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Fatigue, wellbeing and parental self-efficacy in mothers of children with an Autism Spectrum Disorder / Rebecca GIALLO in Autism, 17-4 (July 2013)
[article]
Titre : Fatigue, wellbeing and parental self-efficacy in mothers of children with an Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Rebecca GIALLO, Auteur ; Catherine E WOOD, Auteur ; Rachel JELLETT, Auteur ; Rachelle PORTER, Auteur Article en page(s) : p.465-480 Langues : Anglais (eng) Mots-clés : Mothers wellbeing fatigue parenting parental self-efficacy autism Index. décimale : PER Périodiques Résumé : Raising a child with an Autism Spectrum Disorder (ASD) presents significant challenges for parents that potentially have a impact on their health and wellbeing. The current study examined the extent to which parents experience fatigue and its relationship to other aspects of wellbeing and parenting. Fifty mothers of children with an ASD aged 2–5 years participated in the study. Compared with mothers of typically developing children, mothers of children with an ASD reported significantly higher fatigue, with overall scores in the moderate range. Factors associated with high levels of fatigue were poor maternal sleep quality, a high need for social support and poor quality of physical activity. Fatigue was also significantly related to other aspects of wellbeing, including stress, anxiety and depression, and lower parenting efficacy and satisfaction. The need for interventions to specifically target parental fatigue and its impact on families affected by ASDs both in the short and long term is clearly indicated. En ligne : http://dx.doi.org/10.1177/1362361311416830 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=206
in Autism > 17-4 (July 2013) . - p.465-480[article] Fatigue, wellbeing and parental self-efficacy in mothers of children with an Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Rebecca GIALLO, Auteur ; Catherine E WOOD, Auteur ; Rachel JELLETT, Auteur ; Rachelle PORTER, Auteur . - p.465-480.
Langues : Anglais (eng)
in Autism > 17-4 (July 2013) . - p.465-480
Mots-clés : Mothers wellbeing fatigue parenting parental self-efficacy autism Index. décimale : PER Périodiques Résumé : Raising a child with an Autism Spectrum Disorder (ASD) presents significant challenges for parents that potentially have a impact on their health and wellbeing. The current study examined the extent to which parents experience fatigue and its relationship to other aspects of wellbeing and parenting. Fifty mothers of children with an ASD aged 2–5 years participated in the study. Compared with mothers of typically developing children, mothers of children with an ASD reported significantly higher fatigue, with overall scores in the moderate range. Factors associated with high levels of fatigue were poor maternal sleep quality, a high need for social support and poor quality of physical activity. Fatigue was also significantly related to other aspects of wellbeing, including stress, anxiety and depression, and lower parenting efficacy and satisfaction. The need for interventions to specifically target parental fatigue and its impact on families affected by ASDs both in the short and long term is clearly indicated. En ligne : http://dx.doi.org/10.1177/1362361311416830 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=206 Mental Health and Health Behaviour Changes for Mothers of Children with a Disability: Effectiveness of a Health and Wellbeing Workshop / Helen M. BOURKE-TAYLOR in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
[article]
Titre : Mental Health and Health Behaviour Changes for Mothers of Children with a Disability: Effectiveness of a Health and Wellbeing Workshop Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. BOURKE-TAYLOR, Auteur ; K. S. JOYCE, Auteur ; S. GRZEGORCZYN, Auteur ; L. TIRLEA, Auteur Article en page(s) : p.508-521 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Child Female Health Behavior Humans Mental Health Mothers Quality of Life Childhood disability Wellbeing Index. décimale : PER Périodiques Résumé : Healthy Mothers Healthy Families (HMHF) is a program that educates and empowers mothers of children with disabilities to improve health behaviours. Outcomes were investigated in this study. A pre, post-test design was implemented using online questionnaires including the Health promoting activities scale (HPAS) and the Depressional anxiety stress scales (DASS). Mothers (N?=?71) experienced improvements in HPAS scores, p?.001. Mental health symptomatology reduced: depressive symptoms (p?