6 recherche sur le mot-clé 'Healthcare providers'

Healthcare providers' practices in identifying and managing constipation in autistic adults: A qualitative study of facilities across France / Wynn SMITH in Autism, 29-8 (August 2025)  

Public ISBD [article]  inAutism > 29-8 (August 2025) . - p.2044-2057 Titre : Healthcare providers' practices in identifying and managing constipation in autistic adults: A qualitative study of facilities across France Type de document : texte imprimé Auteurs : Wynn SMITH, Auteur ; Charlotte DESPREZ, Auteur Article en page(s) : p.2044-2057 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorder  constipation  healthcare providers  qualitative research Index. décimale : PER Périodiques Résumé : Constipation is a common comorbidity among autistic adults, yet diagnosing and managing it poses unique challenges, notably due to communication barriers and a lack of specific guidelines. The study explores the professional practices of healthcare providers (HCPs) in managing constipation among autistic adults, the symptoms they identify, their management strategies, and the sources of knowledge guiding their practices. A qualitative approach was used, involving semi-structured interviews with ten HCPs, supplemented by twelve online questionnaires. Thematic analysis revealed three overarching themes: (1) HCPs acknowledged challenges in identifying constipation in autistic patients, relying on clinical markers and behavioral cues; (2) HCPs described assessment tools and preventive strategies in managing constipation; and (3) HCPs identified challenges and strategies in managing constipation in autistic adults, adopting a collaborative approach, while exposing a lack of specific training. Findings indicate that HCPs depend on non-verbal cues and behavioral changes, such as increased agitation, irritability, and altered motor patterns, to detect constipation. Variability in treatment protocols and limited formal training underscores the need for more structured training and standardized approaches. The study suggests that improved collaboration among HCPs and with families could lead to more consistent and effective care.Lay abstract Constipation is common among autistic adults, but it can be difficult to diagnose and treat notably because of difficulties in communicating and a lack of clear guidelines. This study considered how healthcare providers (HCPs) in France handle constipation in autistic adults. The research involved interviews with ten HCPs from various medical-social facilities and 12 online questionnaires. The study found three main points: Identifying Constipation: HCPs often struggle to recognize constipation in autistic adults. They rely on physical signs and changes in behavior, such as increased agitation, irritability, and singular ways of acting. Managing Constipation: HCPs use various strategies to manage constipation, focusing on prevention, yet lack clear guidelines for assessment. Challenges and Strategies: HCPs face many challenges, including a lack of specific training. They emphasize working in multidisciplinary teams and with families to manage constipation effectively. The study highlights that better training and standardized guidelines are needed to help HCPs provide consistent and effective care. Improving teamwork among HCPs and with families can lead to better outcomes for autistic adults with constipation. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251333829 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564 [article] Healthcare providers' practices in identifying and managing constipation in autistic adults: A qualitative study of facilities across France [texte imprimé] / Wynn SMITH, Auteur ; Charlotte DESPREZ, Auteur . - p.2044-2057. Langues : Anglais (eng) in Autism > 29-8 (August 2025) . - p.2044-2057 Mots-clés : adults  autism spectrum disorder  constipation  healthcare providers  qualitative research Index. décimale : PER Périodiques Résumé : Constipation is a common comorbidity among autistic adults, yet diagnosing and managing it poses unique challenges, notably due to communication barriers and a lack of specific guidelines. The study explores the professional practices of healthcare providers (HCPs) in managing constipation among autistic adults, the symptoms they identify, their management strategies, and the sources of knowledge guiding their practices. A qualitative approach was used, involving semi-structured interviews with ten HCPs, supplemented by twelve online questionnaires. Thematic analysis revealed three overarching themes: (1) HCPs acknowledged challenges in identifying constipation in autistic patients, relying on clinical markers and behavioral cues; (2) HCPs described assessment tools and preventive strategies in managing constipation; and (3) HCPs identified challenges and strategies in managing constipation in autistic adults, adopting a collaborative approach, while exposing a lack of specific training. Findings indicate that HCPs depend on non-verbal cues and behavioral changes, such as increased agitation, irritability, and altered motor patterns, to detect constipation. Variability in treatment protocols and limited formal training underscores the need for more structured training and standardized approaches. The study suggests that improved collaboration among HCPs and with families could lead to more consistent and effective care.Lay abstract Constipation is common among autistic adults, but it can be difficult to diagnose and treat notably because of difficulties in communicating and a lack of clear guidelines. This study considered how healthcare providers (HCPs) in France handle constipation in autistic adults. The research involved interviews with ten HCPs from various medical-social facilities and 12 online questionnaires. The study found three main points: Identifying Constipation: HCPs often struggle to recognize constipation in autistic adults. They rely on physical signs and changes in behavior, such as increased agitation, irritability, and singular ways of acting. Managing Constipation: HCPs use various strategies to manage constipation, focusing on prevention, yet lack clear guidelines for assessment. Challenges and Strategies: HCPs face many challenges, including a lack of specific training. They emphasize working in multidisciplinary teams and with families to manage constipation effectively. The study highlights that better training and standardized guidelines are needed to help HCPs provide consistent and effective care. Improving teamwork among HCPs and with families can lead to better outcomes for autistic adults with constipation. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251333829 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564

