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Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic / Tammy S. H. LIM in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Tammy S. H. LIM, Auteur ; Mae Yue TAN, Auteur ; Ramkumar AISHWORIYA, Auteur ; Ying Qi KANG, Auteur ; Magdalena Yvonne KOH, Auteur ; Liang SHEN, Auteur ; Shang Chee CHONG, Auteur Article en page(s) : p.3015-3025 Langues : Anglais (eng) Mots-clés : Anxiety/epidemiology/psychology Autism Spectrum Disorder Covid-19 Caregivers/psychology Child Communicable Disease Control Depression/epidemiology/psychology Developmental Disabilities/epidemiology Humans Pandemics Resilience, Psychological Stress, Psychological/epidemiology/psychology Anxiety Caregivers Depression Developmental disability Resilience Index. décimale : PER Périodiques Résumé : We evaluated factors affecting psychological ill-effects and resilience of caregivers of children with developmental disabilities during the coronavirus pandemic. Depression, Anxiety, and Stress Scales (DASS-21) and Connor-Davidson Resilience Scale 25-item were administered. Logistic regression was used to identify factors associated with psychological ill-effects and resilience. DASS-21 depression, anxiety and stress scores were high; these were associated with difficulties with infection control measures, autism diagnosis, and need for early intervention services. For caregivers of children with ASD, our DASS-21 scores were significantly higher than non-pandemic scores locally and in other Asian sites. Resilience scores correlated inversely with DASS-21 scores. Targeted support to selected at-risk caregivers and improving resilience can help their coping. En ligne : http://dx.doi.org/10.1007/s10803-021-05180-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3015-3025[article] Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic [Texte imprimé et/ou numérique] / Tammy S. H. LIM, Auteur ; Mae Yue TAN, Auteur ; Ramkumar AISHWORIYA, Auteur ; Ying Qi KANG, Auteur ; Magdalena Yvonne KOH, Auteur ; Liang SHEN, Auteur ; Shang Chee CHONG, Auteur . - p.3015-3025.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3015-3025
Mots-clés : Anxiety/epidemiology/psychology Autism Spectrum Disorder Covid-19 Caregivers/psychology Child Communicable Disease Control Depression/epidemiology/psychology Developmental Disabilities/epidemiology Humans Pandemics Resilience, Psychological Stress, Psychological/epidemiology/psychology Anxiety Caregivers Depression Developmental disability Resilience Index. décimale : PER Périodiques Résumé : We evaluated factors affecting psychological ill-effects and resilience of caregivers of children with developmental disabilities during the coronavirus pandemic. Depression, Anxiety, and Stress Scales (DASS-21) and Connor-Davidson Resilience Scale 25-item were administered. Logistic regression was used to identify factors associated with psychological ill-effects and resilience. DASS-21 depression, anxiety and stress scores were high; these were associated with difficulties with infection control measures, autism diagnosis, and need for early intervention services. For caregivers of children with ASD, our DASS-21 scores were significantly higher than non-pandemic scores locally and in other Asian sites. Resilience scores correlated inversely with DASS-21 scores. Targeted support to selected at-risk caregivers and improving resilience can help their coping. En ligne : http://dx.doi.org/10.1007/s10803-021-05180-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 Incorporation of Telepsychiatry for Patients with Developmental Disorders into Routine Clinical Practice-A Survey of Specialty Clinics Adapting to Telepsychiatry During the COVID-19 Pandemic / Shikha VERMA in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Incorporation of Telepsychiatry for Patients with Developmental Disorders into Routine Clinical Practice-A Survey of Specialty Clinics Adapting to Telepsychiatry During the COVID-19 Pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Shikha VERMA, Auteur ; Pankhuree VANDANA, Auteur ; Takahiro SODA, Auteur ; Kathleen A. KOTH, Auteur ; Patricia AGUAYO, Auteur ; Rebecca C. SHAFFER, Auteur ; Jessica HELLINGS, Auteur ; Rebecca A. MUHLE, Auteur Année de publication : 2022 Article en page(s) : p.5280-5284 Langues : Anglais (eng) Mots-clés : Child Humans Pandemics covid-19 Psychiatry Autism Spectrum Disorder/therapy Developmental Disabilities/therapy Telemedicine Communicable Disease Control Autism spectrum disorder Clinical care Developmental Disabilities Telepsychiatry Index. décimale : PER Périodiques Résumé : In 2020, a nationwide shift to telepsychiatry occurred in the wake of the Coronavirus Disease 2019 (COVID-19) pandemic and lockdowns. To assess the rates of telepsychiatry appointment attendance pre- and post-lockdown, we conducted a national, multi-site survey of appointments