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Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder / D. T. JASHAR in Journal of Autism and Developmental Disorders, 49-5 (May 2019)
[article]
Titre : Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : D. T. JASHAR, Auteur ; Deborah A. FEIN, Auteur ; Leandra N. BERRY, Auteur ; J. D. BURKE, Auteur ; L. E. MILLER, Auteur ; Marianne L. BARTON, Auteur ; T. DUMONT-MATHIEU, Auteur Article en page(s) : p.1763-1777 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Diagnostic evaluation Health services research Parental satisfaction Index. décimale : PER Périodiques Résumé : Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback. En ligne : http://dx.doi.org/10.1007/s10803-018-3851-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=393
in Journal of Autism and Developmental Disorders > 49-5 (May 2019) . - p.1763-1777[article] Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder [Texte imprimé et/ou numérique] / D. T. JASHAR, Auteur ; Deborah A. FEIN, Auteur ; Leandra N. BERRY, Auteur ; J. D. BURKE, Auteur ; L. E. MILLER, Auteur ; Marianne L. BARTON, Auteur ; T. DUMONT-MATHIEU, Auteur . - p.1763-1777.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-5 (May 2019) . - p.1763-1777
Mots-clés : Autism spectrum disorder Diagnostic evaluation Health services research Parental satisfaction Index. décimale : PER Périodiques Résumé : Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback. En ligne : http://dx.doi.org/10.1007/s10803-018-3851-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=393 Special education and care services for children, adolescents, and adults with autism spectrum disorders in France: Families’ opinion and satisfaction / Cécile RATTAZ in Autism, 18-2 (February 2014)
[article]
Titre : Special education and care services for children, adolescents, and adults with autism spectrum disorders in France: Families’ opinion and satisfaction Type de document : Texte imprimé et/ou numérique Auteurs : Cécile RATTAZ, Auteur ; Bernard LEDESERT, Auteur ; Olivier MASSON, Auteur ; Lisa OUSS, Auteur ; Géraldine ROPERS, Auteur ; Amaria BAGHDADLI, Auteur Article en page(s) : p.185-193 Langues : Anglais (eng) Mots-clés : autism parental satisfaction special education health careservices Index. décimale : PER Périodiques Résumé : This study focused on parents’ satisfaction with the special education and care services proposed to their child with autism spectrum disorders (ASD). Data were collected in three regions of France, using a questionnaire designed for the purpose of this study. Among the 530 families contacted, 212 filled in the questionnaire (response rate = 40.8%). Results showed that parents were globally satisfied with providers’ involvement and motivation, but they felt they were not involved enough in their child’s individualized program, that communication with providers was insufficient and that the services lacked ASD’s specific tools and interventions. Among all families interviewed, parents of adolescents were the most unsatisfied and we hypothesized that this could be due to the specific issues regarding developmental changes and concern about the future at this period of life. Congruently with the literature, variables related to parental overall satisfaction were a regular communication with professionals, a specific, regularly updated individual program in which parents are associated, and specialized tools and interventions. The implications of these findings are discussed as well as future directions for clinicians to improve service delivery and allow the persons with ASD and their families to be more involved in the services. En ligne : http://dx.doi.org/10.1177/1362361312460952 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224
in Autism > 18-2 (February 2014) . - p.185-193[article] Special education and care services for children, adolescents, and adults with autism spectrum disorders in France: Families’ opinion and satisfaction [Texte imprimé et/ou numérique] / Cécile RATTAZ, Auteur ; Bernard LEDESERT, Auteur ; Olivier MASSON, Auteur ; Lisa OUSS, Auteur ; Géraldine ROPERS, Auteur ; Amaria BAGHDADLI, Auteur . - p.185-193.
