Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review / Gemma DAVY in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1916-1930 Titre : Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Gemma DAVY, Auteur ; Katy L. UNWIN, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.1916-1930 Langues : Anglais (eng) Mots-clés : Child  Humans  Caregivers  Quality of Life  Autistic Disorder  Autism Spectrum Disorder  Leisure Activities  Employment  Community Participation  Autism spectrum disorder  occupational balance  participation Index. décimale : PER Périodiques Résumé : We searched a wide range of academic journals for published information on the participation levels of caregivers of autistic children in activities relating to leisure, social, community and employment contexts, and the impact that participation may have on caregiver quality of life. Overall, we found that the impact of parenting an autistic child is broad with caregivers often prioritising their child's needs over their own, particularly in occupational participation, which impacts their quality of life. Findings also highlighted a need for further research to investigate the experience of caregivers, and the relationship between participation and quality of life in caregivers of autistic children, as the results can inform the development of better supports for them. En ligne : http://dx.doi.org/10.1177/13623613221105836 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review [Texte imprimé et/ou numérique] / Gemma DAVY, Auteur ; Katy L. UNWIN, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.1916-1930. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1916-1930 Mots-clés : Child  Humans  Caregivers  Quality of Life  Autistic Disorder  Autism Spectrum Disorder  Leisure Activities  Employment  Community Participation  Autism spectrum disorder  occupational balance  participation Index. décimale : PER Périodiques Résumé : We searched a wide range of academic journals for published information on the participation levels of caregivers of autistic children in activities relating to leisure, social, community and employment contexts, and the impact that participation may have on caregiver quality of life. Overall, we found that the impact of parenting an autistic child is broad with caregivers often prioritising their child's needs over their own, particularly in occupational participation, which impacts their quality of life. Findings also highlighted a need for further research to investigate the experience of caregivers, and the relationship between participation and quality of life in caregivers of autistic children, as the results can inform the development of better supports for them. En ligne : http://dx.doi.org/10.1177/13623613221105836 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Patterns of equipment use for autistic children in multi-sensory environments: Time spent with sensory equipment varies by sensory profile and intellectual ability / Katy L. UNWIN in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.644-655 Titre : Patterns of equipment use for autistic children in multi-sensory environments: Time spent with sensory equipment varies by sensory profile and intellectual ability Type de document : Texte imprimé et/ou numérique Auteurs : Katy L. UNWIN, Auteur ; Georgina POWELL, Auteur ; Alice PRICE, Auteur ; Catherine RG JONES, Auteur Article en page(s) : p.644-655 Langues : Anglais (eng) Mots-clés : autism  motivation  multi-sensory environment  preference  sensory profile and sensory behaviours  sensory room Index. décimale : PER Périodiques Résumé : Multi-sensory environments are widely used with autistic children. However, there are no data on how autistic children choose to spend time in the room and how this relates to their sensory, behavioural and intellectual profiles. We observed the frequency and duration of visits to multi-sensory environment equipment of 41 autistic children during 5?min of free play. At a group level, the bubble tube and touch, sound and light board were both highly popular, with the fibre optics and tactile board receiving less attention. Sensory seeking behaviours were more commonly observed in the multi-sensory environment than sensory-defensive behaviours. We found that observed sensory seeking behaviours, along with parent-reported sensory behaviours and non-verbal intelligence quotient, were associated with specific patterns of multi-sensory environment equipment use, but broader autistic behaviours were not. These data suggest that the multi-sensory environment equipment preferences of autistic children are related to individual differences in sensory behaviour and non-verbal intelligence quotient. This information has the potential to inform the development of best-practice multi-sensory environment guidelines that focus on individual needs. Lay abstract Multi-sensory environments, often called sensory rooms, are widely used with autistic children. However, we know very little about how autistic children choose to spend their time in multi-sensory environments. We also do not know how their equipment preferences relate to their individual characteristics such as their sensory differences, level of ability or general autistic behaviours. We measured the frequency and duration