Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings / Kristin A. LONG in Journal of Autism and Developmental Disorders, 52-9 (September 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4100-4113 Titre : Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings Type de document : texte imprimé Auteurs : Kristin A. LONG, Auteur ; Lydia CHEVALIER, Auteur ; Andrea CHU, Auteur ; Kate M. GUTHRIE, Auteur ; Barbara KAO, Auteur ; Wendy PLANTE, Auteur ; Debra LOBATO, Auteur Article en page(s) : p.4100-4113 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Hispanic or Latino  Humans  Self Concept  Sibling Relations  Siblings  Autism  Caregiver  Culture  Family  Sibling Index. décimale : PER Périodiques Résumé : Siblings describe positive and negative aspects of autism and often assume lifelong support roles. Less is known about cultural influences on sibling relationships. This qualitative study characterizes processes linking siblings' autism conceptualizations, sibling relationships, and self-concept using a multicultural framework. Siblings (12 Latino/a/x, 9 non-Latino/a/x white) participated. Data were stratified by ethnicity and analyzed using applied thematic analysis. Latino/a/x and non-Latino/a/x siblings described processes linking autism, relationships, and self-concept differently. Latino/a/x siblings emphasized family roles and identified as caregivers and protectors. Non-Latino/a/x siblings emphasized general sensitivity toward individuals who differed from themselves. Findings may reflect cultural differences in familism, caregiving expectations, and autism conceptualizations, thereby illuminating foundations of siblings' lifelong caregiving roles and highlighting the importance of culturally-sensitive, family-centered care. En ligne : http://dx.doi.org/10.1007/s10803-021-05287-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings [texte imprimé] / Kristin A. LONG, Auteur ; Lydia CHEVALIER, Auteur ; Andrea CHU, Auteur ; Kate M. GUTHRIE, Auteur ; Barbara KAO, Auteur ; Wendy PLANTE, Auteur ; Debra LOBATO, Auteur . - p.4100-4113. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4100-4113 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Hispanic or Latino  Humans  Self Concept  Sibling Relations  Siblings  Autism  Caregiver  Culture  Family  Sibling Index. décimale : PER Périodiques Résumé : Siblings describe positive and negative aspects of autism and often assume lifelong support roles. Less is known about cultural influences on sibling relationships. This qualitative study characterizes processes linking siblings' autism conceptualizations, sibling relationships, and self-concept using a multicultural framework. Siblings (12 Latino/a/x, 9 non-Latino/a/x white) participated. Data were stratified by ethnicity and analyzed using applied thematic analysis. Latino/a/x and non-Latino/a/x siblings described processes linking autism, relationships, and self-concept differently. Latino/a/x siblings emphasized family roles and identified as caregivers and protectors. Non-Latino/a/x siblings emphasized general sensitivity toward individuals who differed from themselves. Findings may reflect cultural differences in familism, caregiving expectations, and autism conceptualizations, thereby illuminating foundations of siblings' lifelong caregiving roles and highlighting the importance of culturally-sensitive, family-centered care. En ligne : http://dx.doi.org/10.1007/s10803-021-05287-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers / Monica L. GORDILLO in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5440-5450 Titre : Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers Type de document : texte imprimé Auteurs : Monica L. GORDILLO, Auteur ; Andrea CHU, Auteur ; Kristin A. LONG, Auteur Année de publication : 2022 Article en page(s) : p.5440-5450 Langues : Anglais (eng) Mots-clés : Female  Child  Humans  Autistic Disorder/therapy  Autism Spectrum Disorder/therapy  Hispanic or Latino  Mothers  Child Development Disorders, Pervasive  Autism  Disparities  Expectations  Latinos  Service barriers  Service-seeking Index. décimale : PER Périodiques Résumé : Latino children on the autism spectrum experience less access to autism services and more barriers to service-use than non-Latino White children. Yet, existing research leaves unanswered questions about how cultural, family, and service system-level processes contribute to autism service-use disparities. This study aimed to qualitatively explore how Latina and non-Latina mothers experience similar encounters with autism services. Twenty Latina and non-Latina mothers completed semi-structured interviews regarding their experiences accessing services. Data were analyzed using applied thematic analysis. Ethnicity-based differences emerged in mothers' service-use motivations (i.e., desiring ongoing support vs. eventual departure), service evaluations (i.e., dissatisfaction vs. satisfaction), and service-seeking approaches (i.e., proactive vs. reactive). Findings illustrate how these processes underlying service engagement may contribute to service disparities for Latino children. En ligne : http://dx.doi.org/10.1007/s10803-021-05403-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers [texte imprimé] / Monica L. GORDILLO, Auteur ; Andrea CHU, Auteur ; Kristin A. LONG, Auteur . - 2022 . - p.5440-5450. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5440-5450 Mots-clés : Female  Child  Humans  Autistic Disorder/therapy  Autism Spectrum Disorder/therapy  Hispanic or Latino  Mothers  Child Development Disorders, Pervasive  Autism  Disparities  Expectations  Latinos  Service barriers  Service-seeking Index. décimale : PER Périodiques Résumé : Latino children on the autism spectrum experience less access to autism services and more barriers to service-use than non-Latino White children. Yet, existing research leaves unanswered questions about how cultural, family, and service system-level processes contribute to autism service-use disparities. This study aimed to qualitatively explore how Latina and non-Latina mothers experience similar encounters with autism services. Twenty Latina and non-Latina mothers completed semi-structured interviews regarding their experiences accessing services. Data were analyzed using applied thematic analysis. Ethnicity-based differences emerged in mothers' service-use motivations (i.e., desiring ongoing support vs. eventual departure), service evaluations (i.e., dissatisfaction vs. satisfaction), and service-seeking approaches (i.e., proactive vs. reactive). Findings illustrate how these processes underlying service engagement may contribute to service disparities for Latino children. En ligne : http://dx.doi.org/10.1007/s10803-021-05403-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Do minimally verbal and verbally fluent individuals with autism spectrum disorder differ in their viewing patterns of dynamic social scenes? / Daniela PLESA-SKWERER in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2131-2144 Titre : Do minimally verbal and verbally fluent individuals with autism spectrum disorder differ in their viewing patterns of dynamic social scenes? Type de document : texte imprimé Auteurs : Daniela PLESA-SKWERER, Auteur ; Brianna BRUKILACCHIO, Auteur ; Andrea CHU, Auteur ; Brady EGGLESTON, Auteur ; Steven R. MEYER, Auteur ; Helen TAGER-FLUSBERG, Auteur Article en page(s) : p.2131-2144 Langues : Anglais (eng) Mots-clés : dynamic scene  eye tracking  minimally verbal autism spectrum disorder  visual social attention Index. décimale : PER Périodiques Résumé : Attending preferentially to social information in the environment is important in developing socio-communicative skills and language. Research using eye tracking to explore how individuals with autism spectrum disorder deploy visual attention has increased exponentially in the past decade; however, studies have typically not included minimally verbal participants. In this study, we compared 37 minimally verbal children and adolescents with autism spectrum disorder with 34 age-matched verbally fluent individuals with autism spectrum disorder in how they viewed a brief video in which a young woman, surrounded by interesting objects, engages the viewer, and later reacts with expected or unexpected gaze-shifts toward the objects. While both groups spent comparable amounts of time looking at different parts of the scene and looked longer at the person than at the objects, the minimally verbal autism spectrum disorder group spent significantly less time looking at the person's face during the episodes where gaze following-a precursor of joint attention-was critical for interpreting her behavior. Proportional looking-time toward key areas of interest in some episodes correlated with receptive language measures. These findings underscore the connections between social attention and the development of communicative abilities in autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319845563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Do minimally verbal and verbally fluent individuals with autism spectrum disorder differ in their viewing patterns of dynamic social scenes? [texte imprimé] / Daniela PLESA-SKWERER, Auteur ; Brianna BRUKILACCHIO, Auteur ; Andrea CHU, Auteur ; Brady EGGLESTON, Auteur ; Steven R. MEYER, Auteur ; Helen TAGER-FLUSBERG, Auteur . - p.2131-2144. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2131-2144 Mots-clés : dynamic scene  eye tracking  minimally verbal autism spectrum disorder  visual social attention Index. décimale : PER Périodiques Résumé : Attending preferentially to social information in the environment is important in developing socio-communicative skills and language. Research using eye tracking to explore how individuals with autism spectrum disorder deploy visual attention has increased exponentially in the past decade; however, studies have typically not included minimally verbal participants. In this study, we compared 37 minimally verbal children and adolescents with autism spectrum disorder with 34 age-matched verbally fluent individuals with autism spectrum disorder in how they viewed a brief video in which a young woman, surrounded by interesting objects, engages the viewer, and later reacts with expected or unexpected gaze-shifts toward the objects. While both groups spent comparable amounts of time looking at different parts of the scene and looked longer at the person than at the objects, the minimally verbal autism spectrum disorder group spent significantly less time looking at the person's face during the episodes where gaze following-a precursor of joint attention-was critical for interpreting her behavior. Proportional looking-time toward key areas of interest in some episodes correlated with receptive language measures. These findings underscore the connections between social attention and the development of communicative abilities in autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319845563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

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