Conversational Language Is a Predictor of Vocational Independence and Friendships in Adults with ASD / L. FRIEDMAN in Journal of Autism and Developmental Disorders, 49-10 (October 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4294-4305 Titre : Conversational Language Is a Predictor of Vocational Independence and Friendships in Adults with ASD Type de document : Texte imprimé et/ou numérique Auteurs : L. FRIEDMAN, Auteur ; A. STERLING, Auteur ; Leann S. DAWALT, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.4294-4305 Langues : Anglais (eng) Mots-clés : Adult  Autism spectrum disorder  Communication  Language  Vocational and friendship outcomes in adulthood Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is a lifelong neurodevelopmental disorder, impacting social communication and in some individuals, aspects of language such as vocabulary diversity. However, we have only a limited understanding of the verbal language abilities of adults with ASD. The present longitudinal study examined conversational language and its impact on vocational independence and friendship status measured 5 years later in a sample of 84 adults with ASD. After controlling for IQ and childhood language, vocabulary diversity (a measure of structural language) predicted vocational independence and having friendships, while topic maintenance (a measure of social communication) predicted friendships. These findings highlight the importance of adult conversational language abilities for adult outcomes and quality of life. En ligne : http://dx.doi.org/10.1007/s10803-019-04147-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Conversational Language Is a Predictor of Vocational Independence and Friendships in Adults with ASD [Texte imprimé et/ou numérique] / L. FRIEDMAN, Auteur ; A. STERLING, Auteur ; Leann S. DAWALT, Auteur ; M. R. MAILICK, Auteur . - p.4294-4305. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4294-4305 Mots-clés : Adult  Autism spectrum disorder  Communication  Language  Vocational and friendship outcomes in adulthood Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is a lifelong neurodevelopmental disorder, impacting social communication and in some individuals, aspects of language such as vocabulary diversity. However, we have only a limited understanding of the verbal language abilities of adults with ASD. The present longitudinal study examined conversational language and its impact on vocational independence and friendship status measured 5 years later in a sample of 84 adults with ASD. After controlling for IQ and childhood language, vocabulary diversity (a measure of structural language) predicted vocational independence and having friendships, while topic maintenance (a measure of social communication) predicted friendships. These findings highlight the importance of adult conversational language abilities for adult outcomes and quality of life. En ligne : http://dx.doi.org/10.1007/s10803-019-04147-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability / W. CHAN in Autism, 22-7 (October 2018)  

Public ISBD [article]  inAutism > 22-7 (October 2018) . - p.794-803 Titre : Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability Type de document : Texte imprimé et/ou numérique Auteurs : W. CHAN, Auteur ; L. E. SMITH, Auteur ; J. HONG, Auteur ; J. S. GREENBERG, Auteur ; Julie LOUNDS TAYLOR, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.794-803 Langues : Anglais (eng) Mots-clés : adaptive living skills  adult  autism spectrum disorders  employment  intellectual disability  personal care Index. décimale : PER Périodiques Résumé : Sustaining community employment is a challenge for adults with autism spectrum disorders, especially for those who have co-occurring intellectual disability, but factors contributing to this employment outcome have not been fully evaluated. This study utilized longitudinal data to explore the impact of contextual influences, family factors, and individual characteristics on sustained employment over approximately 18 months ( N = 105). Very few adults with autism spectrum disorder and intellectual disability achieved sustained employment (14.3%). The results indicated that more independent daily living skills, a higher family income, a larger maternal social network, an inclusive school environment in early childhood, and currently living in an area with a larger population size were associated with significantly greater odds of sustaining employment. Follow-up analyses suggested that managing personal care is particularly important for employment. En ligne : http://dx.doi.org/10.1177/1362361317703760 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 [article] Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability [Texte imprimé et/ou numérique] / W. CHAN, Auteur ; L. E. SMITH, Auteur ; J. HONG, Auteur ; J. S. GREENBERG, Auteur ; Julie LOUNDS TAYLOR, Auteur ; M. R. MAILICK, Auteur . - p.794-803. Langues : Anglais (eng) in Autism > 22-7 (October 2018) . - p.794-803 Mots-clés : adaptive living skills  adult  autism spectrum disorders  employment  intellectual disability  personal care Index. décimale : PER Périodiques Résumé : Sustaining community employment is a challenge for adults with autism spectrum disorders, especially for those who have co-occurring intellectual disability, but factors contributing to this employment outcome have not been fully evaluated. This study utilized longitudinal data to explore the impact of contextual influences, family factors, and individual characteristics on sustained employment over approximately 18 months ( N = 105). Very few adults with autism spectrum disorder and intellectual disability achieved sustained employment (14.3%). The results indicated that more independent daily living skills, a higher family income, a larger maternal social network, an inclusive school environment in early childhood, and currently living in an area with a larger population size were associated with significantly greater odds of sustaining employment. Follow-up analyses suggested that managing personal care is particularly important for employment. En ligne : http://dx.doi.org/10.1177/1362361317703760 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369

Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism / Leann S. DAWALT in Autism, 23-2 (February 2019)  

Public ISBD [article]  inAutism > 23-2 (February 2019) . - p.383-393 Titre : Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism Type de document : Texte imprimé et/ou numérique Auteurs : Leann S. DAWALT, Auteur ; L. V. USHER, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.383-393 Langues : Anglais (eng) Mots-clés : adulthood  autism  fragile X syndrome  friendships  quality of life  social participation Index. décimale : PER Périodiques Résumé : Friendships and social participation are key domains of quality of life for individuals with intellectual disabilities. This study examined the friendships, social and recreational activities, and family social networks of individuals with intellectual disabilities from two distinct diagnostic groups: individuals diagnosed with fragile X syndrome (n = 81) compared with those diagnosed with autistic disorder (n = 226). Within each diagnostic group, individuals in two developmental stages were compared: adolescence and adulthood. Quality of life in friendships and social participation domains was notably low for individuals with fragile X and those with autism. Individuals with fragile X had more friendships and a less negative social impact on the family than individuals with autism. Across both groups, adolescents spent less time with friends and neighbors, and more time in exercising, than did adults. En ligne : http://dx.doi.org/10.1177/1362361317709202 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 [article] Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism [Texte imprimé et/ou numérique] / Leann S. DAWALT, Auteur ; L. V. USHER, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur . - p.383-393. Langues : Anglais (eng) in Autism > 23-2 (February 2019) . - p.383-393 Mots-clés : adulthood  autism  fragile X syndrome  friendships  quality of life  social participation Index. décimale : PER Périodiques Résumé : Friendships and social participation are key domains of quality of life for individuals with intellectual disabilities. This study examined the friendships, social and recreational activities, and family social networks of individuals with intellectual disabilities from two distinct diagnostic groups: individuals diagnosed with fragile X syndrome (n = 81) compared with those diagnosed with autistic disorder (n = 226). Within each diagnostic group, individuals in two developmental stages were compared: adolescence and adulthood. Quality of life in friendships and social participation domains was notably low for individuals with fragile X and those with autism. Individuals with fragile X had more friendships and a less negative social impact on the family than individuals with autism. Across both groups, adolescents spent less time with friends and neighbors, and more time in exercising, than did adults. En ligne : http://dx.doi.org/10.1177/1362361317709202 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383

Health profiles of adults with autism spectrum disorder: Differences between women and men / Leann S. DAWALT in Autism Research, 14-9 (September 2021)  