of visits to multi-sensory environment equipment of 41 autistic children during 5?min of free play. The bubble tube and touch, sound and light board were both highly popular, with the fibre optics and tactile board receiving less attention. The children displayed significantly more sensory seeking behaviours in the multi-sensory environment than sensory-defensive behaviours. These sensory seeking behaviours, as well as the sensory behaviours that their parents reported they showed in daily life, were associated with specific patterns of multi-sensory environment equipment use. Non-verbal ability was also associated with multi-sensory environment equipment use, but broader autistic behaviours were not. Our findings show that the multi-sensory environment equipment preferences of autistic children are related to individual differences in sensory behaviours and non-verbal ability. This information could be useful for teachers and other practitioners who want to know how best to use multi-sensory environments with autistic children. En ligne : https://dx.doi.org/10.1177/13623613231180266 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] Patterns of equipment use for autistic children in multi-sensory environments: Time spent with sensory equipment varies by sensory profile and intellectual ability [Texte imprimé et/ou numérique] / Katy L. UNWIN, Auteur ; Georgina POWELL, Auteur ; Alice PRICE, Auteur ; Catherine RG JONES, Auteur . - p.644-655. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.644-655 Mots-clés : autism  motivation  multi-sensory environment  preference  sensory profile and sensory behaviours  sensory room Index. décimale : PER Périodiques Résumé : Multi-sensory environments are widely used with autistic children. However, there are no data on how autistic children choose to spend time in the room and how this relates to their sensory, behavioural and intellectual profiles. We observed the frequency and duration of visits to multi-sensory environment equipment of 41 autistic children during 5?min of free play. At a group level, the bubble tube and touch, sound and light board were both highly popular, with the fibre optics and tactile board receiving less attention. Sensory seeking behaviours were more commonly observed in the multi-sensory environment than sensory-defensive behaviours. We found that observed sensory seeking behaviours, along with parent-reported sensory behaviours and non-verbal intelligence quotient, were associated with specific patterns of multi-sensory environment equipment use, but broader autistic behaviours were not. These data suggest that the multi-sensory environment equipment preferences of autistic children are related to individual differences in sensory behaviour and non-verbal intelligence quotient. This information has the potential to inform the development of best-practice multi-sensory environment guidelines that focus on individual needs. Lay abstract Multi-sensory environments, often called sensory rooms, are widely used with autistic children. However, we know very little about how autistic children choose to spend their time in multi-sensory environments. We also do not know how their equipment preferences relate to their individual characteristics such as their sensory differences, level of ability or general autistic behaviours. We measured the frequency and duration of visits to multi-sensory environment equipment of 41 autistic children during 5?min of free play. The bubble tube and touch, sound and light board were both highly popular, with the fibre optics and tactile board receiving less attention. The children displayed significantly more sensory seeking behaviours in the multi-sensory environment than sensory-defensive behaviours. These sensory seeking behaviours, as well as the sensory behaviours that their parents reported they showed in daily life, were associated with specific patterns of multi-sensory environment equipment use. Non-verbal ability was also associated with multi-sensory environment equipment use, but broader autistic behaviours were not. Our findings show that the multi-sensory environment equipment preferences of autistic children are related to individual differences in sensory behaviours and non-verbal ability. This information could be useful for teachers and other practitioners who want to know how best to use multi-sensory environments with autistic children. En ligne : https://dx.doi.org/10.1177/13623613231180266 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

