - p.4555-4570. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-12 (December 2024) . - p.4555-4570 Index. décimale : PER Périodiques Résumé : Psychosexual functioning is an important aspect of human development and relationships. A previous study investigated psychosexual functioning of autistic adolescents using the Teen Transition Inventory (TTI), but there is a lack of comprehensive measurement of psychosexual functioning among autistic and non-autistic (NA) adults. To address this gap, the current study adapted the self-report TTI to the Psychosexual Functioning Survey (PSFS) and presented it to 131 autistic (n = 59) and NA adults (n = 72) in the U.S. Comparisons of psychometric properties between the original TTI and the PSFS are shared; the developmental relevancy among some items was changed, and the alphas indicated a difference in the content of certain scales. Differences emerged between autistic and NA adults in both the intra- and interpersonal domains of psychosexual functioning, but not in sexual and intimate behaviors. The findings suggest the persistence of differences from adolescence to adulthood between autistic and NA people and highlight the importance of understanding the unique experiences of adults in psychosexual functioning relative to diagnostic status. En ligne : https://doi.org/10.1007/s10803-023-06170-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=540

Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity / Jeroen DEWINTER in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.770-779 Titre : Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity Type de document : Texte imprimé et/ou numérique Auteurs : Jeroen DEWINTER, Auteur ; Morénike Giwa ONAIWU, Auteur ; Maria L. MASSOLO, Auteur ; Reid CAPLAN, Auteur ; Els VAN BENEDEN, Auteur ; Nikki BRÖRMANN, Auteur ; Eileen T. CREHAN, Auteur ; Lisa A. CROEN, Auteur ; Susan FAJA, Auteur ; Dena L. GASSNER, Auteur ; Laura GRAHAM HOLMES, Auteur ; Cat HUGHES, Auteur ; Morrigan HUNTER, Auteur ; Monique HUYSAMEN, Auteur ; Paola JELONCHE, Auteur ; Meng-Chuan LAI, Auteur ; Ilse NOENS, Auteur ; Heta PUKKI, Auteur ; Mark A. STOKES, Auteur ; John F. STRANG, Auteur ; Anna IR VAN DER MIESEN, Auteur Article en page(s) : p.770-779 Langues : Anglais (eng) Mots-clés : autism  gender diversity  policy  recommendations  sexual health  sexuality Index. décimale : PER Périodiques Résumé : This short report presents recommendations to promote health and well-being relating to sexuality and gender diversity in autistic individuals. The recommendations were developed based on the latest available scientific knowledge coupled with a community-driven approach. An international group of autistic and non-autistic experts in the fields of autism, sexuality, and gender diversity and autistic advocates worked together to develop the initial recommendations; these recommendations were subsequently checked within the wider community through an online survey. Out of the original 11 recommendations, eight were rated above a consensus threshold. The final recommendations cover three themes: (1) providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; (2) improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and (3) meaningful inclusion of the autism community in future research that addresses well-being related to sexuality, relationships, and gender diversity. The recommendations emphasize the need for additional awareness and offer cues to parents, professionals, and policymakers to promote sexual health and well-being of autistic individuals. Lay Abstract In this article, we propose recommendations on what we can do to promote that autistic people can enjoy their sexuality and gender identity, because that contributes to overall well-being. First, we briefly summarize the existing research on sexuality and gender diversity in autistic individuals. Next, we propose recommendations for how to promote sexual and gender diversity-related health and well-being. Based on what is known about sexuality, gender diversity, and relationships in autistic adolescents and adults, we convened an international group of autistic and non-autistic researchers, advocates, parents, and professionals to develop recommendations to promote sexual and gender health in autistic people. The resulting recommendations were checked through an online survey distributed to autistic people across the world. The online participants endorsed the importance of eight final recommendations related to: 1.Providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; 2.Improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and 3.Meaningfully including the autism community in future research that addresses well-being relating to sexuality, relationships, and gender diversity. These community-driven recommendations aim to promote sexual health and well-being in autistic individuals internationally. En ligne : https://dx.doi.org/10.1177/13623613231188349 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity [Texte imprimé et/ou numérique] / Jeroen DEWINTER, Auteur ; Morénike Giwa ONAIWU, Auteur ; Maria L. MASSOLO, Auteur ; Reid CAPLAN, Auteur ; Els VAN BENEDEN, Auteur ; Nikki BRÖRMANN, Auteur ; Eileen T. CREHAN, Auteur ; Lisa A. CROEN, Auteur ; Susan FAJA, Auteur ; Dena L. GASSNER, Auteur ; Laura GRAHAM HOLMES, Auteur ; Cat HUGHES, Auteur ; Morrigan HUNTER, Auteur ; Monique HUYSAMEN, Auteur ; Paola JELONCHE, Auteur ; Meng-Chuan LAI, Auteur ; Ilse NOENS, Auteur ; Heta PUKKI, Auteur ; Mark A. STOKES, Auteur ; John F. STRANG, Auteur ; Anna IR VAN DER MIESEN, Auteur . - p.770-779. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.770-779 Mots-clés : autism  gender diversity  policy  recommendations  sexual health  sexuality Index. décimale : PER Périodiques Résumé : This short report presents recommendations to promote health and well-being relating to sexuality and gender diversity in autistic individuals. The recommendations were developed based on the latest available scientific knowledge coupled with a community-driven approach. An international group of autistic and non-autistic experts in the fields of autism, sexuality, and gender diversity and autistic advocates worked together to develop the initial recommendations; these recommendations were subsequently checked within the wider community through an online survey. Out of the original 11 recommendations, eight were rated above a consensus threshold. The final recommendations cover three themes: (1) providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; (2) improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and (3) meaningful inclusion of the autism community in future research that addresses well-being related to sexuality, relationships, and gender diversity. The recommendations emphasize the need for additional awareness and offer cues to parents, professionals, and policymakers to promote sexual health and well-being of autistic individuals. Lay Abstract In this article, we propose recommendations on what we can do to promote that autistic people can enjoy their sexuality and gender identity, because that contributes to overall well-being. First, we briefly summarize the existing research on sexuality and gender diversity in autistic individuals. Next, we propose recommendations for how to promote sexual and gender diversity-related health and well-being. Based on what is known about sexuality, gender diversity, and relationships in autistic adolescents and adults, we convened an international group of autistic and non-autistic researchers, advocates, parents, and professionals to develop recommendations to promote sexual and gender health in autistic people. The resulting recommendations were checked through an online survey distributed to autistic people across the world. The online participants endorsed the importance of eight final recommendations related to: 1.Providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; 2.Improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and 3.Meaningfully including the autism community in future research that addresses well-being relating to sexuality, relationships, and gender diversity. These community-driven recommendations aim to promote sexual health and well-being in autistic individuals internationally. En ligne : https://dx.doi.org/10.1177/13623613231188349 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

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