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Auteur Jeremy R. PARR |
Documents disponibles écrits par cet auteur (37)
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Measuring the relationship between the parental Broader Autism Phenotype, parent–child interaction, and children’s progress following parent mediated intervention / Jeremy R. PARR in Research in Autism Spectrum Disorders, 20 (December 2015)
[article]
Titre : Measuring the relationship between the parental Broader Autism Phenotype, parent–child interaction, and children’s progress following parent mediated intervention Type de document : Texte imprimé et/ou numérique Auteurs : Jeremy R. PARR, Auteur ; Laura GRAY, Auteur ; Sarah WIGHAM, Auteur ; Helen MCCONACHIE, Auteur ; Ann Le COUTEUR, Auteur Article en page(s) : p.24-30 Langues : Anglais (eng) Mots-clés : Broader Autism Phenotype Child progress Parent–child interaction Early intervention Index. décimale : PER Périodiques Résumé : Parents of children with ASD may show ASD type behaviours including particular social communication interaction styles—the Broader Autism Phenotype (BAP). Understanding the potential impact of defined parent characteristics may be relevant when designing and evaluating the efficacy and effectiveness of parent-mediated interventions. In this proof of principle analysis, 18 mothers who had taken part in an early parent-mediated intervention later completed Family History Interviews. Parent data were split into lower and higher BAP groups. There was a significant negative correlation between BAP factor total scores and mother–child interaction total and post-intervention change scores. Change in number of words understood was significantly greater in children of mothers scoring in the lower BAP group compared with children of mothers in the higher BAP group. These preliminary findings provide some support for further investigation of parent BAP status as a potential moderator of the impact of early parent-mediated psychosocial interventions. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.07.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270
in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.24-30[article] Measuring the relationship between the parental Broader Autism Phenotype, parent–child interaction, and children’s progress following parent mediated intervention [Texte imprimé et/ou numérique] / Jeremy R. PARR, Auteur ; Laura GRAY, Auteur ; Sarah WIGHAM, Auteur ; Helen MCCONACHIE, Auteur ; Ann Le COUTEUR, Auteur . - p.24-30.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.24-30
Mots-clés : Broader Autism Phenotype Child progress Parent–child interaction Early intervention Index. décimale : PER Périodiques Résumé : Parents of children with ASD may show ASD type behaviours including particular social communication interaction styles—the Broader Autism Phenotype (BAP). Understanding the potential impact of defined parent characteristics may be relevant when designing and evaluating the efficacy and effectiveness of parent-mediated interventions. In this proof of principle analysis, 18 mothers who had taken part in an early parent-mediated intervention later completed Family History Interviews. Parent data were split into lower and higher BAP groups. There was a significant negative correlation between BAP factor total scores and mother–child interaction total and post-intervention change scores. Change in number of words understood was significantly greater in children of mothers scoring in the lower BAP group compared with children of mothers in the higher BAP group. These preliminary findings provide some support for further investigation of parent BAP status as a potential moderator of the impact of early parent-mediated psychosocial interventions. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.07.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures / Jeremy R. PARR in Autism Research, 8-5 (October 2015)
[article]
Titre : New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures Type de document : Texte imprimé et/ou numérique Auteurs : Jeremy R. PARR, Auteur ; Maretha V. DE JONGE, Auteur ; Simon WALLACE, Auteur ; Andrew PICKLES, Auteur ; Michael L. RUTTER, Auteur ; Ann S. LE COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; Kerstin WITTEMEYER, Auteur ; Helen MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; Lennart PEDERSEN, Auteur ; Torben ISAGER, Auteur ; Fritz POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; Emma WEISBLATT, Auteur ; Jonathan GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; Gillian BAIRD, Auteur ; Anthony J. BAILEY, Auteur Article en page(s) : p.522-533 Langues : Anglais (eng) Mots-clés : broader autism phenotype informant interview self-report interview interrater reliability retest reliability Index. décimale : PER Périodiques Résumé : Clinical genetic studies confirm the broader autism phenotype (BAP) in some relatives of individuals with autism, but there are few standardized assessment measures. We developed three BAP measures (informant interview, self-report interview, and