Child sleep onset latency mediates parental depression and noncompliance in autistic children / Melanie A. STEARNS in Research in Autism Spectrum Disorders, 119 (January 2025)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 119 (January 2025) . - p.102518 Titre : Child sleep onset latency mediates parental depression and noncompliance in autistic children Type de document : texte imprimé Auteurs : Melanie A. STEARNS, Auteur ; Braden HAYSE, Auteur ; Neetu NAIR, Auteur ; Micah O. MAZUREK, Auteur ; Ashley F. CURTIS, Auteur ; David Q. BEVERSDORF, Auteur ; Kristin SOHL, Auteur ; Julie E. MUCKERMAN, Auteur ; Christina S. MCCRAE, Auteur Article en page(s) : p.102518 Langues : Anglais (eng) Mots-clés : Autism  Insomnia  Child  Parent  Depression  Noncompliance Index. décimale : PER Périodiques Résumé : Background Parents diagnosed with depression often report that their children have difficulty following rules and falling asleep. Parents with depression are less likely to be consistent or enforce bedtimes, resulting in the child having fewer bedtime rules and getting less sleep. Over time this may mean the child develops poor sleep habits and difficulty falling asleep. Although these relationships have yet to be studied in children diagnosed with Autism Spectrum Disorder (ASD), it is an important area given that approximately 80 % of autistic children have sleep difficulties. Methods The current study examined whether parent-reported child sleep onset latency (SOL) mediated the relationship between parental depression and child noncompliance. The sample (N=34) consisted of parents (82 % female) reporting on their children aged 6-12 (M=8.63, SD = 2.00; 76.5 % male). All children were diagnosed with ASD and had parent-reported sleep complaints. Measures included the Child Sleep Health Questionnaire (CSHQ), the Pediatric Symptom Checklist (PSC), and a question asking if the parent had been diagnosed with depression (yes/no). Results Greater parent-reported child SOL significantly mediated the relation between increased parental depression and greater noncompliance. Conclusions These results suggest that difficulty falling asleep may help to explain why children of parents who have depression are noncompliant. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102518 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545 [article] Child sleep onset latency mediates parental depression and noncompliance in autistic children [texte imprimé] / Melanie A. STEARNS, Auteur ; Braden HAYSE, Auteur ; Neetu NAIR, Auteur ; Micah O. MAZUREK, Auteur ; Ashley F. CURTIS, Auteur ; David Q. BEVERSDORF, Auteur ; Kristin SOHL, Auteur ; Julie E. MUCKERMAN, Auteur ; Christina S. MCCRAE, Auteur . - p.102518. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 119 (January 2025) . - p.102518 Mots-clés : Autism  Insomnia  Child  Parent  Depression  Noncompliance Index. décimale : PER Périodiques Résumé : Background Parents diagnosed with depression often report that their children have difficulty following rules and falling asleep. Parents with depression are less likely to be consistent or enforce bedtimes, resulting in the child having fewer bedtime rules and getting less sleep. Over time this may mean the child develops poor sleep habits and difficulty falling asleep. Although these relationships have yet to be studied in children diagnosed with Autism Spectrum Disorder (ASD), it is an important area given that approximately 80 % of autistic children have sleep difficulties. Methods The current study examined whether parent-reported child sleep onset latency (SOL) mediated the relationship between parental depression and child noncompliance. The sample (N=34) consisted of parents (82 % female) reporting on their children aged 6-12 (M=8.63, SD = 2.00; 76.5 % male). All children were diagnosed with ASD and had parent-reported sleep complaints. Measures included the Child Sleep Health Questionnaire (CSHQ), the Pediatric Symptom Checklist (PSC), and a question asking if the parent had been diagnosed with depression (yes/no). Results Greater parent-reported child SOL significantly mediated the relation between increased parental depression and greater noncompliance. Conclusions These results suggest that difficulty falling asleep may help to explain why children of parents who have depression are noncompliant. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102518 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545

Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study / Josie KEARNEY in Journal of Autism and Developmental Disorders, 56-4 (April 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-4 (April 2026) . - p.1408-1417 Titre : Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study Type de document : texte imprimé Auteurs : Josie KEARNEY, Auteur ; Catherine BOSYJ, Auteur ; Victoria ROMBOS, Auteur ; Alicia Brewer CURRAN, Auteur ; Brenda CLARK, Auteur ; Wendy CORNELL, Auteur ; Shannon MAH, Auteur ; Melissa MAHURIN, Auteur ; Nicholas PIRODDI, Auteur ; Kristin SOHL, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Melanie PENNER, Auteur Article en page(s) : p.1408-1417 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Although autism is highly prevalent, no single care center has enough patients to produce generalizable knowledge of optimal care; this slows the pace of quality improvement research. The Autism Care Network (ACNet) is a learning health network (LHN) dedicated to developing the most effective approach to care for autistic children and adolescents through integrating clinical and research data. Given that most autistic patients receive care in the community, expanding ACNet to include community providers is essential to improve autism care. Our objectives were to: (1) understand the current data collection practices, learning needs, capacity, and overall interest of community clinicians in participating in an autism LHN; (2) identify their perspectives on participating in a LHN and ways in which their engagement and interest can be cultivated. Participants were purposively sampled from community physicians who participated in ASD-focused educational programming. In-depth semi-structured interviews were conducted. Analysis of 29 participant interviews yielded five primary themes: Navigating Administrative Challenges, Improving Data Collection Practices, Increasing Provider Confidence and Competence, Breaking Down Silos, and System and Societal Barriers to Achieving Best Practices. This study provides a rich and nuanced understanding of the experiences of community providers regarding the challenges of ASD care provision in the community. Overall, these findings suggest that LHNs have the potential to address several of the issues in community autism care highlighted by community providers. En ligne : https://doi.org/10.1007/s10803-024-06597-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=582 [article] Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study [texte imprimé] / Josie KEARNEY, Auteur ; Catherine BOSYJ, Auteur ; Victoria ROMBOS, Auteur ; Alicia Brewer CURRAN, Auteur ; Brenda CLARK, Auteur ; Wendy CORNELL, Auteur ; Shannon MAH, Auteur ; Melissa MAHURIN, Auteur ; Nicholas PIRODDI, Auteur ; Kristin SOHL, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Melanie PENNER, Auteur . - p.1408-1417. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-4 (April 2026) . - p.1408-1417 Index. décimale : PER Périodiques Résumé : Although autism is highly prevalent, no single care center has enough patients to produce generalizable knowledge of optimal care; this slows the pace of quality improvement research. The Autism Care Network (ACNet) is a learning health network (LHN) dedicated to developing the most effective approach to care for autistic children and adolescents through integrating clinical and research data. Given that most autistic patients receive care in the community, expanding ACNet to include community providers is essential to improve autism care. Our objectives were to: (1) understand the current data collection practices, learning needs, capacity, and overall interest of community clinicians in participating in an autism LHN; (2) identify their perspectives on participating in a LHN and ways in which their engagement and interest can be cultivated. Participants were purposively sampled from community physicians who participated in ASD-focused educational programming. In-depth semi-structured interviews were conducted. Analysis of 29 participant interviews yielded five primary themes: Navigating Administrative Challenges, Improving Data Collection Practices, Increasing Provider Confidence and Competence, Breaking Down Silos, and System and Societal Barriers to Achieving Best Practices. This study provides a rich and nuanced understanding of the experiences of community providers regarding the challenges of ASD care provision in the community. Overall, these findings suggest that LHNs have the potential to address several of the issues in community autism care highlighted by community providers. En ligne : https://doi.org/10.1007/s10803-024-06597-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=582

Correction: Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study / Josie KEARNEY in Journal of Autism and Developmental Disorders, 55-3 (March 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.1156-1156 Titre : Correction: Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study Type de document : texte imprimé Auteurs : Josie KEARNEY, Auteur ; Catherine BOSYJ, Auteur ; Victoria ROMBOS, Auteur ; Alicia Brewer CURRAN, Auteur ; Brenda G. CLARK, Auteur ; Wendy CORNELL, Auteur ; Shannon MAH, Auteur ; Melissa MAHURIN, Auteur ; Nicholas PIRODDI, Auteur ; Kristin SOHL, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Melanie PENNER, Auteur Article en page(s) : p.1156-1156 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06646-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=549 [article] Correction: Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study [texte imprimé] / Josie KEARNEY, Auteur ; Catherine BOSYJ, Auteur ; Victoria ROMBOS, Auteur ; Alicia Brewer CURRAN, Auteur ; Brenda G. CLARK, Auteur ; Wendy CORNELL, Auteur ; Shannon MAH, Auteur ; Melissa MAHURIN, Auteur ; Nicholas PIRODDI, Auteur ; Kristin SOHL, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Melanie PENNER, Auteur . - p.1156-1156. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.1156-1156 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06646-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=549

ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults / Beth A. MALOW in Autism Research, 16-8 (August 2023)  

