Challenges encountered with a mindfulness app: Lessons learnt from a pilot randomized trial involving caregivers and individuals with autism / Matthew HARTLEY in Research in Autism Spectrum Disorders, 96 (August 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 96 (August 2022) . - 101991 Titre : Challenges encountered with a mindfulness app: Lessons learnt from a pilot randomized trial involving caregivers and individuals with autism Type de document : texte imprimé Auteurs : Matthew HARTLEY, Auteur ; Diana S. DORSTYN, Auteur ; Clemence DUE, Auteur Article en page(s) : 101991 Langues : Anglais (eng) Mots-clés : Smartphone  Parents  Mindfulness  Children  Autism Index. décimale : PER Périodiques Résumé : Background We undertook a trial to examine the feasibility of a self-guided mindfulness app, Smiling Mind, for children and adults with Autism Spectrum Disorder (ASD) and their parents. The trial encountered problems in recruitment, enrollment and retention which are described here. Methods : Of 169 eligible participants, only 22 consented and were randomly assigned to Smiling Mind (n = 12) or an attention control condition (n = 10). A further six participants withdrew during the study. Barriers to trial participation were subsequently explored through semi-structured interviews, to form case studies, and a follow-up survey. Results Interview and survey data highlighted parents? competing time commitments as a key barrier to participation. For children and adults with ASD, distraction and boredom were major challenges to engagement. Conclusions A number of modifiable variables in our recruitment procedures and intervention design ultimately resulted in a sample size that was too small to draw any firm conclusions from. Future ASD research can maximize sampling by broadening recruitment strategies and partnering with community services and schools. Engagement in mindfulness could also be improved by incorporating regular communication to motivate time poor participants. En ligne : https://doi.org/10.1016/j.rasd.2022.101991 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=480 [article] Challenges encountered with a mindfulness app: Lessons learnt from a pilot randomized trial involving caregivers and individuals with autism [texte imprimé] / Matthew HARTLEY, Auteur ; Diana S. DORSTYN, Auteur ; Clemence DUE, Auteur . - 101991. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 96 (August 2022) . - 101991 Mots-clés : Smartphone  Parents  Mindfulness  Children  Autism Index. décimale : PER Périodiques Résumé : Background We undertook a trial to examine the feasibility of a self-guided mindfulness app, Smiling Mind, for children and adults with Autism Spectrum Disorder (ASD) and their parents. The trial encountered problems in recruitment, enrollment and retention which are described here. Methods : Of 169 eligible participants, only 22 consented and were randomly assigned to Smiling Mind (n = 12) or an attention control condition (n = 10). A further six participants withdrew during the study. Barriers to trial participation were subsequently explored through semi-structured interviews, to form case studies, and a follow-up survey. Results Interview and survey data highlighted parents? competing time commitments as a key barrier to participation. For children and adults with ASD, distraction and boredom were major challenges to engagement. Conclusions A number of modifiable variables in our recruitment procedures and intervention design ultimately resulted in a sample size that was too small to draw any firm conclusions from. Future ASD research can maximize sampling by broadening recruitment strategies and partnering with community services and schools. Engagement in mindfulness could also be improved by incorporating regular communication to motivate time poor participants. En ligne : https://doi.org/10.1016/j.rasd.2022.101991 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=480

Mindfulness for Children and Adults with Autism Spectrum Disorder and Their Caregivers: A Meta-analysis / M. HARTLEY in Journal of Autism and Developmental Disorders, 49-10 (October 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4306-4319 Titre : Mindfulness for Children and Adults with Autism Spectrum Disorder and Their Caregivers: A Meta-analysis Type de document : texte imprimé Auteurs : M. HARTLEY, Auteur ; Diana S. DORSTYN, Auteur ; C. DUE, Auteur Article en page(s) : p.4306-4319 Langues : Anglais (eng) Mots-clés : Intellectual disability  Mental health  Parents  Subjective wellbeing  Systematic review Index. décimale : PER Périodiques Résumé : Mindfulness-based therapies are rising in popularity. However, evidence for their effectiveness in reducing psychological distress and enhancing wellbeing for families living with autism spectrum disorder (ASD) is limited. A systematic search identified 10 independent studies, involving a pooled sample of 233 children and adults with ASD and 241 caregivers. Hedges' g effect sizes with associated 95% confidence