=?.005), Anxiety symptoms (p?=?.005) and stress (p?=?.002). Wellbeing improved (p?.001). Mothers also reported that their child with a disability experienced an increase in quality of life (p?=?.042). Mothers' lifestyles goals improved: managing stress; dietary changes; leisure; self-perception and others. HMHF is an effective intervention with improved health status and outcomes for mothers. En ligne : http://dx.doi.org/10.1007/s10803-021-04956-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.508-521[article] Mental Health and Health Behaviour Changes for Mothers of Children with a Disability: Effectiveness of a Health and Wellbeing Workshop [Texte imprimé et/ou numérique] / Helen M. BOURKE-TAYLOR, Auteur ; K. S. JOYCE, Auteur ; S. GRZEGORCZYN, Auteur ; L. TIRLEA, Auteur . - p.508-521.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.508-521
Mots-clés : Autism Spectrum Disorder Child Female Health Behavior Humans Mental Health Mothers Quality of Life Childhood disability Wellbeing Index. décimale : PER Périodiques Résumé : Healthy Mothers Healthy Families (HMHF) is a program that educates and empowers mothers of children with disabilities to improve health behaviours. Outcomes were investigated in this study. A pre, post-test design was implemented using online questionnaires including the Health promoting activities scale (HPAS) and the Depressional anxiety stress scales (DASS). Mothers (N?=?71) experienced improvements in HPAS scores, p?.001. Mental health symptomatology reduced: depressive symptoms (p?=?.005), Anxiety symptoms (p?=?.005) and stress (p?=?.002). Wellbeing improved (p?.001). Mothers also reported that their child with a disability experienced an increase in quality of life (p?=?.042). Mothers' lifestyles goals improved: managing stress; dietary changes; leisure; self-perception and others. HMHF is an effective intervention with improved health status and outcomes for mothers. En ligne : http://dx.doi.org/10.1007/s10803-021-04956-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 Mental Wellbeing of Family Members of Autistic Adults / R. HERREMA in Journal of Autism and Developmental Disorders, 47-11 (November 2017)
[article]
Titre : Mental Wellbeing of Family Members of Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : R. HERREMA, Auteur ; D. GARLAND, Auteur ; M. OSBORNE, Auteur ; M. FREESTON, Auteur ; E. HONEY, Auteur ; J. RODGERS, Auteur Article en page(s) : p.3589-3599 Langues : Anglais (eng) Mots-clés : Adults Autism Family members Mental health Wellbeing Index. décimale : PER Périodiques Résumé : Family members are often the primary caregiver for autistic adults and this responsibility may impact on the carer's wellbeing and quality of life. 109 family members of autistic adults completed an online survey assessing their wellbeing relating to their caring role for their autistic relative. Family members who were supporting an autistic relative with co-occurring mental health difficulties and who they reported as unprepared for the future, self-reported higher levels of worry, depression, anxiety and stress, and poorer quality of life. These findings emphasise the importance of support for family members of autistic adults, whether through external services to support their relative or individual mental health support for the carer. En ligne : http://dx.doi.org/10.1007/s10803-017-3269-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325
in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3589-3599[article] Mental Wellbeing of Family Members of Autistic Adults [Texte imprimé et/ou numérique] / R. HERREMA, Auteur ; D. GARLAND, Auteur ; M. OSBORNE, Auteur ; M. FREESTON, Auteur ; E. HONEY, Auteur ; J. RODGERS, Auteur . - p.3589-3599.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3589-3599
Mots-clés : Adults Autism Family members Mental health Wellbeing Index. décimale : PER Périodiques Résumé : Family members are often the primary caregiver for autistic adults and this responsibility may impact on the carer's wellbeing and quality of life. 109 family members of autistic adults completed an online survey assessing their wellbeing relating to their caring role for their autistic relative. Family members who were supporting an autistic relative with co-occurring mental health difficulties and who they reported as unprepared for the future, self-reported higher levels of worry, depression, anxiety and stress, and poorer quality of life. These findings emphasise the importance of support for family members of autistic adults, whether through external services to support their relative or individual mental health support for the carer. En ligne : http://dx.doi.org/10.1007/s10803-017-3269-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 Parent focused interventions for older children or adults with ASD and parent wellbeing outcomes: A systematic review with meta-analysis / Marion RUTHERFORD in Research in Autism Spectrum Disorders, 68 (December 2019)