Public ISBD [article]  inAutism Research > 14-9 (September 2021) . - p.1896-1904 Titre : Health profiles of adults with autism spectrum disorder: Differences between women and men Type de document : Texte imprimé et/ou numérique Auteurs : Leann S. DAWALT, Auteur ; Julie LOUNDS TAYLOR, Auteur ; A. MOVAGHAR, Auteur ; J. HONG, Auteur ; B. KIM, Auteur ; M. H. BRILLIANT, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.1896-1904 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/complications/epidemiology  Autistic Disorder  Electronic Health Records  Female  Humans  Male  Sleep Wake Disorders  adults  electronic health records  health  health care utilization  sex differences Index. décimale : PER Périodiques Résumé : The purpose of the present study was to investigate the hypothesis that women with autism have poorer health compared with men with autism, and compared with women without autism. Utilizing electronic health records drawn from a single health care system serving over 2 million individuals, 2119 adults with diagnosed autism spectrum disorders were compared with age- and sex-matched controls. When considering health care utilization, we found evidence of multiplicative risk for conditions within some domains (i.e., nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders) such that women with autism spectrum disorder (ASD) experienced double jeopardy-meaning they had greater rates of health care utilization within a domain than what would separately be expected by virtue of being a woman and having ASD. For other domains (i.e., endocrine disorders, gastrointestinal disorders), the risk was additive such that being a female and having ASD were both associated with higher health care utilization, but there were no significant interaction effects. It was only with respect to one domain (cardiovascular) that rates of health care utilization were reflective of neither ASD diagnosis nor sex. Overall, our findings suggest that women with ASD are a vulnerable subgroup with high levels of health care utilization. LAY SUMMARY: This study asked whether women with autism have poorer health compared with men with autism, and compared with women without autism. To answer this question, we used data from electronic health records. We found that women with autism spectrum disorder (ASD) were at the greatest risk for health problems such as nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders. More research on health of women with ASD is needed. En ligne : http://dx.doi.org/10.1002/aur.2563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 [article] Health profiles of adults with autism spectrum disorder: Differences between women and men [Texte imprimé et/ou numérique] / Leann S. DAWALT, Auteur ; Julie LOUNDS TAYLOR, Auteur ; A. MOVAGHAR, Auteur ; J. HONG, Auteur ; B. KIM, Auteur ; M. H. BRILLIANT, Auteur ; M. R. MAILICK, Auteur . - p.1896-1904. Langues : Anglais (eng) in Autism Research > 14-9 (September 2021) . - p.1896-1904 Mots-clés : Adult  Autism Spectrum Disorder/complications/epidemiology  Autistic Disorder  Electronic Health Records  Female  Humans  Male  Sleep Wake Disorders  adults  electronic health records  health  health care utilization  sex differences Index. décimale : PER Périodiques Résumé : The purpose of the present study was to investigate the hypothesis that women with autism have poorer health compared with men with autism, and compared with women without autism. Utilizing electronic health records drawn from a single health care system serving over 2 million individuals, 2119 adults with diagnosed autism spectrum disorders were compared with age- and sex-matched controls. When considering health care utilization, we found evidence of multiplicative risk for conditions within some domains (i.e., nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders) such that women with autism spectrum disorder (ASD) experienced double jeopardy-meaning they had greater rates of health care utilization within a domain than what would separately be expected by virtue of being a woman and having ASD. For other domains (i.e., endocrine disorders, gastrointestinal disorders), the risk was additive such that being a female and having ASD were both associated with higher health care utilization, but there were no significant interaction effects. It was only with respect to one domain (cardiovascular) that rates of health care utilization were reflective of neither ASD diagnosis nor sex. Overall, our findings suggest that women with ASD are a vulnerable subgroup with high levels of health care utilization. LAY SUMMARY: This study asked whether women with autism have poorer health compared with men with autism, and compared with women without autism. To answer this question, we used data from electronic health records. We found that women with autism spectrum disorder (ASD) were at the greatest risk for health problems such as nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders. More research on health of women with ASD is needed. En ligne : http://dx.doi.org/10.1002/aur.2563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449

Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study / D. J. LAXMAN in Autism Research, 12-6 (June 2019)  

