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Auteur P. HOWLIN |
Documents disponibles écrits par cet auteur (12)



Adults with Autism: Changes in Understanding Since DSM-111 / P. HOWLIN in Journal of Autism and Developmental Disorders, 51-12 (December 2021)
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Titre : Adults with Autism: Changes in Understanding Since DSM-111 Type de document : Texte imprimé et/ou numérique Auteurs : P. HOWLIN, Auteur Article en page(s) : p.4291-4308 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/diagnosis Autistic Disorder/diagnosis Child Employment Humans Prognosis Adulthood Autism Lifetime trajectories Outcomes Index. décimale : PER Périodiques Résumé : Over the past four decades there have been significant advances in our understanding of autism, yet services for autistic adults continue to lag far behind those for children, and prospects for employment and independent living remain poor. Adult outcomes also vary widely and while cognitive and language abilities are important prognostic indicators, the influence of social, emotional, familial and many other factors remains uncertain. For this special issue marking the 40th anniversary of DSM-III, the present paper describes the changing perspectives of autism in adulthood that have occurred over this period, explores individual and wider environmental factors related to outcome, and suggests ways in which services need to be changed to improve the future for adults living with autism. En ligne : http://dx.doi.org/10.1007/s10803-020-04847-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454
in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4291-4308[article] Adults with Autism: Changes in Understanding Since DSM-111 [Texte imprimé et/ou numérique] / P. HOWLIN, Auteur . - p.4291-4308.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4291-4308
Mots-clés : Adult Autism Spectrum Disorder/diagnosis Autistic Disorder/diagnosis Child Employment Humans Prognosis Adulthood Autism Lifetime trajectories Outcomes Index. décimale : PER Périodiques Résumé : Over the past four decades there have been significant advances in our understanding of autism, yet services for autistic adults continue to lag far behind those for children, and prospects for employment and independent living remain poor. Adult outcomes also vary widely and while cognitive and language abilities are important prognostic indicators, the influence of social, emotional, familial and many other factors remains uncertain. For this special issue marking the 40th anniversary of DSM-III, the present paper describes the changing perspectives of autism in adulthood that have occurred over this period, explores individual and wider environmental factors related to outcome, and suggests ways in which services need to be changed to improve the future for adults living with autism. En ligne : http://dx.doi.org/10.1007/s10803-020-04847-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 Anxiety Disorders in Williams Syndrome Contrasted with Intellectual Disability and the General Population: A Systematic Review and Meta-Analysis / R. ROYSTON in Journal of Autism and Developmental Disorders, 47-12 (December 2017)
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Titre : Anxiety Disorders in Williams Syndrome Contrasted with Intellectual Disability and the General Population: A Systematic Review and Meta-Analysis Type de document : Texte imprimé et/ou numérique Auteurs : R. ROYSTON, Auteur ; P. HOWLIN, Auteur ; J. WAITE, Auteur ; C. OLIVER, Auteur Année de publication : 2017 Article en page(s) : p.3765-3777 Langues : Anglais (eng) Mots-clés : Anxiety disorders Genetic syndromes Intellectual disability Meta-analysis Systematic review Williams syndrome Index. décimale : PER Périodiques Résumé : Individuals with specific genetic syndromes associated with intellectual disability (ID), such as Williams syndrome (WS), are at increased risk for developing anxiety disorders. A systematic literature review identified sixteen WS papers that could generate pooled prevalence estimates of anxiety disorders for WS. A meta-analysis compared these estimates with prevalence estimates for the heterogeneous ID population and the general population. Estimated rates of anxiety disorders in WS were high. WS individuals were four times more likely to experience anxiety than individuals with ID, and the risk was also heightened compared to the general population. The results provide further evidence of an unusual profile of high anxiety in WS. En ligne : http://dx.doi.org/10.1007/s10803-016-2909-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325
in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3765-3777[article] Anxiety Disorders in Williams Syndrome Contrasted with Intellectual Disability and the General Population: A Systematic Review and Meta-Analysis [Texte imprimé et/ou numérique] / R. ROYSTON, Auteur ; P. HOWLIN, Auteur ; J. WAITE, Auteur ; C. OLIVER, Auteur . - 2017 . - p.3765-3777.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3765-3777
