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Studies pertaining to language impairment in school-age autistic individuals underreport participant socio-demographics: A systematic review / Teresa GIROLAMO in Autism, 27-8 (November 2023)
[article]
Titre : Studies pertaining to language impairment in school-age autistic individuals underreport participant socio-demographics: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Teresa GIROLAMO, Auteur ; Lue SHEN, Auteur ; Amalia MONROE-GULICK, Auteur ; Mabel L RICE, Auteur ; Inge-Marie EIGSTI, Auteur Article en page(s) : p.2218-2240 Mots-clés : autism spectrum disorder demographics language language impairment Index. décimale : PER Périodiques Résumé : Autism research tends to exclude racially and ethnically minoritized autistic individuals, limiting the quality of the evidence base for characterizing and diagnosing language impairment in racially and ethnically minoritized autistic individuals. This systematic review examines reporting practices for participant socio-demographics in studies pertaining to language impairment in autistic school-age individuals using age-referenced assessments. This review was preregistered (PROSPERO: CRD42021260394) and followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses protocol. Database searches took place in August of 2021 in Linguistics and Language Behavior Abstracts, PsycINFO, PubMed, and the Directory of Open Access Journals, for publications during 1980-2021. Search terms included three essential concepts: autism, language, and age. Two coders independently screened and evaluated articles. Of qualifying studies (n?=?59), 17 (29%) reported any information on participant race and ethnicity; in these studies, participants were at least 77% white. Thirty-two studies (54%) reported gender or sex; just 10 studies (17%) reported socio-economic status using multiple indicators. These findings indicate insufficient adherence to reporting guidelines and systematic exclusion of racially and ethnically minoritized. Future work must address replicable reporting and inclusion in autism research.Lay abstractAlthough exclusion of racially and ethnically minoritized autistic individuals from research is a long-standing issue, we have yet to determine how exclusion impacts areas of autism research important for identifying language impairment. Diagnosis depends on the quality of the evidence (i.e. research) and is often the pathway to gaining access to services. As a first step, we examined how research studies related to language impairment in school-age autistic individuals report participant socio-demographics. We analyzed reports using age-referenced assessments in English (n?=?60), which are commonly used by both practitioners and researchers to diagnose or identify language impairment. Findings showed only 28% of studies reported any information on race and ethnicity; in these studies, most (at least 77%) of the participants were white. In addition, only 56% of studies reported gender or sex and specified what they were reporting (gender, sex, or gender identity). Just 17% reported socio-economic status using multiple indicators. Altogether, findings indicate broad issues with underreporting and exclusion of racially and ethnically minoritized individuals, which might overlay with other aspects of identity including socio-economic status. It is impossible to determine the extent and precise nature of exclusion without intersectional reporting. To ensure that language in autism research is representative of the autistic population, future research must implement reporting guidelines and broaden inclusion of who participates in research studies. En ligne : http://dx.doi.org/10.1177/13623613231166749 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513
in Autism > 27-8 (November 2023) . - p.2218-2240[article] Studies pertaining to language impairment in school-age autistic individuals underreport participant socio-demographics: A systematic review [Texte imprimé et/ou numérique] / Teresa GIROLAMO, Auteur ; Lue SHEN, Auteur ; Amalia MONROE-GULICK, Auteur ; Mabel L RICE, Auteur ; Inge-Marie EIGSTI, Auteur . - p.2218-2240.