Public ISBD [article]  inAutism Research > 16-8 (August 2023) . - p.1619-1629 Titre : ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults Type de document : texte imprimé Auteurs : Beth A. MALOW, Auteur ; Micah O. MAZUREK, Auteur ; Gary STOBBE, Auteur ; Mavara M. AGRAWAL, Auteur ; Rachel LOFTIN, Auteur ; David CAUDEL, Auteur ; Amy HESS, Auteur ; Alexander WESTPHAL, Auteur ; Joshua SMITH, Auteur ; Janet SHOUSE, Auteur ; Nancy CHEAK-ZAMORA, Auteur ; Kristin SOHL, Auteur Article en page(s) : p.1619-1629 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Autistic adults experience significant unmet healthcare needs, with opportunities for improvement in both the systems and the practitioners who serve this population. Primary care physicians/practitioners (PCPs) are a natural choice to provide comprehensive care to autistic adults but often lack experience in serving this population. This pilot study developed and tested an Extension for Community Healthcare Outcomes (ECHO) Autism model adapted from our previous work, focused specifically on training PCPs in best-practice care for autistic adults. The project was informed directly by the perspectives and preferences of autistic adults, caregivers, and PCPs. Two consecutive cohorts of PCPs participated in ECHO Autism Adult Healthcare sessions. Each cohort met 1 h twice a month for 6 months, with 37 PCPs (n=20 in Cohort 1, and n=17 in Cohort 2) participating. Based on findings from the first cohort, adjustments were made to refine the session preparation, curriculum, conduct of the ECHO, resources, and evaluation. After participation in the ECHO Autism program, PCP self-efficacy and satisfaction improved, while the number of perceived barriers did not change. Knowledge did not improve significantly in Cohort 1, but after adjustments to the training model, participants in Cohort 2 showed significant knowledge gains. While attention to systems of care is critical to addressing barriers in healthcare in the autistic population, the ECHO Autism Adult Healthcare model is feasible and holds promise for improving PCP satisfaction and self-efficacy in working with autistic adults. En ligne : https://doi.org/10.1002/aur.2996 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 [article] ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults [texte imprimé] / Beth A. MALOW, Auteur ; Micah O. MAZUREK, Auteur ; Gary STOBBE, Auteur ; Mavara M. AGRAWAL, Auteur ; Rachel LOFTIN, Auteur ; David CAUDEL, Auteur ; Amy HESS, Auteur ; Alexander WESTPHAL, Auteur ; Joshua SMITH, Auteur ; Janet SHOUSE, Auteur ; Nancy CHEAK-ZAMORA, Auteur ; Kristin SOHL, Auteur . - p.1619-1629. Langues : Anglais (eng) in Autism Research > 16-8 (August 2023) . - p.1619-1629 Index. décimale : PER Périodiques Résumé : Abstract Autistic adults experience significant unmet healthcare needs, with opportunities for improvement in both the systems and the practitioners who serve this population. Primary care physicians/practitioners (PCPs) are a natural choice to provide comprehensive care to autistic adults but often lack experience in serving this population. This pilot study developed and tested an Extension for Community Healthcare Outcomes (ECHO) Autism model adapted from our previous work, focused specifically on training PCPs in best-practice care for autistic adults. The project was informed directly by the perspectives and preferences of autistic adults, caregivers, and PCPs. Two consecutive cohorts of PCPs participated in ECHO Autism Adult Healthcare sessions. Each cohort met 1 h twice a month for 6 months, with 37 PCPs (n=20 in Cohort 1, and n=17 in Cohort 2) participating. Based on findings from the first cohort, adjustments were made to refine the session preparation, curriculum, conduct of the ECHO, resources, and evaluation. After participation in the ECHO Autism program, PCP self-efficacy and satisfaction improved, while the number of perceived barriers did not change. Knowledge did not improve significantly in Cohort 1, but after adjustments to the training model, participants in Cohort 2 showed significant knowledge gains. While attention to systems of care is critical to addressing barriers in healthcare in the autistic population, the ECHO Autism Adult Healthcare model is feasible and holds promise for improving PCP satisfaction and self-efficacy in working with autistic adults. En ligne : https://doi.org/10.1002/aur.2996 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510