Size Constancy is Preserved but Afterimages are Prolonged in Typical Individuals with Higher Degrees of Self-Reported Autistic Traits / Irene SPERANDIO in Journal of Autism and Developmental Disorders, 47-2 (February 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.447-459 Titre : Size Constancy is Preserved but Afterimages are Prolonged in Typical Individuals with Higher Degrees of Self-Reported Autistic Traits Type de document : Texte imprimé et/ou numérique Auteurs : Irene SPERANDIO, Auteur ; Katy L. UNWIN, Auteur ; Oriane LANDRY, Auteur ; Philippe A. CHOUINARD, Auteur Article en page(s) : p.447-459 Langues : Anglais (eng) Mots-clés : Adaptation  Afterimage  Autism spectrum quotient  Light sensitivity Index. décimale : PER Périodiques Résumé : Deficits in perceptual constancies from early infancy have been proposed to contribute to autism and exacerbate its symptoms (Hellendoorn et al., Frontiers in Psychology 6:1–16, 2015). Here, we examined size constancy in adults from the general population (N?=?106) with different levels of self-reported autistic traits using an approach based on negative afterimages. The afterimage strength, as indexed by duration and vividness, was also quantified. In opposition to the Hellendoorn and colleagues’ model, we were unable to demonstrate any kind of relationship between abilities in size constancy and autistic traits. However, our results demonstrated that individuals with higher degrees of autistic traits experienced more persistent afterimages. We discuss possible retinal and post-retinal explanations for prolonged afterimages in people with higher levels of autistic traits. En ligne : http://dx.doi.org/10.1007/s10803-016-2971-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303 [article] Size Constancy is Preserved but Afterimages are Prolonged in Typical Individuals with Higher Degrees of Self-Reported Autistic Traits [Texte imprimé et/ou numérique] / Irene SPERANDIO, Auteur ; Katy L. UNWIN, Auteur ; Oriane LANDRY, Auteur ; Philippe A. CHOUINARD, Auteur . - p.447-459. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.447-459 Mots-clés : Adaptation  Afterimage  Autism spectrum quotient  Light sensitivity Index. décimale : PER Périodiques Résumé : Deficits in perceptual constancies from early infancy have been proposed to contribute to autism and exacerbate its symptoms (Hellendoorn et al., Frontiers in Psychology 6:1–16, 2015). Here, we examined size constancy in adults from the general population (N?=?106) with different levels of self-reported autistic traits using an approach based on negative afterimages. The afterimage strength, as indexed by duration and vividness, was also quantified. In opposition to the Hellendoorn and colleagues’ model, we were unable to demonstrate any kind of relationship between abilities in size constancy and autistic traits. However, our results demonstrated that individuals with higher degrees of autistic traits experienced more persistent afterimages. We discuss possible retinal and post-retinal explanations for prolonged afterimages in people with higher levels of autistic traits. En ligne : http://dx.doi.org/10.1007/s10803-016-2971-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303

Susceptibility to Optical Illusions Varies as a Function of the Autism-Spectrum Quotient but not in Ways Predicted by Local–Global Biases / Philippe A. CHOUINARD in Journal of Autism and Developmental Disorders, 46-6 (June 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-6 (June 2016) . - p.2224-2239 Titre : Susceptibility to Optical Illusions Varies as a Function of the Autism-Spectrum Quotient but not in Ways Predicted by Local–Global Biases Type de document : Texte imprimé et/ou numérique Auteurs : Philippe A. CHOUINARD, Auteur ; Katy L. UNWIN, Auteur ; Oriane LANDRY, Auteur ; Irene SPERANDIO, Auteur Article en page(s) : p.2224-2239 Langues : Anglais (eng) Mots-clés : Visual illusions  Shepard’s tabletops illusion  Visual perception  Illusory susceptibility  Autism-spectrum quotient (AQ) Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder and those with autistic tendencies in non-clinical groups are thought to have a perceptual style privileging local details over global integration. We used 13 illusions to investigate this perceptual style in typically developing adults with various levels of autistic traits. Illusory susceptibility was entered into a principal-component analysis. Only one factor, consisting of the Shepard’s tabletops and Square-diamond illusions, was found to have reduced susceptibility as a function of autistic traits. Given that only two illusions were affected and that these illusions depend mostly on the processing of within-object relational properties, we conclude there is something distinct about autistic-like perceptual functioning but not in ways predicted by a preference of local over global elements. En ligne : http://dx.doi.org/10.1007/s10803-016-2753-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=289 [article] Susceptibility to Optical Illusions Varies as a Function of the Autism-Spectrum Quotient but not in Ways Predicted by Local–Global Biases [Texte imprimé et/ou numérique] / Philippe A. CHOUINARD, Auteur ; Katy L. UNWIN, Auteur ; Oriane LANDRY, Auteur ; Irene SPERANDIO, Auteur . - p.2224-2239. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-6 (June 2016) . - p.2224-2239 Mots-clés : Visual illusions  Shepard’s tabletops illusion  Visual perception  Illusory susceptibility  Autism-spectrum quotient (AQ) Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder and those with autistic tendencies in non-clinical groups are thought to have a perceptual style privileging local details over global integration. We used 13 illusions to investigate this perceptual style in typically developing adults with various levels of autistic traits. Illusory susceptibility was entered into a principal-component analysis. Only one factor, consisting of the Shepard’s tabletops and Square-diamond illusions, was found to have reduced susceptibility as a function of autistic traits. Given that only two illusions were affected and that these illusions depend mostly on the processing of within-object relational properties, we conclude there is something distinct about autistic-like perceptual functioning but not in ways predicted by a preference of local over global elements. En ligne : http://dx.doi.org/10.1007/s10803-016-2753-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=289

