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Auteur Ellen GIARELLI
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Documents disponibles écrits par cet auteur (8)
Faire une suggestion Affiner la rechercheAutism Spectrum Disorder Symptoms Among Children Enrolled in the Study to Explore Early Development (SEED) / Lisa D. WIGGINS in Journal of Autism and Developmental Disorders, 45-10 (October 2015)
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[article]
Titre : Autism Spectrum Disorder Symptoms Among Children Enrolled in the Study to Explore Early Development (SEED) Type de document : texte imprimé Auteurs : Lisa D. WIGGINS, Auteur ; Susan E. LEVY, Auteur ; Julie L. DANIELS, Auteur ; Laura A. SCHIEVE, Auteur ; Lisa A. CROEN, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Lisa BLASKEY, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Jennifer A. PINTO-MARTIN, Auteur ; Ann REYNOLDS, Auteur ; Catherine E. RICE, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur ; Patrick THOMPSON, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Lisa YOUNG, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.3183-3194 Langues : Anglais (eng) Mots-clés : Autism Etiology Symptoms Phenotype Study to Explore Early Development Index. décimale : PER Périodiques Résumé : This study examined the phenotypic profiles of children aged 30–68 months in the Study to Explore Early Development (SEED). Children classified as autism spectrum disorder (ASD), developmental delay (DD) with ASD symptoms, DD without ASD symptoms, and population comparison (POP) differed significantly from each other on cognitive, adaptive, behavioral, and social functioning and the presence of parent-reported conditions. Children with ASD and DD with ASD symptoms had mild to severe ASD risk on several measures compared to children with other DD and POP who had little ASD risk across measures. We conclude that children in SEED have varying degrees of ASD impairment and associated deficits. SEED thus provides a valuable sample to explore ASD phenotypes and inform risk factor analyses. En ligne : http://dx.doi.org/10.1007/s10803-015-2476-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267
in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3183-3194[article] Autism Spectrum Disorder Symptoms Among Children Enrolled in the Study to Explore Early Development (SEED) [texte imprimé] / Lisa D. WIGGINS, Auteur ; Susan E. LEVY, Auteur ; Julie L. DANIELS, Auteur ; Laura A. SCHIEVE, Auteur ; Lisa A. CROEN, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Lisa BLASKEY, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Jennifer A. PINTO-MARTIN, Auteur ; Ann REYNOLDS, Auteur ; Catherine E. RICE, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur ; Patrick THOMPSON, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Lisa YOUNG, Auteur ; Diana SCHENDEL, Auteur . - p.3183-3194.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3183-3194
Mots-clés : Autism Etiology Symptoms Phenotype Study to Explore Early Development Index. décimale : PER Périodiques Résumé : This study examined the phenotypic profiles of children aged 30–68 months in the Study to Explore Early Development (SEED). Children classified as autism spectrum disorder (ASD), developmental delay (DD) with ASD symptoms, DD without ASD symptoms, and population comparison (POP) differed significantly from each other on cognitive, adaptive, behavioral, and social functioning and the presence of parent-reported conditions. Children with ASD and DD with ASD symptoms had mild to severe ASD risk on several measures compared to children with other DD and POP who had little ASD risk across measures. We conclude that children in SEED have varying degrees of ASD impairment and associated deficits. SEED thus provides a valuable sample to explore ASD phenotypes and inform risk factor analyses. En ligne : http://dx.doi.org/10.1007/s10803-015-2476-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study / Gnakub N. SOKE in Journal of Autism and Developmental Disorders, 46-11 (November 2016)
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Titre : Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study Type de document : texte imprimé Auteurs : Gnakub N. SOKE, Auteur ; Steven A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; Cordelia ROBINSON, Auteur ; Laura A. CARPENTER, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur Article en page(s) : p.3607-3614 Langues : Anglais (eng) Mots-clés : Self-injurious behaviors Autism Autism spectrum disorder Prevalence Challenging behaviors Index. décimale : PER Périodiques Résumé : Self-injurious behaviors (SIB) have been reported in more than 30 % of children with an autism spectrum disorder (ASD) in clinic-based studies. This study estimated the prevalence of SIB in a large population-based sample of children with ASD in the United States. A total of 8065 children who met the surveillance case definition for ASD in the Autism and Developmental Disabilities Monitoring (ADDM) Network during the 2000, 2006, and 2008 surveillance years were included. The presence of SIB was reported from available health and/or educational records by an expert clinician in ADDM Network. SIB prevalence averaged 27.7 % across all sites and surveillance years, with some variation between sites. Clinicians should inquire about SIB during assessments of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2879-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294
