Dépouillements

Meaningful research for autistic people? Ask autistics! / R. POULSEN in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.3-5 Titre : Meaningful research for autistic people? Ask autistics! Type de document : Texte imprimé et/ou numérique Auteurs : R. POULSEN, Auteur ; Charlotte BROWNLOW, Auteur ; W. LAWSON, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.3-5 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613211064421 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Meaningful research for autistic people? Ask autistics! [Texte imprimé et/ou numérique] / R. POULSEN, Auteur ; Charlotte BROWNLOW, Auteur ; W. LAWSON, Auteur ; E. PELLICANO, Auteur . - p.3-5. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.3-5 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613211064421 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Systematic review of prenatal exposure to endocrine disrupting chemicals and autism spectrum disorder in offspring / S. MARÍ-BAUSET in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.6-32 Titre : Systematic review of prenatal exposure to endocrine disrupting chemicals and autism spectrum disorder in offspring Type de document : Texte imprimé et/ou numérique Auteurs : S. MARÍ-BAUSET, Auteur ; I. PERAITA-COSTA, Auteur ; C. DONAT-VARGAS, Auteur ; A. LLOPIS-GONZÁLEZ, Auteur ; A. MARÍ-SANCHIS, Auteur ; J. LLOPIS-MORALES, Auteur ; María MORALES-SUÁREZ-VARELA, Auteur Article en page(s) : p.6-32 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  developmental neurotoxicants  endocrine disrupting chemicals  prenatal exposure Index. décimale : PER Périodiques Résumé : Autism spectrum disorders comprise a complex group with many subtypes of behaviorally defined neurodevelopmental abnormalities in two core areas: deficits in social communication and fixated, restricted, repetitive, or stereotyped behaviors and interests each with potential unique risk factors and characteristics. The underlying mechanisms and the possible causes of autism spectrum disorder remain elusive and while increased prevalence is undoubtable, it is unclear if it is a reflection of diagnostic improvement or emerging risk factors such as endocrine disrupting chemicals. Epidemiological studies, which are used to study the relation between endocrine disrupting chemicals and autism spectrum disorder, can have inherent methodological challenges that limit the quality and strength of their findings. The objective of this work is to systematically review the treatment of these challenges and assess the quality and strength of the findings in the currently available literature. The overall quality and strength were "moderate" and "limited," respectively. Risk of bias due to the exclusion of potential confounding factors and the lack of accuracy of exposure assessment methods were the most prevalent. The omnipresence of endocrine disrupting chemicals and the biological plausibility of the association between prenatal exposure and later development of autism spectrum disorder highlight the need to carry out well-designed epidemiological studies that overcome the methodological challenges observed in the currently available literature in order to be able to inform public policy to prevent exposure to these potentially harmful chemicals and aid in the establishment of predictor variables to facilitate early diagnosis of autism spectrum disorder and improve long-term outcomes. En ligne : http://dx.doi.org/10.1177/13623613211039950 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Systematic review of prenatal exposure to endocrine disrupting chemicals and autism spectrum disorder in offspring [Texte imprimé et/ou numérique] / S. MARÍ-BAUSET, Auteur ; I. PERAITA-COSTA, Auteur ; C. DONAT-VARGAS, Auteur ; A. LLOPIS-GONZÁLEZ, Auteur ; A. MARÍ-SANCHIS, Auteur ; J. LLOPIS-MORALES, Auteur ; María MORALES-SUÁREZ-VARELA, Auteur . - p.6-32. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.6-32 Mots-clés : autism spectrum disorder  developmental neurotoxicants  endocrine disrupting chemicals  prenatal exposure Index. décimale : PER Périodiques Résumé : Autism spectrum disorders comprise a complex group with many subtypes of behaviorally defined neurodevelopmental abnormalities in two core areas: deficits in social communication and fixated, restricted, repetitive, or stereotyped behaviors and interests each with potential unique risk factors and characteristics. The underlying mechanisms and the possible causes of autism spectrum disorder remain elusive and while increased prevalence is undoubtable, it is unclear if it is a reflection of diagnostic improvement or emerging risk factors such as endocrine disrupting chemicals. Epidemiological studies, which are used to study the relation between endocrine disrupting chemicals and autism spectrum disorder, can have inherent methodological challenges that limit the quality and strength of their findings. The objective of this work is to systematically review the treatment of these challenges and assess the quality and strength of the findings in the currently available literature. The overall quality and strength were "moderate" and "limited," respectively. Risk of bias due to the exclusion of potential confounding factors and the lack of accuracy of exposure assessment methods were the most prevalent. The omnipresence of endocrine disrupting chemicals and the biological plausibility of the association between prenatal exposure and later development of autism spectrum disorder highlight the need to carry out well-designed epidemiological studies that overcome the methodological challenges observed in the currently available literature in order to be able to inform public policy to prevent exposure to these potentially harmful chemicals and aid in the establishment of predictor variables to facilitate early diagnosis of autism spectrum disorder and improve long-term outcomes. En ligne : http://dx.doi.org/10.1177/13623613211039950 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Prevalence of epilepsy in autism spectrum disorders: A systematic review and meta-analysis / X. LIU in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.33-50 Titre : Prevalence of epilepsy in autism spectrum disorders: A systematic review and meta-analysis Type de document : Texte imprimé et/ou numérique Auteurs : X. LIU, Auteur ; X. SUN, Auteur ; C. SUN, Auteur ; M. ZOU, Auteur ; Y. CHEN, Auteur ; J. HUANG, Auteur ; L. WU, Auteur ; W. X. CHEN, Auteur Article en page(s) : p.33-50 Langues : Anglais (eng) Mots-clés : adulthood  autism spectrum disorder (ASD)  childhood  co-occurrence  epilepsy  meta-analyses Index. décimale : PER Périodiques Résumé : Autistic individuals experience higher co-occurring medical conditions than the general population, and yet the estimates of autistic individuals with epilepsy are not updated. Co-occurrence of epilepsy in autistic individuals often aggravated cognitive impairment and increased the risk of poor long-term prognosis. Thus, an updated systematic review and meta-analysis was conducted to study the relevant articles published from inception to 2020, evaluate the prevalence of epilepsy in autistic individuals, and further explore the putative factors influencing the prevalence. A total of 66 studies from 53 articles were included in this study. The results showed that epilepsy is more common in autistic individuals than in the general population. The prevalence of epilepsy in autistic individuals in the clinical sample-based studies was higher than that in the population-based based cross-sectional or cohort studies. The prevalence of epilepsy in autistic adults was higher than that in autistic children. A significantly increased prevalence of epilepsy was detected in the autistic adolescent group (11-17?years old), and a higher trend of prevalence of epilepsy was observed in the autistic pre-school group (??6?-years-old) than that of the autistic school-aged group (7-10?years-old). The prevalence of epilepsy increased with age, female rate, and low intellectual function rate of autistic individuals. However, the human development index of countries was negatively associated with the pooled prevalence, which could be attributed to the different levels of awareness, diagnostic technologies, and autism-service support worldwide. About 1/10 autistic individuals also had epilepsy, which was common in the clinical setting, adolescents, adults, females, or patients with intellectual disability and less common in the country with high human development index. Thus, these findings provided critical and innovative views on the prevalence of epilepsy in autistic individuals and contributed to the targeted clinical management and preventive measures. En ligne : http://dx.doi.org/10.1177/13623613211045029 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Prevalence of epilepsy in autism spectrum disorders: A systematic review and meta-analysis [Texte imprimé et/ou numérique] / X. LIU, Auteur ; X. SUN, Auteur ; C. SUN, Auteur ; M. ZOU, Auteur ; Y. CHEN, Auteur ; J. HUANG, Auteur ; L. WU, Auteur ; W. X. CHEN, Auteur . - p.33-50. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.33-50 Mots-clés : adulthood  autism spectrum disorder (ASD)  childhood  co-occurrence  epilepsy  meta-analyses Index. décimale : PER Périodiques Résumé : Autistic individuals experience higher co-occurring medical conditions than the general population, and yet the estimates of autistic individuals with epilepsy are not updated. Co-occurrence of epilepsy in autistic individuals often aggravated cognitive impairment and increased the risk of poor long-term prognosis. Thus, an updated systematic review and meta-analysis was conducted to study the relevant articles published from inception to 2020, evaluate the prevalence of epilepsy in autistic individuals, and further explore the putative factors influencing the prevalence. A total of 66 studies from 53 articles were included in this study. The results showed that epilepsy is more common in autistic individuals than in the general population. The prevalence of epilepsy in autistic individuals in the clinical sample-based studies was higher than that in the population-based based cross-sectional or cohort studies. The prevalence of epilepsy in autistic adults was higher than that in autistic children. A significantly increased prevalence of epilepsy was detected in the autistic adolescent group (11-17?years old), and a higher trend of prevalence of epilepsy was observed in the autistic pre-school group (??6?