Mots-clés : Anxiety disorders Genetic syndromes Intellectual disability Meta-analysis Systematic review Williams syndrome Index. décimale : PER Périodiques Résumé : Individuals with specific genetic syndromes associated with intellectual disability (ID), such as Williams syndrome (WS), are at increased risk for developing anxiety disorders. A systematic literature review identified sixteen WS papers that could generate pooled prevalence estimates of anxiety disorders for WS. A meta-analysis compared these estimates with prevalence estimates for the heterogeneous ID population and the general population. Estimated rates of anxiety disorders in WS were high. WS individuals were four times more likely to experience anxiety than individuals with ID, and the risk was also heightened compared to the general population. The results provide further evidence of an unusual profile of high anxiety in WS. En ligne : http://dx.doi.org/10.1007/s10803-016-2909-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 Associations Between Child Sleep Problem Severity and Maternal Well-Being in Children with Autism Spectrum Disorder / C. A. MARTIN in Journal of Autism and Developmental Disorders, 51-7 (July 2021)
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Titre : Associations Between Child Sleep Problem Severity and Maternal Well-Being in Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : C. A. MARTIN, Auteur ; E. SCIBERRAS, Auteur ; N. PAPADOPOULOS, Auteur ; L. ENGEL, Auteur ; H. HISCOCK, Auteur ; K. WILLIAMS, Auteur ; P. HOWLIN, Auteur ; J. MCGILLIVRAY, Auteur ; Nicole J. RINEHART, Auteur Article en page(s) : p.2500-2510 Langues : Anglais (eng) Mots-clés : Adolescent Adult Autism Spectrum Disorder Child Child, Preschool Female Humans Male Mental Health Parents/psychology Quality of Life Sleep Wake Disorders Stress, Psychological/epidemiology Surveys and Questionnaires Asd Parenting stress Quality of life Sleep Well-being Index. décimale : PER Périodiques Résumé : This study investigated whether sleep problem severity in children with autism spectrum disorder was associated with maternal well-being. Mothers of 234 children reported on their mental health (Kessler Psychological Distress Scale), parenting stress (Parenting Stress Index-4-SF), health-related quality of life (HRQoL; Assessment of Quality of Life-4D) and their child's sleep (Children's Sleep Habits Questionnaire-ASD). Analyses revealed sleep initiation and duration problem severity scores were associated with increased mental health difficulties. Specific child sleep problems were not associated with parenting stress or HRQoL. This study revealed the importance of considering sleep and the family system when assessing maternal well-being. Future research considering parent, child and family factors will be important to informing a family focused approach to mental health. En ligne : http://dx.doi.org/10.1007/s10803-020-04726-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2500-2510[article] Associations Between Child Sleep Problem Severity and Maternal Well-Being in Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / C. A. MARTIN, Auteur ; E. SCIBERRAS, Auteur ; N. PAPADOPOULOS, Auteur ; L. ENGEL, Auteur ; H. HISCOCK, Auteur ; K. WILLIAMS, Auteur ; P. HOWLIN, Auteur ; J. MCGILLIVRAY, Auteur ; Nicole J. RINEHART, Auteur . - p.2500-2510.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2500-2510
Mots-clés : Adolescent Adult Autism Spectrum Disorder Child Child, Preschool Female Humans Male Mental Health Parents/psychology Quality of Life Sleep Wake Disorders Stress, Psychological/epidemiology Surveys and Questionnaires Asd Parenting stress Quality of life Sleep Well-being Index. décimale : PER Périodiques Résumé : This study investigated whether sleep problem severity in children with autism spectrum disorder was associated with maternal well-being. Mothers of 234 children reported on their mental health (Kessler Psychological Distress Scale), parenting stress (Parenting Stress Index-4-SF), health-related quality of life (HRQoL; Assessment of Quality of Life-4D) and their child's sleep (Children's Sleep Habits Questionnaire-ASD). Analyses revealed sleep initiation and duration problem severity scores were associated with increased mental health difficulties. Specific child sleep problems were not associated with parenting stress or HRQoL. This study revealed the importance of considering sleep and the family system when assessing maternal well-being. Future research considering parent, child and family factors will be important to informing a family focused approach to mental health. En ligne : http://dx.doi.org/10.1007/s10803-020-04726-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 Brief Report: Repetitive Behaviour Profiles in Williams syndrome: Cross Syndrome Comparisons with Prader-Willi and Down syndromes / R. ROYSTON in Journal of Autism and Developmental Disorders, 48-1 (January 2018)
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Titre : Brief Report: Repetitive Behaviour Profiles in Williams syndrome: Cross Syndrome Comparisons with Prader-Willi and Down syndromes Type de document : Texte imprimé et/ou numérique Auteurs : R. ROYSTON, Auteur ; C. OLIVER, Auteur ; J. MOSS, Auteur ; D. ADAMS, Auteur ; K. BERG, Auteur ; Cheryl BURBIDGE, Auteur ; P. HOWLIN, Auteur ; L. NELSON, Auteur ; C. STINTON, Auteur ; J. WAITE, Auteur Article en page(s) : p.326-331 Langues : Anglais (eng) Mots-clés : Down syndrome Prader-Willi syndrome Repetitive behaviour Williams syndrome Index. décimale : PER Périodiques Résumé : This study describes the profile of repetitive behaviour in individuals with Williams syndrome, utilising cross-syndrome comparisons with people with Prader-Willi and Down syndromes. The Repetitive Behaviour Questionnaire was administered to caregivers of adults with Williams (n = 96), Prader-Willi (n = 