Langues : Anglais (eng)
in Autism > 18-2 (February 2014) . - p.185-193
Mots-clés : autism parental satisfaction special education health careservices Index. décimale : PER Périodiques Résumé : This study focused on parents’ satisfaction with the special education and care services proposed to their child with autism spectrum disorders (ASD). Data were collected in three regions of France, using a questionnaire designed for the purpose of this study. Among the 530 families contacted, 212 filled in the questionnaire (response rate = 40.8%). Results showed that parents were globally satisfied with providers’ involvement and motivation, but they felt they were not involved enough in their child’s individualized program, that communication with providers was insufficient and that the services lacked ASD’s specific tools and interventions. Among all families interviewed, parents of adolescents were the most unsatisfied and we hypothesized that this could be due to the specific issues regarding developmental changes and concern about the future at this period of life. Congruently with the literature, variables related to parental overall satisfaction were a regular communication with professionals, a specific, regularly updated individual program in which parents are associated, and specialized tools and interventions. The implications of these findings are discussed as well as future directions for clinicians to improve service delivery and allow the persons with ASD and their families to be more involved in the services. En ligne : http://dx.doi.org/10.1177/1362361312460952 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224 Comparing the Impact of Differing Preschool Autism Interventions on Parents in Two Canadian Provinces / Barbara D'ENTREMONT in Journal of Autism and Developmental Disorders, 52-11 (November 2022)
[article]
Titre : Comparing the Impact of Differing Preschool Autism Interventions on Parents in Two Canadian Provinces Type de document : Texte imprimé et/ou numérique Auteurs : Barbara D'ENTREMONT, Auteur ; Helen E. FLANAGAN, Auteur ; Wendy J. UNGAR, Auteur ; Charlotte WADDELL, Auteur ; Nancy GARON, Auteur ; Jeffrey DENOTTER, Auteur ; Natalie LEGER, Auteur ; Francine VEZINA, Auteur ; Isabel M. SMITH, Auteur Article en page(s) : p.5018-5032 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/complications/therapy Autistic Disorder/complications/therapy Canada Child Child, Preschool Humans Parents Schools Autism Early intervention Family crisis Parental satisfaction Parental self-efficacy Index. décimale : PER Périodiques Résumé : Early Intensive Behavioural Intervention (EIBI) is effective for preschoolers with autism spectrum disorder (ASD). Parental measures are rarely included in EIBI effectiveness studies, yet parental distress and lower self-efficacy are associated with poorer child outcomes. Parents of preschoolers with ASD (N=485) were surveyed at baseline (T1), one-year post-intervention (T2), and school entry (T3) about family distress/crisis, parental self-efficacy, and satisfaction with services in two Canadian provinces. Family distress/crisis decreased and parental self-efficacy increased from T1 to T2. Increases in self-efficacy were largely maintained at T3. Parents were highly satisfied with services. Greater satisfaction for those residing in the province utilizing a parent-coaching model suggests that parent involvement is associated with positive parent outcomes. En ligne : http://dx.doi.org/10.1007/s10803-021-05349-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.5018-5032[article] Comparing the Impact of Differing Preschool Autism Interventions on Parents in Two Canadian Provinces [Texte imprimé et/ou numérique] / Barbara D'ENTREMONT, Auteur ; Helen E. FLANAGAN, Auteur ; Wendy J. UNGAR, Auteur ; Charlotte WADDELL, Auteur ; Nancy GARON, Auteur ; Jeffrey DENOTTER, Auteur ; Natalie LEGER, Auteur ; Francine VEZINA, Auteur ; Isabel M. SMITH, Auteur . - p.5018-5032.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.5018-5032
Mots-clés : Autism Spectrum Disorder/complications/therapy Autistic Disorder/complications/therapy Canada Child Child, Preschool Humans Parents Schools Autism Early intervention Family crisis Parental satisfaction Parental self-efficacy Index. décimale : PER Périodiques Résumé : Early Intensive Behavioural Intervention (EIBI) is effective for preschoolers with autism spectrum disorder (ASD). Parental measures are rarely included in EIBI effectiveness studies, yet parental distress and lower self-efficacy are associated with poorer child outcomes. Parents of preschoolers with ASD (N=485) were surveyed at baseline (T1), one-year post-intervention (T2), and school entry (T3) about family distress/crisis, parental self-efficacy, and satisfaction with services in two Canadian provinces. Family distress/crisis decreased and parental self-efficacy increased from T1 to T2. Increases in self-efficacy were largely maintained at T3. Parents were highly satisfied with services. Greater satisfaction for those residing in the province utilizing a parent-coaching model suggests that parent involvement is associated with positive parent outcomes. En ligne : http://dx.doi.org/10.1007/s10803-021-05349-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489