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Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports / Jinkuk HONG in Journal of Autism and Developmental Disorders, 46-4 (April 2016)
[article]
Titre : Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports Type de document : Texte imprimé et/ou numérique Auteurs : Jinkuk HONG, Auteur ; Lauren BISHOP-FITZPATRICK, Auteur ; Leann E. SMITH, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur Article en page(s) : p.1368-1378 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Subjective quality of life WHOQOL-BREF domains Self-report Maternal report Index. décimale : PER Périodiques Résumé : We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25–55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that adults with ASD rated their own QoL reliably. QoL scores derived from adult self-reports were more closely related to those from maternal proxy-report than from maternal report. Subjective factors such as perceived stress and having been bullied frequently were associated with QoL based on adult self-reports. In contrast, level of independence in daily activities and physical health were significant predictors of maternal reports of their son or daughter’s QoL. En ligne : http://dx.doi.org/10.1007/s10803-015-2678-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284
in Journal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1368-1378[article] Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports [Texte imprimé et/ou numérique] / Jinkuk HONG, Auteur ; Lauren BISHOP-FITZPATRICK, Auteur ; Leann E. SMITH, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur . - p.1368-1378.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1368-1378
Mots-clés : Autism spectrum disorder Subjective quality of life WHOQOL-BREF domains Self-report Maternal report Index. décimale : PER Périodiques Résumé : We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25–55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that adults with ASD rated their own QoL reliably. QoL scores derived from adult self-reports were more closely related to those from maternal proxy-report than from maternal report. Subjective factors such as perceived stress and having been bullied frequently were associated with QoL based on adult self-reports. In contrast, level of independence in daily activities and physical health were significant predictors of maternal reports of their son or daughter’s QoL. En ligne : http://dx.doi.org/10.1007/s10803-015-2678-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284 Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults / Goldie A. MCQUAID in Autism Research, 15-8 (August 2022)
[article]
Titre : Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Goldie A. MCQUAID, Auteur ; Colin H. WEISS, Auteur ; Alex Job SAID, Auteur ; Kevin A. PELPHREY, Auteur ; Nancy Raitano LEE, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.1535-1549 Langues : Anglais (eng) Mots-clés : Activities of Daily Living Adult Aged Autism Spectrum Disorder/psychology Autistic Disorder/psychology Female Humans Infant, Newborn Male Quality of Life/psychology Stress, Psychological/complications/epidemiology/psychology adulthood autism perceived stress subjective quality of life Index. décimale : PER Périodiques Résumé : Few studies have examined self-reported perceived stress in autistic adults. Existing studies have included relatively small, predominantly male samples and have not included older autistic adults. Using a large autistic sample (NÂ =Â 713), enriched for individuals designated female at birth (59.3%), and spanning younger, middle, and older adulthood, we examined perceived stress and its associations with independence in activities of daily living and subjective quality of life (QoL). Perceived stress for autistic adults designated male or female at birth was compared to their same birth-sex counterparts in a general population sample. In addition, within the autistic sample, effects of sex designated at birth, age, and their interaction were examined. Regression modeling examined associations between perceived stress and independence in activities of daily living and domains of subjective QoL in autistic adults, after controlling for age, sex designated at birth, and household income. Autistic adults reported significantly greater perceived stress than a general population comparison sample. Relative to autistic adults designated male at birth, those designated female at birth demonstrated significantly elevated perceived stress. Perceived stress contributed significantly to all regression models, with greater perceived stress associated with less independence in activities of daily living, and poorer subjective QoL across all domains-Physical, Psychological, Social, Environment, and Autism-related QoL. Findings are contextualized within the literature documenting that autistic individuals experience elevated underemployment and unemployment, heightened rates of adverse life events, and increased exposure to minority stress. LAY SUMMARY: This study looked at self-reported perceived stress in a large sample of autistic adults. Autistic adults reported more perceived stress than non-autistic adults. Autistic individuals designated female at birth reported higher stress than autistic individuals designated male at birth. In autistic adults, greater perceived stress is related to less independence in activities of daily living and poorer subjective quality of life. En ligne : http://dx.doi.org/10.1002/aur.2779 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483
in Autism Research > 15-8 (August 2022) . - p.1535-1549[article] Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults [Texte imprimé et/ou numérique] / Goldie A. MCQUAID, Auteur ; Colin H. WEISS, Auteur ; Alex Job SAID, Auteur ; Kevin A. PELPHREY, Auteur ; Nancy Raitano LEE, Auteur ; Gregory L. WALLACE, Auteur . - p.1535-1549.
Langues : Anglais (eng)
in Autism Research > 15-8 (August 2022) . - p.1535-1549
Mots-clés : Activities of Daily Living Adult Aged Autism Spectrum Disorder/psychology Autistic Disorder/psychology Female Humans Infant, Newborn Male Quality of Life/psychology Stress, Psychological/complications/epidemiology/psychology adulthood autism perceived stress subjective quality of life Index. décimale : PER Périodiques Résumé : Few studies have examined self-reported perceived stress in autistic adults. Existing studies have included relatively small, predominantly male samples and have not included older autistic adults. Using a large autistic sample (NÂ =Â 713), enriched for individuals designated female at birth (59.3%), and spanning younger, middle, and older adulthood, we examined perceived stress and its associations with independence in activities of daily living and subjective quality of life (QoL). Perceived stress for autistic adults designated male or female at birth was compared to their same birth-sex counterparts in a general population sample. In addition, within the autistic sample, effects of sex designated at birth, age, and their interaction were examined. Regression modeling examined associations between perceived stress and independence in activities of daily living and domains of subjective QoL in autistic adults, after controlling for age, sex designated at birth, and household income. Autistic adults reported significantly greater perceived stress than a general population comparison sample. Relative to autistic adults designated male at birth, those designated female at birth demonstrated significantly elevated perceived stress. Perceived stress contributed significantly to all regression models, with greater perceived stress associated with less independence in activities of daily living, and poorer subjective QoL across all domains-Physical, Psychological, Social, Environment, and Autism-related QoL. Findings are contextualized within the literature documenting that autistic individuals experience elevated underemployment and unemployment, heightened rates of adverse life events, and increased exposure to minority stress. LAY SUMMARY: This study looked at self-reported perceived stress in a large sample of autistic adults. Autistic adults reported more perceived stress than non-autistic adults. Autistic individuals designated female at birth reported higher stress than autistic individuals designated male at birth. In autistic adults, greater perceived stress is related to less independence in activities of daily living and poorer subjective quality of life. En ligne : http://dx.doi.org/10.1002/aur.2779 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483