Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings / Kristin A. LONG in Journal of Autism and Developmental Disorders, 52-9 (September 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4100-4113 Titre : Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings Type de document : Texte imprimé et/ou numérique Auteurs : Kristin A. LONG, Auteur ; Lydia CHEVALIER, Auteur ; Andrea CHU, Auteur ; Kate M. GUTHRIE, Auteur ; Barbara KAO, Auteur ; Wendy PLANTE, Auteur ; Debra LOBATO, Auteur Article en page(s) : p.4100-4113 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Hispanic or Latino  Humans  Self Concept  Sibling Relations  Siblings  Autism  Caregiver  Culture  Family  Sibling Index. décimale : PER Périodiques Résumé : Siblings describe positive and negative aspects of autism and often assume lifelong support roles. Less is known about cultural influences on sibling relationships. This qualitative study characterizes processes linking siblings' autism conceptualizations, sibling relationships, and self-concept using a multicultural framework. Siblings (12 Latino/a/x, 9 non-Latino/a/x white) participated. Data were stratified by ethnicity and analyzed using applied thematic analysis. Latino/a/x and non-Latino/a/x siblings described processes linking autism, relationships, and self-concept differently. Latino/a/x siblings emphasized family roles and identified as caregivers and protectors. Non-Latino/a/x siblings emphasized general sensitivity toward individuals who differed from themselves. Findings may reflect cultural differences in familism, caregiving expectations, and autism conceptualizations, thereby illuminating foundations of siblings' lifelong caregiving roles and highlighting the importance of culturally-sensitive, family-centered care. En ligne : http://dx.doi.org/10.1007/s10803-021-05287-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings [Texte imprimé et/ou numérique] / Kristin A. LONG, Auteur ; Lydia CHEVALIER, Auteur ; Andrea CHU, Auteur ; Kate M. GUTHRIE, Auteur ; Barbara KAO, Auteur ; Wendy PLANTE, Auteur ; Debra LOBATO, Auteur . - p.4100-4113. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4100-4113 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Hispanic or Latino  Humans  Self Concept  Sibling Relations  Siblings  Autism  Caregiver  Culture  Family  Sibling Index. décimale : PER Périodiques Résumé : Siblings describe positive and negative aspects of autism and often assume lifelong support roles. Less is known about cultural influences on sibling relationships. This qualitative study characterizes processes linking siblings' autism conceptualizations, sibling relationships, and self-concept using a multicultural framework. Siblings (12 Latino/a/x, 9 non-Latino/a/x white) participated. Data were stratified by ethnicity and analyzed using applied thematic analysis. Latino/a/x and non-Latino/a/x siblings described processes linking autism, relationships, and self-concept differently. Latino/a/x siblings emphasized family roles and identified as caregivers and protectors. Non-Latino/a/x siblings emphasized general sensitivity toward individuals who differed from themselves. Findings may reflect cultural differences in familism, caregiving expectations, and autism conceptualizations, thereby illuminating foundations of siblings' lifelong caregiving roles and highlighting the importance of culturally-sensitive, family-centered care. En ligne : http://dx.doi.org/10.1007/s10803-021-05287-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Examining the Role of Race, Ethnicity, and Gender on Social and Behavioral Ratings Within the Autism Diagnostic Observation Schedule / Ashley J. HARRISON in Journal of Autism and Developmental Disorders, 47-9 (September 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-9 (September 2017) . - p.2770-2782 Titre : Examining the Role of Race, Ethnicity, and Gender on Social and Behavioral Ratings Within the Autism Diagnostic Observation Schedule Type de document : Texte imprimé et/ou numérique Auteurs : Ashley J. HARRISON, Auteur ; Kristin A. LONG, Auteur ; Douglas C. TOMMET, Auteur ; Richard N. JONES, Auteur Article en page(s) : p.2770-2782 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Cross-cultural  Social norms  ADOS  Measurement bias  Race  Ethnicity Index. décimale : PER Périodiques Résumé : The Autism Diagnostic Observation Schedule (ADOS) is widely used to assess symptoms of autism spectrum disorder (ASD). Given well-documented differences in social behaviors across cultures, this study examined whether item-level biases exist in ADOS scores across sociodemographic groups (race, ethnicity, and gender). We examined a subset of ten ADOS items among participants (N?=?2458). Holding level of overall ADOS behavioral symptoms constant, we found significant item level bias (measurement noninvariance) for race and ethnicity on three ADOS items. Item-level bias was not apparent across gender. Although the magnitude of bias was small, our findings highlight the need to reevaluate norms and operational definitions used in assessments to increase ASD diagnostic accuracy among culturally-diverse groups. En ligne : https://doi.org/10.1007/s10803-017-3176-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=315 [article] Examining the Role of Race, Ethnicity, and Gender on Social and Behavioral Ratings Within the Autism Diagnostic Observation Schedule [Texte imprimé et/ou numérique] / Ashley J. HARRISON, Auteur ; Kristin A. LONG, Auteur ; Douglas C. TOMMET, Auteur ; Richard N. JONES, Auteur . - p.2770-2782. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-9 (September 2017) . - p.2770-2782 Mots-clés : Autism spectrum disorder  Cross-cultural  Social norms  ADOS  Measurement bias  Race  Ethnicity Index. décimale : PER Périodiques Résumé : The Autism Diagnostic Observation Schedule (ADOS) is widely used to assess symptoms of autism spectrum disorder (ASD). Given well-documented differences in social behaviors across cultures, this study examined whether item-level biases exist in ADOS scores across sociodemographic groups (race, ethnicity, and gender). We examined a subset of ten ADOS items among participants (N?=?2458). Holding level of overall ADOS behavioral symptoms constant, we found significant item level bias (measurement noninvariance) for race and ethnicity on three ADOS items. Item-level bias was not apparent across gender. Although the magnitude of bias was small, our findings highlight the need to reevaluate norms and operational definitions used in assessments to increase ASD diagnostic accuracy among culturally-diverse groups. En ligne : https://doi.org/10.1007/s10803-017-3176-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=315

