11 recherche sur le mot-clé 'Qualitative methods'

Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder / Karen E. BEARSS in Autism, 20-6 (August 2016)  

Public ISBD [article]  inAutism > 20-6 (August 2016) . - p.663-672 Titre : Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder Type de document : texte imprimé Auteurs : Karen E. BEARSS, Auteur ; Christopher A. TAYLOR, Auteur ; Michael G. AMAN, Auteur ; Robin WHITTEMORE, Auteur ; Luc LECAVALIER, Auteur ; Judith MILLER, Auteur ; Jill PRITCHETT, Auteur ; Bryson GREEN, Auteur ; Lawrence SCAHILL, Auteur Article en page(s) : p.663-672 Langues : Anglais (eng) Mots-clés : anxiety  autism spectrum disorder  content validity  focus group  instrument development  qualitative methods Index. décimale : PER Périodiques Résumé : Anxiety is common in youth with autism spectrum disorder. Despite this common co-occurrence, studies targeting anxiety in this population are hindered by the under-developed state of measures in youth with autism spectrum disorder. Content validity (the extent to which an instrument measures the domain of interest) and an instrument’s relevance to the patient population are key components of measurement development. This article describes the application of qualitative research methods in the initial development of a parent-rated instrument of anxiety symptoms in youth with autism spectrum disorder. Overall, 48 parents of 45 children (aged 3–17 years) with autism spectrum disorder and at least mild anxiety participated in one of six focus groups at two sites (three groups per site). Systematic coding of the focus group transcripts identified broad themes reflecting the situations and events that trigger anxiety in children with autism spectrum disorder, the behavioral manifestations of anxiety in children with autism spectrum disorder, the parent and the child’s own response to anxiety, and broad behavioral patterns that could be associated with anxiety. From the focus group data, investigators generated 52 candidate items for a parent-rating of anxiety in youth with autism spectrum disorder. This report provides a detailed description of these early steps in developing a patient-oriented outcome measure. En ligne : http://dx.doi.org/10.1177/1362361315601012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 [article] Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder [texte imprimé] / Karen E. BEARSS, Auteur ; Christopher A. TAYLOR, Auteur ; Michael G. AMAN, Auteur ; Robin WHITTEMORE, Auteur ; Luc LECAVALIER, Auteur ; Judith MILLER, Auteur ; Jill PRITCHETT, Auteur ; Bryson GREEN, Auteur ; Lawrence SCAHILL, Auteur . - p.663-672. Langues : Anglais (eng) in Autism > 20-6 (August 2016) . - p.663-672 Mots-clés : anxiety  autism spectrum disorder  content validity  focus group  instrument development  qualitative methods Index. décimale : PER Périodiques Résumé : Anxiety is common in youth with autism spectrum disorder. Despite this common co-occurrence, studies targeting anxiety in this population are hindered by the under-developed state of measures in youth with autism spectrum disorder. Content validity (the extent to which an instrument measures the domain of interest) and an instrument’s relevance to the patient population are key components of measurement development. This article describes the application of qualitative research methods in the initial development of a parent-rated instrument of anxiety symptoms in youth with autism spectrum disorder. Overall, 48 parents of 45 children (aged 3–17 years) with autism spectrum disorder and at least mild anxiety participated in one of six focus groups at two sites (three groups per site). Systematic coding of the focus group transcripts identified broad themes reflecting the situations and events that trigger anxiety in children with autism spectrum disorder, the behavioral manifestations of anxiety in children with autism spectrum disorder, the parent and the child’s own response to anxiety, and broad behavioral patterns that could be associated with anxiety. From the focus group data, investigators generated 52 candidate items for a parent-rating of anxiety in youth with autism spectrum disorder. This report provides a detailed description of these early steps in developing a patient-oriented outcome measure. En ligne : http://dx.doi.org/10.1177/1362361315601012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290

Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration / Leah I. STEIN DUKER in Research in Autism Spectrum Disorders, 39 (July 2017)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 39 (July 2017) . - p.63-72 Titre : Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration Type de document : texte imprimé Auteurs : Leah I. STEIN DUKER, Auteur ; Benjamin F. HENWOOD, Auteur ; Ricky N. BLUTHENTHAL, Auteur ; Emma JUHLIN, Auteur ; José C. POLIDO, Auteur ; Sharon A. CERMAK, Auteur Article en page(s) : p.63-72 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Health care  Dental care  Oral care  Oral health  Occupational therapy  Qualitative methods Index. décimale : PER Périodiques Résumé : AbstractBackground Many children with autism spectrum disorders (ASD) experience barriers to oral care in the dental office setting. The purpose of this study was to provide an increased understanding of these challenges experienced during oral care in the dental office by children with ASD. Method This study was part of a larger mixed methods design and builds on quantitative results from a survey of parents of children with ASD ages 2–18 in which parents reported difficulties with access to care, sensory processing, and uncooperative behaviors. For this study, we conducted two, three hour, focus groups of parents of male children with ASD age 5–18 years in order to explore the survey results in greater depth. Focus group transcripts were analyzed using a template coding approach based on the three domains of office-based oral care challenges identified in the first phase (survey). Results Several related themes emerged including: (1) Access: “Difficult to find the right dentist”, (2) Sensory sensitivities: “All the sensory devices just make him so uncomfortable”, (3) Restraint: “It looked like they were torturing him”, and (4) Drugs: “A mixed bag”. Conclusions The qualitative findings from this study both confirmed our previous survey findings and expanded upon them. These findings can help professionals better understand the challenges experienced by children with ASD and their parents as well as help identify priorities for planning efforts to address the oral health-related needs of this population. En ligne : https://doi.org/10.1016/j.rasd.2017.03.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308 [article] Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration [texte imprimé] / Leah I. STEIN DUKER, Auteur ; Benjamin F. HENWOOD, Auteur ; Ricky N. BLUTHENTHAL, Auteur ; Emma JUHLIN, Auteur ; José C. POLIDO, Auteur ; Sharon A. CERMAK, Auteur . - p.63-72. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 39 (July 2017) . - p.63-72 Mots-clés : Autism spectrum disorder  Health care  Dental care  Oral care  Oral health  Occupational therapy  Qualitative methods Index. décimale : PER Périodiques Résumé : AbstractBackground Many children with autism spectrum disorders (ASD) experience barriers to oral care in the dental office setting. The purpose of this study was to provide an increased understanding of these challenges experienced during oral care in the dental office by children with ASD. Method This study was part of a larger mixed methods design and builds on quantitative results from a survey of parents of children with ASD ages 2–18 in which parents reported difficulties with access to care, sensory processing, and uncooperative behaviors. For this study, we conducted two, three hour, focus groups of parents of male children with ASD age 5–18 years in order to explore the survey results in greater depth. Focus group transcripts were analyzed using a template coding approach based on the three domains of office-based oral care challenges identified in the first phase (survey). Results Several related themes emerged including: (1) Access: “Difficult to find the right dentist”, (2) Sensory sensitivities: “All the sensory devices just make him so uncomfortable”, (3) Restraint: “It looked like they were torturing him”, and (4) Drugs: “A mixed bag”. Conclusions The qualitative findings from this study both confirmed our previous survey findings and expanded upon them. These findings can help professionals better understand the challenges experienced by children with ASD and their parents as well as help identify priorities for planning efforts to address the oral health-related needs of this population. En ligne : https://doi.org/10.1016/j.rasd.2017.03.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308