Parental experiences and perspectives of healthcare providers' genetic testing recommendations for their children diagnosed with autism spectrum disorder in the United States / Shixi ZHAO in Autism Research, 17-12 (December 2024)  

Public ISBD [article]  inAutism Research > 17-12 (December 2024) . - p.2471-2486 Titre : Parental experiences and perspectives of healthcare providers' genetic testing recommendations for their children diagnosed with autism spectrum disorder in the United States Type de document : texte imprimé Auteurs : Shixi ZHAO, Auteur ; Ming LI, Auteur ; Wei-Ju CHEN, Auteur ; Brandon J. RENNIE, Auteur ; Yu-Yu HSIAO, Auteur ; Yue GUAN, Auteur Article en page(s) : p.2471-2486 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  experiences  genetic testing recommendations  healthcare providers  parents  perspectives Index. décimale : PER Périodiques Résumé : Abstract Although genetic testing is recommended for all children diagnosed with autism spectrum disorder (ASD) in the United States, it remains unclear how many parents have received and followed these recommendations. This study aimed to assess parental experiences and perspectives of healthcare providers' genetic testing recommendations. A total of 1043 parents of children with ASD from Simons Foundation Powering Autism Research for Knowledge completed an online survey. Only about one-third of the parents (34.2%) reported that their children's providers had recommended genetic testing. Factors associated with whether parents received these recommendations included the type of healthcare providers diagnosing ASD, parents' knowledge of genetic testing, the age of their children's diagnosis, and the presence of certain co-occurring medical conditions in their children. Our study also revealed that most parents (76.9%) who received recommendations had pursued genetic testing for their children. Adherence to the recommendations was associated with the characteristics of the parents (i.e., age and employment status) and children (i.e., gender), and their trust in the information from providers. The findings highlight the critical role of healthcare providers in facilitating genetic testing among families of children with ASD. Healthcare providers are recommended to increase their competencies and practice in providing genetic testing recommendations for ASD, assist parents in navigating testing challenges, and support parents through the testing process. En ligne : https://dx.doi.org/10.1002/aur.3262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544 [article] Parental experiences and perspectives of healthcare providers' genetic testing recommendations for their children diagnosed with autism spectrum disorder in the United States [texte imprimé] / Shixi ZHAO, Auteur ; Ming LI, Auteur ; Wei-Ju CHEN, Auteur ; Brandon J. RENNIE, Auteur ; Yu-Yu HSIAO, Auteur ; Yue GUAN, Auteur . - p.2471-2486. Langues : Anglais (eng) in Autism Research > 17-12 (December 2024) . - p.2471-2486 Mots-clés : autism spectrum disorders  experiences  genetic testing recommendations  healthcare providers  parents  perspectives Index. décimale : PER Périodiques Résumé : Abstract Although genetic testing is recommended for all children diagnosed with autism spectrum disorder (ASD) in the United States, it remains unclear how many parents have received and followed these recommendations. This study aimed to assess parental experiences and perspectives of healthcare providers' genetic testing recommendations. A total of 1043 parents of children with ASD from Simons Foundation Powering Autism Research for Knowledge completed an online survey. Only about one-third of the parents (34.2%) reported that their children's providers had recommended genetic testing. Factors associated with whether parents received these recommendations included the type of healthcare providers diagnosing ASD, parents' knowledge of genetic testing, the age of their children's diagnosis, and the presence of certain co-occurring medical conditions in their children. Our study also revealed that most parents (76.9%) who received recommendations had pursued genetic testing for their children. Adherence to the recommendations was associated with the characteristics of the parents (i.e., age and employment status) and children (i.e., gender), and their trust in the information from providers. The findings highlight the critical role of healthcare providers in facilitating genetic testing among families of children with ASD. Healthcare providers are recommended to increase their competencies and practice in providing genetic testing recommendations for ASD, assist parents in navigating testing challenges, and support parents through the testing process. En ligne : https://dx.doi.org/10.1002/aur.3262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544