in Autism > 27-8 (November 2023) . - p.2218-2240
Mots-clés : autism spectrum disorder demographics language language impairment Index. décimale : PER Périodiques Résumé : Autism research tends to exclude racially and ethnically minoritized autistic individuals, limiting the quality of the evidence base for characterizing and diagnosing language impairment in racially and ethnically minoritized autistic individuals. This systematic review examines reporting practices for participant socio-demographics in studies pertaining to language impairment in autistic school-age individuals using age-referenced assessments. This review was preregistered (PROSPERO: CRD42021260394) and followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses protocol. Database searches took place in August of 2021 in Linguistics and Language Behavior Abstracts, PsycINFO, PubMed, and the Directory of Open Access Journals, for publications during 1980-2021. Search terms included three essential concepts: autism, language, and age. Two coders independently screened and evaluated articles. Of qualifying studies (n?=?59), 17 (29%) reported any information on participant race and ethnicity; in these studies, participants were at least 77% white. Thirty-two studies (54%) reported gender or sex; just 10 studies (17%) reported socio-economic status using multiple indicators. These findings indicate insufficient adherence to reporting guidelines and systematic exclusion of racially and ethnically minoritized. Future work must address replicable reporting and inclusion in autism research.Lay abstractAlthough exclusion of racially and ethnically minoritized autistic individuals from research is a long-standing issue, we have yet to determine how exclusion impacts areas of autism research important for identifying language impairment. Diagnosis depends on the quality of the evidence (i.e. research) and is often the pathway to gaining access to services. As a first step, we examined how research studies related to language impairment in school-age autistic individuals report participant socio-demographics. We analyzed reports using age-referenced assessments in English (n?=?60), which are commonly used by both practitioners and researchers to diagnose or identify language impairment. Findings showed only 28% of studies reported any information on race and ethnicity; in these studies, most (at least 77%) of the participants were white. In addition, only 56% of studies reported gender or sex and specified what they were reporting (gender, sex, or gender identity). Just 17% reported socio-economic status using multiple indicators. Altogether, findings indicate broad issues with underreporting and exclusion of racially and ethnically minoritized individuals, which might overlay with other aspects of identity including socio-economic status. It is impossible to determine the extent and precise nature of exclusion without intersectional reporting. To ensure that language in autism research is representative of the autistic population, future research must implement reporting guidelines and broaden inclusion of who participates in research studies. En ligne : http://dx.doi.org/10.1177/13623613231166749 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513 Systematic Review of Problem Behavior Interventions: Outcomes, Demographics, and Settings / K. E. SEVERINI in Journal of Autism and Developmental Disorders, 48-10 (October 2018)
[article]
Titre : Systematic Review of Problem Behavior Interventions: Outcomes, Demographics, and Settings Type de document : Texte imprimé et/ou numérique Auteurs : K. E. SEVERINI, Auteur ; J. R. LEDFORD, Auteur ; R. E. ROBERTSON, Auteur Article en page(s) : p.3261-3272 Langues : Anglais (eng) Mots-clés : Demographics Intervention Problem behavior School Students with ASD Index. décimale : PER Périodiques Résumé : Interventions designed to decrease problem behavior for students with ASD are critical and may be differentially important for students from minority groups as those students tend to be assigned more negative outcomes related to problem behavior (e.g., suspensions). School-based interventions intended to decrease problem behavior for individuals with ASD were reviewed; 46 articles including 84 single case designs and 87 participants were analyzed regarding participant demographics, settings and implementers, intervention components, and study characteristics. We assessed outcomes for 55 demonstration designs with adequate rigor. Most research was conducted with students in segregated settings and, although race and ethnicity were rarely reported, proportions were different from other reviews in that children from some minority groups were overrepresented. En ligne : http://dx.doi.org/10.1007/s10803-018-3591-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369
in Journal of Autism and Developmental Disorders > 48-10 (October 2018) . - p.3261-3272[article] Systematic Review of Problem Behavior Interventions: Outcomes, Demographics, and Settings [Texte imprimé et/ou numérique] / K. E. SEVERINI, Auteur ; J. R. LEDFORD, Auteur ; R. E. ROBERTSON, Auteur . - p.3261-3272.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-10 (October 2018) . - p.3261-3272