A Qualitative Analysis of the School Experiences of Students With Asperger Syndrome / Mark SCIUTTO in Focus on Autism and Other Developmental Disabilities, 27-3 (September 2012)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 27-3 (September 2012) . - p.177-188 Titre : A Qualitative Analysis of the School Experiences of Students With Asperger Syndrome Type de document : texte imprimé Auteurs : Mark SCIUTTO, Auteur ; Sally RICHWINE, Auteur ; Janelle MENTRIKOSKI, Auteur ; Kathryn NIEDZWIECKI, Auteur Année de publication : 2012 Article en page(s) : p.177-188 Langues : Anglais (eng) Mots-clés : Asperger syndrome  qualitative methods  school experiences Index. décimale : PER Périodiques Résumé : In this study, adults with Asperger syndrome (AS) and caregivers of children with AS provided firsthand accounts of school-related challenges and influential instructional practices. A total of 94 participants (59 parents, 27 adults with AS, and 8 unspecified) completed an online survey containing open-ended questions about their (or their children’s) school-related experiences. Participants identified specific areas of need (e.g., bullying, misunderstood intentions) related to understanding children with AS. In addition, participants described teacher qualities and instructional practices (e.g., strategies for communicating that the child is an asset, methods of structuring the environment for success) that had a positive impact on their (or their children’s) school experiences. Implications for teacher training and school-based interventions are highlighted. En ligne : http://dx.doi.org/10.1177/1088357612450511 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=179 [article] A Qualitative Analysis of the School Experiences of Students With Asperger Syndrome [texte imprimé] / Mark SCIUTTO, Auteur ; Sally RICHWINE, Auteur ; Janelle MENTRIKOSKI, Auteur ; Kathryn NIEDZWIECKI, Auteur . - 2012 . - p.177-188. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 27-3 (September 2012) . - p.177-188 Mots-clés : Asperger syndrome  qualitative methods  school experiences Index. décimale : PER Périodiques Résumé : In this study, adults with Asperger syndrome (AS) and caregivers of children with AS provided firsthand accounts of school-related challenges and influential instructional practices. A total of 94 participants (59 parents, 27 adults with AS, and 8 unspecified) completed an online survey containing open-ended questions about their (or their children’s) school-related experiences. Participants identified specific areas of need (e.g., bullying, misunderstood intentions) related to understanding children with AS. In addition, participants described teacher qualities and instructional practices (e.g., strategies for communicating that the child is an asset, methods of structuring the environment for success) that had a positive impact on their (or their children’s) school experiences. Implications for teacher training and school-based interventions are highlighted. En ligne : http://dx.doi.org/10.1177/1088357612450511 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=179