Public ISBD [article]  inAutism Research > 12-6 (June 2019) . - p.911-921 Titre : Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : D. J. LAXMAN, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur Année de publication : 2019 Article en page(s) : p.911-921 Langues : Anglais (eng) Mots-clés : adolescence  adulthood  autism  intellectual disability  services  transition Index. décimale : PER Périodiques Résumé : The present longitudinal study investigated changes in service receipt and unmet service needs spanning 14 years before and after high school exit in a large community-based sample of individuals with autism spectrum disorder (ASD) (n = 204), of whom 59% had co-occurring intellectual disability (ID). Using multilevel models, potential discontinuity of service patterns at the point of high school exit was examined, as well as the rate of change in services received and needed during the high school years and into the post-high school period. Differences between those with and without ID were probed. Study findings indicated that overall, sample members experienced a reduction in receipt of services during high school, particularly for those without co-occurring ID. After high school exit, sample members experienced a decline in services received; for those without ID, there was a continuous rate of loss of services after leaving high school but for those with ID, there was a sharp decline in services received. Unmet service needs increased right after high school exit for both those with and without ID. These patterns reflect loss of entitlement for services that accompanies high school exit, and the limited availability of adult services for individuals with ASD. This study documented not only the post-high school service cliff that has been the subject of much concern, but also that the loss of services begins long before high school exit and that subgroups of the population with ASD are particularly vulnerable. Autism Res 2019, 12: 911-921. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: In this research, we studied changes in the number of services received before and after high school exit in a large sample of individuals with autism spectrum disorder (ASD). With each passing year during high school, individuals with ASD received fewer services. At the time of high school exit, there was a sharp drop in the number of services received, particularly for those with co-occurring intellectual disability. This study found not only that there is a post-high school service cliff, but also that the loss of services begins long before high school exit. En ligne : https://dx.doi.org/10.1002/aur.2113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study [Texte imprimé et/ou numérique] / D. J. LAXMAN, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Leann S. DAWALT, Auteur ; J. S. GREENBERG, Auteur ; M. R. MAILICK, Auteur . - 2019 . - p.911-921. Langues : Anglais (eng) in Autism Research > 12-6 (June 2019) . - p.911-921 Mots-clés : adolescence  adulthood  autism  intellectual disability  services  transition Index. décimale : PER Périodiques Résumé : The present longitudinal study investigated changes in service receipt and unmet service needs spanning 14 years before and after high school exit in a large community-based sample of individuals with autism spectrum disorder (ASD) (n = 204), of whom 59% had co-occurring intellectual disability (ID). Using multilevel models, potential discontinuity of service patterns at the point of high school exit was examined, as well as the rate of change in services received and needed during the high school years and into the post-high school period. Differences between those with and without ID were probed. Study findings indicated that overall, sample members experienced a reduction in receipt of services during high school, particularly for those without co-occurring ID. After high school exit, sample members experienced a decline in services received; for those without ID, there was a continuous rate of loss of services after leaving high school but for those with ID, there was a sharp decline in services received. Unmet service needs increased right after high school exit for both those with and without ID. These patterns reflect loss of entitlement for services that accompanies high school exit, and the limited availability of adult services for individuals with ASD. This study documented not only the post-high school service cliff that has been the subject of much concern, but also that the loss of services begins long before high school exit and that subgroups of the population with ASD are particularly vulnerable. Autism Res 2019, 12: 911-921. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: In this research, we studied changes in the number of services received before and after high school exit in a large sample of individuals with autism spectrum disorder (ASD). With each passing year during high school, individuals with ASD received fewer services. At the time of high school exit, there was a sharp drop in the number of services received, particularly for those with co-occurring intellectual disability. This study found not only that there is a post-high school service cliff, but also that the loss of services begins long before high school exit. En ligne : https://dx.doi.org/10.1002/aur.2113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

Mortality in individuals with autism spectrum disorder: Predictors over a 20-year period / Leann S. DAWALT in Autism, 23-7 (October 2019)  

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Transitioning Together: A Multi-family Group Psychoeducation Program for Adolescents with ASD and Their Parents / Leann S. DAWALT in Journal of Autism and Developmental Disorders, 48-1 (January 2018)  

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Using machine learning to identify patterns of lifetime health problems in decedents with autism spectrum disorder / Lauren BISHOP-FITZPATRICK in Autism Research, 11-8 (August 2018)  

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