[article]
| Titre : |
Developing a consensus research definition for profound autism using a modified Delphi method |
| Type de document : |
texte imprimé |
| Auteurs : |
Matthew SIEGEL, Auteur ; Catherine L. LORD, Auteur ; Helen TAGER-FLUSBERG, Auteur ; Judith URSITTI, Auteur ; Alycia HALLADAY, Auteur ; Alison T. SINGER, Auteur |
| Article en page(s) : |
28 p. |
| Langues : |
Anglais (eng) |
| Résumé : |
The diagnostic term, autism spectrum disorder, encompasses the full range of impairments associated with the autism spectrum, a significant change from earlier DSM definitions that identified various subtypes of autism. However, the majority of autism-related research and cultural representations in recent years has focused on autistic individuals with strong language and cognitive abilities. In 2021, the administrative term Profound Autism (PA) was proposed by a Lancet Commission to draw attention to autistic people whose impairments require lifelong, round-the-clock care. The initial definition of PA included a minimum age and requiring 24/7 access to an adult to ensure safety, and suggested considering IQ, and verbal ability when defining this group. However, researchers have subsequently utilized widely varying criteria in studies of this group, producing results that are difficult to compare and limit the potential for the identification of this group to advance knowledge about their strengths and needs. |
| En ligne : |
https://doi.org/10.1186/s13229-026-00727-y |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=594 |
in Molecular Autism > 17 (2026) . - 28 p.
[article] Developing a consensus research definition for profound autism using a modified Delphi method [texte imprimé] / Matthew SIEGEL, Auteur ; Catherine L. LORD, Auteur ; Helen TAGER-FLUSBERG, Auteur ; Judith URSITTI, Auteur ; Alycia HALLADAY, Auteur ; Alison T. SINGER, Auteur . - 28 p. Langues : Anglais ( eng) in Molecular Autism > 17 (2026) . - 28 p.
| Résumé : |
The diagnostic term, autism spectrum disorder, encompasses the full range of impairments associated with the autism spectrum, a significant change from earlier DSM definitions that identified various subtypes of autism. However, the majority of autism-related research and cultural representations in recent years has focused on autistic individuals with strong language and cognitive abilities. In 2021, the administrative term Profound Autism (PA) was proposed by a Lancet Commission to draw attention to autistic people whose impairments require lifelong, round-the-clock care. The initial definition of PA included a minimum age and requiring 24/7 access to an adult to ensure safety, and suggested considering IQ, and verbal ability when defining this group. However, researchers have subsequently utilized widely varying criteria in studies of this group, producing results that are difficult to compare and limit the potential for the identification of this group to advance knowledge about their strengths and needs. |
| En ligne : |
https://doi.org/10.1186/s13229-026-00727-y |
| Permalink : |
https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=594 |
|  |
Faire une suggestion Affiner la rechercheAre Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature in Journal of Autism and Developmental Disorders, 49-4 (April 2019)