in Journal of Autism and Developmental Disorders > 46-11 (November 2016) . - p.3607-3614[article] Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study [texte imprimé] / Gnakub N. SOKE, Auteur ; Steven A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; Cordelia ROBINSON, Auteur ; Laura A. CARPENTER, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur . - p.3607-3614.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-11 (November 2016) . - p.3607-3614
Mots-clés : Self-injurious behaviors Autism Autism spectrum disorder Prevalence Challenging behaviors Index. décimale : PER Périodiques Résumé : Self-injurious behaviors (SIB) have been reported in more than 30 % of children with an autism spectrum disorder (ASD) in clinic-based studies. This study estimated the prevalence of SIB in a large population-based sample of children with ASD in the United States. A total of 8065 children who met the surveillance case definition for ASD in the Autism and Developmental Disabilities Monitoring (ADDM) Network during the 2000, 2006, and 2008 surveillance years were included. The presence of SIB was reported from available health and/or educational records by an expert clinician in ADDM Network. SIB prevalence averaged 27.7 % across all sites and surveillance years, with some variation between sites. Clinicians should inquire about SIB during assessments of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2879-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294 Factors Associated with Self-Injurious Behaviors in Children with Autism Spectrum Disorder: Findings from Two Large National Samples / Gnakub N. SOKE in Journal of Autism and Developmental Disorders, 47-2 (February 2017)
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Titre : Factors Associated with Self-Injurious Behaviors in Children with Autism Spectrum Disorder: Findings from Two Large National Samples Type de document : texte imprimé Auteurs : Gnakub N. SOKE, Auteur ; Steven A. ROSENBERG, Auteur ; R.F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; C. Robinson ROSENBERG, Auteur ; Laura A. CARPENTER, Auteur ; Li-Ching LEE, Auteur ; Ellen GIARELLI, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Ann REYNOLDS, Auteur ; Carolyn G. DIGUISEPPI, Auteur Article en page(s) : p.285-296 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Autism Self-injurious behaviors Challenging behaviors Maladaptive behaviorsChildren Index. décimale : PER Périodiques Résumé : In this study, we explored potential associations among self-injurious behaviors (SIB) and a diverse group of protective and risk factors in children with autism spectrum disorder from two databases: Autism and Developmental Disabilities Monitoring (ADDM) Network and the Autism Speaks-Autism Treatment Network (AS-ATN). The presence of SIB was determined from children’s records in ADDM and a parent questionnaire in AS-ATN. We used multiple imputation to account for missing data and a non-linear mixed model with site as a random effect to test for associations. Despite differences between the two databases, similar associations were found; SIB were associated with developmental, behavioral, and somatic factors. Implications of these findings are discussed in relation to possible etiology, future longitudinal studies, and clinical practice. En ligne : http://dx.doi.org/10.1007/s10803-016-2951-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303
in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.285-296[article] Factors Associated with Self-Injurious Behaviors in Children with Autism Spectrum Disorder: Findings from Two Large National Samples [texte imprimé] / Gnakub N. SOKE, Auteur ; Steven A. ROSENBERG, Auteur ; R.F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; C. Robinson ROSENBERG, Auteur ; Laura A. CARPENTER, Auteur ; Li-Ching LEE, Auteur ; Ellen GIARELLI, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Ann REYNOLDS, Auteur ; Carolyn G. DIGUISEPPI, Auteur . - p.285-296.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-2 (February 2017) . - p.285-296
Mots-clés : Autism spectrum disorder Autism Self-injurious behaviors Challenging behaviors Maladaptive behaviorsChildren Index. décimale : PER Périodiques Résumé : In this study, we explored potential associations among self-injurious behaviors (SIB) and a diverse group of protective and risk factors in children with autism spectrum disorder from two databases: Autism and Developmental Disabilities Monitoring (ADDM) Network and the Autism Speaks-Autism Treatment Network (AS-ATN). The presence of SIB was determined from children’s records in ADDM and a parent questionnaire in AS-ATN. We used multiple imputation to account for missing data and a non-linear mixed model with site as a random effect to test for associations. Despite differences between the two databases, similar associations were found; SIB were associated with developmental, behavioral, and somatic factors. Implications of these findings are discussed in relation to possible etiology, future longitudinal studies, and clinical practice. En ligne : http://dx.doi.org/10.1007/s10803-016-2951-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303 Parents’ Perceptions of the Usefulness of Chromosomal Microarray Analysis for Children with Autism Spectrum Disorders / Marian REIFF in Journal of Autism and Developmental Disorders, 45-10 (October 2015)