ECHO Autism STAT: Accelerating Early Access to Autism Diagnosis / Micah O. MAZUREK in Journal of Autism and Developmental Disorders, 49-1 (January 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.127-137 Titre : ECHO Autism STAT: Accelerating Early Access to Autism Diagnosis Type de document : texte imprimé Auteurs : Micah O. MAZUREK, Auteur ; Alicia CURRAN, Auteur ; Courtney BURNETTE, Auteur ; Kristin SOHL, Auteur Article en page(s) : p.127-137 Langues : Anglais (eng) Mots-clés : Autism  Autism spectrum disorder  Health care access  Primary care provider  Screening Index. décimale : PER Périodiques Résumé : Although early diagnosis of autism is critical for promoting access to early intervention, many children experience significant diagnostic delays. Shortages of healthcare providers, limited capacity at autism centers, and geographic and socioeconomic challenges contribute to these delays. The current pilot study examined the feasibility of a new model for training community-based primary care providers (PCPs) in underserved areas in screening and diagnosis of young children at highest risk for autism. By combining hands-on training in standardized techniques with ongoing virtual mentorship and practice, the program emphasized both timely diagnosis and appropriate referral for more comprehensive assessment when necessary. Results indicated improvements in PCP practice and self-efficacy, and feasibility of the model for enhancing local access to care. En ligne : http://dx.doi.org/10.1007/s10803-018-3696-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=376 [article] ECHO Autism STAT: Accelerating Early Access to Autism Diagnosis [texte imprimé] / Micah O. MAZUREK, Auteur ; Alicia CURRAN, Auteur ; Courtney BURNETTE, Auteur ; Kristin SOHL, Auteur . - p.127-137. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-1 (January 2019) . - p.127-137 Mots-clés : Autism  Autism spectrum disorder  Health care access  Primary care provider  Screening Index. décimale : PER Périodiques Résumé : Although early diagnosis of autism is critical for promoting access to early intervention, many children experience significant diagnostic delays. Shortages of healthcare providers, limited capacity at autism centers, and geographic and socioeconomic challenges contribute to these delays. The current pilot study examined the feasibility of a new model for training community-based primary care providers (PCPs) in underserved areas in screening and diagnosis of young children at highest risk for autism. By combining hands-on training in standardized techniques with ongoing virtual mentorship and practice, the program emphasized both timely diagnosis and appropriate referral for more comprehensive assessment when necessary. Results indicated improvements in PCP practice and self-efficacy, and feasibility of the model for enhancing local access to care. En ligne : http://dx.doi.org/10.1007/s10803-018-3696-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=376

ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder / Micah O. MAZUREK in Autism, 24-3 (April 2020)  

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Evaluating Autism diagnosis agreement between primary care physicians/practitioners and experts through ECHO Autism STAT / Rachel BROWN ; Valeria NANCLARES-NOGUÉS ; Melinda ODUM ; Amanda BARRETT ; Micah O. MAZUREK ; Kristin SOHL in Research in Autism Spectrum Disorders, 109 (November 2023)  

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Evidence-based use of scalable biomarkers to increase diagnostic efficiency and decrease the lifetime costs of autism / Thomas W. FRAZIER in Autism Research, 14-6 (June 2021)  

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Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum / Braden HAYSE in Autism, 29-4 (April 2025)  

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A Practice Pathway for the Treatment of Night Wakings in Children with Autism Spectrum Disorder / Justin G. FARMER ; Heidi V. CONNOLLY ; Virginia D. ALLHUSEN ; Amanda E. BENNETT ; Daniel L. COURY ; Janet LAM ; Ann M. NEUMEYER ; Kristin SOHL ; Manisha WITMANS ; Beth A. MALOW ; Committee AUTISM TREATMENT NETWORK/AUTISM INTERVENTION RESEARCH NETWORK ON PHYSICAL HEALTH SLEEP in Journal of Autism and Developmental Disorders, 54-8 (August 2024)  

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Psychophysiological Associations with Gastrointestinal Symptomatology in Autism Spectrum Disorder / Bradley J. FERGUSON in Autism Research, 10-2 (February 2017)  

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Psychosocial Functioning Mediates Parental Depression and Sleep in Autistic Children / Melanie A. STEARNS in Journal of Autism and Developmental Disorders, 55-12 (December 2025)  

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Rethinking autism spectrum disorder assessment for children during COVID-19 and beyond / Lonnie ZWAIGENBAUM in Autism Research, 14-11 (November 2021)  

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Sleep and Behavioral Problems in Children with Autism Spectrum Disorder / Micah O. MAZUREK in Journal of Autism and Developmental Disorders, 46-6 (June 2016)  

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The Brief Observation of Symptoms of Autism: Validation study in a Latin American sample / Nora GRANANA in Autism, 29-4 (April 2025)  

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