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Factors associated with mental health symptoms among UK autistic children and young people and their parents during the COVID-19 pandemic / Melanie PALMER in Autism, 27-7 (October 2023)
[article]
Titre : Factors associated with mental health symptoms among UK autistic children and young people and their parents during the COVID-19 pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Melanie PALMER, Auteur ; Susie CHANDLER, Auteur ; Virginia CARTER LENO, Auteur ; Farah MGAIETH, Auteur ; Isabel YORKE, Auteur ; Matthew HOLLOCKS, Auteur ; Andrew PICKLES, Auteur ; Vicky SLONIMS, Auteur ; Stephen SCOTT, Auteur ; Tony CHARMAN, Auteur ; Emily SIMONOFF, Auteur Article en page(s) : p.2098-2111 Langues : Anglais (eng) Mots-clés : autism children and young people COVID-19 pandemic mental health parents Index. décimale : PER Périodiques Résumé : The current study explored the role of pre-existing and pandemic-time child, family or environmental factors in the presentation of mental health symptoms of autistic youth and their parents during the pandemic. Participants were parents/carers of autistic children (Autism Spectrum Treatment and Resilience Cohort, N=67, Mage = 9?years) and adolescents (QUEST cohort, N=112, Mage = 17?years). Parents completed an online survey that asked about child and parental mental health, infection experience, and changes to education arrangements, family life, housing and finances during the pandemic. Pre-existing measures of mental health, autism and adaptive functioning were also utilised. More engagement and enjoyment in education provision and going outside was associated with better child and parental mental health. In multivariate multiple linear regression models, more pre-existing attention deficit hyperactivity disorder symptoms were associated with more behavioural/attention deficit hyperactivity disorder symptoms during the pandemic in the pre-adolescent cohort, and with greater emotional symptoms in the adolescent cohort. More pre-existing parental mental health problems were associated with more parental mental health symptoms during the pandemic in both cohorts. Knowledge of pre-existing mental health and pandemic-related stressors may help care planning. Encouraging engagement and enjoyment in education and promoting physical exercise are key intervention targets. Ensuring access to attention deficit hyperactivity disorder medication and support is important, especially if this is managed jointly across school and home.Lay abstractWhat is already known about the topic: The COVID-19 pandemic and the associated restrictions impacted all of society. There is emerging evidence showing a range of impacts on autistic children and young people and their families. Further research that looks at how individuals coped during the pandemic while considering how they were doing before the pandemic is needed.What this paper adds: This article explores whether how well autistic youth were doing before the pandemic influenced how they coped during the pandemic. It also looked at how well their parents were doing during the pandemic and whether any pre-pandemic factors influenced how they coped. Samples of both primary-school-aged autistic children and autistic teenagers and their parents were surveyed to answer these questions. More engagement and enjoyment in education provision during the pandemic and getting outside more were linked with better child and parental mental health during the pandemic. More attention deficit hyperactivity disorder before the pandemic was linked with more attention deficit hyperactivity disorder and behavioural problems during the pandemic in primary-school-aged autistic children, and more emotional problems during the pandemic in autistic teenagers. Parents with more mental health problems during the pandemic had more mental health problems before the pandemic.Implications for practice, research or policy: Encouraging engagement and enjoyment in education and promoting physical exercise are key intervention targets. Ensuring access to attention deficit hyperactivity disorder medication and support is important, especially if this is managed jointly across school and home. En ligne : http://dx.doi.org/10.1177/13623613231153694 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510
in Autism > 27-7 (October 2023) . - p.2098-2111[article] Factors associated with mental health symptoms among UK autistic children and young people and their parents during the COVID-19 pandemic [Texte imprimé et/ou numérique] / Melanie PALMER, Auteur ; Susie CHANDLER, Auteur ; Virginia CARTER LENO, Auteur ; Farah MGAIETH, Auteur ; Isabel YORKE, Auteur ; Matthew HOLLOCKS, Auteur ; Andrew PICKLES, Auteur ; Vicky SLONIMS, Auteur ; Stephen SCOTT, Auteur ; Tony CHARMAN, Auteur ; Emily SIMONOFF, Auteur . - p.2098-2111.
