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Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder / D. T. JASHAR in Journal of Autism and Developmental Disorders, 49-5 (May 2019)
[article]
Titre : Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : D. T. JASHAR, Auteur ; Deborah A. FEIN, Auteur ; Leandra N. BERRY, Auteur ; J. D. BURKE, Auteur ; L. E. MILLER, Auteur ; Marianne L. BARTON, Auteur ; T. DUMONT-MATHIEU, Auteur Article en page(s) : p.1763-1777 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Diagnostic evaluation Health services research Parental satisfaction Index. décimale : PER Périodiques Résumé : Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback. En ligne : http://dx.doi.org/10.1007/s10803-018-3851-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=393
in Journal of Autism and Developmental Disorders > 49-5 (May 2019) . - p.1763-1777[article] Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder [Texte imprimé et/ou numérique] / D. T. JASHAR, Auteur ; Deborah A. FEIN, Auteur ; Leandra N. BERRY, Auteur ; J. D. BURKE, Auteur ; L. E. MILLER, Auteur ; Marianne L. BARTON, Auteur ; T. DUMONT-MATHIEU, Auteur . - p.1763-1777.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-5 (May 2019) . - p.1763-1777
Mots-clés : Autism spectrum disorder Diagnostic evaluation Health services research Parental satisfaction Index. décimale : PER Périodiques Résumé : Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback. En ligne : http://dx.doi.org/10.1007/s10803-018-3851-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=393 Provider and Caregiver Satisfaction with Telehealth Evaluation of Autism Spectrum Disorder in Young Children During the COVID-19 Pandemic / Debra L. REISINGER in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Provider and Caregiver Satisfaction with Telehealth Evaluation of Autism Spectrum Disorder in Young Children During the COVID-19 Pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Debra L. REISINGER, Auteur ; Elesia HINES, Auteur ; Christine RACHES, Auteur ; Qing TANG, Auteur ; Cristina JAMES, Auteur ; Rebecca MCNALLY KEEHN, Auteur Année de publication : 2022 Article en page(s) : p.5099-5113 Langues : Anglais (eng) Mots-clés : Child Humans Child, Preschool Infant covid-19 Autism Spectrum Disorder/diagnosis/epidemiology/therapy Pandemics Caregivers SARS-CoV-2 Personal Satisfaction Telemedicine Autism spectrum disorder Diagnostic evaluation Satisfaction Telehealth Young children Index. décimale : PER Périodiques Résumé : The present study examines provider and caregiver satisfaction with telehealth evaluation of autism spectrum disorder (ASD) in young children during the coronavirus SARS-CoV-2 (COVID-19) pandemic. A telehealth model of ASD evaluation was implemented with 308 children ages 14 to 78 months between May 2020 to June 2021. Data were gathered from electronic health records, autism-specific telehealth diagnostic tools, and post-evaluation surveys. Overall, the majority of providers and caregivers were satisfied with telehealth ASD evaluation. Multiple variables were associated with ratings of satisfaction, differing by providers and caregivers. Findings have important implications for the feasibility and acceptability of telehealth ASD evaluations, in addition to key factors to consider in optimizing and sustaining telehealth evaluations beyond the COVID-19 pandemic. En ligne : http://dx.doi.org/10.1007/s10803-022-05576-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5099-5113[article] Provider and Caregiver Satisfaction with Telehealth Evaluation of Autism Spectrum Disorder in Young Children During the COVID-19 Pandemic [Texte imprimé et/ou numérique] / Debra L. REISINGER, Auteur ; Elesia HINES, Auteur ; Christine RACHES, Auteur ; Qing TANG, Auteur ; Cristina JAMES, Auteur ; Rebecca MCNALLY KEEHN, Auteur . - 2022 . - p.5099-5113.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5099-5113
Mots-clés : Child Humans Child, Preschool Infant covid-19 Autism Spectrum Disorder/diagnosis/epidemiology/therapy Pandemics Caregivers SARS-CoV-2 Personal Satisfaction Telemedicine Autism spectrum disorder Diagnostic evaluation Satisfaction Telehealth Young children Index. décimale : PER Périodiques Résumé : The present study examines provider and caregiver satisfaction with telehealth evaluation of autism spectrum disorder (ASD) in young children during the coronavirus SARS-CoV-2 (COVID-19) pandemic. A telehealth model of ASD evaluation was implemented with 308 children ages 14 to 78 months between May 2020 to June 2021. Data were gathered from electronic health records, autism-specific telehealth diagnostic tools, and post-evaluation surveys. Overall, the majority of providers and caregivers were satisfied with telehealth ASD evaluation. Multiple variables were associated with ratings of satisfaction, differing by providers and caregivers. Findings have important implications for the feasibility and acceptability of telehealth ASD evaluations, in addition to key factors to consider in optimizing and sustaining telehealth evaluations beyond the COVID-19 pandemic. En ligne : http://dx.doi.org/10.1007/s10803-022-05576-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Predicting Parent Reactions at Diagnostic Disclosure Sessions for Autism / Emily I. ANDERBERG in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
[article]
Titre : Predicting Parent Reactions at Diagnostic Disclosure Sessions for Autism Type de document : Texte imprimé et/ou numérique Auteurs : Emily I. ANDERBERG, Auteur ; M. SOUTH, Auteur Article en page(s) : p.3533-3546 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis Autistic Disorder/diagnosis Child Disclosure Humans Parents Surveys and Questionnaires Assessment Autism Diagnostic disclosure Diagnostic evaluation Diagnostic feedback Index. décimale : PER Périodiques Résumé : Receiving a diagnosis of autism for their child can be a pivotal moment for parents, yet there is little research about how providers can predict parent reactions and adjust their feedback. We investigated factors related to parent reactions during the disclosure session using interviews with providers (n?=?6), a parent focus group (n?=?10), and a mixed-methods survey of parents (n?=?189) of recently diagnosed children. Parents' prior knowledge of autism and anxiety about diagnosis predicted emotional reactions and readiness for next steps. Families anxious about receiving a diagnosis are most in need of information but may leave the session feeling lost and unprepared. Providers can promote positive emotional reactions for parents and prevent confusion by increasing their own positivity, warmth, respect, clarity, and confidence. En ligne : http://dx.doi.org/10.1007/s10803-020-04817-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3533-3546[article] Predicting Parent Reactions at Diagnostic Disclosure Sessions for Autism [Texte imprimé et/ou numérique] / Emily I. ANDERBERG, Auteur ; M. SOUTH, Auteur . - p.3533-3546.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3533-3546
Mots-clés : Autism Spectrum Disorder/diagnosis Autistic Disorder/diagnosis Child Disclosure Humans Parents Surveys and Questionnaires Assessment Autism Diagnostic disclosure Diagnostic evaluation Diagnostic feedback Index. décimale : PER Périodiques Résumé : Receiving a diagnosis of autism for their child can be a pivotal moment for parents, yet there is little research about how providers can predict parent reactions and adjust their feedback. We investigated factors related to parent reactions during the disclosure session using interviews with providers (n?=?6), a parent focus group (n?=?10), and a mixed-methods survey of parents (n?=?189) of recently diagnosed children. Parents' prior knowledge of autism and anxiety about diagnosis predicted emotional reactions and readiness for next steps. Families anxious about receiving a diagnosis are most in need of information but may leave the session feeling lost and unprepared. Providers can promote positive emotional reactions for parents and prevent confusion by increasing their own positivity, warmth, respect, clarity, and confidence. En ligne : http://dx.doi.org/10.1007/s10803-020-04817-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453