103) and Down (n = 78) syndromes. There were few group differences, although participants with Williams syndrome were more likely to show body stereotypies. Individuals with Williams syndrome also showed more hoarding and less tidying behaviours than those with Down syndrome. IQ and adaptive ability were negatively associated with repetitive questioning in people with Williams syndrome. The profile of repetitive behaviour amongst individuals with Williams syndrome was similar to the comparison syndromes. The cognitive mechanisms underlying these behaviours in genetic syndromes warrant further investigation. En ligne : https://doi.org/10.1007/s10803-017-3319-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.326-331[article] Brief Report: Repetitive Behaviour Profiles in Williams syndrome: Cross Syndrome Comparisons with Prader-Willi and Down syndromes [Texte imprimé et/ou numérique] / R. ROYSTON, Auteur ; C. OLIVER, Auteur ; J. MOSS, Auteur ; D. ADAMS, Auteur ; K. BERG, Auteur ; Cheryl BURBIDGE, Auteur ; P. HOWLIN, Auteur ; L. NELSON, Auteur ; C. STINTON, Auteur ; J. WAITE, Auteur . - p.326-331.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.326-331
Mots-clés : Down syndrome Prader-Willi syndrome Repetitive behaviour Williams syndrome Index. décimale : PER Périodiques Résumé : This study describes the profile of repetitive behaviour in individuals with Williams syndrome, utilising cross-syndrome comparisons with people with Prader-Willi and Down syndromes. The Repetitive Behaviour Questionnaire was administered to caregivers of adults with Williams (n = 96), Prader-Willi (n = 103) and Down (n = 78) syndromes. There were few group differences, although participants with Williams syndrome were more likely to show body stereotypies. Individuals with Williams syndrome also showed more hoarding and less tidying behaviours than those with Down syndrome. IQ and adaptive ability were negatively associated with repetitive questioning in people with Williams syndrome. The profile of repetitive behaviour amongst individuals with Williams syndrome was similar to the comparison syndromes. The cognitive mechanisms underlying these behaviours in genetic syndromes warrant further investigation. En ligne : https://doi.org/10.1007/s10803-017-3319-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337 Effect of epilepsy on autism symptoms in Angelman syndrome / K. A. BAKKE in Molecular Autism, 9 (2018)
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Titre : Effect of epilepsy on autism symptoms in Angelman syndrome Type de document : Texte imprimé et/ou numérique Auteurs : K. A. BAKKE, Auteur ; P. HOWLIN, Auteur ; L. RETTERSTOL, Auteur ; O. J. KANAVIN, Auteur ; A. HEIBERG, Auteur ; T. NAERLAND, Auteur Article en page(s) : 2p. Langues : Anglais (eng) Mots-clés : Angelman syndrome Autism spectrum disorder Epilepsy Epileptic encephalopathy Seizure onset Index. décimale : PER Périodiques Résumé : Background: Autism spectrum disorder and epilepsy often co-occur; however, the extent to which the association between autism symptoms and epilepsy is due to shared aetiology or to the direct effects of seizures is a topic of ongoing debate. Angelman syndrome (AS) is presented as a suitable disease model to explore this association. Methods: Data from medical records and questionnaires were used to examine the association between age of epilepsy onset, autism symptoms, genetic aberration and communication level. Forty-eight participants had genetically verified AS (median age 14.5 years; range 1-57 years). A measure of autism symptoms (the Social Communication Questionnaire; SCQ) was completed for 38 individuals aged >/= 4 years. Genetic cause was subgrouped into deletion and other genetic aberrations of the 15q11-q13 area. The number of signs used to communicate (< 20 sign and >/= 20 signs) was used as a measure of nonverbal communication. Results: Mean age of epilepsy onset was 3.0 years (range 3 months-7.8 years). Mean SCQ score for individuals without epilepsy was 13.6 (SD = 6.7) and with epilepsy 17.0 (SD = 5.6; p = 0.17); 58% used fewer than 20 signs to communicate. There were no age differences between groups according to presence of epilepsy, level of nonverbal communication or type of genetic aberration. SCQ scores were higher in individuals with the deletion than in those with other genetic aberrations (18.7 vs 10.8 p = 0.008) and higher in the group who used < 20 signs to communicate (19.4 vs 14.1 p = 0.007). Age of epilepsy onset was correlated with SCQ (r = - 0.61, p < 0.001). Multiple regression showed that age of seizure onset was significantly related to SCQ score (beta = - 0.90; p = 0.006), even when the type of genetic abnormality was controlled (R(2) = 0.53; F = 10.7; p = 0.001). Conclusions: The study provides support for the notion that seizures themselves contribute more to autism symptoms than expected from the underlying genetic pathology alone. The study demonstrates how a rare genetic syndrome such as Angelman syndrome may be used to study the relation between epilepsy and autism symptomatology. En ligne : http://dx.doi.org/10.1186/s13229-017-0185-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=354
in Molecular Autism > 9 (2018) . - 2p.[article] Effect of epilepsy on autism symptoms in Angelman syndrome [Texte imprimé et/ou numérique] / K. A. BAKKE, Auteur ; P. HOWLIN, Auteur ; L. RETTERSTOL, Auteur ; O. J. KANAVIN, Auteur ; A. HEIBERG, Auteur ; T. NAERLAND, Auteur . - 2p.