[article]
Titre : Parent focused interventions for older children or adults with ASD and parent wellbeing outcomes: A systematic review with meta-analysis Type de document : Texte imprimé et/ou numérique Auteurs : Marion RUTHERFORD, Auteur ; Anusua SINGH-ROY, Auteur ; Robert RUSH, Auteur ; Deborah MCCARTNEY, Auteur ; Anne O’HARE, Auteur ; Kirsty FORSYTH, Auteur Article en page(s) : p.101450 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Wellbeing Quality of life Parent stress Intervention Index. décimale : PER Périodiques Résumé : Background There is a need for better evidence in relation to parent-focussed interventions for older children (over 7 years) and adults, which are recommended in clinical guidelines. Method We conducted a systematic review of studies published between 2006 and 2016 investigating wellbeing outcomes of ASD parent focussed interventions via a search of electronic databases including MEDLINE, PsychINFO, CINAHL and the Cochrane database. Results We screened 9605 titles, 57 full text articles and abstracts were read. Two were systematic reviews and 22 experimental intervention studies were included for review. Of these, five were Randomised Controlled Trials, three Controlled Trials and 14 Cohort studies. Interventions were Parent education and training (n?=?12); Mindfulness or relaxation training (n?=?6), Parent support groups (n?=?2) and Multicomponent interventions (n?=?2). Studies reported five wellbeing outcomes: quality of life, parent stress, self-efficacy, parenting style and satisfaction. Separate meta-analyses compared each outcome, to test and estimate the summary effect shared by studies reporting each intervention. Statistically significant outcomes were obtained for reducing parent stress via mindfulness training and for improving parent style and satisfaction, through parent education. Conclusions Analyses of a small number of studies indicate that parent focussed interventions could be effective in improving parent wellbeing, however further research is needed to determine optimal parent intervention models. En ligne : https://doi.org/10.1016/j.rasd.2019.101450 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408
in Research in Autism Spectrum Disorders > 68 (December 2019) . - p.101450[article] Parent focused interventions for older children or adults with ASD and parent wellbeing outcomes: A systematic review with meta-analysis [Texte imprimé et/ou numérique] / Marion RUTHERFORD, Auteur ; Anusua SINGH-ROY, Auteur ; Robert RUSH, Auteur ; Deborah MCCARTNEY, Auteur ; Anne O’HARE, Auteur ; Kirsty FORSYTH, Auteur . - p.101450.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 68 (December 2019) . - p.101450
Mots-clés : Autism spectrum disorder Wellbeing Quality of life Parent stress Intervention Index. décimale : PER Périodiques Résumé : Background There is a need for better evidence in relation to parent-focussed interventions for older children (over 7 years) and adults, which are recommended in clinical guidelines. Method We conducted a systematic review of studies published between 2006 and 2016 investigating wellbeing outcomes of ASD parent focussed interventions via a search of electronic databases including MEDLINE, PsychINFO, CINAHL and the Cochrane database. Results We screened 9605 titles, 57 full text articles and abstracts were read. Two were systematic reviews and 22 experimental intervention studies were included for review. Of these, five were Randomised Controlled Trials, three Controlled Trials and 14 Cohort studies. Interventions were Parent education and training (n?=?12); Mindfulness or relaxation training (n?=?6), Parent support groups (n?=?2) and Multicomponent interventions (n?=?2). Studies reported five wellbeing outcomes: quality of life, parent stress, self-efficacy, parenting style and satisfaction. Separate meta-analyses compared each outcome, to test and estimate the summary effect shared by studies reporting each intervention. Statistically significant outcomes were obtained for reducing parent stress via mindfulness training and for improving parent style and satisfaction, through parent education. Conclusions Analyses of a small number of studies indicate that parent focussed interventions could be effective in improving parent wellbeing, however further research is needed to determine optimal parent intervention models. En ligne : https://doi.org/10.1016/j.rasd.2019.101450 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408 Profile of Mothers of Children with a Disability Who Seek Support for Mental Health and Wellbeing / Helen M. BOURKE-TAYLOR in Journal of Autism and Developmental Disorders, 52-9 (September 2022)
