Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 52-6 (June 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2388-2399 Titre : Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD Type de document : texte imprimé Auteurs : Julie LOUNDS TAYLOR, Auteur ; Florencia PEZZIMENTI, Auteur ; Meghan M. BURKE, Auteur ; Leann S. DAWALT, Auteur ; Chung Eun LEE, Auteur ; Carol RABIDEAU, Auteur Article en page(s) : p.2388-2399 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Families  Intervention  Services  Transition to adulthood Index. décimale : PER Périodiques Résumé : Many youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. The present study describes the development, feasibility and acceptability of a new intervention designed to teach parents of transition-aged youth with ASD about the adult service system and the most effective ways to access services and supports. As part of a randomized-controlled trial, the intervention-named ASSIST-was delivered to 91 participants in three states in the U.S. Results suggested that ASSIST is feasible and acceptable to participants. Though intended to be an in-person group-based program, due to COVID-19 restrictions ASSIST was primarily delivered online. Results and discussion explore the trade-offs and implications of these different treatment delivery modalities in relation to ASSIST. En ligne : http://dx.doi.org/10.1007/s10803-021-05128-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD [texte imprimé] / Julie LOUNDS TAYLOR, Auteur ; Florencia PEZZIMENTI, Auteur ; Meghan M. BURKE, Auteur ; Leann S. DAWALT, Auteur ; Chung Eun LEE, Auteur ; Carol RABIDEAU, Auteur . - p.2388-2399. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2388-2399 Mots-clés : Autism spectrum disorder  Families  Intervention  Services  Transition to adulthood Index. décimale : PER Périodiques Résumé : Many youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. The present study describes the development, feasibility and acceptability of a new intervention designed to teach parents of transition-aged youth with ASD about the adult service system and the most effective ways to access services and supports. As part of a randomized-controlled trial, the intervention-named ASSIST-was delivered to 91 participants in three states in the U.S. Results suggested that ASSIST is feasible and acceptable to participants. Though intended to be an in-person group-based program, due to COVID-19 restrictions ASSIST was primarily delivered online. Results and discussion explore the trade-offs and implications of these different treatment delivery modalities in relation to ASSIST. En ligne : http://dx.doi.org/10.1007/s10803-021-05128-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474

Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum / Chung Eun LEE in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.178-187 Titre : Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum Type de document : texte imprimé Auteurs : Chung Eun LEE, Auteur ; Karrie A. SHOGREN, Auteur ; Jordan SEGAL, Auteur ; Florencia PEZZIMENTI, Auteur ; Janeth ALEMAN-TOVAR, Auteur ; Julie LOUNDS TAYLOR, Auteur Article en page(s) : p.178-187 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  goal attainment scaling  interventions—psychosocial/behavioral  outcome Index. décimale : PER Périodiques Résumé : Among people with autism-all who have the same diagnosis-there are major differences on a nearly limitless number of areas, such as language, daily living skills, intellectual ability, sensory difficulties, and physical and mental health diagnoses. Despite these many differences, the targeted outcomes of intervention studies are often measured the same way across autistic adults, including outcomes such as getting a job, achieving greater independence, or getting more services. People have different goals and abilities, and it is important to have a way for intervention studies to measure outcomes in a way that is more personal to each individual. To address this issue, we developed a new approach-called "Goal Attainment Scaling-Community-based" or GAS-CB-to measure individualized outcomes across different research settings. In this article, we describe the need for individualized outcomes in autism intervention research and current approaches to gathering these outcomes, with our discussion focused on a method called goal attainment scaling. We then describe reasons why current goal attainment scaling approaches might not be useful in intervention research that takes place in the community. Finally, we discuss a new goal attainment scaling approach (GAS-CB) that can be flexibly used for research participants with very different characteristics. En ligne : http://dx.doi.org/10.1177/13623613211024492 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum [texte imprimé] / Chung Eun LEE, Auteur ; Karrie A. SHOGREN, Auteur ; Jordan SEGAL, Auteur ; Florencia PEZZIMENTI, Auteur ; Janeth ALEMAN-TOVAR, Auteur ; Julie LOUNDS TAYLOR, Auteur . - p.178-187. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.178-187 Mots-clés : adults  autism spectrum disorders  goal attainment scaling  interventions—psychosocial/behavioral  outcome Index. décimale : PER Périodiques Résumé : Among people with autism-all who have the same diagnosis-there are major differences on a nearly limitless number of areas, such as language, daily living skills, intellectual ability, sensory difficulties, and physical and mental health diagnoses. Despite these many differences, the targeted outcomes of intervention studies are often measured the same way across autistic adults, including outcomes such as getting a job, achieving greater independence, or getting more services. People have different goals and abilities, and it is important to have a way for intervention studies to measure outcomes in a way that is more personal to each individual. To address this issue, we developed a new approach-called "Goal Attainment Scaling-Community-based" or GAS-CB-to measure individualized outcomes across different research settings. In this article, we describe the need for individualized outcomes in autism intervention research and current approaches to gathering these outcomes, with our discussion focused on a method called goal attainment scaling. We then describe reasons why current goal attainment scaling approaches might not be useful in intervention research that takes place in the community. Finally, we discuss a new goal attainment scaling approach (GAS-CB) that can be flexibly used for research participants with very different characteristics. En ligne : http://dx.doi.org/10.1177/13623613211024492 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum / Chung Eun LEE in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.1001-1006 Titre : The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum Type de document : texte imprimé Auteurs : Chung Eun LEE, Auteur ; Meghan M. BURKE, Auteur ; Leann S. DAWALT, Auteur ; Chak LI, Auteur ; Julie LOUNDS TAYLOR, Auteur Article en page(s) : p.1001-1006 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Aged  Autism Spectrum Disorder/therapy  Autistic Disorder  Child  Child Development Disorders, Pervasive  Humans  Intellectual Disability  Parents  autism spectrum disorder  parental advocacy  service access  transition-aged youth Index. décimale : PER Périodiques Résumé : It can be difficult for youth on the autism spectrum to get the services they need after they leave high school. Because of this, many studies have examined the different factors that are related to service access. These studies have shown that youth on the autism spectrum who belong to an underrepresented racial or ethnic group or whose families have lower incomes are less likely to receive the services that they need. However, it is difficult or impossible to change things like race/ethnicity or family income. It is important to also identify factors that might improve service access that we can change. One potential factor that fits into this category is parental advocacy activities. Using data collected from 185 parents of youth on the autism spectrum, we found that more parental advocacy activities were related to youth receiving more services, even after accounting for variables related to the functioning of the youth (e.g. whether they have an intellectual disability, their autism symptom severity) and demographic information about the family (e.g. state in which they live, parental race/ethnicity, and family income). Our findings suggest that building parental advocacy skills may be one important way to increase the number of services that youth on the autism spectrum receive as they transition to adulthood. En ligne : https://dx.doi.org/10.1177/13623613211057660 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum [texte imprimé] / Chung Eun LEE, Auteur ; Meghan M. BURKE, Auteur ; Leann S. DAWALT, Auteur ; Chak LI, Auteur ; Julie LOUNDS TAYLOR, Auteur . - p.1001-1006. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.1001-1006 Mots-clés : Adolescent  Adult  Aged  Autism Spectrum Disorder/therapy  Autistic Disorder  Child  Child Development Disorders, Pervasive  Humans  Intellectual Disability  Parents  autism spectrum disorder  parental advocacy  service access  transition-aged youth Index. décimale : PER Périodiques Résumé : It can be difficult for youth on the autism spectrum to get the services they need after they leave high school. Because of this, many studies have examined the different factors that are related to service access. These studies have shown that youth on the autism spectrum who belong to an underrepresented racial or ethnic group or whose families have lower incomes are less likely to receive the services that they need. However, it is difficult or impossible to change things like race/ethnicity or family income. It is important to also identify factors that might improve service access that we can change. One potential factor that fits into this category is parental advocacy activities. Using data collected from 185 parents of youth on the autism spectrum, we found that more parental advocacy activities were related to youth receiving more services, even after accounting for variables related to the functioning of the youth (e.g. whether they have an intellectual disability, their autism symptom severity) and demographic information about the family (e.g. state in which they live, parental race/ethnicity, and family income). Our findings suggest that building parental advocacy skills may be one important way to increase the number of services that youth on the autism spectrum receive as they transition to adulthood. En ligne : https://dx.doi.org/10.1177/13623613211057660 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474

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