-years-old) than that of the autistic school-aged group (7-10?years-old). The prevalence of epilepsy increased with age, female rate, and low intellectual function rate of autistic individuals. However, the human development index of countries was negatively associated with the pooled prevalence, which could be attributed to the different levels of awareness, diagnostic technologies, and autism-service support worldwide. About 1/10 autistic individuals also had epilepsy, which was common in the clinical setting, adolescents, adults, females, or patients with intellectual disability and less common in the country with high human development index. Thus, these findings provided critical and innovative views on the prevalence of epilepsy in autistic individuals and contributed to the targeted clinical management and preventive measures. En ligne : http://dx.doi.org/10.1177/13623613211045029 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Male autistic youth experiences of belonging in integrated physical education / Justin A. HAEGELE in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.51-61 Titre : Male autistic youth experiences of belonging in integrated physical education Type de document : Texte imprimé et/ou numérique Auteurs : Justin A. HAEGELE, Auteur ; A. J. MAHER, Auteur Article en page(s) : p.51-61 Langues : Anglais (eng) Mots-clés : autism  belonging  inclusion  physical education Index. décimale : PER Périodiques Résumé : Recent years have seen calls to amplify the voices of autistic people in research about their subjective experiences. Despite this, we know little about how autistic youth experience integrated physical education, particularly in the United States. The term integrated is used to describe a setting in which all students, regardless of educational needs, are educated in the same physical space. In this study, we sought to explore the perspectives of autistic youth toward their experiences in integrated physical education, and the roles of social interactions and relationships with peers in those experiences. Findings noted that several factors influenced the ways and extent to which our participants interacted with their peers during physical education. Unfortunately, most of our participants recalled experiencing bullying, and that physical education offered an environment where bullying was most frequent and comparatively unique compared to other contexts throughout the school day. The locker room, a space linked to physical education, was of particular concern because of a lack of teacher presence. Despite the negative views of and experiences in physical education, there was evidence of participants actively pursuing to connect with peers in this context. However, most instances where participants recalled pursuing friendship were not welcomed from others, which stunted their sense of belonging in this space. Given the role that belonging plays in what it means "to be included," our research supports emerging ideas that even though autistic students were educated in the same physical spaces as their non-autistic peers, feelings of inclusion were largely absent. En ligne : http://dx.doi.org/10.1177/13623613211018637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Male autistic youth experiences of belonging in integrated physical education [Texte imprimé et/ou numérique] / Justin A. HAEGELE, Auteur ; A. J. MAHER, Auteur . - p.51-61. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.51-61 Mots-clés : autism  belonging  inclusion  physical education Index. décimale : PER Périodiques Résumé : Recent years have seen calls to amplify the voices of autistic people in research about their subjective experiences. Despite this, we know little about how autistic youth experience integrated physical education, particularly in the United States. The term integrated is used to describe a setting in which all students, regardless of educational needs, are educated in the same physical space. In this study, we sought to explore the perspectives of autistic youth toward their experiences in integrated physical education, and the roles of social interactions and relationships with peers in those experiences. Findings noted that several factors influenced the ways and extent to which our participants interacted with their peers during physical education. Unfortunately, most of our participants recalled experiencing bullying, and that physical education offered an environment where bullying was most frequent and comparatively unique compared to other contexts throughout the school day. The locker room, a space linked to physical education, was of particular concern because of a lack of teacher presence. Despite the negative views of and experiences in physical education, there was evidence of participants actively pursuing to connect with peers in this context. However, most instances where participants recalled pursuing friendship were not welcomed from others, which stunted their sense of belonging in this space. Given the role that belonging plays in what it means "to be included," our research supports emerging ideas that even though autistic students were educated in the same physical spaces as their non-autistic peers, feelings of inclusion were largely absent. En ligne : http://dx.doi.org/10.1177/13623613211018637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Cognitive profiles of children with autism spectrum disorder with parent-reported extraordinary talents and personal strengths / Vanessa H. BAL in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.62-74 Titre : Cognitive profiles of children with autism spectrum disorder with parent-reported extraordinary talents and personal strengths Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa H. BAL, Auteur ; E. WILKINSON, Auteur ; M. FOK, Auteur Article en page(s) : p.62-74 Langues : Anglais (eng) Mots-clés : cognitive profiles  savant skills  strengths  talents  conflicts of interest in relation to this article. Index. décimale : PER Périodiques Résumé : Previous research has suggested that focusing on impairments can be detrimental to the well-being of autistic individuals, yet little research has focused on strengths and positive qualities in autism. Some studies explored "savant skills" (herein referred to as "extraordinary talents"), that is, skills that stand out compared to the general population. These often group everyone who has a specific talent, rather than exploring subgroups with strengths in specific areas. There has been even less research focused on personal strengths (i.e. skills that stand out relative to the individual's other abilities, but not the general population). To expand this research, we use a sample of 1470 children (ages 4-18?years) from the Simons Simplex Collection without cognitive impairment to examine the relationship between having a parent-reported skill in a specific area and performance on a standardized cognitive test. Almost half (46%) had at least one parent-reported talent and an additional 23% without extraordinary talents had at least one personal strength. Children with these parent-reported skills had different patterns of performance on these standardized tests than children without skills in that area (i.e. visuospatial, drawing, computation, reading, and memory). Specific skills in computation or reading were associated with higher overall performance on the standardized tests. These results emphasize the importance of considering strengths separately by area, rather than combining individuals with different types of strengths. The high number of children with skills in this study underscores the need for more research in this area, particularly using instruments focused on understanding the nuances of these strengths. It is important for future studies to consider these skills in children with cognitive impairment. En ligne : http://dx.doi.org/10.1177/13623613211020618 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Cognitive profiles of children with autism spectrum disorder with parent-reported extraordinary talents and personal strengths [Texte imprimé et/ou numérique] / Vanessa H. BAL, Auteur ; E. WILKINSON, Auteur ; M. FOK, Auteur . - p.62-74. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.62-74 Mots-clés : cognitive profiles  savant skills  strengths  talents  conflicts of interest in relation to this article. Index. décimale : PER Périodiques Résumé : Previous research has suggested that focusing on impairments can be detrimental to the well-being of autistic individuals, yet little research has focused on strengths and positive qualities in autism. Some studies explored "savant skills" (herein referred to as "extraordinary talents"), that is, skills that stand out compared to the general population. These often group everyone who has a specific talent, rather than exploring subgroups with strengths in specific areas. There has been even less research focused on personal strengths (i.e. skills that stand out relative to the individual's other abilities, but not the general population). To expand this research, we use a sample of 1470 children (ages 4-18?years) from the Simons Simplex Collection without cognitive impairment to examine the relationship between having a parent-reported skill in a specific area and performance on a standardized cognitive test. Almost half (46%) had at least one parent-reported talent and an additional 23% without extraordinary talents had at least one personal strength. Children with these parent-reported skills had different patterns of performance on these standardized tests than children without skills in that area (i.e. visuospatial, drawing, computation, reading, and memory). Specific skills in computation or reading were associated with higher overall performance on the standardized tests. These results emphasize the importance of considering strengths separately by area, rather than combining individuals with different types of strengths. The high number of children with skills in this study underscores the need for more research in this area, particularly using instruments focused on understanding the nuances of these strengths. It is important for future studies to consider these skills in children with cognitive impairment. En ligne : http://dx.doi.org/10.1177/13623613211020618 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Participatory autism research: Early career and established researchers' views and experiences / H. PICKARD in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.75-87 Titre : Participatory autism research: Early career and established researchers' views and experiences Type de document : Texte imprimé et/ou numérique Auteurs : H. PICKARD, Auteur ; E. PELLICANO, Auteur ; Jacquiline DEN HOUTING, Auteur ; L. CRANE, Auteur Article en page(s) : p.75-87 Langues : Anglais (eng) Mots-clés : autism  co-production  early career  engagement  participatory research  researchers Index. décimale : PER Périodiques Résumé : 'Participatory autism research' refers to ways of involving autistic people and their allies (e.g. family members) in making decisions about research. These decisions can include what research gets done, how it gets done and how research findings are used. While there is more and more interest in participatory autism research, we know little about how researchers at different stages of their careers use this approach. To find out more, we discussed these issues with 25 researchers. Fourteen of these were at an early stage of their careers, and 11 were more senior researchers. We spoke to people in individual interviews or in groups. We then used a technique called thematic analysis to analyse our data, which involved us looking for common topics or 'themes' discussed by our participants. What did we find? Our participants told us that participatory autism research was a flexible approach, meaning that autistic people can be involved in research in many different ways. While people viewed this flexibility in a positive way, it also caused some confusion about what does or does not 'count' as participatory research. Our participants also spoke about how important it was to build relationships with those involved in their research, but they also said it could be difficult to communicate well with diverse groups of people who may not have much experience of research. Finally, our participants said it was hard to do participatory research when there was not much time, funding or support available to researchers. In this article, we discuss these findings, focusing on what needs to change to ensure that autistic people and their allies are meaningfully involved in autism research. En ligne : http://dx.doi.org/10.1177/13623613211019594 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Participatory autism research: Early career and established researchers' views and experiences [Texte imprimé et/ou numérique] / H. PICKARD, Auteur ; E. PELLICANO, Auteur ; Jacquiline DEN HOUTING, Auteur ; L. CRANE, Auteur . - p.75-87. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.75-87 Mots-clés : autism  co-production  early career  engagement  participatory research  researchers Index. décimale : PER Périodiques Résumé : 'Participatory autism research' refers to ways of involving autistic people and their allies (e.g. family members) in making decisions about research. These decisions can include what research gets done, how it gets done and how research findings are used. While there is more and more interest in participatory autism research, we know little about how researchers at different stages of their careers use this approach. To find out more, we discussed these issues with 25 researchers. Fourteen of these were at an early stage of their careers, and 11 were more senior researchers. We spoke to people in individual interviews or in groups. We then used a technique called thematic analysis to analyse our data, which involved us looking for common topics or 'themes' discussed by our participants. What did we find? Our participants told us that participatory autism research was a flexible approach, meaning that autistic people can be involved in research in many different ways. While people viewed this flexibility in a positive way, it also caused some confusion about what does or does not 'count' as participatory research. Our participants also spoke about how important it was to build relationships with those involved in their research, but they also said it could be difficult to communicate well with diverse groups of people who may not have much experience of research. Finally, our participants said it was hard to do participatory research when there was not much time, funding or support available to researchers. In this article, we discuss these findings, focusing on what needs to change to ensure that autistic people and their allies are meaningfully involved in autism research. En ligne : http://dx.doi.org/10.1177/13623613211019594 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming / Serene HABAYEB in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.88-100 Titre : Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming Type de document : Texte imprimé et/ou numérique Auteurs : Serene HABAYEB, Auteur ; S. AL-HARAHSHEH, Auteur ; Allison B. RATTO, Auteur ; A. VERBALIS, Auteur ; C. PUGLIESE, Auteur ; N. NADWODNY, Auteur ; F. AL-MEER, Auteur ; M. EL-AKOUM, Auteur Article en page(s) : p.88-100 Langues : Anglais (eng) Mots-clés : Qatar  adolescents  adults  autism spectrum disorders  family functioning and support  quality of life  vocational/labor force participation Index. décimale : PER Périodiques Résumé : Qatar is expanding the services that it offers for autistic people, but these services focus mainly on diagnosing and treating young children. Because there are not enough autism providers in Qatar and few opportunities for autistic youth to participate in the community, more and more autistic teens and young adults have unmet needs during their transition to adulthood. The goal of this study was to conduct a needs assessment of transition-age autistic youth in Qatar and their families in order to inform the development of an adult respite care and support center. Respite care is a service that provides families with stress relief and time to participate in activities that are more difficult to do when their loved one with a disability is with them. The objective of this study was to use family and stakeholder input to identify the needs and preferences for respite care for autistic youth in Qatar. The project was conducted with a local research team in Qatar and a team of clinical researchers in the United States specializing in autism. Stakeholders, including parents of autistic people and providers working with individuals with autism, completed surveys and participated in focus groups. Families and providers in Qatar were very interested increasing services for young adults with autism to improve quality of life, although wanted to make sure the service providers would be reliable and trustworthy. Implications from this study may substantially improve the lives of autistic adults in Qatar. En ligne : http://dx.doi.org/10.1177/13623613211020623 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming [Texte imprimé et/ou numérique] / Serene HABAYEB, Auteur ; S. AL-HARAHSHEH, Auteur ; Allison B. RATTO, Auteur ; A. VERBALIS, Auteur ; C. PUGLIESE, Auteur ; N. NADWODNY, Auteur ; F. AL-MEER, Auteur ; M. EL-AKOUM, Auteur . - p.88-100. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.88-100 Mots-clés : Qatar  adolescents  adults  autism spectrum disorders  family functioning and support  quality of life  vocational/labor force participation Index. décimale : PER Périodiques Résumé : Qatar is expanding the services that it offers for autistic people, but these services focus mainly on diagnosing and treating young children. Because there are not enough autism providers in Qatar and few opportunities for autistic youth to participate in the community, more and more autistic teens and young adults have unmet needs during their transition to adulthood. The goal of this study was to conduct a needs assessment of transition-age autistic youth in Qatar and their families in order to inform the development of an adult respite care and support center. Respite care is a service that provides families with stress relief and time to participate in activities that are more difficult to do when their loved one with a disability is with them. The objective of this study was to use family and stakeholder input to identify the needs and preferences for respite care for autistic youth in Qatar. The project was conducted with a local research team in Qatar and a team of clinical researchers in the United States specializing in autism. Stakeholders, including parents of autistic people and providers working with individuals with autism, completed surveys and participated in focus groups. Families and providers in Qatar were very interested increasing services for young adults with autism to improve quality of life, although wanted to make sure the service providers would be reliable and trustworthy. Implications from this study may substantially improve the lives of autistic adults in Qatar. En ligne : http://dx.doi.org/10.1177/13623613211020623 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Behavior analytic interventions for children with autism: Policy and practice in the United Kingdom and China / Y. LIAO in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.101-120 Titre : Behavior analytic interventions for children with autism: Policy and practice in the United Kingdom and China Type de document : Texte imprimé et/ou numérique Auteurs : Y. LIAO, Auteur ; Karola DILLENBURGER, Auteur ; X. HU, Auteur Article en page(s) : p.101-120 Langues : Anglais (eng) Mots-clés : China  United Kingdom  applied behavior analysis  autism spectrum disorders  policy Index. décimale : PER Périodiques Résumé : The prevalence of autism is increasing, and the development of these children and the lived experience of their families have become a global concern. Applied behavioral analytic intervention is proved to be effective in improving their cognitive abilities, language skills, and social and emotional skills, but the service delivery between developed and developing countries is different. A qualitative study was conducted to explore personal experiences with actual practice fidelity of behavior analytic services for children with autism in a Western developed country (United Kingdom) and an Eastern developing country (China). The study found: (1) a lack of support for autism and behavioral analytic services in both countries; (2) applied behavioral analytic intervention was not as widely endorsed by healthcare or educational systems in the United Kingdom; Chinese parents faced challenges around inclusive education and accessing high-quality services and there was a social stigma attached to autism; (3) a limited awareness and application of early intensive behavior intervention in both regions; and (4) intervention fidelity with regards to the practice of one particular aspect of behavioral analytic interventions was similar and increased with ongoing training. This study emphasizes the need to support children with autism, and to consider regional adaptations of evidence-based practice of behavior analytic interventions for the affected population. En ligne : http://dx.doi.org/10.1177/13623613211020976 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Behavior analytic interventions for children with autism: Policy and practice in the United Kingdom and China [Texte imprimé et/ou numérique] / Y. LIAO, Auteur ; Karola DILLENBURGER, Auteur ; X. HU, Auteur . - p.101-120. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.101-120 Mots-clés : China  United Kingdom  applied behavior analysis  autism spectrum disorders  policy Index. décimale : PER Périodiques Résumé : The prevalence of autism is increasing, and the development of these children and the lived experience of their families have become a global concern. Applied behavioral analytic intervention is proved to be effective in improving their cognitive abilities, language skills, and social and emotional skills, but the service delivery between developed and developing countries is different. A qualitative study was conducted to explore personal experiences with actual practice fidelity of behavior analytic services for children with autism in a Western developed country (United Kingdom) and an Eastern developing country (China). The study found: (1) a lack of support for autism and behavioral analytic services in both countries; (2) applied behavioral analytic intervention was not as widely endorsed by healthcare or educational systems in the United Kingdom; Chinese parents faced challenges around inclusive education and accessing high-quality services and there was a social stigma attached to autism; (3) a limited awareness and application of early intensive behavior intervention in both regions; and (4) intervention fidelity with regards to the practice of one particular aspect of behavioral analytic interventions was similar and increased with ongoing training. This study emphasizes the need to support children with autism, and to consider regional adaptations of evidence-based practice of behavior analytic interventions for the affected population. En ligne : http://dx.doi.org/10.1177/13623613211020976 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Dyadic coping and coparenting among couples after their child's recent autism diagnosis / N. DOWNES in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.121-134 Titre : Dyadic coping and coparenting among couples after their