Langues : Anglais (eng)
in Autism > 27-7 (October 2023) . - p.2098-2111
Mots-clés : autism children and young people COVID-19 pandemic mental health parents Index. décimale : PER Périodiques Résumé : The current study explored the role of pre-existing and pandemic-time child, family or environmental factors in the presentation of mental health symptoms of autistic youth and their parents during the pandemic. Participants were parents/carers of autistic children (Autism Spectrum Treatment and Resilience Cohort, N=67, Mage = 9?years) and adolescents (QUEST cohort, N=112, Mage = 17?years). Parents completed an online survey that asked about child and parental mental health, infection experience, and changes to education arrangements, family life, housing and finances during the pandemic. Pre-existing measures of mental health, autism and adaptive functioning were also utilised. More engagement and enjoyment in education provision and going outside was associated with better child and parental mental health. In multivariate multiple linear regression models, more pre-existing attention deficit hyperactivity disorder symptoms were associated with more behavioural/attention deficit hyperactivity disorder symptoms during the pandemic in the pre-adolescent cohort, and with greater emotional symptoms in the adolescent cohort. More pre-existing parental mental health problems were associated with more parental mental health symptoms during the pandemic in both cohorts. Knowledge of pre-existing mental health and pandemic-related stressors may help care planning. Encouraging engagement and enjoyment in education and promoting physical exercise are key intervention targets. Ensuring access to attention deficit hyperactivity disorder medication and support is important, especially if this is managed jointly across school and home.Lay abstractWhat is already known about the topic: The COVID-19 pandemic and the associated restrictions impacted all of society. There is emerging evidence showing a range of impacts on autistic children and young people and their families. Further research that looks at how individuals coped during the pandemic while considering how they were doing before the pandemic is needed.What this paper adds: This article explores whether how well autistic youth were doing before the pandemic influenced how they coped during the pandemic. It also looked at how well their parents were doing during the pandemic and whether any pre-pandemic factors influenced how they coped. Samples of both primary-school-aged autistic children and autistic teenagers and their parents were surveyed to answer these questions. More engagement and enjoyment in education provision during the pandemic and getting outside more were linked with better child and parental mental health during the pandemic. More attention deficit hyperactivity disorder before the pandemic was linked with more attention deficit hyperactivity disorder and behavioural problems during the pandemic in primary-school-aged autistic children, and more emotional problems during the pandemic in autistic teenagers. Parents with more mental health problems during the pandemic had more mental health problems before the pandemic.Implications for practice, research or policy: Encouraging engagement and enjoyment in education and promoting physical exercise are key intervention targets. Ensuring access to attention deficit hyperactivity disorder medication and support is important, especially if this is managed jointly across school and home. En ligne : http://dx.doi.org/10.1177/13623613231153694 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 The experience of anxiety for autistic children and young people: A thematic synthesis review / Caroline BOND in Research in Autism Spectrum Disorders, 109 (November 2023)
[article]
Titre : The experience of anxiety for autistic children and young people: A thematic synthesis review Type de document : Texte imprimé et/ou numérique Auteurs : Caroline BOND, Auteur Article en page(s) : 102274 Langues : Anglais (eng) Mots-clés : Autism Neurodiversity Anxiety Perspectives Children and young people Thematic synthesis literature review Index. décimale : PER Périodiques Résumé : Background Anxiety is a commonly co-occurring mental health condition for autistic children and young people. Literature indicates a fractured conceptualisation of the construct of anxiety and measurement tools may be insensitive to unique autistic presentations. The neurodiversity paradigm calls for a shift towards qualitative research methodologies situated within everyday realities. The purpose of this review is to synthesise experiences of anxiety for autistic children and young people from their perspective and the viewpoint of parents. Method Informed by PRISMA