Siblings FORWARD: Development of a New Program to Engage Siblings of Autistic Adults in Future Planning / Kristin A. LONG ; Jade LaRochelle ; Monica Gordillo ; Emily M. Pariseau ; Melissa G. DeCelle ; Gael Orsmond in Journal of Autism and Developmental Disorders, 55-1 (January 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.76-93 Titre : Siblings FORWARD: Development of a New Program to Engage Siblings of Autistic Adults in Future Planning : Journal of Autism and Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Kristin A. LONG, Auteur ; Jade LaRochelle, Auteur ; Monica Gordillo, Auteur ; Emily M. Pariseau, Auteur ; Melissa G. DeCelle, Auteur ; Gael Orsmond, Auteur Article en page(s) : p.76-93 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The adult service system does not adequately meet the needs of autistic adults, prompting families to continue their supportive roles. Siblings frequently assume these roles when parents are no longer able to do so, often without preparation or planning. We received feedback on the proposed Siblings FORWARD (Focusing on Relationships, Well-being, and Responsibility aheaD) program concept, which would involve 6-7 individualized sessions over?~?3 months and would facilitate siblings' proactive future planning involvement with their autistic family member. Siblings FORWARD would bolster siblings' skills, knowledge, and self-efficacy to engage in future planning with their family members. We report on perceived need for a sibling program and feedback on the proposed program goals, content, and design. Adult siblings (n = 13), autistic adults (n = 6), and service providers (n = 17) participated in individual interviews or focus groups. Data were systematically coded and analyzed using directed content analysis. Siblings, autistic adults, and service providers expressed high enthusiasm for the Siblings FORWARD concept. Participants indicated that the combination of skill-building and education would promote continued, collaborative future planning that persists after the formal program ends. They had positive impressions of the program concept, goals, content, and design, including the telehealth delivery model. Siblings and autistic adults reported wanting to participate in Siblings FORWARD. This uniform, strong enthusiasm for the Siblings FORWARD concept warrants moving forward to examine preliminary acceptability and feasibility. Ultimately, greater sibling involvement in family future planning may improve autistic adults' functioning through improved continuity of care and support across adulthood. En ligne : https://doi.org/10.1007/s10803-023-06178-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] Siblings FORWARD: Development of a New Program to Engage Siblings of Autistic Adults in Future Planning : Journal of Autism and Developmental Disorders [Texte imprimé et/ou numérique] / Kristin A. LONG, Auteur ; Jade LaRochelle, Auteur ; Monica Gordillo, Auteur ; Emily M. Pariseau, Auteur ; Melissa G. DeCelle, Auteur ; Gael Orsmond, Auteur . - p.76-93. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.76-93 Index. décimale : PER Périodiques Résumé : The adult service system does not adequately meet the needs of autistic adults, prompting families to continue their supportive roles. Siblings frequently assume these roles when parents are no longer able to do so, often without preparation or planning. We received feedback on the proposed Siblings FORWARD (Focusing on Relationships, Well-being, and Responsibility aheaD) program concept, which would involve 6-7 individualized sessions over?~?3 months and would facilitate siblings' proactive future planning involvement with their autistic family member. Siblings FORWARD would bolster siblings' skills, knowledge, and self-efficacy to engage in future planning with their family members. We report on perceived need for a sibling program and feedback on the proposed program goals, content, and design. Adult siblings (n = 13), autistic adults (n = 6), and service providers (n = 17) participated in individual interviews or focus groups. Data were systematically coded and analyzed using directed content analysis. Siblings, autistic adults, and service providers expressed high enthusiasm for the Siblings FORWARD concept. Participants indicated that the combination of skill-building and education would promote continued, collaborative future planning that persists after the formal program ends. They had positive impressions of the program concept, goals, content, and design, including the telehealth delivery model. Siblings and autistic adults reported wanting to participate in Siblings FORWARD. This uniform, strong enthusiasm for the Siblings FORWARD concept warrants moving forward to examine preliminary acceptability and feasibility. Ultimately, greater sibling involvement in family future planning may improve autistic adults' functioning through improved continuity of care and support across adulthood. En ligne : https://doi.org/10.1007/s10803-023-06178-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

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