Development and psychometric testing of the AASPIRE Adult Autism Healthcare Provider Self-Efficacy Scale / Christina NICOLAIDIS in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.767-773 Titre : Development and psychometric testing of the AASPIRE Adult Autism Healthcare Provider Self-Efficacy Scale Type de document : texte imprimé Auteurs : Christina NICOLAIDIS, Auteur ; Gavin SCHNIDER, Auteur ; Junghee LEE, Auteur ; Dora M. RAYMAKER, Auteur ; Steven K. KAPP, Auteur ; Lisa A. CROEN, Auteur ; Anna URBANOWICZ, Auteur ; Joelle MASLAK, Auteur Article en page(s) : p.767-773 Langues : Anglais (eng) Mots-clés : accommodations  adult  autism  community-based participatory research  healthcare providers Index. décimale : PER Périodiques Résumé : The adult healthcare system is ill-prepared to provide high-quality care to autistic adults. Lack of provider training may contribute to the problem, but there are few previously tested survey instruments to guide provider training efforts. Our objective was to develop and test a measure of healthcare providers' confidence (or "self-efficacy") in providing healthcare to autistic adults and to use it to better understand their training needs. We used a community-based participatory research (CBPR) approach, in partnership with academic researchers, autistic adults, supporters, and healthcare providers, throughout the project. We developed a one-page questionnaire and surveyed 143 primary care providers from eight primary care clinics in Oregon and California, United States. Preliminary testing of the AASPIRE Adult Autism Healthcare Provider Self-Efficacy Scale suggests that the measure is reliable and valid. Using this scale, we found only a minority of providers reported high confidence in communicating with patients (25%); performing physical exams or procedures (43%); accurately diagnosing and treating other medical issues (40%); helping patients stay calm and comfortable during visits (38%); identifying accommodation needs (14%); and making necessary accommodations (16%). While providers need training across all aspects of care related to autism in adulthood, interventions should pay particular attention to helping providers communicate with patients, and identify and make necessary accommodations. Future research is needed to further validate this scale and to understand how to meet providers' training needs most effectively. En ligne : http://dx.doi.org/10.1177/1362361320949734 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Development and psychometric testing of the AASPIRE Adult Autism Healthcare Provider Self-Efficacy Scale [texte imprimé] / Christina NICOLAIDIS, Auteur ; Gavin SCHNIDER, Auteur ; Junghee LEE, Auteur ; Dora M. RAYMAKER, Auteur ; Steven K. KAPP, Auteur ; Lisa A. CROEN, Auteur ; Anna URBANOWICZ, Auteur ; Joelle MASLAK, Auteur . - p.767-773. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.767-773 Mots-clés : accommodations  adult  autism  community-based participatory research  healthcare providers Index. décimale : PER Périodiques Résumé : The adult healthcare system is ill-prepared to provide high-quality care to autistic adults. Lack of provider training may contribute to the problem, but there are few previously tested survey instruments to guide provider training efforts. Our objective was to develop and test a measure of healthcare providers' confidence (or "self-efficacy") in providing healthcare to autistic adults and to use it to better understand their training needs. We used a community-based participatory research (CBPR) approach, in partnership with academic researchers, autistic adults, supporters, and healthcare providers, throughout the project. We developed a one-page questionnaire and surveyed 143 primary care providers from eight primary care clinics in Oregon and California, United States. Preliminary testing of the AASPIRE Adult Autism Healthcare Provider Self-Efficacy Scale suggests that the measure is reliable and valid. Using this scale, we found only a minority of providers reported high confidence in communicating with patients (25%); performing physical exams or procedures (43%); accurately diagnosing and treating other medical issues (40%); helping patients stay calm and comfortable during visits (38%); identifying accommodation needs (14%); and making necessary accommodations (16%). While providers need training across all aspects of care related to autism in adulthood, interventions should pay particular attention to helping providers communicate with patients, and identify and make necessary accommodations. Future research is needed to further validate this scale and to understand how to meet providers' training needs most effectively. En ligne : http://dx.doi.org/10.1177/1362361320949734 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