guidelines, this systematic review searched for empirical studies published between January 2012 and January 2022 reporting on the experience of anxiety for autistic children and young people aged between 3 and 18. Of the 473 studies screened for inclusion, 10 studies fulfilled inclusion and quality appraisal criteria. Data were analysed using thematic synthesis. Findings Findings highlighted differences in the ways children and young people and their parents conceptualise anxiety in autism. Parents tended to report behavioural presentations of children and young people's anxiety while young people provided insight into their cognitive processes and emotions. Lived experiences provided unique insights into the role of neurotypical environments in state anxiety and how differences in perception of time can also mediate young people?s experiences of anxiety. Conclusions Implications for policy and practice include the priority for authentically eliciting the views of cognitively-able and less-able autistic children and young people with cooccurring anxiety across contexts in assessment and research. This review highlights the need for significant investment in social environments that seek to minimise anxiety in neurodiverse children and young people. En ligne : https://doi.org/10.1016/j.rasd.2023.102274 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517
in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102274[article] The experience of anxiety for autistic children and young people: A thematic synthesis review [Texte imprimé et/ou numérique] / Caroline BOND, Auteur . - 102274.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102274
Mots-clés : Autism Neurodiversity Anxiety Perspectives Children and young people Thematic synthesis literature review Index. décimale : PER Périodiques Résumé : Background Anxiety is a commonly co-occurring mental health condition for autistic children and young people. Literature indicates a fractured conceptualisation of the construct of anxiety and measurement tools may be insensitive to unique autistic presentations. The neurodiversity paradigm calls for a shift towards qualitative research methodologies situated within everyday realities. The purpose of this review is to synthesise experiences of anxiety for autistic children and young people from their perspective and the viewpoint of parents. Method Informed by PRISMA guidelines, this systematic review searched for empirical studies published between January 2012 and January 2022 reporting on the experience of anxiety for autistic children and young people aged between 3 and 18. Of the 473 studies screened for inclusion, 10 studies fulfilled inclusion and quality appraisal criteria. Data were analysed using thematic synthesis. Findings Findings highlighted differences in the ways children and young people and their parents conceptualise anxiety in autism. Parents tended to report behavioural presentations of children and young people's anxiety while young people provided insight into their cognitive processes and emotions. Lived experiences provided unique insights into the role of neurotypical environments in state anxiety and how differences in perception of time can also mediate young people?s experiences of anxiety. Conclusions Implications for policy and practice include the priority for authentically eliciting the views of cognitively-able and less-able autistic children and young people with cooccurring anxiety across contexts in assessment and research. This review highlights the need for significant investment in social environments that seek to minimise anxiety in neurodiverse children and young people. En ligne : https://doi.org/10.1016/j.rasd.2023.102274 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517 What is the Prevalence of Self-harming and Suicidal Behaviour in Under 18s with ASD, With or Without an Intellectual Disability? / Rosalind Y. K. OLIPHANT in Journal of Autism and Developmental Disorders, 50-10 (October 2020)
[article]
Titre : What is the Prevalence of Self-harming and Suicidal Behaviour in Under 18s with ASD, With or Without an Intellectual Disability? Type de document : Texte imprimé et/ou numérique Auteurs : Rosalind Y. K. OLIPHANT, Auteur ; Eleanor M. SMITH, Auteur ; Victoria GRAHAME, Auteur Article en page(s) : p.3510-3524 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Children and young people Intellectual/learning disability Self harm Suicidal behaviour Suicide Index. décimale : PER Périodiques Résumé : A systematic literature review was undertaken to ascertain the prevalence of self-harm and suicidal behaviour in children and young people under 18 years old with a diagnosis of autism spectrum disorder (ASD), with or without an intellectual disability. There was variation in the reported prevalence rates but results suggested that rates of both self-harm and suicidal behaviour may be elevated in ASD compared to the general population. This is in keeping with literature relating to autistic adults but in contrast to conclusions of a previous systematic review. This review highlights the need for further research to explore the experience of self-harm and suicidal behaviour in autistic children and young people. En ligne : http://dx.doi.org/10.1007/s10803-020-04422-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432