impression of interviewee observational scale) and describe the development strategy and findings from the interviews. International Molecular Genetic Study of Autism Consortium data were collected from families containing at least two individuals with autism. Comparison of the informant and self-report interviews was restricted to samples in which the interviews were undertaken by different researchers from that site (251 UK informants, 119 from the Netherlands). Researchers produced vignettes that were rated blind by others. Retest reliability was assessed in 45 participants. Agreement between live scoring and vignette ratings was very high. Retest stability for the interviews was high. Factor analysis indicated a first factor comprising social-communication items and rigidity (but not other repetitive domain items), and a second factor comprised mainly of reading and spelling impairments. Whole scale Cronbach's alphas were high for both interviews. The correlation between interviews for factor 1 was moderate (adult items 0.50; childhood items 0.43); Kappa values for between-interview agreement on individual items were mainly low. The correlations between individual items and total score were moderate. The inclusion of several factor 2 items lowered the overall Cronbach's alpha for the total set. Both interview measures showed good reliability and substantial stability over time, but the findings were better for factor 1 than factor 2. We recommend factor 1 scores be used for characterising the BAP. Autism Res 2015, 8: 522–533. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270
in Autism Research > 8-5 (October 2015) . - p.522-533[article] New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures [Texte imprimé et/ou numérique] / Jeremy R. PARR, Auteur ; Maretha V. DE JONGE, Auteur ; Simon WALLACE, Auteur ; Andrew PICKLES, Auteur ; Michael L. RUTTER, Auteur ; Ann S. LE COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; Kerstin WITTEMEYER, Auteur ; Helen MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; Lennart PEDERSEN, Auteur ; Torben ISAGER, Auteur ; Fritz POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; Emma WEISBLATT, Auteur ; Jonathan GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; Gillian BAIRD, Auteur ; Anthony J. BAILEY, Auteur . - p.522-533.
Langues : Anglais (eng)
in Autism Research > 8-5 (October 2015) . - p.522-533
Mots-clés : broader autism phenotype informant interview self-report interview interrater reliability retest reliability Index. décimale : PER Périodiques Résumé : Clinical genetic studies confirm the broader autism phenotype (BAP) in some relatives of individuals with autism, but there are few standardized assessment measures. We developed three BAP measures (informant interview, self-report interview, and impression of interviewee observational scale) and describe the development strategy and findings from the interviews. International Molecular Genetic Study of Autism Consortium data were collected from families containing at least two individuals with autism. Comparison of the informant and self-report interviews was restricted to samples in which the interviews were undertaken by different researchers from that site (251 UK informants, 119 from the Netherlands). Researchers produced vignettes that were rated blind by others. Retest reliability was assessed in 45 participants. Agreement between live scoring and vignette ratings was very high. Retest stability for the interviews was high. Factor analysis indicated a first factor comprising social-communication items and rigidity (but not other repetitive domain items), and a second factor comprised mainly of reading and spelling impairments. Whole scale Cronbach's alphas were high for both interviews. The correlation between interviews for factor 1 was moderate (adult items 0.50; childhood items 0.43); Kappa values for between-interview agreement on individual items were mainly low. The correlations between individual items and total score were moderate. The inclusion of several factor 2 items lowered the overall Cronbach's alpha for the total set. Both interview measures showed good reliability and substantial stability over time, but the findings were better for factor 1 than factor 2. We recommend factor 1 scores be used for characterising the BAP. Autism Res 2015, 8: 522–533. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 New Interview and Observation Measures of the Broader Autism Phenotype: Group Differentiation / Maretha DE JONGE in Journal of Autism and Developmental Disorders, 45-4 (April 2015)
[article]