A Study of Physician Knowledge and Experience with Autism in Adults in a Large Integrated Healthcare System / Ousseny ZERBO in Journal of Autism and Developmental Disorders, 45-12 (December 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-12 (December 2015) . - p.4002-4014 Titre : A Study of Physician Knowledge and Experience with Autism in Adults in a Large Integrated Healthcare System Type de document : texte imprimé Auteurs : Ousseny ZERBO, Auteur ; Maria L. MASSOLO, Auteur ; Yinge QIAN, Auteur ; Lisa A. CROEN, Auteur Année de publication : 2015 Article en page(s) : p.4002-4014 Langues : Anglais (eng) Mots-clés : Adults  Survey  Autism spectrum disorder  Healthcare providers  Knowledge Index. décimale : PER Périodiques Résumé : We conducted an online survey of adult health care providers at Kaiser Permanente Northern California and semi-structured interviews with a subset of physicians. The survey assessed providers’ ability to recognize autism spectrum disorder (ASD), asked them to rate their autism knowledge, comfort level in treating affected patients, and evaluated training and resource needs. 922 providers completed the survey (response rate 25.3 %), and 9 were interviewed by telephone regarding their autism training and experiences caring for patients with autism. Most providers reported lacking skills and tools to care for this adult patient population. A high proportion of adult providers were not aware that they had patients with ASD. These findings underscore the need to educate physicians caring for adults with ASD. En ligne : http://dx.doi.org/10.1007/s10803-015-2579-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=273 [article] A Study of Physician Knowledge and Experience with Autism in Adults in a Large Integrated Healthcare System [texte imprimé] / Ousseny ZERBO, Auteur ; Maria L. MASSOLO, Auteur ; Yinge QIAN, Auteur ; Lisa A. CROEN, Auteur . - 2015 . - p.4002-4014. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-12 (December 2015) . - p.4002-4014 Mots-clés : Adults  Survey  Autism spectrum disorder  Healthcare providers  Knowledge Index. décimale : PER Périodiques Résumé : We conducted an online survey of adult health care providers at Kaiser Permanente Northern California and semi-structured interviews with a subset of physicians. The survey assessed providers’ ability to recognize autism spectrum disorder (ASD), asked them to rate their autism knowledge, comfort level in treating affected patients, and evaluated training and resource needs. 922 providers completed the survey (response rate 25.3 %), and 9 were interviewed by telephone regarding their autism training and experiences caring for patients with autism. Most providers reported lacking skills and tools to care for this adult patient population. A high proportion of adult providers were not aware that they had patients with ASD. These findings underscore the need to educate physicians caring for adults with ASD. En ligne : http://dx.doi.org/10.1007/s10803-015-2579-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=273

A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives / Marisa PETRUCCELLI in Journal of Autism and Developmental Disorders, 52-2 (February 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673 Titre : A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives Type de document : texte imprimé Auteurs : Marisa PETRUCCELLI, Auteur ; Leah RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. Christopher SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Thomas I. MACKIE, Auteur Article en page(s) : p.647-673 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Child, Preschool  Early Intervention, Educational  Humans  Mass Screening  Parents  Pediatricians  Autism spectrum disorder  Harms  Healthcare providers  Qualitative methods  Screening  first-stage screeners used in this study. He conducts research related to this  instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but  receives no royalties. She is also co-creator of the BITSEA, which is one of the two  first-stage screeners used in this study. Dr. Carter receives royalties on the sale  of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors  report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives [texte imprimé] / Marisa PETRUCCELLI, Auteur ; Leah RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. Christopher SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Thomas I. MACKIE, Auteur . - p.647-673. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673 Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Child, Preschool  Early Intervention, Educational  Humans  Mass Screening  Parents  Pediatricians  Autism spectrum disorder  Harms  Healthcare providers  Qualitative methods  Screening  first-stage screeners used in this study. He conducts research related to this  instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but  receives no royalties. She is also co-creator of the BITSEA, which is one of the two  first-stage screeners used in this study. Dr. Carter receives royalties on the sale  of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors  report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Training Physical Therapists in Early ASD Screening / Ayelet BEN-SASSON in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Permalink