in 2020 compared to a similar time period in 2019, at outpatient child psychiatry clinics that specialize in the treatment of patients with Autism Spectrum Disorder (ASD) and/or Developmental Disabilities (DD). ASD/DD clinics rapidly shifted to telepsychiatry, returning to pre-pandemic appointment numbers and completion rates within months. We advocate for the continued funding of this care model, discuss the substantial benefits physicians, patients and families have found in using telepsychiatry, and suggest ways to improve future access for ASD/DD telepsychiatry. En ligne : http://dx.doi.org/10.1007/s10803-022-05593-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5280-5284[article] Incorporation of Telepsychiatry for Patients with Developmental Disorders into Routine Clinical Practice-A Survey of Specialty Clinics Adapting to Telepsychiatry During the COVID-19 Pandemic [Texte imprimé et/ou numérique] / Shikha VERMA, Auteur ; Pankhuree VANDANA, Auteur ; Takahiro SODA, Auteur ; Kathleen A. KOTH, Auteur ; Patricia AGUAYO, Auteur ; Rebecca C. SHAFFER, Auteur ; Jessica HELLINGS, Auteur ; Rebecca A. MUHLE, Auteur . - 2022 . - p.5280-5284.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5280-5284
Mots-clés : Child Humans Pandemics covid-19 Psychiatry Autism Spectrum Disorder/therapy Developmental Disabilities/therapy Telemedicine Communicable Disease Control Autism spectrum disorder Clinical care Developmental Disabilities Telepsychiatry Index. décimale : PER Périodiques Résumé : In 2020, a nationwide shift to telepsychiatry occurred in the wake of the Coronavirus Disease 2019 (COVID-19) pandemic and lockdowns. To assess the rates of telepsychiatry appointment attendance pre- and post-lockdown, we conducted a national, multi-site survey of appointments in 2020 compared to a similar time period in 2019, at outpatient child psychiatry clinics that specialize in the treatment of patients with Autism Spectrum Disorder (ASD) and/or Developmental Disabilities (DD). ASD/DD clinics rapidly shifted to telepsychiatry, returning to pre-pandemic appointment numbers and completion rates within months. We advocate for the continued funding of this care model, discuss the substantial benefits physicians, patients and families have found in using telepsychiatry, and suggest ways to improve future access for ASD/DD telepsychiatry. En ligne : http://dx.doi.org/10.1007/s10803-022-05593-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Analysis of the SPARK study COVID-19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services / Anjana N. BHAT in Autism Research, 14-11 (November 2021)
[article]
Titre : Analysis of the SPARK study COVID-19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services Type de document : Texte imprimé et/ou numérique Auteurs : Anjana N. BHAT, Auteur Article en page(s) : p.2454-2470 Langues : Anglais (eng) Mots-clés : Adolescent Autism Spectrum Disorder/epidemiology Covid-19 Communicable Disease Control Humans Mental Health Pandemics Parents SARS-CoV-2 ASD services Autism Spectrum disorder child health online service benefits parent health unmet needs Index. décimale : PER Périodiques Résumé : Children with ASD receive a multitude of educational, medical, and therapeutic services. At the onset of the COVID-19 pandemic, all of these services came to a complete halt following strict lockdowns. Many services have resumed in a hybrid format using face to face and virtual modes of delivery. This study describes findings from the COVID-19 impact survey administered at the onset of the pandemic in a subgroup of families from the SPARK cohort (N = 6393), one of the largest ASD cohorts in the US. The differential early impact of COVID-19 on various subgroups of children with ASD and their families was examined. Caregivers of children and adolescents with ASD between 19?months and 18?years completed an online survey inquiring about the impact of COVID-19 pandemic on access to services, parent concerns about the same, impact on child's ASD-related behaviors, child, and parent mental health, and the benefits/potential benefits of online/future online services. Analysis revealed that certain demographic (age, income/SES) and child-related factors (repetitive behaviors, language, functional, cognitive, and motor impairments, and child's understanding), as well as parent's past mental health were associated with/predicted greater service disruptions, greater ASD-related behaviors, and greater negative impact on parent mental health. In conclusion, younger children, children from low-income families, and children with greater impairment severity (more severe repetitive behaviors, language, cognitive, function, language, and motor impairments) were more negatively impacted by the pandemic through service disruptions, increased ASD-related behaviors, parent health/family impact, and found online interactions