An evaluation of the collateral child and parent outcomes of telehealth-delivered behavioral sleep intervention for Autistic children / Monique CLARKE in Research in Autism Spectrum Disorders, 119 (January 2025)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 119 (January 2025) . - p.102514 Titre : An evaluation of the collateral child and parent outcomes of telehealth-delivered behavioral sleep intervention for Autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Monique CLARKE, Auteur ; Laurie MCLAY, Auteur ; Karyn FRANCE, Auteur ; Neville BLAMPIED, Auteur Article en page(s) : p.102514 Langues : Anglais (eng) Mots-clés : Sleep  Collateral outcomes  Secondary outcomes  Telehealth  Autism  Neurodivergence Index. décimale : PER Périodiques Résumé : Purpose This research follows two studies that examined the efficacy and acceptability of a stepped-care model of behavioral sleep intervention (BSI) delivered to parents of Autistic children via telehealth (Clarke et al., 2024a, 2024b). The current study investigated the collateral benefits of these interventions on Autistic children?s internalizing and externalizing behaviors, health-related quality of life, and parent ratings of relationship quality, depression, anxiety, stress, and personal sleep quality. Methods and Results Data were available for 17 Autistic children (aged 3-17 years) and 22 parent participants (16 mothers, six fathers) who had received a telehealth-delivered behavioral sleep intervention (TDBSI). Parents completed a range of psychometric assessments at baseline and within six weeks of completing the program. Alongside reduced sleep problem severity (SPS), significant improvements, as indexed by non-negligible Cohen?s d values whose 95?% confidence intervals did not cross zero, were observed in children?s emotional and behavioral difficulties and health-related quality of life. Parents also reported that improvement in their child?s sleep positively influenced their own sleep quality and emotional well-being. There were no significant changes in parental relationship quality post-intervention, probably a ceiling effect. Conclusion TDBSIs have the potential to generate collateral benefits for Autistic children and their families. This finding is consistent with the limited existent research, suggesting that improved sleep may enhance child and parent well-being. Future research should focus on understanding the mechanisms underlying collateral change, including variations in effects among children and parents, and the durability across different telehealth modalities (i.e., self-directed versus therapist-guided) and follow-up intervals. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545 [article] An evaluation of the collateral child and parent outcomes of telehealth-delivered behavioral sleep intervention for Autistic children [Texte imprimé et/ou numérique] / Monique CLARKE, Auteur ; Laurie MCLAY, Auteur ; Karyn FRANCE, Auteur ; Neville BLAMPIED, Auteur . - p.102514. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 119 (January 2025) . - p.102514 Mots-clés : Sleep  Collateral outcomes  Secondary outcomes  Telehealth  Autism  Neurodivergence Index. décimale : PER Périodiques Résumé : Purpose This research follows two studies that examined the efficacy and acceptability of a stepped-care model of behavioral sleep intervention (BSI) delivered to parents of Autistic children via telehealth (Clarke et al., 2024a, 2024b). The current study investigated the collateral benefits of these interventions on Autistic children?s internalizing and externalizing behaviors, health-related quality of life, and parent ratings of relationship quality, depression, anxiety, stress, and personal sleep quality. Methods and Results Data were available for 17 Autistic children (aged 3-17 years) and 22 parent participants (16 mothers, six fathers) who had received a telehealth-delivered behavioral sleep intervention (TDBSI). Parents completed a range of psychometric assessments at baseline and within six weeks of completing the program. Alongside reduced sleep problem severity (SPS), significant improvements, as indexed by non-negligible Cohen?s d values whose 95?% confidence intervals did not cross zero, were observed in children?s emotional and behavioral difficulties and health-related quality of life. Parents also reported that improvement in their child?s sleep positively influenced their own sleep quality and emotional well-being. There were no significant changes in parental relationship quality post-intervention, probably a ceiling effect. Conclusion TDBSIs have the potential to generate collateral benefits for Autistic children and their families. This finding is consistent with the limited existent research, suggesting that improved sleep may enhance child and parent well-being. Future research should focus on understanding the mechanisms underlying collateral change, including variations in effects among children and parents, and the durability across different telehealth modalities (i.e., self-directed versus therapist-guided) and follow-up intervals. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545