Titre : New Interview and Observation Measures of the Broader Autism Phenotype: Group Differentiation Type de document : Texte imprimé et/ou numérique Auteurs : Maretha DE JONGE, Auteur ; Jeremy R. PARR, Auteur ; Michael RUTTER, Auteur ; Simon WALLACE, Auteur ; Chantal KEMNER, Auteur ; Anthony J. BAILEY, Auteur ; Herman VAN ENGELAND, Auteur ; Andrew PICKLES, Auteur Article en page(s) : p.893-901 Langues : Anglais (eng) Mots-clés : Broader autism phenotype Group differentiation Interview measures Observational measures Diagnosis Index. décimale : PER Périodiques Résumé : To identify the broader autism phenotype (BAP), the Family History Interview subject and informant versions and an observational tool (Impression of Interviewee), were developed. This study investigated whether the instruments differentiated between parents of children with autism, and parents of children with Down syndrome (DS). The BAP scores of parents of 28 multiplex autism families were compared with parents from, 32 DS families. The BAP measures provided good group differentiation but when considered together, the subject interview did not improve group differentiation. The differentiation was better for fathers than mothers. The measures do carry an important degree of validity; whether they can differentiate the BAP from other social disorders should be tested. En ligne : http://dx.doi.org/10.1007/s10803-014-2230-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=258
in Journal of Autism and Developmental Disorders > 45-4 (April 2015) . - p.893-901[article] New Interview and Observation Measures of the Broader Autism Phenotype: Group Differentiation [Texte imprimé et/ou numérique] / Maretha DE JONGE, Auteur ; Jeremy R. PARR, Auteur ; Michael RUTTER, Auteur ; Simon WALLACE, Auteur ; Chantal KEMNER, Auteur ; Anthony J. BAILEY, Auteur ; Herman VAN ENGELAND, Auteur ; Andrew PICKLES, Auteur . - p.893-901.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-4 (April 2015) . - p.893-901
Mots-clés : Broader autism phenotype Group differentiation Interview measures Observational measures Diagnosis Index. décimale : PER Périodiques Résumé : To identify the broader autism phenotype (BAP), the Family History Interview subject and informant versions and an observational tool (Impression of Interviewee), were developed. This study investigated whether the instruments differentiated between parents of children with autism, and parents of children with Down syndrome (DS). The BAP scores of parents of 28 multiplex autism families were compared with parents from, 32 DS families. The BAP measures provided good group differentiation but when considered together, the subject interview did not improve group differentiation. The differentiation was better for fathers than mothers. The measures do carry an important degree of validity; whether they can differentiate the BAP from other social disorders should be tested. En ligne : http://dx.doi.org/10.1007/s10803-014-2230-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=258 New Interview and Observation Measures of the Broader Autism Phenotype: Impressions of Interviewee Measure / A. PICKLES in Journal of Autism and Developmental Disorders, 43-9 (September 2013)
[article]
Titre : New Interview and Observation Measures of the Broader Autism Phenotype: Impressions of Interviewee Measure Type de document : Texte imprimé et/ou numérique Auteurs : A. PICKLES, Auteur ; Jeremy R. PARR, Auteur ; Michael L. RUTTER, Auteur ; M. V. JONGE, Auteur ; S. WALLACE, Auteur ; A. S. COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; K. WITTEMEYER, Auteur ; H. MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; L. PEDERSEN, Auteur ; T. ISAGER, Auteur ; F. POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; E. WEISBLATT, Auteur ; J. GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; A. J. BAILEY, Auteur Article en page(s) : p.2082-2089 Langues : Anglais (eng) Mots-clés : Broader autism phenotype Observer rating Test–retest Factor analysis Social functioning Index. décimale : PER Périodiques Résumé : A 20 item observational measure of social functioning, the Impression of Interviewee rating scale, is one of three measures devised to assess the broader autism phenotype. The sample studied included families containing at least two individuals with autism spectrum disorder; observations were undertaken by the researcher who interviewed the subject. An exploratory factor analysis suggested a single factor was most appropriate (Cronbach’s ? of 0.78). There was a modest but significant retest correlation of 0.42. Correlations between live ratings and blind consensus ratings of vignettes were high (0.93). Correlations with the interview measures were moderate but statistically significant. In conclusion, the observational scale provides a promising start but further work is required before general use can be recommended. En ligne : http://dx.doi.org/10.1007/s10803-013-1810-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212
in Journal of Autism and Developmental Disorders > 43-9 (September 2013) . - p.2082-2089[article] New Interview and Observation Measures of the Broader Autism Phenotype: Impressions of Interviewee Measure [Texte imprimé et/ou numérique] / A. PICKLES, Auteur ; Jeremy R. PARR, Auteur ; Michael L. RUTTER, Auteur ; M. V. JONGE, Auteur ; S. WALLACE, Auteur ; A. S. COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; K. WITTEMEYER, Auteur ; H. MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; L. PEDERSEN, Auteur ; T. ISAGER, Auteur ; F. POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; E. WEISBLATT, Auteur ; J. GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; A. J. BAILEY, Auteur . - p.2082-2089.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 43-9 (September 2013) . - p.2082-2089