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Titre : Parents’ Perceptions of the Usefulness of Chromosomal Microarray Analysis for Children with Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Marian REIFF, Auteur ; Ellen GIARELLI, Auteur ; Barbara A. BERNHARDT, Auteur ; Ebony EASLEY, Auteur ; Nancy B. SPINNER, Auteur ; Pamela L. SANKAR, Auteur ; Surabhi MULCHANDANI, Auteur Article en page(s) : p.3262-3275 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders Chromosomal microarray analysis Genomic testing Qualitative Perceived utility Parent perspectives Index. décimale : PER Périodiques Résumé : Clinical guidelines recommend chromosomal microarray analysis (CMA) for all children with autism spectrum disorders (ASDs). We explored the test’s perceived usefulness among parents of children with ASD who had undergone CMA, and received a result categorized as pathogenic, variant of uncertain significance, or negative. Fifty-seven parents participated in a semi-structured telephone interview, and 50 also completed a survey. Most parents reported that CMA was helpful for their child and family. Major themes regarding perceived usefulness were: medical care, educational and behavioral interventions, causal explanation, information for family members, and advancing knowledge. Limits to utility, uncertainties and negative outcomes were also identified. Our findings highlight the importance of considering both health and non-health related utility in genomic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2489-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267
in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3262-3275[article] Parents’ Perceptions of the Usefulness of Chromosomal Microarray Analysis for Children with Autism Spectrum Disorders [texte imprimé] / Marian REIFF, Auteur ; Ellen GIARELLI, Auteur ; Barbara A. BERNHARDT, Auteur ; Ebony EASLEY, Auteur ; Nancy B. SPINNER, Auteur ; Pamela L. SANKAR, Auteur ; Surabhi MULCHANDANI, Auteur . - p.3262-3275.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3262-3275
Mots-clés : Autism spectrum disorders Chromosomal microarray analysis Genomic testing Qualitative Perceived utility Parent perspectives Index. décimale : PER Périodiques Résumé : Clinical guidelines recommend chromosomal microarray analysis (CMA) for all children with autism spectrum disorders (ASDs). We explored the test’s perceived usefulness among parents of children with ASD who had undergone CMA, and received a result categorized as pathogenic, variant of uncertain significance, or negative. Fifty-seven parents participated in a semi-structured telephone interview, and 50 also completed a survey. Most parents reported that CMA was helpful for their child and family. Major themes regarding perceived usefulness were: medical care, educational and behavioral interventions, causal explanation, information for family members, and advancing knowledge. Limits to utility, uncertainties and negative outcomes were also identified. Our findings highlight the importance of considering both health and non-health related utility in genomic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2489-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 Prenatal, perinatal, and neonatal factors associated with self-injurious behaviors in children with autism spectrum disorder / Gnakub Norbert SOKE in Research in Autism Spectrum Disorders, 61 (May 2019)
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Titre : Prenatal, perinatal, and neonatal factors associated with self-injurious behaviors in children with autism spectrum disorder Type de document : texte imprimé Auteurs : Gnakub Norbert SOKE, Auteur ; Steve A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; C. Robinson ROSENBERG, Auteur ; Laura A. CARPENTER, Auteur ; Li-Ching LEE, Auteur ; Ellen GIARELLI, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur Article en page(s) : p.1-9 Langues : Anglais (eng) Mots-clés : Self-injurious behaviors Autism spectrum disorder Autism Predictors Challenging behaviors Prenatal Index. décimale : PER Périodiques Résumé : Background Studies that examine the role of factors documented before self-injurious behaviors (SIB) occur are important in establishing a temporal relationship between these factors and SIB. Using data from a population-based surveillance system of 8-year-olds with autism spectrum disorder (ASD), we: (1) explored potential associations between SIB and prenatal, perinatal, and neonatal factors identified from birth certificates, and 2) validated