Attributions, causal beliefs, and help-seeking behavior of parents of children with autism spectrum disorder and sleep problems / Laurie MCLAY in Autism, 24-7 (October 2020)  

Public ISBD [article]  inAutism > 24-7 (October 2020) . - p.1829-1840 Titre : Attributions, causal beliefs, and help-seeking behavior of parents of children with autism spectrum disorder and sleep problems Type de document : Texte imprimé et/ou numérique Auteurs : Laurie MCLAY, Auteur ; Sarah G. HANSEN, Auteur ; Amarie CARNETT, Auteur ; Karyn G. FRANCE, Auteur ; Neville M. BLAMPIED, Auteur Article en page(s) : p.1829-1840 Langues : Anglais (eng) Mots-clés : *autism spectrum disorder  *help-seeking  *parent attributions  *parental beliefs  *seep  *sleep treatment Index. décimale : PER Périodiques Résumé : Sleep problems are commonly reported among parents of children with autism spectrum disorder (ASD). Without effective treatment, such problems are unlikely to resolve. To date, we know very little about how and why parents of children with ASD seek help for sleep disturbance. Via an online survey, we gathered information about how parents make sense of their children's sleep problems, beliefs about their causes, sources of information, and help-seeking behavior. The analysis of responses from 244 parents revealed that parents commonly view sleep problems (a) as a consequence of their child's ASD, and unlikely to change over time (stable), and (b) as located within the child (intrinsic), stable over time, and difficult to treat. Despite this, parents also rated sleep problems as being important to treat. Eighty-two percent of parents surveyed reported seeking some kind of help for their child's sleep disturbance, and the average parent had tried six different treatment strategies, most commonly medical approaches (e.g. melatonin). The alignment between parents' treatment choices and those strategies that are supported by research was poor, but belief in the effectiveness of treatments was closely related to how often the treatment was used. These findings have important implications for parental education and clinical practice in the treatment of sleep problems in children with ASD. En ligne : http://dx.doi.org/10.1177/1362361320924216 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431 [article] Attributions, causal beliefs, and help-seeking behavior of parents of children with autism spectrum disorder and sleep problems [Texte imprimé et/ou numérique] / Laurie MCLAY, Auteur ; Sarah G. HANSEN, Auteur ; Amarie CARNETT, Auteur ; Karyn G. FRANCE, Auteur ; Neville M. BLAMPIED, Auteur . - p.1829-1840. Langues : Anglais (eng) in Autism > 24-7 (October 2020) . - p.1829-1840 Mots-clés : *autism spectrum disorder  *help-seeking  *parent attributions  *parental beliefs  *seep  *sleep treatment Index. décimale : PER Périodiques Résumé : Sleep problems are commonly reported among parents of children with autism spectrum disorder (ASD). Without effective treatment, such problems are unlikely to resolve. To date, we know very little about how and why parents of children with ASD seek help for sleep disturbance. Via an online survey, we gathered information about how parents make sense of their children's sleep problems, beliefs about their causes, sources of information, and help-seeking behavior. The analysis of responses from 244 parents revealed that parents commonly view sleep problems (a) as a consequence of their child's ASD, and unlikely to change over time (stable), and (b) as located within the child (intrinsic), stable over time, and difficult to treat. Despite this, parents also rated sleep problems as being important to treat. Eighty-two percent of parents surveyed reported seeking some kind of help for their child's sleep disturbance, and the average parent had tried six different treatment strategies, most commonly medical approaches (e.g. melatonin). The alignment between parents' treatment choices and those strategies that are supported by research was poor, but belief in the effectiveness of treatments was closely related to how often the treatment was used. These findings have important implications for parental education and clinical practice in the treatment of sleep problems in children with ASD. En ligne : http://dx.doi.org/10.1177/1362361320924216 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431