Mots-clés : Demographics Intervention Problem behavior School Students with ASD Index. décimale : PER Périodiques Résumé : Interventions designed to decrease problem behavior for students with ASD are critical and may be differentially important for students from minority groups as those students tend to be assigned more negative outcomes related to problem behavior (e.g., suspensions). School-based interventions intended to decrease problem behavior for individuals with ASD were reviewed; 46 articles including 84 single case designs and 87 participants were analyzed regarding participant demographics, settings and implementers, intervention components, and study characteristics. We assessed outcomes for 55 demonstration designs with adequate rigor. Most research was conducted with students in segregated settings and, although race and ethnicity were rarely reported, proportions were different from other reviews in that children from some minority groups were overrepresented. En ligne : http://dx.doi.org/10.1007/s10803-018-3591-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 Screening for Autism with the SRS and SCQ: Variations across Demographic, Developmental and Behavioral Factors in Preschool Children / E. J. MOODY in Journal of Autism and Developmental Disorders, 47-11 (November 2017)
[article]
Titre : Screening for Autism with the SRS and SCQ: Variations across Demographic, Developmental and Behavioral Factors in Preschool Children Type de document : Texte imprimé et/ou numérique Auteurs : E. J. MOODY, Auteur ; N. REYES, Auteur ; C. LEDBETTER, Auteur ; Lisa D. WIGGINS, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; A. ALEXANDER, Auteur ; S. JACKSON, Auteur ; L. C. LEE, Auteur ; S. E. LEVY, Auteur ; S. A. ROSENBERG, Auteur Article en page(s) : p.3550-3561 Langues : Anglais (eng) Mots-clés : Autism Demographics Development Maternal education Screener Index. décimale : PER Périodiques Résumé : The Social Communication Questionnaire (SCQ) and the Social Responsiveness Scales (SRS) are commonly used screeners for autism spectrum disorder (ASD). Data from the Study to Explore Early Development were used to examine variations in the performance of these instruments by child characteristics and family demographics. For both instruments, specificity decreased as maternal education and family income decreased. Specificity was decreased with lower developmental functioning and higher behavior problems. This suggests that the false positive rates of the SRS and the SCQ are associated with child characteristics and family demographic factors. There is a need for ASD screeners that perform well across socioeconomic and child characteristics. Clinicians should be mindful of differential performance of these instruments in various groups of children. En ligne : http://dx.doi.org/10.1007/s10803-017-3255-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325
in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3550-3561[article] Screening for Autism with the SRS and SCQ: Variations across Demographic, Developmental and Behavioral Factors in Preschool Children [Texte imprimé et/ou numérique] / E. J. MOODY, Auteur ; N. REYES, Auteur ; C. LEDBETTER, Auteur ; Lisa D. WIGGINS, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; A. ALEXANDER, Auteur ; S. JACKSON, Auteur ; L. C. LEE, Auteur ; S. E. LEVY, Auteur ; S. A. ROSENBERG, Auteur . - p.3550-3561.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3550-3561
Mots-clés : Autism Demographics Development Maternal education Screener Index. décimale : PER Périodiques Résumé : The Social Communication Questionnaire (SCQ) and the Social Responsiveness Scales (SRS) are commonly used screeners for autism spectrum disorder (ASD). Data from the Study to Explore Early Development were used to examine variations in the performance of these instruments by child characteristics and family demographics. For both instruments, specificity decreased as maternal education and family income decreased. Specificity was decreased with lower developmental functioning and higher behavior problems. This suggests that the false positive rates of the SRS and the SCQ are associated with child characteristics and family demographic factors. There is a need for ASD screeners that perform well across socioeconomic and child characteristics. Clinicians should be mindful of differential performance of these instruments in various groups of children. En ligne : http://dx.doi.org/10.1007/s10803-017-3255-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 Birth Prevalence of Autism Spectrum Disorders in the San Francisco Bay Area by Demographic and Ascertainment Source Characteristics / Gayle C. WINDHAM in Journal of Autism and Developmental Disorders, 41-10 (October 2011)
[article]
Titre : Birth Prevalence of Autism Spectrum Disorders in the San Francisco Bay Area by Demographic and Ascertainment Source Characteristics Type de document : Texte imprimé et/ou numérique Auteurs : Gayle C. WINDHAM, Auteur ; Meredith C. ANDERSON, Auteur ; Lisa A. CROEN, Auteur ; Karen S. SMITH, Auteur ; John COLLINS, Auteur ; Judith K. GRETHER, Auteur Année de publication : 2011 Article en page(s) : p.1362-1372 Langues : Anglais (eng) Mots-clés : Autism ASD Prevalence Surveillance Demographics Index. décimale : PER Périodiques Résumé : Using standardized methods for multi-source surveillance, we calculated the prevalence of autism spectrum disorders (ASD) among children born in a racially diverse region in 1994 or 1996 as 4.7/1000 live births. Children with ASD before age 9 were identified through chart abstraction at health-related sources; three-quarters were being served by the state-wide Department of Developmental Services. In adjusted models, we found a male:female ratio of 6:1, a doubling of ASD prevalence among children of older mothers (40+), and lower prevalence with lower paternal education. Children of Black or Hispanic mothers had lower prevalence than those of White, non-Hispanic mothers, but these differences were attenuated after adjustment. Prevalence in children of Asian mothers was similar to Whites. Potential under-counting is discussed. En ligne : http://dx.doi.org/10.1007/s10803-010-1160-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143