child's recent autism diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : N. DOWNES, Auteur ; Marie-Maude GEOFFRAY, Auteur ; P. ISNARD, Auteur ; E. LEMONNIER, Auteur ; M. J. ORÊVE, Auteur ; Emilie CAPPE, Auteur Article en page(s) : p.121-134 Langues : Anglais (eng) Mots-clés : autism  coparenting  couples  diagnosis  dyadic coping  parents Index. décimale : PER Périodiques Résumé : We investigated how couples support each other after their child's autism diagnosis and whether this affects the way they work together to raise their child. We recruited 70 couples raising a child on the autism spectrum. Both partners were asked to complete the same questionnaires measuring how they perceived the experience of having a child on the autism spectrum, how they used their relationship to support each other during stressful situations, how competent they felt completing their parenting tasks, and the coparenting relationship to explore how they worked together as a team when parenting their child. Parents participated in the study 1-36?months after their child's autism diagnosis. We used statistical techniques that allowed us to see the impact mothers and fathers had on each other. Overall, parents who felt more competent and supported by their partner worked better as a team to raise their child on the spectrum. Fathers invested in the coparenting relationship more when mothers felt more supported by fathers. Mothers invested in the coparenting relationship more when fathers felt more competent parenting their child. Further research is needed to better understand how we can support couples as their child gets older. En ligne : http://dx.doi.org/10.1177/13623613211020916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Dyadic coping and coparenting among couples after their child's recent autism diagnosis [Texte imprimé et/ou numérique] / N. DOWNES, Auteur ; Marie-Maude GEOFFRAY, Auteur ; P. ISNARD, Auteur ; E. LEMONNIER, Auteur ; M. J. ORÊVE, Auteur ; Emilie CAPPE, Auteur . - p.121-134. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.121-134 Mots-clés : autism  coparenting  couples  diagnosis  dyadic coping  parents Index. décimale : PER Périodiques Résumé : We investigated how couples support each other after their child's autism diagnosis and whether this affects the way they work together to raise their child. We recruited 70 couples raising a child on the autism spectrum. Both partners were asked to complete the same questionnaires measuring how they perceived the experience of having a child on the autism spectrum, how they used their relationship to support each other during stressful situations, how competent they felt completing their parenting tasks, and the coparenting relationship to explore how they worked together as a team when parenting their child. Parents participated in the study 1-36?months after their child's autism diagnosis. We used statistical techniques that allowed us to see the impact mothers and fathers had on each other. Overall, parents who felt more competent and supported by their partner worked better as a team to raise their child on the spectrum. Fathers invested in the coparenting relationship more when mothers felt more supported by fathers. Mothers invested in the coparenting relationship more when fathers felt more competent parenting their child. Further research is needed to better understand how we can support couples as their child gets older. En ligne : http://dx.doi.org/10.1177/13623613211020916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Influence of siblings on adaptive behavior trajectories in autism spectrum disorder / N. E. ROSEN in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.135-145 Titre : Influence of siblings on adaptive behavior trajectories in autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : N. E. ROSEN, Auteur ; J. B. MCCAULEY, Auteur ; C. LORD, Auteur Article en page(s) : p.135-145 Langues : Anglais (eng) Mots-clés : adaptive behavior  autism spectrum disorder  sibling constellation  siblings  trajectories Index. décimale : PER Périodiques Résumé : Siblings have the potential to shape the developmental trajectories of individuals with autism spectrum disorder. Having siblings has been associated with better social communication skills, less severe non-verbal communication deficits, and improved theory of mind abilities in autism spectrum disorder. This study examined the influence of the presence of a sibling, participant's position in the birth order, gender of the closest-age sibling, and gender match of the sibling dyad on the rate of growth in adaptive skills from ages 9 to 26 years among individuals with autism spectrum disorder and individuals with a history of non-spectrum developmental disorders. While all participants showed consistent gains in adaptive skill development as a function of age, there was variability in rates of growth based on sibling constellation group membership. Participants with at least one sibling, regardless of other sibling constellation factors, experienced greater rates of growth in adaptive behavior trajectories from childhood to adulthood than participants with no siblings across both Black and White participants, although differences were magnified in Black participants. Furthermore, among participants with siblings, those with male closest-age siblings and those with gender-matched siblings, irrespective of birth order position, demonstrated the steepest growth patterns in adaptive functioning within their respective groups over the 17-year period. Results suggest that siblings may serve an important role in improving the adaptive functioning trajectories and overall outcomes of individuals with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/13623613211024096 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Influence of siblings on adaptive behavior trajectories in autism spectrum disorder [Texte imprimé et/ou numérique] / N. E. ROSEN, Auteur ; J. B. MCCAULEY, Auteur ; C. LORD, Auteur . - p.135-145. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.135-145 Mots-clés : adaptive behavior  autism spectrum disorder  sibling constellation  siblings  trajectories Index. décimale : PER Périodiques Résumé : Siblings have the potential to shape the developmental trajectories of individuals with autism spectrum disorder. Having siblings has been associated with better social communication skills, less severe non-verbal communication deficits, and improved theory of mind abilities in autism spectrum disorder. This study examined the influence of the presence of a sibling, participant's position in the birth order, gender of the closest-age sibling, and gender match of the sibling dyad on the rate of growth in adaptive skills from ages 9 to 26 years among individuals with autism spectrum disorder and individuals with a history of non-spectrum developmental disorders. While all participants showed consistent gains in adaptive skill development as a function of age, there was variability in rates of growth based on sibling constellation group membership. Participants with at least one sibling, regardless of other sibling constellation factors, experienced greater rates of growth in adaptive behavior trajectories from childhood to adulthood than participants with no siblings across both Black and White participants, although differences were magnified in Black participants. Furthermore, among participants with siblings, those with male closest-age siblings and those with gender-matched siblings, irrespective of birth order position, demonstrated the steepest growth patterns in adaptive functioning within their respective groups over the 17-year period. Results suggest that siblings may serve an important role in improving the adaptive functioning trajectories and overall outcomes of individuals with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/13623613211024096 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Mental health correlates and potential childhood predictors for the wish to be of the opposite sex in young autistic adults / J. C. CHANG in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.146-159 Titre : Mental health correlates and potential childhood predictors for the wish to be of the opposite sex in young autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : J. C. CHANG, Auteur ; Meng-Chuan LAI, Auteur ; Y. M. TAI, Auteur ; S. S. GAU, Auteur Article en page(s) : p.146-159 Langues : Anglais (eng) Mots-clés : autism  follow-up study  gender dysphoria  mental health Index. décimale : PER Périodiques Résumé : Autistic people/people with autism spectrum disorder are more likely to experience gender dysphoria. However, the possible longitudinal predictors and underlying mechanisms of this co-occurrence are unclear. To fill this knowledge gap, we assessed 88 people with autism spectrum disorder and 42 typically developing individuals at their average ages of 13.0 (baseline, childhood/adolescence) and 20.2?years old (follow-up, adulthood). At follow-up, their endorsement on the item "I wish I was the opposite sex" was used to evaluate gender dysphoric symptoms. We compared mental health symptoms between adults with and without this item endorsement at the follow-up assessment. We explored parent-reported family and autism characteristics-related predictors in childhood/adolescence to this item endorsement in adulthood. We found that more autistic adults reported the wish to be of the opposite sex than did typically developing individuals. Autistic adults who endorsed this item experienced more mental health challenges, more school bullying and cyberbullying, more suicidal ideation, and worse quality of life. Moreover, parent-reported lower family support and more stereotyped/repetitive behaviors during childhood/adolescence predicted the self-reported wish to be of the opposite sex in adulthood in autistic individuals. More attention and support should be provided to autistic people regarding gender development and related mental health and quality of life impact, especially during the transition period to young adulthood. En ligne : http://dx.doi.org/10.1177/13623613211024098 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Mental health correlates and potential childhood predictors for the wish to be of the opposite sex in young autistic adults [Texte imprimé et/ou numérique] / J. C. CHANG, Auteur ; Meng-Chuan LAI, Auteur ; Y. M. TAI, Auteur ; S. S. GAU, Auteur . - p.146-159. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.146-159 Mots-clés : autism  follow-up study  gender dysphoria  mental health Index. décimale : PER Périodiques Résumé : Autistic people/people with autism spectrum disorder are more likely to experience gender dysphoria. However, the possible longitudinal predictors and underlying mechanisms of this co-occurrence are unclear. To fill this knowledge gap, we assessed 88 people with autism spectrum disorder and 42 typically developing individuals at their average ages of 13.0 (baseline, childhood/adolescence) and 20.2?years old (follow-up, adulthood). At follow-up, their endorsement on the item "I wish I was the opposite sex" was used to evaluate gender dysphoric symptoms. We compared mental health symptoms between adults with and without this item endorsement at the follow-up assessment. We explored parent-reported family and autism characteristics-related predictors in childhood/adolescence to this item endorsement in adulthood. We found that more autistic adults reported the wish to be of the opposite sex than did typically developing individuals. Autistic adults who endorsed this item experienced more mental health challenges, more school bullying and cyberbullying, more suicidal ideation, and worse quality of life. Moreover, parent-reported lower family support and more stereotyped/repetitive behaviors during childhood/adolescence predicted the self-reported wish to be of the opposite sex in adulthood in autistic individuals. More attention and support should be provided to autistic people regarding gender development and related mental health and quality of life impact, especially during the transition period to young adulthood. En ligne : http://dx.doi.org/10.1177/13623613211024098 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Using formative research to develop HEARTS: A curriculum-based healthy relationships promoting intervention for individuals on the autism spectrum / E. F. ROTHMAN in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.160-168 Titre : Using formative research to develop HEARTS: A curriculum-based healthy relationships promoting intervention for individuals on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : E. F. ROTHMAN, Auteur ; L. GRAHAM HOLMES, Auteur Article en page(s) : p.160-168 Langues : Anglais (eng) Mots-clés : adolescents  adults  interventions—psychosocial/behavioral  social behavior  social cognition Index. décimale : PER Périodiques Résumé : What is already known about the topic? All people can benefit from education about how to have healthy friendships and dating relationships. But specific interventions on relationship skills-like respecting boundaries, identifying warning signs of abuse, or talking about sexual preferences-are too rare, particularly for autistic individuals. The goal of this study was to collect formative data from autistic emerging adults to help create a new, six-session workshop for autistic young adults to support healthy peer relationships. Twenty-five autistic youth aged 16-22?years old were interviewed.What this paper adds? The participants described a need for more and better information about how to support lasting friendships, deal with their anxiety about relationships, and know when friendships or dating relationships were reciprocal and rewarding versus unhealthy.Implications for practice, research, or policy. The results reveal a need for a new and effective intervention that supports healthy relationship skills for autistic people. En ligne : http://dx.doi.org/10.1177/13623613211024521 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Using formative research to develop HEARTS: A curriculum-based healthy relationships promoting intervention for individuals on the autism spectrum [Texte imprimé et/ou numérique] / E. F. ROTHMAN, Auteur ; L. GRAHAM HOLMES, Auteur . - p.160-168. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.160-168 Mots-clés : adolescents  adults  interventions—psychosocial/behavioral  social behavior  social cognition Index. décimale : PER Périodiques Résumé : What is already known about the topic? All people can benefit from education about how to have healthy friendships and dating relationships. But specific interventions on relationship skills-like respecting boundaries, identifying warning signs of abuse, or talking about sexual preferences-are too rare, particularly for autistic individuals. The goal of this study was to collect formative data from autistic emerging adults to help create a new, six-session workshop for autistic young adults to support healthy peer relationships. Twenty-five autistic youth aged 16-22?years old were interviewed.What this paper adds? The participants described a need for more and better information about how to support lasting friendships, deal with their anxiety about relationships, and know when friendships or dating relationships were reciprocal and rewarding versus unhealthy.Implications for practice, research, or policy. The results reveal a need for a new and effective intervention that supports healthy relationship skills for autistic people. En ligne : http://dx.doi.org/10.1177/13623613211024521 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Where are US outpatient mental health facilities that serve children with autism spectrum disorder? A national snapshot of geographic disparities / J. CANTOR in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.169-177 Titre : Where are US outpatient mental health facilities that serve children with autism spectrum disorder? A national snapshot of geographic disparities Type de document : Texte imprimé et/ou numérique Auteurs : J. CANTOR, Auteur ; R. K. MCBAIN, Auteur ; A. KOFNER, Auteur ; B. D. STEIN, Auteur ; H. YU, Auteur Article en page(s) : p.169-177 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services Index. décimale : PER Périodiques Résumé : There has been a rise in the observed prevalence of autism spectrum disorder among children. Existing studies show the share of counties with a treatment facility that offers care for children with autism spectrum disorder. However, no estimates exist of the share of US outpatient mental health treatment facilities that provide services for children with autism spectrum disorder. We identified key facility-level characteristics in offering mental health care for children with autism spectrum disorder. We used a telephone survey to contact almost all outpatient mental health treatment facilities in the contiguous United States. We asked the facilities if they provided mental health care for children with autism spectrum disorder. We took the results of this survey and estimated multivariable regressions to examine county- and facility-level predictors of offering services. We found that over half (50.3%) of the 6156 outpatient facilities reported offering care for children with autism spectrum disorder. Non-metro counties, counties with a lower percentage of non-White residents, counties with a higher percentage of uninsured residents, and counties with a higher poverty rate had fewer outpatient mental health treatment facilities providing care for children with autism spectrum disorder. Facilities accepting Medicaid as a form of payment, offering telehealth, and private for-profit facilities were more likely to provide services for children with autism spectrum disorder. Because only half of outpatient mental health treatment facilities offer care for children with autism spectrum disorder, public health officials and policymakers should do more to ensure that this vulnerable population has access to mental health services. En ligne : http://dx.doi.org/10.1177/13623613211024046 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Where are US outpatient mental health facilities that serve children with autism spectrum disorder? A national snapshot of geographic disparities [Texte imprimé et/ou numérique] / J. CANTOR, Auteur ; R. K. MCBAIN, Auteur ; A. KOFNER, Auteur ; B. D. STEIN, Auteur ; H. YU, Auteur . - p.169-177. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.169-177 Mots-clés : autism spectrum disorders  health services Index. décimale : PER Périodiques Résumé : There has been a rise in the observed prevalence of autism spectrum disorder among children. Existing studies show the share of counties with a treatment facility that offers care for children with autism spectrum disorder. However, no estimates exist of the share of US outpatient mental health treatment facilities that provide services for children with autism spectrum disorder. We identified key facility-level characteristics in offering mental health care for children with autism spectrum disorder. We used a telephone survey to contact almost all outpatient mental health treatment facilities in the contiguous United States. We asked the facilities if they provided mental health care for children with autism spectrum disorder. We took the results of this survey and estimated multivariable regressions to examine county- and facility-level predictors of offering services. We found that over half (50.3%) of the 6156 outpatient facilities reported offering care for children with autism spectrum disorder. Non-metro counties, counties with a lower percentage of non-White residents, counties with a higher percentage of uninsured residents, and counties with a higher poverty rate had fewer outpatient mental health treatment facilities providing care for children with autism spectrum disorder. Facilities accepting Medicaid as a form of payment, offering telehealth, and private for-profit facilities were more likely to provide services for children with autism spectrum disorder. Because only half of outpatient mental health treatment facilities offer care for children with autism spectrum disorder, public health officials and policymakers should do more to ensure that this vulnerable population has access to mental health services. En ligne : http://dx.doi.org/10.1177/13623613211024046 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum / C. E. LEE in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.178-187 Titre : Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : C. E. LEE, Auteur ; K. A. SHOGREN, Auteur ; J. SEGAL, Auteur ; F. PEZZIMENTI, Auteur ; Janeth ALEMAN-TOVAR, Auteur ; Julie LOUNDS TAYLOR, Auteur Article en page(s) : p.178-187 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  goal attainment scaling  interventions—psychosocial/behavioral  outcome Index. décimale : PER Périodiques Résumé : Among people with autism-all who have the same diagnosis-there are major differences on a nearly limitless number of areas, such as language, daily living skills, intellectual ability, sensory difficulties, and physical and mental health diagnoses. Despite these many differences, the targeted outcomes of intervention studies are often measured the same way across autistic adults, including outcomes such as getting a job, achieving greater independence, or getting more services. People have different goals and abilities, and it is important to have a way for intervention studies to measure outcomes in a way that is more personal to each individual. To address this issue, we developed a new approach-called "Goal Attainment Scaling-Community-based" or GAS-CB-to measure individualized outcomes across different research settings. In this article, we describe the need for individualized outcomes in autism intervention research and current approaches to gathering these outcomes, with our discussion focused on a method called goal attainment scaling. We then describe reasons why current goal attainment scaling approaches might not be useful in intervention research that takes place in the community. Finally, we discuss a new goal attainment scaling approach (GAS-CB) that can be flexibly used for research participants with very different characteristics. En ligne : http://dx.doi.org/10.1177/13623613211024492 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum [Texte imprimé et/ou numérique] / C. E. LEE, Auteur ; K. A. SHOGREN, Auteur ; J. SEGAL, Auteur ; F. PEZZIMENTI, Auteur ; Janeth ALEMAN-TOVAR, Auteur ; Julie LOUNDS TAYLOR, Auteur . - p.178-187. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.178-187 Mots-clés : adults  autism spectrum disorders  goal attainment scaling  interventions—psychosocial/behavioral  outcome Index. décimale : PER Périodiques Résumé : Among people with autism-all who have the same diagnosis-there are major differences on a nearly limitless number of areas, such as language, daily living skills, intellectual ability, sensory difficulties, and physical and mental health diagnoses. Despite these many differences, the targeted outcomes of intervention studies are often measured the same way across autistic adults, including outcomes such as getting a job, achieving greater independence, or getting more services. People have different goals and abilities, and it is important to have a way for intervention studies to measure outcomes in a way that is more personal to each individual. To address this issue, we developed a new approach-called "Goal Attainment Scaling-Community-based" or GAS-CB-to measure individualized outcomes across different research settings. In this article, we describe the need for individualized outcomes in autism intervention research and current approaches to gathering these outcomes, with our discussion focused on a method called goal attainment scaling. We then describe reasons why current goal attainment scaling approaches might not be useful in intervention research that takes place in the community. Finally, we discuss a new goal attainment scaling approach (GAS-CB) that can be flexibly used for research participants with very different characteristics. En ligne : http://dx.doi.org/10.1177/13623613211024492 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Preschool teachers' selection of social communication interventions for children with autism: An application of the theory of planned behavior / M. L. HUGH in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.188-200 Titre : Preschool teachers' selection of social communication interventions for children with autism: An application of the theory of planned behavior Type de document : Texte imprimé et/ou numérique Auteurs : M. L. HUGH, Auteur ; L. D. JOHNSON, Auteur ; C. COOK, Auteur Article en page(s) : p.188-200 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  decision-making  early childhood special education  evidence-based practice  implementation science  teachers Index. décimale : PER Périodiques Résumé : Preschool special educators' are more likely to choose an educational practice to teach a young child with autism a social communication skill if they have positive beliefs about it. We asked preschool special educators to read a description of an autistic student and their social communication goal and imagine they were the student's teacher. We then asked them to pick one of five practices to teach the student. We also asked them questions to understand their attitudes about, confidence in their ability to use, and their perception of their coworkers' support of each practice. There are many research-based practices that a teacher could use to help children learn, and preschool teachers often make these decisions for their students. Teachers' beliefs varied in how supportive they were of each practice, and research shows people are more likely to do something that their beliefs support. In this study, they had more supportive beliefs and were more likely to use some practices, like naturalistic intervention, than other practices, like discrete trial teaching. By knowing this, researchers can help teachers use practices that their beliefs support and help change teachers' beliefs to be supportive of a practice they may need to use. En ligne : http://dx.doi.org/10.1177/13623613211024795 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Preschool teachers' selection of social communication interventions for children with autism: An application of the theory of planned behavior [Texte imprimé et/ou numérique] / M. L. HUGH, Auteur ; L. D. JOHNSON, Auteur ; C. COOK, Auteur . - p.188-200. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.188-200 Mots-clés : autism spectrum disorders  decision-making  early childhood special education  evidence-based practice  implementation science  teachers Index. décimale : PER Périodiques Résumé : Preschool special educators' are more likely to choose an educational practice to teach a young child with autism a social communication skill if they have positive beliefs about it. We asked preschool special educators to read a description of an autistic student and their social communication goal and imagine they were the student's teacher. We then asked them to pick one of five practices to teach the student. We also asked them questions to understand their attitudes about, confidence in their ability to use, and their perception of their coworkers' support of each practice. There are many research-based practices that a teacher could use to help children learn, and preschool teachers often make these decisions for their students. Teachers' beliefs varied in how supportive they were of each practice, and research shows people are more likely to do something that their beliefs support. In this study, they had more supportive beliefs and were more likely to use some practices, like naturalistic intervention, than other practices, like discrete trial teaching. By knowing this, researchers can help teachers use practices that their beliefs support and help change teachers' beliefs to be supportive of a practice they may need to use. En ligne : http://dx.doi.org/10.1177/13623613211024795 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Experiences of autistic and non-autistic individuals participating in a corporate internship scheme / A. REMINGTON in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.201-216 Titre : Experiences of autistic and non-autistic individuals participating in a corporate internship scheme Type de document : Texte imprimé et/ou numérique Auteurs : A. REMINGTON, Auteur ; B. HEASMAN, Auteur ; A. M. ROMUALDEZ, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.201-216 Langues : Anglais (eng) Mots-clés : autism  employment  internship  outcomes  work  of interest with respect to the research, authorship and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Autistic people can find it difficult to find and keep a job, and fewer autistic people are employed compared with people from other disability groups. There is not enough research in this area, especially research that directly compares the experiences of autistic and non-autistic colleagues starting in an organisation at the same time. Our study looked at the experiences of autistic and non-autistic people taking part in an internship at Deutsche Bank, UK. We spoke to the interns before the internship began, and again once it had finished. We also asked the interns' hiring managers about their experiences of the internship. We used interviews and online questionnaires to find out people's views. Before the programme began, managers of autistic interns were more worried about the internship than managers of the non-autistic interns. They were worried about providing the right level of support, communicating successfully and treating all their employees fairly. At the end of the internship, everyone felt that the internship was a success. Managers of autistic interns explained how the experience had made them better managers. Both groups of interns and said that they benefitted from clear communication and would have likes more support. Managers of autistic interns spoke about dividing tasks up into smaller chunks and being flexible in their communication were helpful when working with the autistic interns. More work is needed to make sure that autistic interns are integrated alongside non-autistic peers. One way to make this happen might be to create guides for managers. En ligne : http://dx.doi.org/10.1177/13623613211025115 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Experiences of autistic and non-autistic individuals participating in a corporate internship scheme [Texte imprimé et/ou numérique] / A. REMINGTON, Auteur ; B. HEASMAN, Auteur ; A. M. ROMUALDEZ, Auteur ; E. PELLICANO, Auteur . - p.201-216. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.201-216 Mots-clés : autism  employment  internship  outcomes  work  of interest with respect to the research, authorship and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Autistic people can find it difficult to find and keep a job, and fewer autistic people are employed compared with people from other disability groups. There is not enough research in this area, especially research that directly compares the experiences of autistic and non-autistic colleagues starting in an organisation at the same time. Our study looked at the experiences of autistic and non-autistic people taking part in an internship at Deutsche Bank, UK. We spoke to the interns before the internship began, and again once it had finished. We also asked the interns' hiring managers about their experiences of the internship. We used interviews and online questionnaires to find out people's views. Before the programme began, managers of autistic interns were more worried about the internship than managers of the non-autistic interns. They were worried about providing the right level of support, communicating successfully and treating all their employees fairly. At the end of the internship, everyone felt that the internship was a success. Managers of autistic interns explained how the experience had made them better managers. Both groups of interns and said that they benefitted from clear communication and would have likes more support. Managers of autistic interns spoke about dividing tasks up into smaller chunks and being flexible in their communication were helpful when working with the autistic interns. More work is needed to make sure that autistic interns are integrated alongside non-autistic peers. One way to make this happen might be to create guides for managers. En ligne : http://dx.doi.org/10.1177/13623613211025115 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Self-reported parkinsonism features in older autistic adults: A descriptive study / H. M. GEURTS in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.217-229 Titre : Self-reported parkinsonism features in older autistic adults: A descriptive study Type de document : Texte imprimé et/ou numérique Auteurs : H. M. GEURTS, Auteur ; G. A. MCQUAID, Auteur ; Sander BEGEER, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.217-229 Langues : Anglais (eng) Mots-clés : autism  medication  old-age  parkinsonism  self-report Index. décimale : PER Périodiques Résumé : Autistic adults without a suspected intellectual disability reported several motor features such as having tremors, and stiffness in one's legs which are considered to be part of a complex of motor features called parkinsonism. This so-called parkinsonism was remarkably prevalent in middle-aged and older autistic adults in two independent studies (Dutch study: 50-81 years, 183 males, 113 females, all adulthood diagnoses; the USA study: 50-83 years, 110 females, 109 males, majority adulthood diagnosis). Parkinsonism can be part of the progressive motor disease-Parkinson's disease. Therefore, it is important that future studies, including in-person neurological assessment, determine if (and if so, why) autistic adults who report these motor features are at increased risk for developing Parkinson's disease. En ligne : http://dx.doi.org/10.1177/13623613211020183 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Self-reported parkinsonism features in older autistic adults: A descriptive study [Texte imprimé et/ou numérique] / H. M. GEURTS, Auteur ; G. A. MCQUAID, Auteur ; Sander BEGEER, Auteur ; Gregory L. WALLACE, Auteur . - p.217-229. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.217-229 Mots-clés : autism  medication  old-age  parkinsonism  self-report Index. décimale : PER Périodiques Résumé : Autistic adults without a suspected intellectual disability reported several motor features such as having tremors, and stiffness in one's legs which are considered to be part of a complex of motor features called parkinsonism. This so-called parkinsonism was remarkably prevalent in middle-aged and older autistic adults in two independent studies (Dutch study: 50-81 years, 183 males, 113 females, all adulthood diagnoses; the USA study: 50-83 years, 110 females, 109 males, majority adulthood diagnosis). Parkinsonism can be part of the progressive motor disease-Parkinson's disease. Therefore, it is important that future studies, including in-person neurological assessment, determine if (and if so, why) autistic adults who report these motor features are at increased risk for developing Parkinson's disease. En ligne : http://dx.doi.org/10.1177/13623613211020183 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Code-related literacy profiles of kindergarten students with autism / E. J. SOLARI in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.230-242 Titre : Code-related literacy profiles of kindergarten students with autism Type de document : Texte imprimé et/ou numérique Auteurs : E. J. SOLARI, Auteur ; A. R. HENRY, Auteur ; R. P. GRIMM, Auteur ; Matthew ZAJIC, Auteur ; A. MCGINTY, Auteur Article en page(s) : p.230-242 Langues : Anglais (eng) Mots-clés : cognition (attention, learning, memory)  communication and language  education services  school-age children Index. décimale : PER Périodiques Résumé : Many children and young students with autism have difficulties learning how to read. This study investigated early literacy development in children with autism spectrum disorder during their first year of formal schooling. The study found that children with autism spectrum disorder differ greatly on their early literacy skills, with some showing strengths in their understanding of the alphabet, spelling, and reading words. Other students in the sample had difficulties with these early reading skills. The findings of this study are important to better understand the most effective way to teach early literacy skills to children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/13623613211025904 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Code-related literacy profiles of kindergarten students with autism [Texte imprimé et/ou numérique] / E. J. SOLARI, Auteur ; A. R. HENRY, Auteur ; R. P. GRIMM, Auteur ; Matthew ZAJIC, Auteur ; A. MCGINTY, Auteur . - p.230-242. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.230-242 Mots-clés : cognition (attention, learning, memory)  communication and language  education services  school-age children Index. décimale : PER Périodiques Résumé : Many children and young students with autism have difficulties learning how to read. This study investigated early literacy development in children with autism spectrum disorder during their first year of formal schooling. The study found that children with autism spectrum disorder differ greatly on their early literacy skills, with some showing strengths in their understanding of the alphabet, spelling, and reading words. Other students in the sample had difficulties with these early reading skills. The findings of this study are important to better understand the most effective way to teach early literacy skills to children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/13623613211025904 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Objective and subjective psychosocial outcomes in adults with autism spectrum disorder: A 6-year longitudinal study / Anke M. SCHEEREN in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.243-255 Titre : Objective and subjective psychosocial outcomes in adults with autism spectrum disorder: A 6-year longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : Anke M. SCHEEREN, Auteur ; Joanne Marieke BUIL, Auteur ; P. HOWLIN, Auteur ; M. BARTELS, Auteur ; Sander BEGEER, Auteur Article en page(s) : p.243-255 Langues : Anglais (eng) Mots-clés : adult outcomes  adulthood  autism  employment  independent living  longitudinal study  well-being  of interest with respect to the research, authorship and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Previous research has shown that relatively few adults with autism have a paid job or live on their own. However, outcomes also vary a lot and may depend on many different factors. In this study, we examined the level of functioning and happiness of 917 adults with autism (425 men and 492 women) aged 18-65?years. Most of them were of average to high intellectual ability. Over 6?years, we measured whether they had a paid job, close friendships and lived on their own (i.e. their objective functioning). We also measured how happy they felt. Objectively, most autistic adults did fairly to very well. Those with better objective outcomes (e.g. those with paid work) also tended to be happier. Most adults improved in objective functioning and happiness over 6?years. Participants with a lower intellectual ability, more autism traits, mental health problems and younger age had poorer objective outcomes. Participants with more autism traits and mental health problems were less happy. Autistic men and women functioned at similar levels and were equally happy. We found important factors that predict a better (or worse) outcome for autistic adults. Overall, compared with some previous research, our findings give a more positive picture of the outcomes for autistic adults with average to high intellectual abilities. En ligne : http://dx.doi.org/10.1177/13623613211027673 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Objective and subjective psychosocial outcomes in adults with autism spectrum disorder: A 6-year longitudinal study [Texte imprimé et/ou numérique] / Anke M. SCHEEREN, Auteur ; Joanne Marieke BUIL, Auteur ; P. HOWLIN, Auteur ; M. BARTELS, Auteur ; Sander BEGEER, Auteur . - p.243-255. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.243-255 Mots-clés : adult outcomes  adulthood  autism  employment  independent living  longitudinal study  well-being  of interest with respect to the research, authorship and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Previous research has shown that relatively few adults with autism have a paid job or live on their own. However, outcomes also vary a lot and may depend on many different factors. In this study, we examined the level of functioning and happiness of 917 adults with autism (425 men and 492 women) aged 18-65?years. Most of them were of average to high intellectual ability. Over 6?years, we measured whether they had a paid job, close friendships and lived on their own (i.e. their objective functioning). We also measured how happy they felt. Objectively, most autistic adults did fairly to very well. Those with better objective outcomes (e.g. those with paid work) also tended to be happier. Most adults improved in objective functioning and happiness over 6?years. Participants with a lower intellectual ability, more autism traits, mental health problems and younger age had poorer objective outcomes. Participants with more autism traits and mental health problems were less happy. Autistic men and women functioned at similar levels and were equally happy. We found important factors that predict a better (or worse) outcome for autistic adults. Overall, compared with some previous research, our findings give a more positive picture of the outcomes for autistic adults with average to high intellectual abilities. En ligne : http://dx.doi.org/10.1177/13623613211027673 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Diagnostic- and sex-based differences in depression symptoms in autistic and neurotypical early adolescents / Jessica M. SCHWARTZMAN in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.256-269 Titre : Diagnostic- and sex-based differences in depression symptoms in autistic and neurotypical early adolescents Type de document : Texte imprimé et/ou numérique Auteurs : Jessica M. SCHWARTZMAN, Auteur ; Z. J. WILLIAMS, Auteur ; B. A. CORBETT, Auteur Article en page(s) : p.256-269 Langues : Anglais (eng) Mots-clés : autism  depression  early adolescent  measurement  peers  sex  financial compensation from the non-profit 501©(3) entity. Zachary Williams serves  on the Family Advisory Committee of the Autism Speaks Autism Treatment Network  Vanderbilt site. He also consults for Roche. Index. décimale : PER Périodiques Résumé : Depression is more common in autistic adolescents than their neurotypical peers, but the effects of diagnosis and sex on the severity and types of depressive symptoms remain unclear. The study explored diagnostic- and sex-based differences in depressive symptoms in 212 autistic and neurotypical early adolescents. Results show that autism spectrum disorder and female may pose elevated risks, and depressive symptoms related to interpersonal problems and negative self-esteem are more frequent in autism spectrum disorder. Autistic males and females endorsed similar severity and type of depressive symptoms, but unique differences emerged when compared to sex-matched neurotypical peers. Exploratory analyses in a clinical subsample of early adolescents with elevated depressive symptoms (Children's Depression Inventory, Second Edition, Total T-score ?60) revealed more endorsement of beliefs of worthlessness in autistic early adolescents. Findings suggest initial intervention targets for treating depression in autistic early adolescents. En ligne : http://dx.doi.org/10.1177/13623613211025895 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Diagnostic- and sex-based differences in depression symptoms in autistic and neurotypical early adolescents [Texte imprimé et/ou numérique] / Jessica M. SCHWARTZMAN, Auteur ; Z. J. WILLIAMS, Auteur ; B. A. CORBETT, Auteur . - p.256-269. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.256-269 Mots-clés : autism  depression  early adolescent  measurement  peers  sex  financial compensation from the non-profit 501©(3) entity. Zachary Williams serves  on the Family Advisory Committee of the Autism Speaks Autism Treatment Network  Vanderbilt site. He also consults for Roche. Index. décimale : PER Périodiques Résumé : Depression is more common in autistic adolescents than their neurotypical peers, but the effects of diagnosis and sex on the severity and types of depressive symptoms remain unclear. The study explored diagnostic- and sex-based differences in depressive symptoms in 212 autistic and neurotypical early adolescents. Results show that autism spectrum disorder and female may pose elevated risks, and depressive symptoms related to interpersonal problems and negative self-esteem are more frequent in autism spectrum disorder. Autistic males and females endorsed similar severity and type of depressive symptoms, but unique differences emerged when compared to sex-matched neurotypical peers. Exploratory analyses in a clinical subsample of early adolescents with elevated depressive symptoms (Children's Depression Inventory, Second Edition, Total T-score ?60) revealed more endorsement of beliefs of worthlessness in autistic early adolescents. Findings suggest initial intervention targets for treating depression in autistic early adolescents. En ligne : http://dx.doi.org/10.1177/13623613211025895 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa / L. FRANZ in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.270-275 Titre : Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa Type de document : Texte imprimé et/ou numérique Auteurs : L. FRANZ, Auteur ; J. HOWARD, Auteur ; M. VILJOEN, Auteur ; L. SIKICH, Auteur ; Tara CHANDRASEKHAR, Auteur ; S. H. KOLLINS, Auteur ; L. LEE, Auteur ; M. NDLOVU, Auteur ; Maura SABATOS-DEVITO, Auteur ; N. SERIS, Auteur ; N. SHABALALA, Auteur ; M. SPANOS, Auteur ; P. J. DE VRIES, Auteur ; G. DAWSON, Auteur Article en page(s) : p.270-275 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Covid-19  Caregivers  Child  Humans  Mentoring  SARS-CoV-2  South Africa  Telemedicine  United States  adaptation  autism spectrum disorder  caregiver coaching  digital divide  telehealth  Research and Development, Akili Interactive, LabCorp, Inc, Roche Pharmaceutical  Company, and Tris Pharma, is a consultant for Apple, Inc., Gerson Lehrman Group,  Guidepoint, Inc, Axial Ventures, Teva Pharmaceutical, and is CEO of DASIO, LLC. She  has received book royalties from Guilford Press, Oxford University Press, and  Springer Nature Press. Howard reports personal fees from Roche. Index. décimale : PER Périodiques Résumé : COVID-19 caused many autism spectrum disorder caregiver-coaching studies to move to telehealth. Telehealth can increase the diversity of people who take part in research. This matters because most autism spectrum disorder studies have included people who have resources, are White, and live in North America and Europe. When study participants are similar, it is hard to understand which interventions can help different types of people who live in different parts of the world. While telehealth may allow more people to take part in research, it needs to "fit" the local context and consider the "digital divide" because many people around the world have no access to computers and the Internet. This short report describes changes to two research studies that include caregiver coaching based on the Early Start Denver Model in the United States and South Africa. We describe how the local context, including technology and Internet access, guided the telehealth approach. By doing so, we highlight ways to make telehealth available to more people around the world. The pandemic can help us understand how telehealth can "fit" diverse places and support high-quality research. It is important that study changes are tracked and we assess how well the changes work. COVID-19 telehealth changes to caregiver coaching can result in new ways to reach more people around the world. En ligne : http://dx.doi.org/10.1177/13623613211022585 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa [Texte imprimé et/ou numérique] / L. FRANZ, Auteur ; J. HOWARD, Auteur ; M. VILJOEN, Auteur ; L. SIKICH, Auteur ; Tara CHANDRASEKHAR, Auteur ; S. H. KOLLINS, Auteur ; L. LEE, Auteur ; M. NDLOVU, Auteur ; Maura SABATOS-DEVITO, Auteur ; N. SERIS, Auteur ; N. SHABALALA, Auteur ; M. SPANOS, Auteur ; P. J. DE VRIES, Auteur ; G. DAWSON, Auteur . - p.270-275. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.270-275 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder  Covid-19  Caregivers  Child  Humans  Mentoring  SARS-CoV-2  South Africa  Telemedicine  United States  adaptation  autism spectrum disorder  caregiver coaching  digital divide  telehealth  Research and Development, Akili Interactive, LabCorp, Inc, Roche Pharmaceutical  Company, and Tris Pharma, is a consultant for Apple, Inc., Gerson Lehrman Group,  Guidepoint, Inc, Axial Ventures, Teva Pharmaceutical, and is CEO of DASIO, LLC. She  has received book royalties from Guilford Press, Oxford University Press, and  Springer Nature Press. Howard reports personal fees from Roche. Index. décimale : PER Périodiques Résumé : COVID-19 caused many autism spectrum disorder caregiver-coaching studies to move to telehealth. Telehealth can increase the diversity of people who take part in research. This matters because most autism spectrum disorder studies have included people who have resources, are White, and live in North America and Europe. When study participants are similar, it is hard to understand which interventions can help different types of people who live in different parts of the world. While telehealth may allow more people to take part in research, it needs to "fit" the local context and consider the "digital divide" because many people around the world have no access to computers and the Internet. This short report describes changes to two research studies that include caregiver coaching based on the Early Start Denver Model in the United States and South Africa. We describe how the local context, including technology and Internet access, guided the telehealth approach. By doing so, we highlight ways to make telehealth available to more people around the world. The pandemic can help us understand how telehealth can "fit" diverse places and support high-quality research. It is important that study changes are tracked and we assess how well the changes work. COVID-19 telehealth changes to caregiver coaching can result in new ways to reach more people around the world. En ligne : http://dx.doi.org/10.1177/13623613211022585 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Face memory and face perception in autism / M. STANTI? in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.276-280 Titre : Face memory and face perception in autism Type de document : Texte imprimé et/ou numérique Auteurs : M. STANTI?, Auteur ; E. ICHIJO, Auteur ; Caroline CATMUR, Auteur ; Geoffrey BIRD, Auteur Article en page(s) : p.276-280 Langues : Anglais (eng) Mots-clés : Cfmt  Gfmt  Ofmt  face memory  face perception  of interest with respect to the research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : It is well known that some people with autism have difficulties recognizing faces. It is generally thought that this is not because autistic individuals cannot perceive faces, but because autistic individuals have greater problems than people without autism in remembering faces. Here, we worked with a group of autistic adults and a group of non-autistic adults to test their ability to perceive and remember faces. We also asked each person to report any difficulties that they have with recognizing faces in everyday life. We find that, as a group, people with autism have difficulties with both remembering and perceiving faces, and report more problems recognizing faces in everyday life. However, it is worth noting that we observed a wide range of scores in the group of people with autism, with some autistic participants scoring as well as the group of people without autism. En ligne : http://dx.doi.org/10.1177/13623613211027685 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Face memory and face perception in autism [Texte imprimé et/ou numérique] / M. STANTI?, Auteur ; E. ICHIJO, Auteur ; Caroline CATMUR, Auteur ; Geoffrey BIRD, Auteur . - p.276-280. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.276-280 Mots-clés : Cfmt  Gfmt  Ofmt  face memory  face perception  of interest with respect to the research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : It is well known that some people with autism have difficulties recognizing faces. It is generally thought that this is not because autistic individuals cannot perceive faces, but because autistic individuals have greater problems than people without autism in remembering faces. Here, we worked with a group of autistic adults and a group of non-autistic adults to test their ability to perceive and remember faces. We also asked each person to report any difficulties that they have with recognizing faces in everyday life. We find that, as a group, people with autism have difficulties with both remembering and perceiving faces, and report more problems recognizing faces in everyday life. However, it is worth noting that we observed a wide range of scores in the group of people with autism, with some autistic participants scoring as well as the group of people without autism. En ligne : http://dx.doi.org/10.1177/13623613211027685 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Distilling innovative US autism care programs that address widely perceived unmet patient and family needs / V. WONG in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.281-286 Titre : Distilling innovative US autism care programs that address widely perceived unmet patient and family needs Type de document : Texte imprimé et/ou numérique Auteurs : V. WONG, Auteur ; M. PHAM, Auteur ; K. GODFREY, Auteur ; A. MILSTEIN, Auteur Article en page(s) : p.281-286 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  family functioning and support  health services Index. décimale : PER Périodiques Résumé : Currently, the quality of care for autistic individuals is not good. Many care services for autistic individuals are not well coordinated, nor are they tailored. We wanted to find out a better model for autism care and believed that the autism community knows where these programs are. So, we had conversations with and surveyed 55 autistic adults, family members, clinicians, and researchers. They shared 90 innovative autism care programs that had been collaboratively designed with patients and families and that are likely to improve the quality of life of autistic individuals and their families. We then narrowed down the 90 nominated programs to 15 programs across the United States by applying researcher-selected criteria, such as providing services actively and having data on program effectiveness. We compiled a list of these innovative, quality autism care programs. En ligne : http://dx.doi.org/10.1177/13623613211027999 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Distilling innovative US autism care programs that address widely perceived unmet patient and family needs [Texte imprimé et/ou numérique] / V. WONG, Auteur ; M. PHAM, Auteur ; K. GODFREY, Auteur ; A. MILSTEIN, Auteur . - p.281-286. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.281-286 Mots-clés : autism spectrum disorders  family functioning and support  health services Index. décimale : PER Périodiques Résumé : Currently, the quality of care for autistic individuals is not good. Many care services for autistic individuals are not well coordinated, nor are they tailored. We wanted to find out a better model for autism care and believed that the autism community knows where these programs are. So, we had conversations with and surveyed 55 autistic adults, family members, clinicians, and researchers. They shared 90 innovative autism care programs that had been collaboratively designed with patients and families and that are likely to improve the quality of life of autistic individuals and their families. We then narrowed down the 90 nominated programs to 15 programs across the United States by applying researcher-selected criteria, such as providing services actively and having data on program effectiveness. We compiled a list of these innovative, quality autism care programs. En ligne : http://dx.doi.org/10.1177/13623613211027999 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451