Child and Family Characteristics Associated with Sleep Disturbance in Children with Autism Spectrum Disorder / Hannah WADDINGTON in Journal of Autism and Developmental Disorders, 50-11 (November 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.4121-4132 Titre : Child and Family Characteristics Associated with Sleep Disturbance in Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Hannah WADDINGTON, Auteur ; Laurie MCLAY, Auteur ; Lisa WOODS, Auteur ; Andrew J. O. WHITEHOUSE, Auteur Article en page(s) : p.4121-4132 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parent characteristics  Sleep  Socioeconomic status Index. décimale : PER Périodiques Résumé : Little is known about the role of family characteristics in sleep disturbance for children with autism spectrum disorder (ASD). This study involved an exploratory analysis of the association between 17 child, parent, and socioeconomic characteristics and sleep disturbance using data from 203, 2-18-year-old children with ASD whose families participated in the Western Australian Autism Biological Registry. Results suggest that greater ASD symptom severity; child seizures; maternal autism traits, anxiety, and depression; lower paternal education; and lower family income were related to increased sleep disturbance. All these characteristics, aside from maternal depression, were significant predictors within a regression model, which accounted for 33% of the total variance. Thus, child characteristics alone may not adequately explain sleep disturbance in children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04475-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Child and Family Characteristics Associated with Sleep Disturbance in Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Hannah WADDINGTON, Auteur ; Laurie MCLAY, Auteur ; Lisa WOODS, Auteur ; Andrew J. O. WHITEHOUSE, Auteur . - p.4121-4132. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.4121-4132 Mots-clés : Autism spectrum disorder  Parent characteristics  Sleep  Socioeconomic status Index. décimale : PER Périodiques Résumé : Little is known about the role of family characteristics in sleep disturbance for children with autism spectrum disorder (ASD). This study involved an exploratory analysis of the association between 17 child, parent, and socioeconomic characteristics and sleep disturbance using data from 203, 2-18-year-old children with ASD whose families participated in the Western Australian Autism Biological Registry. Results suggest that greater ASD symptom severity; child seizures; maternal autism traits, anxiety, and depression; lower paternal education; and lower family income were related to increased sleep disturbance. All these characteristics, aside from maternal depression, were significant predictors within a regression model, which accounted for 33% of the total variance. Thus, child characteristics alone may not adequately explain sleep disturbance in children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04475-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Function-Based Behavioral Interventions for Sleep Problems in Children and Adolescents with Autism: Summary of 41 Clinical Cases / Laurie MCLAY in Journal of Autism and Developmental Disorders, 51-2 (February 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-2 (February 2021) . - p.418-432 Titre : Function-Based Behavioral Interventions for Sleep Problems in Children and Adolescents with Autism: Summary of 41 Clinical Cases Type de document : Texte imprimé et/ou numérique Auteurs : Laurie MCLAY, Auteur ; Karyn FRANCE, Auteur ; Neville M. BLAMPIED, Auteur ; Jenna VAN DEURS, Auteur ; Jolene HUNTER, Auteur ; Jacqui KNIGHT, Auteur ; Brent HASTIE, Auteur ; Amarie CARNETT, Auteur ; Emma WOODFORD, Auteur ; Rosina GIBBS, Auteur ; Russell LANG, Auteur Article en page(s) : p.418-432 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Functional behavioral assessment  Intervention barriers  Sleep  Treatment Index. décimale : PER Périodiques Résumé : This case analysis involved 41 clinical cases wherein children and adolescents with autism spectrum disorder (ASD) received a behavioral intervention for sleep problems. This study intended to (a) evaluate the efficacy of function-based behavioral sleep treatments; (b) elucidate variables impacting response to such interventions; (c) inform practitioners addressing sleep problems without a robust evidence-base; and (d) suggest priorities for future sleep research. Interventions included antecedent- and consequence-based modifications, and the teaching of replacement behaviors. Data were analysed using modified Brinley Plots and effect size estimates. Outcomes suggest that multi-component, parent-delivered, function-based interventions may ameliorate sleep problems in children and adolescents with ASD. The need for future research utilizing rigorous experimental designs is supported. En ligne : http://dx.doi.org/10.1007/s10803-020-04548-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440 [article] Function-Based Behavioral Interventions for Sleep Problems in Children and Adolescents with Autism: Summary of 41 Clinical Cases [Texte imprimé et/ou numérique] / Laurie MCLAY, Auteur ; Karyn FRANCE, Auteur ; Neville M. BLAMPIED, Auteur ; Jenna VAN DEURS, Auteur ; Jolene HUNTER, Auteur ; Jacqui KNIGHT, Auteur ; Brent HASTIE, Auteur ; Amarie CARNETT, Auteur ; Emma WOODFORD, Auteur ; Rosina GIBBS, Auteur ; Russell LANG, Auteur . - p.418-432. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-2 (February 2021) . - p.418-432 Mots-clés : Autism spectrum disorder  Functional behavioral assessment  Intervention barriers  Sleep  Treatment Index. décimale : PER Périodiques Résumé : This case analysis involved 41 clinical cases wherein children and adolescents with autism spectrum disorder (ASD) received a behavioral intervention for sleep problems. This study intended to (a) evaluate the efficacy of function-based behavioral sleep treatments; (b) elucidate variables impacting response to such interventions; (c) inform practitioners addressing sleep problems without a robust evidence-base; and (d) suggest priorities for future sleep research. Interventions included antecedent- and consequence-based modifications, and the teaching of replacement behaviors. Data were analysed using modified Brinley Plots and effect size estimates. Outcomes suggest that multi-component, parent-delivered, function-based interventions may ameliorate sleep problems in children and adolescents with ASD. The need for future research utilizing rigorous experimental designs is supported. En ligne : http://dx.doi.org/10.1007/s10803-020-04548-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440