Mots-clés : Broader autism phenotype Observer rating Test–retest Factor analysis Social functioning Index. décimale : PER Périodiques Résumé : A 20 item observational measure of social functioning, the Impression of Interviewee rating scale, is one of three measures devised to assess the broader autism phenotype. The sample studied included families containing at least two individuals with autism spectrum disorder; observations were undertaken by the researcher who interviewed the subject. An exploratory factor analysis suggested a single factor was most appropriate (Cronbach’s ? of 0.78). There was a modest but significant retest correlation of 0.42. Correlations between live ratings and blind consensus ratings of vignettes were high (0.93). Correlations with the interview measures were moderate but statistically significant. In conclusion, the observational scale provides a promising start but further work is required before general use can be recommended. En ligne : http://dx.doi.org/10.1007/s10803-013-1810-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212 “Older Adults with ASD: The Consequences of Aging.” Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017 / A. ROESTORF in Research in Autism Spectrum Disorders, 63 (July 2019)
[article]
Titre : “Older Adults with ASD: The Consequences of Aging.” Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017 Type de document : Texte imprimé et/ou numérique Auteurs : A. ROESTORF, Auteur ; Dermot M. BOWLER, Auteur ; Marie K. DESERNO, Auteur ; P. HOWLIN, Auteur ; L. KLINGER, Auteur ; H. MCCONACHIE, Auteur ; Jeremy R. PARR, Auteur ; P. POWELL, Auteur ; B. F. C. VAN HEIJST, Auteur ; H. M. GEURTS, Auteur Article en page(s) : p.3-12 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Aging Measurement Diagnosis Quality of life Index. décimale : PER Périodiques Résumé : A special interest group (SIG) entitled "Older Adults with ASD: The Consequences of Aging" was held at the International Society for Autism Research (INSAR) annual meetings in 2016 and 2017. The SIG and subsequent meetings brought together, for the first time, international delegates who were members of the autistic community, researchers, practitioners and service providers. Based on aging autism research that is already underway in UK, Europe, Australia and North America, discussions focussed on conceptualising the parameters of aging when referring to autism, and the measures that are appropriate to use with older adults when considering diagnostic assessment, cognitive factors and quality of life in older age. Thus, the aim of this SIG was to progress the research agenda on current and future directions for autism research in the context of aging. A global issue on how to define 'aging' when referring to ASD was at the forefront of discussions. The ‘aging’ concept can in principle refer to all developmental transitions. However, in this paper we focus on the cognitive and physical changes that take place from mid-life onwards. Accordingly, it was agreed that aging and ASD research should focus on adults over the age of 50 years, given the high rates of co-occurring physical and mental health concerns and increased risk of premature death in some individuals. Moreover, very little is known about the cognitive change, care needs and outcomes of autistic adults beyond this age. Discussions on the topics of diagnostic and cognitive assessments, and of quality of life and well-being were explored through shared knowledge about which measures are currently being used and which background questions should be asked to obtain comprehensive and informative developmental and medical histories. Accordingly, a survey was completed by SIG delegates who were representatives of international research groups across four continents, and who are currently conducting studies with older autistic adults. Considerable overlap was identified across different research groups in measures of both autism and quality of life, which pointed to combining data and shared learnings as the logical next step. Regarding the background questions that were asked, the different research groups covered similar topics but the groups differed in the way these questions were formulated when working with autistic adults across a range of cognitive abilities. It became clear that continued input from individuals on the autism spectrum is important to ensure that questionnaires used in ongoing and future are accessible and understandable for people across the whole autistic spectrum, including those with limited verbal abilities. En ligne : https://doi.org/10.1016/j.rasd.2018.08.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=394