Langues : Anglais (eng)
in Molecular Autism > 9 (2018) . - 2p.
Mots-clés : Angelman syndrome Autism spectrum disorder Epilepsy Epileptic encephalopathy Seizure onset Index. décimale : PER Périodiques Résumé : Background: Autism spectrum disorder and epilepsy often co-occur; however, the extent to which the association between autism symptoms and epilepsy is due to shared aetiology or to the direct effects of seizures is a topic of ongoing debate. Angelman syndrome (AS) is presented as a suitable disease model to explore this association. Methods: Data from medical records and questionnaires were used to examine the association between age of epilepsy onset, autism symptoms, genetic aberration and communication level. Forty-eight participants had genetically verified AS (median age 14.5 years; range 1-57 years). A measure of autism symptoms (the Social Communication Questionnaire; SCQ) was completed for 38 individuals aged >/= 4 years. Genetic cause was subgrouped into deletion and other genetic aberrations of the 15q11-q13 area. The number of signs used to communicate (< 20 sign and >/= 20 signs) was used as a measure of nonverbal communication. Results: Mean age of epilepsy onset was 3.0 years (range 3 months-7.8 years). Mean SCQ score for individuals without epilepsy was 13.6 (SD = 6.7) and with epilepsy 17.0 (SD = 5.6; p = 0.17); 58% used fewer than 20 signs to communicate. There were no age differences between groups according to presence of epilepsy, level of nonverbal communication or type of genetic aberration. SCQ scores were higher in individuals with the deletion than in those with other genetic aberrations (18.7 vs 10.8 p = 0.008) and higher in the group who used < 20 signs to communicate (19.4 vs 14.1 p = 0.007). Age of epilepsy onset was correlated with SCQ (r = - 0.61, p < 0.001). Multiple regression showed that age of seizure onset was significantly related to SCQ score (beta = - 0.90; p = 0.006), even when the type of genetic abnormality was controlled (R(2) = 0.53; F = 10.7; p = 0.001). Conclusions: The study provides support for the notion that seizures themselves contribute more to autism symptoms than expected from the underlying genetic pathology alone. The study demonstrates how a rare genetic syndrome such as Angelman syndrome may be used to study the relation between epilepsy and autism symptomatology. En ligne : http://dx.doi.org/10.1186/s13229-017-0185-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=354 Feasibility study of the National Autistic Society EarlyBird parent support programme / M. PALMER in Autism, 24-1 (January 2020)
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PermalinkA Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression / D. MASON in Journal of Autism and Developmental Disorders, 51-9 (September 2021)
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PermalinkObjective and subjective psychosocial outcomes in adults with autism spectrum disorder: A 6-year longitudinal study / Anke M. SCHEEREN in Autism, 26-1 (January 2022)
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Permalink“Older Adults with ASD: The Consequences of Aging.” Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017 / A. ROESTORF in Research in Autism Spectrum Disorders, 63 (July 2019)
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PermalinkPathological demand avoidance in children and adolescents: A systematic review / A. N. KILDAHL in Autism, 25-8 (November 2021)
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PermalinkPersonal experiences of the Criminal Justice System by individuals with autism spectrum disorders / S. B. HELVERSCHOU in Autism, 22-4 (May 2018)
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PermalinkThe Association Between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood / E. SALOMONE in Journal of Autism and Developmental Disorders, 48-4 (April 2018)
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