Mortality risk among Autistic children and young people: A nationwide birth cohort study / Nicholas BOWDEN ; Sheree GIBB ; Richard AUDAS ; Joanne DACOMBE ; Laurie MCLAY ; Andrew SPORLE ; Hilary STACE ; Barry TAYLOR ; Hiran THABREW ; Reremoana THEODORE ; Jessica TUPOU ; Philip J. SCHLUTER in Autism, 28-9 (September 2024)  

Public ISBD [article]  inAutism > 28-9 (September 2024) . - p.2244-2253 Titre : Mortality risk among Autistic children and young people: A nationwide birth cohort study Type de document : Texte imprimé et/ou numérique Auteurs : Nicholas BOWDEN, Auteur ; Sheree GIBB, Auteur ; Richard AUDAS, Auteur ; Joanne DACOMBE, Auteur ; Laurie MCLAY, Auteur ; Andrew SPORLE, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Hiran THABREW, Auteur ; Reremoana THEODORE, Auteur ; Jessica TUPOU, Auteur ; Philip J. SCHLUTER, Auteur Article en page(s) : p.2244-2253 Langues : (en) Mots-clés : adolescents  autism spectrum disorders  health services  medical comorbidity  pre-school children  school-age children  social services Index. décimale : PER Périodiques Résumé : Autism has been associated with increased mortality risk among adult populations, but little is known about the mortality risk among children and young people (0-24?years). We used a 15-year nationwide birth cohort study using linked health and non-health administrative data to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. Time-to-event analysis was used to determine the association between autism and mortality, controlling for sex, age, ethnicity, deprivation and rurality of residence. The participant population included 895,707 children of whom 11,919 (1.4%) were identified as Autistic. Autism was associated with a significantly higher mortality risk (hazard ratio = 2.35; 95% confidence interval = 1.80-3.06) compared to the general population. In addition, using stratified analyses, we found that this risk was significantly higher among females (hazard ratio = 5.40; 95% confidence interval = 3.42-8.52) compared to males (hazard ratio = 1.82; 95% confidence interval = 1.32-2.52). We also determined that among Autistic young people, mortality risk was significantly higher for those with a co-occurring intellectual disability (hazard ratio = 2.02; 95% confidence interval = 1.17-3.46). In this study, autism was associated with higher mortality in children and young people compared to the non-Autistic population. Increased efforts are required to better meet the health needs of this population. Lay abstract Existing literature indicates that Autistic people have shorter life expectancy, but little is known about the mortality risk among Autistic children and young people (0-24?years). We used a 15-year nationwide birth cohort study to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. The study included 895,707 children and 11,919 (1.4%) were Autistic. We found that autism was associated with a significantly higher mortality risk compared to the non-Autistic population. In addition, we found that this risk was significantly higher among females compared to males and for those with a co-occurring intellectual disability. Increased efforts are required to better meet the health needs of this population. En ligne : https://dx.doi.org/10.1177/13623613231224015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 [article] Mortality risk among Autistic children and young people: A nationwide birth cohort study [Texte imprimé et/ou