in Research in Autism Spectrum Disorders > 63 (July 2019) . - p.3-12[article] “Older Adults with ASD: The Consequences of Aging.” Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017 [Texte imprimé et/ou numérique] / A. ROESTORF, Auteur ; Dermot M. BOWLER, Auteur ; Marie K. DESERNO, Auteur ; P. HOWLIN, Auteur ; L. KLINGER, Auteur ; H. MCCONACHIE, Auteur ; Jeremy R. PARR, Auteur ; P. POWELL, Auteur ; B. F. C. VAN HEIJST, Auteur ; H. M. GEURTS, Auteur . - p.3-12.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 63 (July 2019) . - p.3-12
Mots-clés : Autism spectrum disorder Aging Measurement Diagnosis Quality of life Index. décimale : PER Périodiques Résumé : A special interest group (SIG) entitled "Older Adults with ASD: The Consequences of Aging" was held at the International Society for Autism Research (INSAR) annual meetings in 2016 and 2017. The SIG and subsequent meetings brought together, for the first time, international delegates who were members of the autistic community, researchers, practitioners and service providers. Based on aging autism research that is already underway in UK, Europe, Australia and North America, discussions focussed on conceptualising the parameters of aging when referring to autism, and the measures that are appropriate to use with older adults when considering diagnostic assessment, cognitive factors and quality of life in older age. Thus, the aim of this SIG was to progress the research agenda on current and future directions for autism research in the context of aging. A global issue on how to define 'aging' when referring to ASD was at the forefront of discussions. The ‘aging’ concept can in principle refer to all developmental transitions. However, in this paper we focus on the cognitive and physical changes that take place from mid-life onwards. Accordingly, it was agreed that aging and ASD research should focus on adults over the age of 50 years, given the high rates of co-occurring physical and mental health concerns and increased risk of premature death in some individuals. Moreover, very little is known about the cognitive change, care needs and outcomes of autistic adults beyond this age. Discussions on the topics of diagnostic and cognitive assessments, and of quality of life and well-being were explored through shared knowledge about which measures are currently being used and which background questions should be asked to obtain comprehensive and informative developmental and medical histories. Accordingly, a survey was completed by SIG delegates who were representatives of international research groups across four continents, and who are currently conducting studies with older autistic adults. Considerable overlap was identified across different research groups in measures of both autism and quality of life, which pointed to combining data and shared learnings as the logical next step. Regarding the background questions that were asked, the different research groups covered similar topics but the groups differed in the way these questions were formulated when working with autistic adults across a range of cognitive abilities. It became clear that continued input from individuals on the autism spectrum is important to ensure that questionnaires used in ongoing and future are accessible and understandable for people across the whole autistic spectrum, including those with limited verbal abilities. En ligne : https://doi.org/10.1016/j.rasd.2018.08.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=394 Parents’ and Child Health Professionals’ Attitudes Towards Dietary Interventions for Children with Autism Spectrum Disorders / Elizabeth WINBURN in Journal of Autism and Developmental Disorders, 44-4 (April 2014)
PermalinkParents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder / H. MCCONACHIE in Journal of Autism and Developmental Disorders, 48-4 (April 2018)
PermalinkPermalinkPsychometric properties of questionnaires and diagnostic measures for autism spectrum disorders in adults: A systematic review / S. WIGHAM in Autism, 23-2 (February 2019)
PermalinkQuality of life for older autistic people: The impact of mental health difficulties / D. MASON in Research in Autism Spectrum Disorders, 63 (July 2019)
PermalinkA Randomised Controlled Feasibility Trial of Immersive Virtual Reality Treatment with Cognitive Behaviour Therapy for Specific Phobias in Young People with Autism Spectrum Disorder / M. MASKEY in Journal of Autism and Developmental Disorders, 49-5 (May 2019)
PermalinkResearch needs and priorities for transition and employment in autism: Considerations reflected in a “Special Interest Group” at the International Meeting for Autism Research / David B NICHOLAS in Autism Research, 10-1 (January 2017)
PermalinkA survey of autistic adults, relatives and clinical teams in the United Kingdom: And Delphi process consensus statements on optimal autism diagnostic assessment for adults / Sarah WIGHAM in Autism, 26-8 (November 2022)
PermalinkA systematic review of quality of life of adults on the autism spectrum / M. AYRES in Autism, 22-7 (October 2018)
PermalinkA Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults / D. MASON in Journal of Autism and Developmental Disorders, 49-8 (August 2019)
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