to be less beneficial. LAY SUMMARY: The SPARK study impact survey shows that at the onset of the COVID-19 pandemic, parents reported significant service disruptions, negative impact on their child's ASD-related behaviors as well as their own mental health; which was greater in families with younger children, children with greater ASD severity, and children from low-income families. Majority of families did not report significant benefits of online services whereas some families did. Low-income families were hopeful about receiving benefits through future online services. Overall, these findings have important implications for future clinical care delivery and healthcare policies to ensure that healthcare services are not interrupted during a potential resurgence of COVID-19 or other pandemics. A combination of in-person and online healthcare and family support services must be implemented to prevent negative health impacts in the future. En ligne : http://dx.doi.org/10.1002/aur.2618 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450
in Autism Research > 14-11 (November 2021) . - p.2454-2470[article] Analysis of the SPARK study COVID-19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services [Texte imprimé et/ou numérique] / Anjana N. BHAT, Auteur . - p.2454-2470.
Langues : Anglais (eng)
in Autism Research > 14-11 (November 2021) . - p.2454-2470
Mots-clés : Adolescent Autism Spectrum Disorder/epidemiology Covid-19 Communicable Disease Control Humans Mental Health Pandemics Parents SARS-CoV-2 ASD services Autism Spectrum disorder child health online service benefits parent health unmet needs Index. décimale : PER Périodiques Résumé : Children with ASD receive a multitude of educational, medical, and therapeutic services. At the onset of the COVID-19 pandemic, all of these services came to a complete halt following strict lockdowns. Many services have resumed in a hybrid format using face to face and virtual modes of delivery. This study describes findings from the COVID-19 impact survey administered at the onset of the pandemic in a subgroup of families from the SPARK cohort (N = 6393), one of the largest ASD cohorts in the US. The differential early impact of COVID-19 on various subgroups of children with ASD and their families was examined. Caregivers of children and adolescents with ASD between 19?months and 18?years completed an online survey inquiring about the impact of COVID-19 pandemic on access to services, parent concerns about the same, impact on child's ASD-related behaviors, child, and parent mental health, and the benefits/potential benefits of online/future online services. Analysis revealed that certain demographic (age, income/SES) and child-related factors (repetitive behaviors, language, functional, cognitive, and motor impairments, and child's understanding), as well as parent's past mental health were associated with/predicted greater service disruptions, greater ASD-related behaviors, and greater negative impact on parent mental health. In conclusion, younger children, children from low-income families, and children with greater impairment severity (more severe repetitive behaviors, language, cognitive, function, language, and motor impairments) were more negatively impacted by the pandemic through service disruptions, increased ASD-related behaviors, parent health/family impact, and found online interactions to be less beneficial. LAY SUMMARY: The SPARK study impact survey shows that at the onset of the COVID-19 pandemic, parents reported significant service disruptions, negative impact on their child's ASD-related behaviors as well as their own mental health; which was greater in families with younger children, children with greater ASD severity, and children from low-income families. Majority of families did not report significant benefits of online services whereas some families did. Low-income families were hopeful about receiving benefits through future online services. Overall, these findings have important implications for future clinical care delivery and healthcare policies to ensure that healthcare services are not interrupted during a potential resurgence of COVID-19 or other pandemics. A combination of in-person and online healthcare and family support services must be implemented to prevent negative health impacts in the future. En ligne : http://dx.doi.org/10.1002/aur.2618 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 Commentary: A longitudinal exploration of the effects of the COVID-19 lockdowns for adolescents both with and without neurodevelopmental disorders - a reflection on Houghton et al. (2022) / Charlotte FIELD in Journal of Child Psychology and Psychiatry, 63-11 (November 2022)
[article]