[article]
Titre : Profile of Mothers of Children with a Disability Who Seek Support for Mental Health and Wellbeing Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. BOURKE-TAYLOR, Auteur ; Kahli S. JOYCE, Auteur ; Sarah GRZEGORCZYN, Auteur ; Loredana TIRLEA, Auteur Article en page(s) : p.3800-3813 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Disabled Persons Female Humans Mental Health Mothers/psychology Surveys and Questionnaires Childhood disability Mothers Wellbeing Index. décimale : PER Périodiques Résumé : This paper investigated the characteristics of mothers of children with a disability who registered for a mental health and wellbeing workshop. The questionnaire measured mental health, health-related behaviours, empowerment, family cohesion, wellbeing and child-related variables. Regression analysis identified factors associated with depressive symptoms and positive wellbeing. Fifty-seven percent of participants (N=171) had depressive symptoms within the clinical range. Higher symptoms were associated with reduced: empowerment (r=-.39, p<.01); positive-wellbeing (r=-.66, p<.05); and healthy activity (r=-.41, p<.001). Low positive wellbeing (Î2=.55, p<.001) was the strongest predictor of depressive symptoms. Family cohesion (Î2=.25, p<.001), was the strongest predictor of positive-wellbeing. Future health and wellbeing interventions that support mothers with high care responsibilities should include psycho-education and strategies to address healthy maternal and family-related behaviour changes. En ligne : http://dx.doi.org/10.1007/s10803-021-05260-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.3800-3813[article] Profile of Mothers of Children with a Disability Who Seek Support for Mental Health and Wellbeing [Texte imprimé et/ou numérique] / Helen M. BOURKE-TAYLOR, Auteur ; Kahli S. JOYCE, Auteur ; Sarah GRZEGORCZYN, Auteur ; Loredana TIRLEA, Auteur . - p.3800-3813.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.3800-3813
Mots-clés : Autism Spectrum Disorder Disabled Persons Female Humans Mental Health Mothers/psychology Surveys and Questionnaires Childhood disability Mothers Wellbeing Index. décimale : PER Périodiques Résumé : This paper investigated the characteristics of mothers of children with a disability who registered for a mental health and wellbeing workshop. The questionnaire measured mental health, health-related behaviours, empowerment, family cohesion, wellbeing and child-related variables. Regression analysis identified factors associated with depressive symptoms and positive wellbeing. Fifty-seven percent of participants (N=171) had depressive symptoms within the clinical range. Higher symptoms were associated with reduced: empowerment (r=-.39, p<.01); positive-wellbeing (r=-.66, p<.05); and healthy activity (r=-.41, p<.001). Low positive wellbeing (Î2=.55, p<.001) was the strongest predictor of depressive symptoms. Family cohesion (Î2=.25, p<.001), was the strongest predictor of positive-wellbeing. Future health and wellbeing interventions that support mothers with high care responsibilities should include psycho-education and strategies to address healthy maternal and family-related behaviour changes. En ligne : http://dx.doi.org/10.1007/s10803-021-05260-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 Special interests and subjective wellbeing in autistic adults / Rachel GROVE in Autism Research, 11-5 (May 2018)
PermalinkThe association between COVID-19, personal wellbeing, depression, and suicide risk factors in Australian autistic adults / D. HEDLEY in Autism Research, 14-12 (December 2021)
PermalinkContinuity and change in loneliness and stress during the COVID-19 pandemic: A longitudinal study of autistic and non-autistic adults / Anke M. SCHEEREN in Autism Research, 15-9 (September 2022)
PermalinkDevelopmental delays in emotion regulation strategies in preschoolers with autism / Heather J. NUSKE in Autism Research, 10-11 (November 2017)
Permalink'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness / Monique BOTHA in Autism, 26-8 (November 2022)
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