intervals, in addition to heterogeneity, were calculated using a random-effects model. Caregivers, children and adults who received mindfulness all reported significant gains in subjective wellbeing immediately post-intervention. Available data indicated intervention effects were maintained at 3-month follow-up. Mindfulness presents a promising intervention strategy in ASD populations, however more controlled research is required to determine its precise efficacy for affected families and subgroups. En ligne : http://dx.doi.org/10.1007/s10803-019-04145-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Mindfulness for Children and Adults with Autism Spectrum Disorder and Their Caregivers: A Meta-analysis [texte imprimé] / M. HARTLEY, Auteur ; Diana S. DORSTYN, Auteur ; C. DUE, Auteur . - p.4306-4319. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4306-4319 Mots-clés : Intellectual disability  Mental health  Parents  Subjective wellbeing  Systematic review Index. décimale : PER Périodiques Résumé : Mindfulness-based therapies are rising in popularity. However, evidence for their effectiveness in reducing psychological distress and enhancing wellbeing for families living with autism spectrum disorder (ASD) is limited. A systematic search identified 10 independent studies, involving a pooled sample of 233 children and adults with ASD and 241 caregivers. Hedges' g effect sizes with associated 95% confidence intervals, in addition to heterogeneity, were calculated using a random-effects model. Caregivers, children and adults who received mindfulness all reported significant gains in subjective wellbeing immediately post-intervention. Available data indicated intervention effects were maintained at 3-month follow-up. Mindfulness presents a promising intervention strategy in ASD populations, however more controlled research is required to determine its precise efficacy for affected families and subgroups. En ligne : http://dx.doi.org/10.1007/s10803-019-04145-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Telehealth as a Psychological Intervention for Caregivers of Children with Neurodevelopmental Disorders: A Systematic Review with Effect Sizes / Ellen Kelson ; Diana S. DORSTYN in Journal of Autism and Developmental Disorders, 55-1 (January 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.43-58 Titre : Telehealth as a Psychological Intervention for Caregivers of Children with Neurodevelopmental Disorders: A Systematic Review with Effect Sizes : Journal of Autism and Developmental Disorders Type de document : texte imprimé Auteurs : Ellen Kelson, Auteur ; Diana S. DORSTYN, Auteur Article en page(s) : p.43-58 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Caregivers of children with a neurodevelopmental disorder report increased mental health difficulties but also barriers to accessing professional support. Psychological interventions via telehealth offer an accessible method of service delivery for these families. This review is the first to quantitatively evaluate available telehealth trials designed to promote caregivers' mental health. The PubMed, PsycINFO, CINAHL, Embase and Cochrane databases (from inception until 20th May 2023) were searched for telehealth trials targeting caregiver mental health. Hedges' g effect sizes were calculated, and findings reported by symptom domain (depression, anxiety, stress, distress), telehealth format (individual vs. group), and modality (webpage, text-messaging, video). Reporting bias (QualSyst tool) and publication bias (Doi plot) were also assessed. Twelve independent studies (N = 769 caregivers), including eight controlled trials and four quasi-experimental (pre-post, single group) designs, were included. Most studies were of acceptable methodological quality. Evidence for improved mental health was found for telehealth (g range = 0.394-1.955), regardless of the method of delivery. The longevity of these effects could not, however, be determined. The present findings suggest that psychological interventions delivered by telephone and/or the internet can be used to effectively manage caregivers' mental health symptoms, although consideration must be given to an individual?s treatment preferences and requirements. Further non-inferiority trials, with a diverse sample, can determine whether telehealth interventions provide a comparable alternative to face-to-face treatment. Protocol registration on Open Science Framework: https://osf.io/ctqne/. En ligne : https://doi.org/10.1007/s10803-023-06185-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] Telehealth as a Psychological Intervention for Caregivers of Children with Neurodevelopmental Disorders: A Systematic Review with Effect Sizes : Journal of Autism and Developmental Disorders [texte imprimé] / Ellen Kelson, Auteur ; Diana S. DORSTYN, Auteur . - p.43-58. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-1 (January 2025) . - p.43-58 Index. décimale : PER Périodiques Résumé : Caregivers of children with a neurodevelopmental disorder report increased mental health difficulties but also barriers to accessing professional support. Psychological interventions via telehealth offer an accessible method of service delivery for these families. This review is the first to quantitatively evaluate available telehealth trials designed to promote caregivers' mental health. The PubMed, PsycINFO, CINAHL, Embase and Cochrane databases (from inception until 20th May 2023) were searched for telehealth trials targeting caregiver mental health. Hedges' g effect sizes were calculated, and findings reported by symptom domain (depression, anxiety, stress, distress), telehealth format (individual vs. group), and modality (webpage, text-messaging, video). Reporting bias (QualSyst tool) and publication bias (Doi plot) were also assessed. Twelve independent studies (N = 769 caregivers), including eight controlled trials and four quasi-experimental (pre-post, single group) designs, were included. Most studies were of acceptable methodological quality. Evidence for improved mental health was found for telehealth (g range = 0.394-1.955), regardless of the method of delivery. The longevity of these effects could not, however, be determined. The present findings suggest that psychological interventions delivered by telephone and/or the internet can be used to effectively manage caregivers' mental health symptoms, although consideration must be given to an individual?s treatment preferences and requirements. Further non-inferiority trials, with a diverse sample, can determine whether telehealth interventions provide a comparable alternative to face-to-face treatment. Protocol registration on Open Science Framework: https://osf.io/ctqne/. En ligne : https://doi.org/10.1007/s10803-023-06185-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

The Protective Role of Social Support Sources and Types Against Depression in Caregivers: A Meta-Analysis / Vanessa F. SCHILLER in Journal of Autism and Developmental Disorders, 51-4 (April 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-4 (April 2021) . - p.1304-1315 Titre : The Protective Role of Social Support Sources and Types Against Depression in Caregivers: A Meta-Analysis Type de document : texte imprimé Auteurs : Vanessa F. SCHILLER, Auteur ; Diana S. DORSTYN, Auteur ; Amanda M. TAYLOR, Auteur Article en page(s) : p.1304-1315 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Depression  Family  Mental health  Parents  Social environment Index. décimale : PER Périodiques Résumé : The protective effects of social support for caregiver mental health are well documented, however the differential impact of support providers (partner, child, family, siblings, friends, professionals) and types (perceived, received) remain unclear. Observational data from 21 independent studies, involving a pooled sample of 2273 parents, stepparents and grandparents of children (aged ≤ 19) with autism spectrum disorder (ASD) were examined. Pearson's r, publication bias and heterogeneity were calculated using random effects modelling. Significant associations were noted between lowered depressive symptoms and positive sources of support, regardless of support type. Parental mental health can be enhanced by strengthening close personal relationships alongside connections with formal support services. Longitudinal research is needed to explore support need and perceived helpfulness over time. En ligne : http://dx.doi.org/10.1007/s10803-020-04601-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] The Protective Role of Social Support Sources and Types Against Depression in Caregivers: A Meta-Analysis [texte imprimé] / Vanessa F. SCHILLER, Auteur ; Diana S. DORSTYN, Auteur ; Amanda M. TAYLOR, Auteur . - p.1304-1315. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-4 (April 2021) . - p.1304-1315 Mots-clés : Autism spectrum disorder  Depression  Family  Mental health  Parents  Social environment Index. décimale : PER Périodiques Résumé : The protective effects of social support for caregiver mental health are well documented, however the differential impact of support providers (partner, child, family, siblings, friends, professionals) and types (perceived, received) remain unclear. Observational data from 21 independent studies, involving a pooled sample of 2273 parents, stepparents and grandparents of children (aged ≤ 19) with autism spectrum disorder (ASD) were examined. Pearson's r, publication bias and heterogeneity were calculated using random effects modelling. Significant associations were noted between lowered depressive symptoms and positive sources of support, regardless of support type. Parental mental health can be enhanced by strengthening close personal relationships alongside connections with formal support services. Longitudinal research is needed to explore support need and perceived helpfulness over time. En ligne : http://dx.doi.org/10.1007/s10803-020-04601-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

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