The spectrum of communication abilities in children with 12 rare neurodevelopmental disorders: a qualitative study with caregivers / Christina K. ZIGLER in Journal of Child Psychology and Psychiatry, 67-5 (May 2026)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 67-5 (May 2026) . - p.740-754 Titre : The spectrum of communication abilities in children with 12 rare neurodevelopmental disorders: a qualitative study with caregivers Type de document : texte imprimé Auteurs : Christina K. ZIGLER, Auteur ; Molly MCFATRICH, Auteur ; Nicole LUCAS, Auteur ; Kate PLYLER, Auteur ; Leslie ZAPATA-LEIVA, Auteur ; Kelly GORDON, Auteur ; Harrison N. JONES, Auteur ; Li LIN, Auteur ; Jennifer KERN, Auteur ; Abigail RADAR, Auteur ; Dandan CHEN, Auteur ; Elika BERGELSON, Auteur ; Kate STILL, Auteur ; Brigette HINGER, Auteur ; Christal G. DELAGRAMMATIKAS, Auteur ; Sarah POLIQUIN, Auteur ; Brittany P. SHORT, Auteur ; Liz MARFIA-ASH, Auteur ; Kimberly STEPHENS, Auteur ; Haley O. OYLER, Auteur ; J. Michael GRAGLIA, Auteur ; Kali WORTH, Auteur ; Charlene SON RIGBY, Auteur ; James R. GOSS, Auteur ; Bo BIGELOW, Auteur ; Geraldine BLISS, Auteur ; Karen BEATTY, Auteur ; Leah SCHUST MYERS, Auteur ; Melissa THELEN, Auteur ; Nuala SUMMERFIELD, Auteur ; Terry Jo BICHELL, Auteur ; Bryce B. REEVE, Auteur Article en page(s) : p.740-754 Langues : Anglais (eng) Mots-clés : Communication  non-verbal communication  behavioural measures  qualitative methods  caregiver Index. décimale : PER Périodiques Résumé : Background Our aim was to update an existing model of communication ability for children with rare neurodevelopmental disorders (NDDs) by centring caregiver and family perspectives. This project is part of a larger initiative to improve the measurement of communication ability for these children in the context of clinical trials. Methods We conducted concept elicitation interviews with purposively selected clinical experts and caregivers of children with 12 NDDs, focusing on a broad definition of communication ability based on the Observer-Reported Communication Ability (ORCA) measure, which is inclusive of different communication modalities and covers expressive, receptive and pragmatic communication concepts. Content-based and thematic analysis was performed on the qualitative data. Results Altogether, 115 interviews were conducted with caregivers across the 12 NDDs and with 9 clinicians. Commonly mentioned concepts across NDDs included requesting an object, refusing an object, responding to familiar directions and seeking attention. There was notable heterogeneity within and across NDD groups in terms of the specific communication behaviours described for each communication concept. One common example was requesting; children used verbal speech, gestures, sign language, eye gaze, body movements and augmentative and assistive communication to ask for what they wanted. Novel communication concepts identified that were not part of the existing model were (1) feelings, emotions, and bodily sensations, (2) commenting on likes and dislikes, and (3) communicating and understanding humour. Conclusions Caregivers offered a detailed and nuanced picture of their child's day-to-day communication. There was a considerable overlap between the communication concepts discussed by caregivers in the interviews and the existing conceptual model of communication ability. Some newly identified concepts underscore the need for further adaptation of the model and subsequent validation of any clinical outcome assessment before communication ability can be confidently measured for these individuals in clinical trials. En ligne : https://doi.org/10.1111/jcpp.70063 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] The spectrum of communication abilities in children with 12 rare neurodevelopmental disorders: a qualitative study with caregivers [texte imprimé] / Christina K. ZIGLER, Auteur ; Molly MCFATRICH, Auteur ; Nicole LUCAS, Auteur ; Kate PLYLER, Auteur ; Leslie ZAPATA-LEIVA, Auteur ; Kelly GORDON, Auteur ; Harrison N. JONES, Auteur ; Li LIN, Auteur ; Jennifer KERN, Auteur ; Abigail RADAR, Auteur ; Dandan CHEN, Auteur ; Elika BERGELSON, Auteur ; Kate STILL, Auteur ; Brigette HINGER, Auteur ; Christal G. DELAGRAMMATIKAS, Auteur ; Sarah POLIQUIN, Auteur ; Brittany P. SHORT, Auteur ; Liz MARFIA-ASH, Auteur ; Kimberly STEPHENS, Auteur ; Haley O. OYLER, Auteur ; J. Michael GRAGLIA, Auteur ; Kali WORTH, Auteur ; Charlene SON RIGBY, Auteur ; James R. GOSS, Auteur ; Bo BIGELOW, Auteur ; Geraldine BLISS, Auteur ; Karen BEATTY, Auteur ; Leah SCHUST MYERS, Auteur ; Melissa THELEN, Auteur ; Nuala SUMMERFIELD, Auteur ; Terry Jo BICHELL, Auteur ; Bryce B. REEVE, Auteur . - p.740-754. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 67-5 (May 2026) . - p.740-754 Mots-clés : Communication  non-verbal communication  behavioural measures  qualitative methods  caregiver Index. décimale : PER Périodiques Résumé : Background Our aim was to update an existing model of communication ability for children with rare neurodevelopmental disorders (NDDs) by centring caregiver and family perspectives. This project is part of a larger initiative to improve the measurement of communication ability for these children in the context of clinical trials. Methods We conducted concept elicitation interviews with purposively selected clinical experts and caregivers of children with 12 NDDs, focusing on a broad definition of communication ability based on the Observer-Reported Communication Ability (ORCA) measure, which is inclusive of different communication modalities and covers expressive, receptive and pragmatic communication concepts. Content-based and thematic analysis was performed on the qualitative data. Results Altogether, 115 interviews were conducted with caregivers across the 12 NDDs and with 9 clinicians. Commonly mentioned concepts across NDDs included requesting an object, refusing an object, responding to familiar directions and seeking attention. There was notable heterogeneity within and across NDD groups in terms of the specific communication behaviours described for each communication concept. One common example was requesting; children used verbal speech, gestures, sign language, eye gaze, body movements and augmentative and assistive communication to ask for what they wanted. Novel communication concepts identified that were not part of the existing model were (1) feelings, emotions, and bodily sensations, (2) commenting on likes and dislikes, and (3) communicating and understanding humour. Conclusions Caregivers offered a detailed and nuanced picture of their child's day-to-day communication. There was a considerable overlap between the communication concepts discussed by caregivers in the interviews and the existing conceptual model of communication ability. Some newly identified concepts underscore the need for further adaptation of the model and subsequent validation of any clinical outcome assessment before communication ability can be confidently measured for these individuals in clinical trials. En ligne : https://doi.org/10.1111/jcpp.70063 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention / Kyle M. FROST in Autism, 25-7 (October 2021)  