Titre : Commentary: A longitudinal exploration of the effects of the COVID-19 lockdowns for adolescents both with and without neurodevelopmental disorders - a reflection on Houghton et al. (2022) Type de document : Texte imprimé et/ou numérique Auteurs : Charlotte FIELD, Auteur Article en page(s) : p.1344-1346 Langues : Anglais (eng) Mots-clés : Adolescent Humans covid-19 Pandemics/prevention & control Communicable Disease Control Neurodevelopmental Disorders/epidemiology Loneliness/psychology Index. décimale : PER Périodiques Résumé : The lockdowns during the COVID-19 pandemic had and continue to have severe and wide-ranging effects worldwide on mental health and loneliness. In this commentary, I summarise Houghton et al. (2022) who explored these effects longitudinally in adolescents in Western Australia, with and without a Neurodevelopmental Disorder (NDD), considering the strengths and weaknesses of the article and its importance to the field. Adolescents with NDD, who already had a high baseline rate of loneliness and mental health difficulties, did not find that this increased during COVID-19 lockdowns. However, adolescents without NDD, who began with a much lower baseline rate, found that this was elevated. There was variability in terms of different types of NDD, with adolescents who had ADHD reporting some positive effects of the COVID-19 lockdowns. These findings highlight the importance of support for adolescents both with NDD and those without as the world emerges out of the pandemic. En ligne : http://dx.doi.org/10.1111/jcpp.13661 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490
in Journal of Child Psychology and Psychiatry > 63-11 (November 2022) . - p.1344-1346[article] Commentary: A longitudinal exploration of the effects of the COVID-19 lockdowns for adolescents both with and without neurodevelopmental disorders - a reflection on Houghton et al. (2022) [Texte imprimé et/ou numérique] / Charlotte FIELD, Auteur . - p.1344-1346.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 63-11 (November 2022) . - p.1344-1346
Mots-clés : Adolescent Humans covid-19 Pandemics/prevention & control Communicable Disease Control Neurodevelopmental Disorders/epidemiology Loneliness/psychology Index. décimale : PER Périodiques Résumé : The lockdowns during the COVID-19 pandemic had and continue to have severe and wide-ranging effects worldwide on mental health and loneliness. In this commentary, I summarise Houghton et al. (2022) who explored these effects longitudinally in adolescents in Western Australia, with and without a Neurodevelopmental Disorder (NDD), considering the strengths and weaknesses of the article and its importance to the field. Adolescents with NDD, who already had a high baseline rate of loneliness and mental health difficulties, did not find that this increased during COVID-19 lockdowns. However, adolescents without NDD, who began with a much lower baseline rate, found that this was elevated. There was variability in terms of different types of NDD, with adolescents who had ADHD reporting some positive effects of the COVID-19 lockdowns. These findings highlight the importance of support for adolescents both with NDD and those without as the world emerges out of the pandemic. En ligne : http://dx.doi.org/10.1111/jcpp.13661 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 Continuity and change in loneliness and stress during the COVID-19 pandemic: A longitudinal study of autistic and non-autistic adults / Anke M. SCHEEREN in Autism Research, 15-9 (September 2022)
[article]
Titre : Continuity and change in loneliness and stress during the COVID-19 pandemic: A longitudinal study of autistic and non-autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Anke M. SCHEEREN, Auteur ; Patricia HOWLIN, Auteur ; Liz PELLICANO, Auteur ; Iliana MAGIATI, Auteur ; Sander BEGEER, Auteur Article en page(s) : p.1621-1635 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder/epidemiology COVID-19/epidemiology Communicable Disease Control Humans Loneliness/psychology Longitudinal Studies Pandemics Covid-19 adults autism loneliness stress wellbeing Index. décimale : PER Périodiques Résumé : Previous studies have suggested that autistic adults may be negatively affected by the COVID-19 pandemic and its associated restrictions. In this study, we examined continuity and change in loneliness and stress, and their predictors, in 448 autistic and 70 non-autistic adults living in the Netherlands. Autistic participants were assessed on three occasions using the de Jong Gierveld Loneliness Scale and Perceived Stress Scale (pre-lockdown (T0), first lockdown (T1), and second lockdown (T2)); non-autistic participants were assessed twice (T1 and T2). Autistic adults' loneliness and stress levels remained stable across all three time points over 8months, but were consistently higher than those of non-autistic adults. Other predictors of higher loneliness and stress levels at the first lockdown (T1) included low perceived social support and high levels of COVID-19 related worries. Although