The Sensory Observation Autism Rating Scale (SOAR): Developed using the PROMIS® framework / Katy L. UNWIN in Autism Research, 16-3 (March 2023)  

Public ISBD [article]  inAutism Research > 16-3 (March 2023) . - p.617-629 Titre : The Sensory Observation Autism Rating Scale (SOAR): Developed using the PROMIS® framework Type de document : Texte imprimé et/ou numérique Auteurs : Katy L. UNWIN, Auteur ; Josephine BARBARO, Auteur ; Mirko ULJAREVIC, Auteur ; Azul HUSSAIN, Auteur ; Madison CHETCUTI, Auteur ; Alison. E. LANE, Auteur Article en page(s) : p.617-629 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Autistic people experience the sensory world differently, impacting behavior. First-hand accounts and group-based research have found that sensory differences impact a range of things including family life, anxiety, participation, and daily living. Early sensory differences are widely reported to be associated with a cascade of developmental difference, suggesting that early autism diagnosis and sensory mapping could enable the provision of supports to facilitate flourishing. However, appropriate measurement tools are not available as all rely on proxy report or are observation measures which include limited modalities or domains and require the administration of stimuli. Therefore, following the gold-standard recommendations for measurement development outlined by the PROMIS® framework, we created the Sensory Observation Autism Rating scale (SOAR). We identified sensory behaviors across all primary domains and modalities through an extensive autism-sensory literature review and from focus groups with autism stakeholders. The initial item bank was then refined by an expert panel and through video coding five-minutes of free play from Autism Diagnostic Observation Schedule assessments of 105 age- and gender-matched autistic and developmentally delayed children (aged 13-36?months; 38 female). An additional 25% of the sample were double coded to investigate interrater reliability. Observational data and expert review supported the reduction of the item bank to 37 items. We propose that the refined SOAR has excellent face and ecological validity, along with interrater reliability (Intraclass correlation = 0.87-0.99). Following further data collection and refinement, SOAR has promise to fully characterize sensory behaviors in autistic children and indicate useful supports. En ligne : https://doi.org/10.1002/aur.2881 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498 [article] The Sensory Observation Autism Rating Scale (SOAR): Developed using the PROMIS® framework [Texte imprimé et/ou numérique] / Katy L. UNWIN, Auteur ; Josephine BARBARO, Auteur ; Mirko ULJAREVIC, Auteur ; Azul HUSSAIN, Auteur ; Madison CHETCUTI, Auteur ; Alison. E. LANE, Auteur . - p.617-629. Langues : Anglais (eng) in Autism Research > 16-3 (March 2023) . - p.617-629 Index. décimale : PER Périodiques Résumé : Abstract Autistic people experience the sensory world differently, impacting behavior. First-hand accounts and group-based research have found that sensory differences impact a range of things including family life, anxiety, participation, and daily living. Early sensory differences are widely reported to be associated with a cascade of developmental difference, suggesting that early autism diagnosis and sensory mapping could enable the provision of supports to facilitate flourishing. However, appropriate measurement tools are not available as all rely on proxy report or are observation measures which include limited modalities or domains and require the administration of stimuli. Therefore, following the gold-standard recommendations for measurement development outlined by the PROMIS® framework, we created the Sensory Observation Autism Rating scale (SOAR). We identified sensory behaviors across all primary domains and modalities through an extensive autism-sensory literature review and from focus groups with autism stakeholders. The initial item bank was then refined by an expert panel and through video coding five-minutes of free play from Autism Diagnostic Observation Schedule assessments of 105 age- and gender-matched autistic and developmentally delayed children (aged 13-36?months; 38 female). An additional 25% of the sample were double coded to investigate interrater reliability. Observational data and expert review supported the reduction of the item bank to 37 items. We propose that the refined SOAR has excellent face and ecological validity, along with interrater reliability (Intraclass correlation = 0.87-0.99). Following further data collection and refinement, SOAR has promise to fully characterize sensory behaviors in autistic children and indicate useful supports. En ligne : https://doi.org/10.1002/aur.2881 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498

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