in Journal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1362-1372[article] Birth Prevalence of Autism Spectrum Disorders in the San Francisco Bay Area by Demographic and Ascertainment Source Characteristics [Texte imprimé et/ou numérique] / Gayle C. WINDHAM, Auteur ; Meredith C. ANDERSON, Auteur ; Lisa A. CROEN, Auteur ; Karen S. SMITH, Auteur ; John COLLINS, Auteur ; Judith K. GRETHER, Auteur . - 2011 . - p.1362-1372.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 41-10 (October 2011) . - p.1362-1372
Mots-clés : Autism ASD Prevalence Surveillance Demographics Index. décimale : PER Périodiques Résumé : Using standardized methods for multi-source surveillance, we calculated the prevalence of autism spectrum disorders (ASD) among children born in a racially diverse region in 1994 or 1996 as 4.7/1000 live births. Children with ASD before age 9 were identified through chart abstraction at health-related sources; three-quarters were being served by the state-wide Department of Developmental Services. In adjusted models, we found a male:female ratio of 6:1, a doubling of ASD prevalence among children of older mothers (40+), and lower prevalence with lower paternal education. Children of Black or Hispanic mothers had lower prevalence than those of White, non-Hispanic mothers, but these differences were attenuated after adjustment. Prevalence in children of Asian mothers was similar to Whites. Potential under-counting is discussed. En ligne : http://dx.doi.org/10.1007/s10803-010-1160-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=143 Ethnicity Reporting Practices for Empirical Research in Three Autism-Related Journals / Nigel P. PIERCE in Journal of Autism and Developmental Disorders, 44-7 (July 2014)
[article]
Titre : Ethnicity Reporting Practices for Empirical Research in Three Autism-Related Journals Type de document : Texte imprimé et/ou numérique Auteurs : Nigel P. PIERCE, Auteur ; Mark F. O’REILLY, Auteur ; Audrey M. SORRELLS, Auteur ; Christina L. FRAGALE, Auteur ; Pamela J. WHITE, Auteur ; Jeannie M. AGUILAR, Auteur ; Heather A. COLE, Auteur Article en page(s) : p.1507-1519 Langues : Anglais (eng) Mots-clés : Ethnicity Race Demographics Autism spectrum disorder Reporting practices Index. décimale : PER Périodiques Résumé : This review examines ethnicity reporting in three autism-related journals (Autism, Focus on Autism and Other Developmental Disabilities, and Journal of Autism and Developmental Disorders) over a 6-year period. A comprehensive multistep search of articles is used to identify ethnicity as a demographic variable in these three journals. Articles that identified research participants’ ethnicity were further analyzed to determine the impact of ethnicity as a demographic variable on findings of each study. The results indicate that ethnicity has not been adequately reported in these three autism related journals even though previous recommendations have been made to improve inadequacies of descriptive information of research participants in autism research (Kistner and Robbins in J Autism Dev Disord 16:77–82, 1986). Implications for the field of autism spectrum disorders are discussed in addition to further recommendations for future research. En ligne : http://dx.doi.org/10.1007/s10803-014-2041-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236
in Journal of Autism and Developmental Disorders > 44-7 (July 2014) . - p.1507-1519[article] Ethnicity Reporting Practices for Empirical Research in Three Autism-Related Journals [Texte imprimé et/ou numérique] / Nigel P. PIERCE, Auteur ; Mark F. O’REILLY, Auteur ; Audrey M. SORRELLS, Auteur ; Christina L. FRAGALE, Auteur ; Pamela J. WHITE, Auteur ; Jeannie M. AGUILAR, Auteur ; Heather A. COLE, Auteur . - p.1507-1519.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 44-7 (July 2014) . - p.1507-1519
Mots-clés : Ethnicity Race Demographics Autism spectrum disorder Reporting practices Index. décimale : PER Périodiques Résumé : This review examines ethnicity reporting in three autism-related journals (Autism, Focus on Autism and Other Developmental Disabilities, and Journal of Autism and Developmental Disorders) over a 6-year period. A comprehensive multistep search of articles is used to identify ethnicity as a demographic variable in these three journals. Articles that identified research participants’ ethnicity were further analyzed to determine the impact of ethnicity as a demographic variable on findings of each study. The results indicate that ethnicity has not been adequately reported in these three autism related journals even though previous recommendations have been made to improve inadequacies of descriptive information of research participants in autism research (Kistner and Robbins in J Autism Dev Disord 16:77–82, 1986). Implications for the field of autism spectrum disorders are discussed in addition to further recommendations for future research. En ligne : http://dx.doi.org/10.1007/s10803-014-2041-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236