in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3510-3524[article] What is the Prevalence of Self-harming and Suicidal Behaviour in Under 18s with ASD, With or Without an Intellectual Disability? [Texte imprimé et/ou numérique] / Rosalind Y. K. OLIPHANT, Auteur ; Eleanor M. SMITH, Auteur ; Victoria GRAHAME, Auteur . - p.3510-3524.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3510-3524
Mots-clés : Autism spectrum disorder Children and young people Intellectual/learning disability Self harm Suicidal behaviour Suicide Index. décimale : PER Périodiques Résumé : A systematic literature review was undertaken to ascertain the prevalence of self-harm and suicidal behaviour in children and young people under 18 years old with a diagnosis of autism spectrum disorder (ASD), with or without an intellectual disability. There was variation in the reported prevalence rates but results suggested that rates of both self-harm and suicidal behaviour may be elevated in ASD compared to the general population. This is in keeping with literature relating to autistic adults but in contrast to conclusions of a previous systematic review. This review highlights the need for further research to explore the experience of self-harm and suicidal behaviour in autistic children and young people. En ligne : http://dx.doi.org/10.1007/s10803-020-04422-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 An Autism Spectrum Disorders Forum: A Model for the Effective Use of Multidisciplinary Assessment and Intervention Planning with Limited Clinical Resources / Barry WRIGHT in Autism - Open Access, 6-4 ([01/07/2016])
[article]
Titre : An Autism Spectrum Disorders Forum: A Model for the Effective Use of Multidisciplinary Assessment and Intervention Planning with Limited Clinical Resources Type de document : Texte imprimé et/ou numérique Auteurs : Barry WRIGHT, Auteur ; Chris WILLIAMS, Auteur ; Robert SMITH, Auteur ; Sally SMITH, Auteur ; Sam BEESON, Auteur ; Catherine PORTER, Auteur ; Penny TAYLOR, Auteur ; Marcella SYKES, Auteur ; Bridget NICHOLAS, Auteur ; Ann MCKELVEY, Auteur ; Lauren BRIDGES, Auteur ; Danielle VARLEY, Auteur Article en page(s) : 7 p. Langues : Anglais (eng) Mots-clés : Autism spectrum disorder ASD Mental health Children and young people Intervention planning Index. décimale : PER Périodiques Résumé : Increasing numbers of young people are coming forward for assessment of autism spectrum disorders (ASD). Staff from pediatrics and child health services need to work together closely with Local Authority staff and child and adolescent mental health services (CAMHS). This paper describes the functioning of an ASD Forum, which allows for careful use of resources whilst providing comprehensive assessment and intervention planning services in an integrated way. En ligne : https://dx.doi.org/10.4172/2165-7890.1000186 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=410
in Autism - Open Access > 6-4 [01/07/2016] . - 7 p.[article] An Autism Spectrum Disorders Forum: A Model for the Effective Use of Multidisciplinary Assessment and Intervention Planning with Limited Clinical Resources [Texte imprimé et/ou numérique] / Barry WRIGHT, Auteur ; Chris WILLIAMS, Auteur ; Robert SMITH, Auteur ; Sally SMITH, Auteur ; Sam BEESON, Auteur ; Catherine PORTER, Auteur ; Penny TAYLOR, Auteur ; Marcella SYKES, Auteur ; Bridget NICHOLAS, Auteur ; Ann MCKELVEY, Auteur ; Lauren BRIDGES, Auteur ; Danielle VARLEY, Auteur . - 7 p.
Langues : Anglais (eng)
in Autism - Open Access > 6-4 [01/07/2016] . - 7 p.
Mots-clés : Autism spectrum disorder ASD Mental health Children and young people Intervention planning Index. décimale : PER Périodiques Résumé : Increasing numbers of young people are coming forward for assessment of autism spectrum disorders (ASD). Staff from pediatrics and child health services need to work together closely with Local Authority staff and child and adolescent mental health services (CAMHS). This paper describes the functioning of an ASD Forum, which allows for careful use of resources whilst providing comprehensive assessment and intervention planning services in an integrated way. En ligne : https://dx.doi.org/10.4172/2165-7890.1000186 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=410