numérique] / Nicholas BOWDEN, Auteur ; Sheree GIBB, Auteur ; Richard AUDAS, Auteur ; Joanne DACOMBE, Auteur ; Laurie MCLAY, Auteur ; Andrew SPORLE, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Hiran THABREW, Auteur ; Reremoana THEODORE, Auteur ; Jessica TUPOU, Auteur ; Philip J. SCHLUTER, Auteur . - p.2244-2253. Langues : (en) in Autism > 28-9 (September 2024) . - p.2244-2253 Mots-clés : adolescents  autism spectrum disorders  health services  medical comorbidity  pre-school children  school-age children  social services Index. décimale : PER Périodiques Résumé : Autism has been associated with increased mortality risk among adult populations, but little is known about the mortality risk among children and young people (0-24?years). We used a 15-year nationwide birth cohort study using linked health and non-health administrative data to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. Time-to-event analysis was used to determine the association between autism and mortality, controlling for sex, age, ethnicity, deprivation and rurality of residence. The participant population included 895,707 children of whom 11,919 (1.4%) were identified as Autistic. Autism was associated with a significantly higher mortality risk (hazard ratio = 2.35; 95% confidence interval = 1.80-3.06) compared to the general population. In addition, using stratified analyses, we found that this risk was significantly higher among females (hazard ratio = 5.40; 95% confidence interval = 3.42-8.52) compared to males (hazard ratio = 1.82; 95% confidence interval = 1.32-2.52). We also determined that among Autistic young people, mortality risk was significantly higher for those with a co-occurring intellectual disability (hazard ratio = 2.02; 95% confidence interval = 1.17-3.46). In this study, autism was associated with higher mortality in children and young people compared to the non-Autistic population. Increased efforts are required to better meet the health needs of this population. Lay abstract Existing literature indicates that Autistic people have shorter life expectancy, but little is known about the mortality risk among Autistic children and young people (0-24?years). We used a 15-year nationwide birth cohort study to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. The study included 895,707 children and 11,919 (1.4%) were Autistic. We found that autism was associated with a significantly higher mortality risk compared to the non-Autistic population. In addition, we found that this risk was significantly higher among females compared to males and for those with a co-occurring intellectual disability. Increased efforts are required to better meet the health needs of this population. En ligne : https://dx.doi.org/10.1177/13623613231224015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535

A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021 / Lisa Marie EMERSON in Autism, 27-8 (November 2023)  

Permalink

Teaching two boys with autism spectrum disorders to request the continuation of toy play using an iPad®-based speech-generating device / Jeff SIGAFOOS in Research in Autism Spectrum Disorders, 7-8 (August 2013)  

Permalink

Telehealth-delivered behavioral sleep interventions for Autistic children: An evaluation of an enhanced stepped-care approach / Laurie MCLAY ; Karyn FRANCE ; Neville BLAMPIED in Research in Autism Spectrum Disorders, 117 (September 2024)  

Permalink

---

1 (1 - 8 / 8)