Centre d'Information et de documentation du CRA Rhône-Alpes
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Résultat de la recherche
2 recherche sur le mot-clé 'autistic community'
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'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness / Monique BOTHA in Autism, 26-8 (November 2022)
[article]
Titre : 'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness Type de document : Texte imprimé et/ou numérique Auteurs : Monique BOTHA, Auteur ; Bridget DIBB, Auteur ; David M. FROST, Auteur Article en page(s) : p.2151-2164 Langues : Anglais (eng) Mots-clés : Humans Autistic Disorder/psychology Autism Spectrum Disorder Friends Mental Health Interpersonal Relations autistic community belongingness community identity political connectedness qualitative research social connectedness stigma wellbeing research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : A sense of being connected to other autistic people has been reported anecdotally. Friendships and connectedness may be important to autistic people and beneficial for their wellbeing. Our research aimed to understand the autistic community by interviewing 20 autistic people about their experiences of being connected to other autistic people. Participants were interviewed in person, over video, using a text-based software to type or over email. Participants detailed three parts of autistic community connectedness: a sense of belonging, social connection with autistic friends and political connectedness. The friendships autistic people had with one another were deemed to be very important to participants because it gave them confidence, provided companionship and made them happy. Some participants did not experience connectedness to the autistic community. These participants also found autism to be less important to their identity and had fewer positive feelings about being autistic. This research is important as it raises awareness that community connectedness is viewed as important to this group. It is possible that community connectedness may help protect the mental health of autistic people when they face stigma or negative life experiences in society. En ligne : http://dx.doi.org/10.1177/13623613221080248 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism > 26-8 (November 2022) . - p.2151-2164[article] 'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness [Texte imprimé et/ou numérique] / Monique BOTHA, Auteur ; Bridget DIBB, Auteur ; David M. FROST, Auteur . - p.2151-2164.
Langues : Anglais (eng)
in Autism > 26-8 (November 2022) . - p.2151-2164
Mots-clés : Humans Autistic Disorder/psychology Autism Spectrum Disorder Friends Mental Health Interpersonal Relations autistic community belongingness community identity political connectedness qualitative research social connectedness stigma wellbeing research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : A sense of being connected to other autistic people has been reported anecdotally. Friendships and connectedness may be important to autistic people and beneficial for their wellbeing. Our research aimed to understand the autistic community by interviewing 20 autistic people about their experiences of being connected to other autistic people. Participants were interviewed in person, over video, using a text-based software to type or over email. Participants detailed three parts of autistic community connectedness: a sense of belonging, social connection with autistic friends and political connectedness. The friendships autistic people had with one another were deemed to be very important to participants because it gave them confidence, provided companionship and made them happy. Some participants did not experience connectedness to the autistic community. These participants also found autism to be less important to their identity and had fewer positive feelings about being autistic. This research is important as it raises awareness that community connectedness is viewed as important to this group. It is possible that community connectedness may help protect the mental health of autistic people when they face stigma or negative life experiences in society. En ligne : http://dx.doi.org/10.1177/13623613221080248 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021 / Lisa Marie EMERSON in Autism, 27-8 (November 2023)
[article]
Titre : A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021 Type de document : Texte imprimé et/ou numérique Auteurs : Lisa Marie EMERSON, Auteur ; Elizabeth PELLICANO, Auteur ; Ruth MONK, Auteur ; Melissa LIM, Auteur ; Jessica HEATON, Auteur ; Laurie MCLAY, Auteur Article en page(s) : p.2256-2268 Mots-clés : autism research autistic community funding research priorities Index. décimale : PER Périodiques Résumé : Previously documented global trends in autism research funding have been skewed towards biology research, which is at odds with the priorities expressed by autistic and autism community members. We aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand, and to explore the views of the autistic and autism communities on this funding distribution. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We categorised the funding for autism research to enable comparison to that previously documented in other countries. We elicited the views of the autistic and autism communities in relation to the funded autism research, through an online survey and a series of focus groups. The largest proportion of money and number of grants was awarded to biological research. Community members expressed dissatisfaction with this pattern of funding, and noted that it does not address the needs and priorities of the autistic community. Community members suggested that the funding pattern indicated a lack of autistic consultation and engagement in research design and funding allocation. The priorities of the autistic and autism communities need to be considered by researchers and funders alike. We discuss how autistic inclusion in research can be supported through decision-making regarding funding and ethics relating to autism research.Lay AbstractWe aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We compared the funding distribution in Aotearoa New Zealand to other countries. We asked people from the autistic community and broader autism community whether they were satisfied with this funding pattern, and whether it aligned with what is important to them and to autistic people. We found that the majority of funding for autism research was awarded to biology research (67%). Members of the autistic and autism communities were dissatisfied with the funding distribution, and expressed a lack of alignment with what is important to them. People from the community indicated that the funding distribution did not address the priorities of autistic people, and that it indicated a lack of engagement with autistic people. Autism research funding needs to reflect the priorities of the autistic and autism communities. Autistic people need to be included in autism research and related funding decisions. En ligne : http://dx.doi.org/10.1177/13623613231155954 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513
in Autism > 27-8 (November 2023) . - p.2256-2268[article] A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021 [Texte imprimé et/ou numérique] / Lisa Marie EMERSON, Auteur ; Elizabeth PELLICANO, Auteur ; Ruth MONK, Auteur ; Melissa LIM, Auteur ; Jessica HEATON, Auteur ; Laurie MCLAY, Auteur . - p.2256-2268.
in Autism > 27-8 (November 2023) . - p.2256-2268
Mots-clés : autism research autistic community funding research priorities Index. décimale : PER Périodiques Résumé : Previously documented global trends in autism research funding have been skewed towards biology research, which is at odds with the priorities expressed by autistic and autism community members. We aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand, and to explore the views of the autistic and autism communities on this funding distribution. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We categorised the funding for autism research to enable comparison to that previously documented in other countries. We elicited the views of the autistic and autism communities in relation to the funded autism research, through an online survey and a series of focus groups. The largest proportion of money and number of grants was awarded to biological research. Community members expressed dissatisfaction with this pattern of funding, and noted that it does not address the needs and priorities of the autistic community. Community members suggested that the funding pattern indicated a lack of autistic consultation and engagement in research design and funding allocation. The priorities of the autistic and autism communities need to be considered by researchers and funders alike. We discuss how autistic inclusion in research can be supported through decision-making regarding funding and ethics relating to autism research.Lay AbstractWe aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We compared the funding distribution in Aotearoa New Zealand to other countries. We asked people from the autistic community and broader autism community whether they were satisfied with this funding pattern, and whether it aligned with what is important to them and to autistic people. We found that the majority of funding for autism research was awarded to biology research (67%). Members of the autistic and autism communities were dissatisfied with the funding distribution, and expressed a lack of alignment with what is important to them. People from the community indicated that the funding distribution did not address the priorities of autistic people, and that it indicated a lack of engagement with autistic people. Autism research funding needs to reflect the priorities of the autistic and autism communities. Autistic people need to be included in autism research and related funding decisions. En ligne : http://dx.doi.org/10.1177/13623613231155954 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513