Short Report: An Examination of Children's Autism Traits and Their Association With Family Experience / Ella C. BROUWER in Autism Research, 19-8 (August 2026)  

Public ISBD [article]  inAutism Research > 19-8 (August 2026) . - p.e70303 Titre : Short Report: An Examination of Children's Autism Traits and Their Association With Family Experience Type de document : texte imprimé Auteurs : Ella C. BROUWER, Auteur ; Melissa SUSKO, Auteur ; Charee BOTHA, Auteur ; Amedeo D'ANGIULLI, Auteur ; Eric DUKU, Auteur ; Ana HANLON-DEARMAN, Auteur ; Vivian LEE, Auteur ; Elyse ROSA, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Teresa BENNETT, Auteur ; Yun-Ju CHEN, Auteur ; Briano DE REZZE, Auteur ; Irene DRMIC, Auteur ; Julia FREI, Auteur ; Katholiki GEORGIADES, Auteur ; Anna KATA, Auteur ; Olaf Kraus DE CAMARGO, Auteur ; Sherry FOURNIER, Auteur ; Stephen GENTLES, Auteur ; Judah KOLLER, Auteur ; Jonathan LAI, Auteur ; Patrick MCPHEE, Auteur ; Ronit MESTERMAN, Auteur ; Caroline RONCADIN, Auteur ; Peter ROSENBAUM, Auteur ; Deepa SINGAL, Auteur ; Elisabeth TRINARI, Auteur ; Stelios GEORGIADES, Auteur ; Elizabeth KELLEY, Auteur Article en page(s) : p.e70303 Langues : Anglais (eng) Mots-clés : autism  autistic traits  family experience  parenting Index. décimale : PER Périodiques Résumé : ABSTRACT The present study examined how the frequency and impact of autism traits were associated with parent-reported family experience, with differential consideration of parental experience and overall family life. Prior research has found an association between autism traits and family functioning; however, less is known about how the impact and frequency of these traits influence family experience. We analyzed data from families of 206 young autistic children (144 boys and 62 girls), aged 2?7, using the Autism Impact Measure (AIM) and the Autism Family Experience Questionnaire (AFEQ). Hierarchical regression analysis showed that the impact of autistic traits was significantly associated with parent experience scores and that the frequency of autistic traits was significantly associated with family life scores in the first-year post-diagnosis. Neither child age nor gender was significantly associated with parent experience or family life. This study highlights the importance of tailoring post-diagnosis family supports to the child's specific features and calls attention to areas for future investigation on this topic, including the exploration of longitudinal trends or demographic factors that may affect parent experience and family life. En ligne : https://doi.org/10.1002/aur.70303 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=589 [article] Short Report: An Examination of Children's Autism Traits and Their Association With Family Experience [texte imprimé] / Ella C. BROUWER, Auteur ; Melissa SUSKO, Auteur ; Charee BOTHA, Auteur ; Amedeo D'ANGIULLI, Auteur ; Eric DUKU, Auteur ; Ana HANLON-DEARMAN, Auteur ; Vivian LEE, Auteur ; Elyse ROSA, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Teresa BENNETT, Auteur ; Yun-Ju CHEN, Auteur ; Briano DE REZZE, Auteur ; Irene DRMIC, Auteur ; Julia FREI, Auteur ; Katholiki GEORGIADES, Auteur ; Anna KATA, Auteur ; Olaf Kraus DE CAMARGO, Auteur ; Sherry FOURNIER, Auteur ; Stephen GENTLES, Auteur ; Judah KOLLER, Auteur ; Jonathan LAI, Auteur ; Patrick MCPHEE, Auteur ; Ronit MESTERMAN, Auteur ; Caroline RONCADIN, Auteur ; Peter ROSENBAUM, Auteur ; Deepa SINGAL, Auteur ; Elisabeth TRINARI, Auteur ; Stelios GEORGIADES, Auteur ; Elizabeth KELLEY, Auteur . - p.e70303. Langues : Anglais (eng) in Autism Research > 19-8 (August 2026) . - p.e70303 Mots-clés : autism  autistic traits  family experience  parenting Index. décimale : PER Périodiques Résumé : ABSTRACT The present study examined how the frequency and impact of autism traits were associated with parent-reported family experience, with differential consideration of parental experience and overall family life. Prior research has found an association between autism traits and family functioning; however, less is known about how the impact and frequency of these traits influence family experience. We analyzed data from families of 206 young autistic children (144 boys and 62 girls), aged 2?7, using the Autism Impact Measure (AIM) and the Autism Family Experience Questionnaire (AFEQ). Hierarchical regression analysis showed that the impact of autistic traits was significantly associated with parent experience scores and that the frequency of autistic traits was significantly associated with family life scores in the first-year post-diagnosis. Neither child age nor gender was significantly associated with parent experience or family life. This study highlights the importance of tailoring post-diagnosis family supports to the child's specific features and calls attention to areas for future investigation on this topic, including the exploration of longitudinal trends or demographic factors that may affect parent experience and family life. En ligne : https://doi.org/10.1002/aur.70303 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=589

The impact of COVID-19 on the mental health and wellbeing of caregivers of autistic children and youth: A scoping review / Vivian LEE in Autism Research, 14-12 (December 2021)  