loneliness and stress were stable at the group level, the wellbeing of some autistic adults worsened over the course of the pandemic, while others improved. For instance, adults with a mental health diagnosis (other than autism) prior to the pandemic were more likely to increase in stress over time, whereas adults with higher perceived social support were more likely to decrease in stress over time (from T1 to T2). Factors contributing to variability in outcome require further examination. Moreover, the relatively high loneliness and stress levels in autistic adults call for attention from clinicians and service providers. LAY SUMMARY: In our study, autistic adults reported feeling more lonely and stressed than non-autistic adults during the COVID-19 pandemic. People who missed support from their social network also felt more lonely and stressed. On average, people did not change substantially in their degree of loneliness or stress over time. Yet, we noted large person-to-person differences in the wellbeing of autistic adults during the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2787 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483
in Autism Research > 15-9 (September 2022) . - p.1621-1635[article] Continuity and change in loneliness and stress during the COVID-19 pandemic: A longitudinal study of autistic and non-autistic adults [Texte imprimé et/ou numérique] / Anke M. SCHEEREN, Auteur ; Patricia HOWLIN, Auteur ; Liz PELLICANO, Auteur ; Iliana MAGIATI, Auteur ; Sander BEGEER, Auteur . - p.1621-1635.
Langues : Anglais (eng)
in Autism Research > 15-9 (September 2022) . - p.1621-1635
Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder/epidemiology COVID-19/epidemiology Communicable Disease Control Humans Loneliness/psychology Longitudinal Studies Pandemics Covid-19 adults autism loneliness stress wellbeing Index. décimale : PER Périodiques Résumé : Previous studies have suggested that autistic adults may be negatively affected by the COVID-19 pandemic and its associated restrictions. In this study, we examined continuity and change in loneliness and stress, and their predictors, in 448 autistic and 70 non-autistic adults living in the Netherlands. Autistic participants were assessed on three occasions using the de Jong Gierveld Loneliness Scale and Perceived Stress Scale (pre-lockdown (T0), first lockdown (T1), and second lockdown (T2)); non-autistic participants were assessed twice (T1 and T2). Autistic adults' loneliness and stress levels remained stable across all three time points over 8months, but were consistently higher than those of non-autistic adults. Other predictors of higher loneliness and stress levels at the first lockdown (T1) included low perceived social support and high levels of COVID-19 related worries. Although loneliness and stress were stable at the group level, the wellbeing of some autistic adults worsened over the course of the pandemic, while others improved. For instance, adults with a mental health diagnosis (other than autism) prior to the pandemic were more likely to increase in stress over time, whereas adults with higher perceived social support were more likely to decrease in stress over time (from T1 to T2). Factors contributing to variability in outcome require further examination. Moreover, the relatively high loneliness and stress levels in autistic adults call for attention from clinicians and service providers. LAY SUMMARY: In our study, autistic adults reported feeling more lonely and stressed than non-autistic adults during the COVID-19 pandemic. People who missed support from their social network also felt more lonely and stressed. On average, people did not change substantially in their degree of loneliness or stress over time. Yet, we noted large person-to-person differences in the wellbeing of autistic adults during the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2787 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study / Elizabeth PELLICANO in Autism, 26-4 (May 2022)
PermalinkCovid-19, social restrictions, and mental distress among young people: a UK longitudinal, population-based study / Gemma KNOWLES in Journal of Child Psychology and Psychiatry, 63-11 (November 2022)
PermalinkDifferential effects of COVID-related lockdown on sleep-wake rhythms in adults with autism spectrum disorder compared to the general population / Eve REYNAUD in Autism Research, 15-5 (May 2022)
PermalinkEditorial: COVID-19: lessons learned for suicide prevention / J. R. ASARNOW in Journal of Child Psychology and Psychiatry, 62-8 (August 2021)
PermalinkEditorial: Do lockdowns scar? Three putative mechanisms through which COVID-19 mitigation policies could cause long-term harm to young people's mental health / Edmund J. S. SONUGA-BARKE in Journal of Child Psychology and Psychiatry, 62-12 (December 2021)
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