Public ISBD [article]  inAutism > 25-7 (October 2021) . - p.1935-1945 Titre : Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention Type de document : texte imprimé Auteurs : Kyle M. FROST, Auteur ; Kaylin M. RUSSELL, Auteur ; Brooke R. INGERSOLL, Auteur Article en page(s) : p.1935-1945 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Behavior Therapy  Caregivers  Child  Child Development Disorders, Pervasive  Humans  Parents  active ingredients  autism  early intervention  qualitative methods Index. décimale : PER Périodiques Résumé : Although naturalistic developmental behavioral interventions are supported by research for supporting the development of children on the autism spectrum, how they work is not well understood. This study reviewed parent reflection comments in a systematic way to better how one such treatment worked, when delivered by caregivers. Caregivers completed weekly written reflection responses as they learned how to use the treatment techniques. We studied these responses to understand caregiver perspectives on how their children responded to the techniques. The responses were then compared to a theory of how the treatment works. Many responses were consistent with the treatment theory; however, others were not. We found that individual techniques were associated with different child responses, suggesting that general measures of social communication may not measure these specific short-term changes. Our findings point to specific behaviors that may be useful to measure in future research, or useful as indicators of treatment response in clinical practice settings. Overall, qualitative methods may be useful for understanding complex treatment processes. En ligne : http://dx.doi.org/10.1177/13623613211003747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention [texte imprimé] / Kyle M. FROST, Auteur ; Kaylin M. RUSSELL, Auteur ; Brooke R. INGERSOLL, Auteur . - p.1935-1945. Langues : Anglais (eng) in Autism > 25-7 (October 2021) . - p.1935-1945 Mots-clés : Autism Spectrum Disorder/therapy  Behavior Therapy  Caregivers  Child  Child Development Disorders, Pervasive  Humans  Parents  active ingredients  autism  early intervention  qualitative methods Index. décimale : PER Périodiques Résumé : Although naturalistic developmental behavioral interventions are supported by research for supporting the development of children on the autism spectrum, how they work is not well understood. This study reviewed parent reflection comments in a systematic way to better how one such treatment worked, when delivered by caregivers. Caregivers completed weekly written reflection responses as they learned how to use the treatment techniques. We studied these responses to understand caregiver perspectives on how their children responded to the techniques. The responses were then compared to a theory of how the treatment works. Many responses were consistent with the treatment theory; however, others were not. We found that individual techniques were associated with different child responses, suggesting that general measures of social communication may not measure these specific short-term changes. Our findings point to specific behaviors that may be useful to measure in future research, or useful as indicators of treatment response in clinical practice settings. Overall, qualitative methods may be useful for understanding complex treatment processes. En ligne : http://dx.doi.org/10.1177/13623613211003747 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Using qualitative content analysis to understand the active ingredients of a parent-mediated naturalistic developmental behavioral intervention / Kyle M. FROST in Autism, 26-7 (October 2022)  

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The importance of context in early autism intervention: A qualitative South African study / Jessy GULER in Autism, 22-8 (November 2018)  

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Annual Research Review: Immersive virtual reality and digital applied gaming interventions for the treatment of mental health problems in children and young people: the need for rigorous treatment development and clinical evaluation / Brynjar HALLDORSSON in Journal of Child Psychology and Psychiatry, 62-5 (May 2021)  

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"I'm able to function better when I know there's a beginning and an end time": Autistic adolescents' experiences of lockdowns during the COVID-19 pandemic / Laura KELLY ; Sue MESA in Autism & Developmental Language Impairments, 8 (January-December 2023)  

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A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives / Marisa PETRUCCELLI in Journal of Autism and Developmental Disorders, 52-2 (February 2022)  

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