Public ISBD [article]  inAutism Research > 14-12 (December 2021) . - p.2477-2494 Titre : The impact of COVID-19 on the mental health and wellbeing of caregivers of autistic children and youth: A scoping review Type de document : texte imprimé Auteurs : Vivian LEE, Auteur ; Carly ALBAUM, Auteur ; Paula TABLON-MODICA, Auteur ; Farah AHMAD, Auteur ; Jan Willem GORTER, Auteur ; Nazilla KHANLOU, Auteur ; Carly A. MCMORRIS, Auteur ; Jonathan LAI, Auteur ; Cindy HARRISON, Auteur ; Teresa HEDLEY, Auteur ; Pari JOHNSTON, Auteur ; Connie PUTTERMAN, Auteur ; Margaret SPOELSTRA, Auteur ; Jonathan A. WEISS, Auteur Article en page(s) : p.2477-2494 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder  Autistic Disorder  Covid-19  Caregivers  Child  Communicable Disease Control  Humans  Mental Health  Pandemics  SARS-CoV-2  Covid  autism  caregivers  literature review  mental health Index. décimale : PER Périodiques Résumé : Caregivers and families of autistic people have experienced stress and increase in demands due to the COVID-19 pandemic that may have long-term negative consequences for both their own and their children's mental health. A scoping review was conducted to identify pandemic related demands experienced by caregivers and families of autistic children and youth. The review also consolidated information on coping strategies and parenting-related guidelines that have emerged to help parents meet these demands. Search strategies were approved by a research librarian and were conducted in peer-reviewed and gray literature databases between May 2020 and February 2021. Additional resources were solicited through author networks and social media. All articles were published between December 2019 and February 2021. Article summaries were charted, and a thematic analysis was conducted with confirmation of findings with our knowledge users. Twenty-three published articles and 14 pieces of gray literature were included in the review. The majority of articles characterized and highlighted the increase in demands on caregivers of autistic children and youth during the pandemic globally. Both quantitative and qualitative studies suggest that parents have experienced an increase in stress and mental health-related symptoms during lockdown measures. Findings suggest that families are employing coping strategies, but there no evidence-based supports were identified. The review highlighted the potential long-term impact of prolonged exposure to increasing demands on the mental health and wellbeing of caregivers and families of autistic people, and pointed to a need for the rapid development and evaluation of flexible and timely support programs. LAY SUMMARY: Caregivers and families of autistic children and youth have faced increased demands due to pandemic-related lockdown measures. We reviewed the literature to outline sources of stress, links to their influence on caregiver mental health, and if support programs have emerged to help them. Our findings suggest a number of demands have increased caregivers' risk to mental health challenges, and their potential impact on family wellbeing. Ongoing development of evidence-based supports of all families of autistic children and youth are needed. En ligne : http://dx.doi.org/10.1002/aur.2616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] The impact of COVID-19 on the mental health and wellbeing of caregivers of autistic children and youth: A scoping review [texte imprimé] / Vivian LEE, Auteur ; Carly ALBAUM, Auteur ; Paula TABLON-MODICA, Auteur ; Farah AHMAD, Auteur ; Jan Willem GORTER, Auteur ; Nazilla KHANLOU, Auteur ; Carly A. MCMORRIS, Auteur ; Jonathan LAI, Auteur ; Cindy HARRISON, Auteur ; Teresa HEDLEY, Auteur ; Pari JOHNSTON, Auteur ; Connie PUTTERMAN, Auteur ; Margaret SPOELSTRA, Auteur ; Jonathan A. WEISS, Auteur . - p.2477-2494. Langues : Anglais (eng) in Autism Research > 14-12 (December 2021) . - p.2477-2494 Mots-clés : Adolescent  Autism Spectrum Disorder  Autistic Disorder  Covid-19  Caregivers  Child  Communicable Disease Control  Humans  Mental Health  Pandemics  SARS-CoV-2  Covid  autism  caregivers  literature review  mental health Index. décimale : PER Périodiques Résumé : Caregivers and families of autistic people have experienced stress and increase in demands due to the COVID-19 pandemic that may have long-term negative consequences for both their own and their children's mental health. A scoping review was conducted to identify pandemic related demands experienced by caregivers and families of autistic children and youth. The review also consolidated information on coping strategies and parenting-related guidelines that have emerged to help parents meet these demands. Search strategies were approved by a research librarian and were conducted in peer-reviewed and gray literature databases between May 2020 and February 2021. Additional resources were solicited through author networks and social media. All articles were published between December 2019 and February 2021. Article summaries were charted, and a thematic analysis was conducted with confirmation of findings with our knowledge users. Twenty-three published articles and 14 pieces of gray literature were included in the review. The majority of articles characterized and highlighted the increase in demands on caregivers of autistic children and youth during the pandemic globally. Both quantitative and qualitative studies suggest that parents have experienced an increase in stress and mental health-related symptoms during lockdown measures. Findings suggest that families are employing coping strategies, but there no evidence-based supports were identified. The review highlighted the potential long-term impact of prolonged exposure to increasing demands on the mental health and wellbeing of caregivers and families of autistic people, and pointed to a need for the rapid development and evaluation of flexible and timely support programs. LAY SUMMARY: Caregivers and families of autistic children and youth have faced increased demands due to pandemic-related lockdown measures. We reviewed the literature to outline sources of stress, links to their influence on caregiver mental health, and if support programs have emerged to help them. Our findings suggest a number of demands have increased caregivers' risk to mental health challenges, and their potential impact on family wellbeing. Ongoing development of evidence-based supports of all families of autistic children and youth are needed. En ligne : http://dx.doi.org/10.1002/aur.2616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

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