associations between SIB and developmental, behavioral, medical factors accounting for the above prenatal, perinatal, and neonatal factors. Methods We included 4343 children from the Autism and Developmental Disabilities Monitoring Network from the 2000, 2006, and 2008 surveillance years. Prenatal, perinatal and neonatal characteristics were obtained from birth certificates. SIB and other potential risk factors were abstracted from children's health or education records. The associations between SIB and various potential risk factors were tested using non-linear mixed models. Results Lower maternal educational attainment (adjusted odds-ratio [aOR]: 1.35 [95% confidence interval 1.10–1.67]), prenatal maternal cigarette smoking (1.47 [1.09–1.98]), and electronic fetal monitoring during labor (1.70 [1.02–2.84]) were associated with SIB. In addition, we validated previous associations between SIB and developmental regression, lower IQ, behavioral, sensory and sleep problems, co-occurring developmental and psychiatric diagnoses. Conclusions The associations between SIB and maternal smoking, low maternal education attainment may be due to various factors, including low SES and limited access to specialized ASD services. Electronic fetal monitoring may be a marker for unmeasured perinatal complications. Findings reported in this study have implications for better understanding of factors associated with SIB to guide prevention and interventions. En ligne : https://doi.org/10.1016/j.rasd.2019.01.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385
in Research in Autism Spectrum Disorders > 61 (May 2019) . - p.1-9[article] Prenatal, perinatal, and neonatal factors associated with self-injurious behaviors in children with autism spectrum disorder [texte imprimé] / Gnakub Norbert SOKE, Auteur ; Steve A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; C. Robinson ROSENBERG, Auteur ; Laura A. CARPENTER, Auteur ; Li-Ching LEE, Auteur ; Ellen GIARELLI, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur . - p.1-9.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 61 (May 2019) . - p.1-9
Mots-clés : Self-injurious behaviors Autism spectrum disorder Autism Predictors Challenging behaviors Prenatal Index. décimale : PER Périodiques Résumé : Background Studies that examine the role of factors documented before self-injurious behaviors (SIB) occur are important in establishing a temporal relationship between these factors and SIB. Using data from a population-based surveillance system of 8-year-olds with autism spectrum disorder (ASD), we: (1) explored potential associations between SIB and prenatal, perinatal, and neonatal factors identified from birth certificates, and 2) validated associations between SIB and developmental, behavioral, medical factors accounting for the above prenatal, perinatal, and neonatal factors. Methods We included 4343 children from the Autism and Developmental Disabilities Monitoring Network from the 2000, 2006, and 2008 surveillance years. Prenatal, perinatal and neonatal characteristics were obtained from birth certificates. SIB and other potential risk factors were abstracted from children's health or education records. The associations between SIB and various potential risk factors were tested using non-linear mixed models. Results Lower maternal educational attainment (adjusted odds-ratio [aOR]: 1.35 [95% confidence interval 1.10–1.67]), prenatal maternal cigarette smoking (1.47 [1.09–1.98]), and electronic fetal monitoring during labor (1.70 [1.02–2.84]) were associated with SIB. In addition, we validated previous associations between SIB and developmental regression, lower IQ, behavioral, sensory and sleep problems, co-occurring developmental and psychiatric diagnoses. Conclusions The associations between SIB and maternal smoking, low maternal education attainment may be due to various factors, including low SES and limited access to specialized ASD services. Electronic fetal monitoring may be a marker for unmeasured perinatal complications. Findings reported in this study have implications for better understanding of factors associated with SIB to guide prevention and interventions. En ligne : https://doi.org/10.1016/j.rasd.2019.01.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385 Relationships between multiple births and autism spectrum disorders, cerebral palsy, and intellectual disabilities: autism and developmental disabilities monitoring (ADDM) network - 2002 surveillance year / Kim VAN NAARDEN BRAUN in Autism Research, 1-5 (October 2008)
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Permalink“Set in Stone” or “Ray of Hope”: Parents’ Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD / Marian REIFF in Journal of Autism and Developmental Disorders, 47-5 (May 2017)
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PermalinkThe Study to Explore Early Development (SEED): A Multisite Epidemiologic Study of Autism by the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network / Diana SCHENDEL in Journal of Autism and Developmental Disorders, 42-10 (October 2012)
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