Autism Spectrum Disorder and Mental Health Problems: Patterns of Difficulties and Longitudinal Trajectories in a Population-Based Twin Sample / E. COLVERT in Journal of Autism and Developmental Disorders, 52-3 (March 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1077-1091 Titre : Autism Spectrum Disorder and Mental Health Problems: Patterns of Difficulties and Longitudinal Trajectories in a Population-Based Twin Sample Type de document : Texte imprimé et/ou numérique Auteurs : E. COLVERT, Auteur ; E. SIMONOFF, Auteur ; Simone J CAPP, Auteur ; A. RONALD, Auteur ; Patrick BOLTON, Auteur ; Francesca HAPPE, Auteur Article en page(s) : p.1077-1091 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder/complications/diagnosis/epidemiology  Child  Child, Preschool  Diseases in Twins/diagnosis/epidemiology  Humans  Mental Health  Phenotype  Twins  Adolescents  Autism spectrum disorders  Longitudinal research Index. décimale : PER Périodiques Résumé : There is increasing concern regarding additional psychiatric problems that co-occur with Autism Spectrum Disorder (ASD), as reflected in recent changes to diagnostic schemes. However, there remains little research with population-based samples across childhood. We report on additional problems, as measured by the Strengths and Difficulties Questionnaire, in a population-based sample of 135 twins with ASD, 55 non-ASD co-twins, and 144 comparison twins low in ASD traits. Frequencies, associated demographic factors, and changes in mental health difficulties from age 4 to 13 years are presented. Our data confirm the high rates of additional difficulties reported in previous studies, and suggest that the profile, associated risk factors and longitudinal course of additional difficulties in ASD may differ from those in typically-developing populations. En ligne : http://dx.doi.org/10.1007/s10803-021-05006-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] Autism Spectrum Disorder and Mental Health Problems: Patterns of Difficulties and Longitudinal Trajectories in a Population-Based Twin Sample [Texte imprimé et/ou numérique] / E. COLVERT, Auteur ; E. SIMONOFF, Auteur ; Simone J CAPP, Auteur ; A. RONALD, Auteur ; Patrick BOLTON, Auteur ; Francesca HAPPE, Auteur . - p.1077-1091. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1077-1091 Mots-clés : Adolescent  Autism Spectrum Disorder/complications/diagnosis/epidemiology  Child  Child, Preschool  Diseases in Twins/diagnosis/epidemiology  Humans  Mental Health  Phenotype  Twins  Adolescents  Autism spectrum disorders  Longitudinal research Index. décimale : PER Périodiques Résumé : There is increasing concern regarding additional psychiatric problems that co-occur with Autism Spectrum Disorder (ASD), as reflected in recent changes to diagnostic schemes. However, there remains little research with population-based samples across childhood. We report on additional problems, as measured by the Strengths and Difficulties Questionnaire, in a population-based sample of 135 twins with ASD, 55 non-ASD co-twins, and 144 comparison twins low in ASD traits. Frequencies, associated demographic factors, and changes in mental health difficulties from age 4 to 13 years are presented. Our data confirm the high rates of additional difficulties reported in previous studies, and suggest that the profile, associated risk factors and longitudinal course of additional difficulties in ASD may differ from those in typically-developing populations. En ligne : http://dx.doi.org/10.1007/s10803-021-05006-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression / D. MASON in Journal of Autism and Developmental Disorders, 51-9 (September 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3165-3179 Titre : A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression Type de document : Texte imprimé et/ou numérique Auteurs : D. MASON, Auteur ; Simone J CAPP, Auteur ; G. R. STEWART, Auteur ; M. J. KEMPTON, Auteur ; K. GLASER, Auteur ; P. HOWLIN, Auteur ; Francesca HAPPE, Auteur Article en page(s) : p.3165-3179 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Humans  Outcome Assessment, Health Care  Autism spectrum disorder  Functioning  Meta-analysis  Outcome Index. décimale : PER Périodiques Résumé : Longitudinal studies have generally reported poor outcomes in adulthood for the majority of individuals (c.50-60%) with autism. Several factors putatively predict outcome (e.g. IQ), but findings remain mixed. This paper presents an updated meta-analysis of autism outcome studies and extends previous findings with additional analyses (including meta-regression). A total of 4088 records was screened and 18 studies, involving 1199 individuals, were included in the quantitative analysis. Estimated percentages indicated that 20.0% of participants were rated as having a good outcome, 26.6% a fair outcome, and 49.3% a poor outcome. Meta-regression indicated that lower IQ in adulthood was predictive of poor outcome; other meta-regression models did not survive correction for multiple comparisons. Overall, outcomes for autistic people are on average poor, and higher IQ appears to be protective against having a poor outcome. The limitations of current constructs of outcome are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04763-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression [Texte imprimé et/ou numérique] / D. MASON, Auteur ; Simone J CAPP, Auteur ; G. R. STEWART, Auteur ; M. J. KEMPTON, Auteur ; K. GLASER, Auteur ; P. HOWLIN, Auteur ; Francesca HAPPE, Auteur . - p.3165-3179. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3165-3179 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Humans  Outcome Assessment, Health Care  Autism spectrum disorder  Functioning  Meta-analysis  Outcome Index. décimale : PER Périodiques Résumé : Longitudinal studies have generally reported poor outcomes in adulthood for the majority of individuals (c.50-60%) with autism. Several factors putatively predict outcome (e.g. IQ), but findings remain mixed. This paper presents an updated meta-analysis of autism outcome studies and extends previous findings with additional analyses (including meta-regression). A total of 4088 records was screened and 18 studies, involving 1199 individuals, were included in the quantitative analysis. Estimated percentages indicated that 20.0% of participants were rated as having a good outcome, 26.6% a fair outcome, and 49.3% a poor outcome. Meta-regression indicated that lower IQ in adulthood was predictive of poor outcome; other meta-regression models did not survive correction for multiple comparisons. Overall, outcomes for autistic people are on average poor, and higher IQ appears to be protective against having a poor outcome. The limitations of current constructs of outcome are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04763-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

“This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals / Debbie SPAIN in Research in Autism Spectrum Disorders, 83 (May 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 83 (May 2021) . - 101747 Titre : “This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals Type de document : Texte imprimé et/ou numérique Auteurs : Debbie SPAIN, Auteur ; David MASON, Auteur ; Simone J CAPP, Auteur ; Laura STOPPELBEIN, Auteur ; Susan W. WHITE, Auteur ; Francesca HAPPE, Auteur Article en page(s) : 101747 Langues : Anglais (eng) Mots-clés : Autism  COVID-19  Health professionals  Health and social care  Telehealth Index. décimale : PER Périodiques Résumé : Background The COVID-19 (C-19) pandemic affects everyone. Autistic individuals may be at increased risk of experiencing difficulties coping with the impact of C-19 (e.g. due to unexpected changes to usual activities and routines, and the general sense of uncertainty). This preliminary study gathered the perspectives of health and social care professionals, and researchers, about: (1) vulnerability factors for coping with the pandemic; (2) the impact of the pandemic; (3) service provision during the pandemic; and (4) interventions to support reintegration during and post the pandemic. Method We conducted an online survey, comprising Likert-scale and free text responses. Quantitative data were analysed descriptively, and qualitative data thematically. Results Thirty-seven participants, working in clinical, education and academic settings with autistic individuals, completed the survey. C-19 had substantially impacted service provision, causing major disruption or loss of services. Thematic analysis indicated six overarching themes: (1) vulnerability factors for coping with C-19 and lockdown; (2) positive and negative impact of lockdown (for autistic individuals, families and professionals); (3) public health response to C-19; (4) service provision during the pandemic; (5) inequalities; and (6) looking to the future. Conclusions Professionals, across disciplines and settings, must now work together with autistic individuals and their families, to understand the impact of these extraordinary circumstances and develop ways everyone can be supported more effectively. En ligne : https://doi.org/10.1016/j.rasd.2021.101747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446 [article] “This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals [Texte imprimé et/ou numérique] / Debbie SPAIN, Auteur ; David MASON, Auteur ; Simone J CAPP, Auteur ; Laura STOPPELBEIN, Auteur ; Susan W. WHITE, Auteur ; Francesca HAPPE, Auteur . - 101747. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101747 Mots-clés : Autism  COVID-19  Health professionals  Health and social care  Telehealth Index. décimale : PER Périodiques Résumé : Background The COVID-19 (C-19) pandemic affects everyone. Autistic individuals may be at increased risk of experiencing difficulties coping with the impact of C-19 (e.g. due to unexpected changes to usual activities and routines, and the general sense of uncertainty). This preliminary study gathered the perspectives of health and social care professionals, and researchers, about: (1) vulnerability factors for coping with the pandemic; (2) the impact of the pandemic; (3) service provision during the pandemic; and (4) interventions to support reintegration during and post the pandemic. Method We conducted an online survey, comprising Likert-scale and free text responses. Quantitative data were analysed descriptively, and qualitative data thematically. Results Thirty-seven participants, working in clinical, education and academic settings with autistic individuals, completed the survey. C-19 had substantially impacted service provision, causing major disruption or loss of services. Thematic analysis indicated six overarching themes: (1) vulnerability factors for coping with C-19 and lockdown; (2) positive and negative impact of lockdown (for autistic individuals, families and professionals); (3) public health response to C-19; (4) service provision during the pandemic; (5) inequalities; and (6) looking to the future. Conclusions Professionals, across disciplines and settings, must now work together with autistic individuals and their families, to understand the impact of these extraordinary circumstances and develop ways everyone can be supported more effectively. En ligne : https://doi.org/10.1016/j.rasd.2021.101747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446

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