Autism Spectrum Disorder Symptoms Among Children Enrolled in the Study to Explore Early Development (SEED) / Lisa D. WIGGINS in Journal of Autism and Developmental Disorders, 45-10 (October 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3183-3194 Titre : Autism Spectrum Disorder Symptoms Among Children Enrolled in the Study to Explore Early Development (SEED) Type de document : Texte imprimé et/ou numérique Auteurs : Lisa D. WIGGINS, Auteur ; Susan E. LEVY, Auteur ; Julie L. DANIELS, Auteur ; Laura A. SCHIEVE, Auteur ; Lisa A. CROEN, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Lisa BLASKEY, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Jennifer PINTO-MARTIN, Auteur ; Ann REYNOLDS, Auteur ; Catherine RICE, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur ; Patrick THOMPSON, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Lisa YOUNG, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.3183-3194 Langues : Anglais (eng) Mots-clés : Autism  Etiology  Symptoms  Phenotype  Study to Explore Early Development Index. décimale : PER Périodiques Résumé : This study examined the phenotypic profiles of children aged 30–68 months in the Study to Explore Early Development (SEED). Children classified as autism spectrum disorder (ASD), developmental delay (DD) with ASD symptoms, DD without ASD symptoms, and population comparison (POP) differed significantly from each other on cognitive, adaptive, behavioral, and social functioning and the presence of parent-reported conditions. Children with ASD and DD with ASD symptoms had mild to severe ASD risk on several measures compared to children with other DD and POP who had little ASD risk across measures. We conclude that children in SEED have varying degrees of ASD impairment and associated deficits. SEED thus provides a valuable sample to explore ASD phenotypes and inform risk factor analyses. En ligne : http://dx.doi.org/10.1007/s10803-015-2476-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 [article] Autism Spectrum Disorder Symptoms Among Children Enrolled in the Study to Explore Early Development (SEED) [Texte imprimé et/ou numérique] / Lisa D. WIGGINS, Auteur ; Susan E. LEVY, Auteur ; Julie L. DANIELS, Auteur ; Laura A. SCHIEVE, Auteur ; Lisa A. CROEN, Auteur ; Carolyn G. DIGUISEPPI, Auteur ; Lisa BLASKEY, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Jennifer PINTO-MARTIN, Auteur ; Ann REYNOLDS, Auteur ; Catherine RICE, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur ; Patrick THOMPSON, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Lisa YOUNG, Auteur ; Diana SCHENDEL, Auteur . - p.3183-3194. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3183-3194 Mots-clés : Autism  Etiology  Symptoms  Phenotype  Study to Explore Early Development Index. décimale : PER Périodiques Résumé : This study examined the phenotypic profiles of children aged 30–68 months in the Study to Explore Early Development (SEED). Children classified as autism spectrum disorder (ASD), developmental delay (DD) with ASD symptoms, DD without ASD symptoms, and population comparison (POP) differed significantly from each other on cognitive, adaptive, behavioral, and social functioning and the presence of parent-reported conditions. Children with ASD and DD with ASD symptoms had mild to severe ASD risk on several measures compared to children with other DD and POP who had little ASD risk across measures. We conclude that children in SEED have varying degrees of ASD impairment and associated deficits. SEED thus provides a valuable sample to explore ASD phenotypes and inform risk factor analyses. En ligne : http://dx.doi.org/10.1007/s10803-015-2476-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267

Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study / Gnakub N. SOKE in Journal of Autism and Developmental Disorders, 46-11 (November 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-11 (November 2016) . - p.3607-3614 Titre : Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study Type de document : Texte imprimé et/ou numérique Auteurs : Gnakub N. SOKE, Auteur ; Steven A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; Cordelia ROBINSON, Auteur ; Laura A. CARPENTER, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur Article en page(s) : p.3607-3614 Langues : Anglais (eng) Mots-clés : Self-injurious behaviors  Autism  Autism spectrum disorder  Prevalence  Challenging behaviors Index. décimale : PER Périodiques Résumé : Self-injurious behaviors (SIB) have been reported in more than 30 % of children with an autism spectrum disorder (ASD) in clinic-based studies. This study estimated the prevalence of SIB in a large population-based sample of children with ASD in the United States. A total of 8065 children who met the surveillance case definition for ASD in the Autism and Developmental Disabilities Monitoring (ADDM) Network during the 2000, 2006, and 2008 surveillance years were included. The presence of SIB was reported from available health and/or educational records by an expert clinician in ADDM Network. SIB prevalence averaged 27.7 % across all sites and surveillance years, with some variation between sites. Clinicians should inquire about SIB during assessments of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2879-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294 [article] Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study [Texte imprimé et/ou numérique] / Gnakub N. SOKE, Auteur ; Steven A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; Cordelia ROBINSON, Auteur ; Laura A. CARPENTER, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur . - p.3607-3614. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-11 (November 2016) . - p.3607-3614 Mots-clés : Self-injurious behaviors  Autism  Autism spectrum disorder  Prevalence  Challenging behaviors Index. décimale : PER Périodiques Résumé : Self-injurious behaviors (SIB) have been reported in more than 30 % of children with an autism spectrum disorder (ASD) in clinic-based studies. This study estimated the prevalence of SIB in a large population-based sample of children with ASD in the United States. A total of 8065 children who met the surveillance case definition for ASD in the Autism and Developmental Disabilities Monitoring (ADDM) Network during the 2000, 2006, and 2008 surveillance years were included. The presence of SIB was reported from available health and/or educational records by an expert clinician in ADDM Network. SIB prevalence averaged 27.7 % across all sites and surveillance years, with some variation between sites. Clinicians should inquire about SIB during assessments of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2879-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294

Parents’ Perceptions of the Usefulness of Chromosomal Microarray Analysis for Children with Autism Spectrum Disorders / Marian REIFF in Journal of Autism and Developmental Disorders, 45-10 (October 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3262-3275 Titre : Parents’ Perceptions of the Usefulness of Chromosomal Microarray Analysis for Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Marian REIFF, Auteur ; Ellen GIARELLI, Auteur ; Barbara A. BERNHARDT, Auteur ; Ebony EASLEY, Auteur ; Nancy B. SPINNER, Auteur ; Pamela L. SANKAR, Auteur ; Surabhi MULCHANDANI, Auteur Article en page(s) : p.3262-3275 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Chromosomal microarray analysis  Genomic testing  Qualitative  Perceived utility  Parent perspectives Index. décimale : PER Périodiques Résumé : Clinical guidelines recommend chromosomal microarray analysis (CMA) for all children with autism spectrum disorders (ASDs). We explored the test’s perceived usefulness among parents of children with ASD who had undergone CMA, and received a result categorized as pathogenic, variant of uncertain significance, or negative. Fifty-seven parents participated in a semi-structured telephone interview, and 50 also completed a survey. Most parents reported that CMA was helpful for their child and family. Major themes regarding perceived usefulness were: medical care, educational and behavioral interventions, causal explanation, information for family members, and advancing knowledge. Limits to utility, uncertainties and negative outcomes were also identified. Our findings highlight the importance of considering both health and non-health related utility in genomic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2489-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 [article] Parents’ Perceptions of the Usefulness of Chromosomal Microarray Analysis for Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Marian REIFF, Auteur ; Ellen GIARELLI, Auteur ; Barbara A. BERNHARDT, Auteur ; Ebony EASLEY, Auteur ; Nancy B. SPINNER, Auteur ; Pamela L. SANKAR, Auteur ; Surabhi MULCHANDANI, Auteur . - p.3262-3275. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3262-3275 Mots-clés : Autism spectrum disorders  Chromosomal microarray analysis  Genomic testing  Qualitative  Perceived utility  Parent perspectives Index. décimale : PER Périodiques Résumé : Clinical guidelines recommend chromosomal microarray analysis (CMA) for all children with autism spectrum disorders (ASDs). We explored the test’s perceived usefulness among parents of children with ASD who had undergone CMA, and received a result categorized as pathogenic, variant of uncertain significance, or negative. Fifty-seven parents participated in a semi-structured telephone interview, and 50 also completed a survey. Most parents reported that CMA was helpful for their child and family. Major themes regarding perceived usefulness were: medical care, educational and behavioral interventions, causal explanation, information for family members, and advancing knowledge. Limits to utility, uncertainties and negative outcomes were also identified. Our findings highlight the importance of considering both health and non-health related utility in genomic testing. En ligne : http://dx.doi.org/10.1007/s10803-015-2489-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267

Prenatal, perinatal, and neonatal factors associated with self-injurious behaviors in children with autism spectrum disorder / Gnakub Norbert SOKE in Research in Autism Spectrum Disorders, 61 (May 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 61 (May 2019) . - p.1-9 Titre : Prenatal, perinatal, and neonatal factors associated with self-injurious behaviors in children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Gnakub Norbert SOKE, Auteur ; Steve A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha E. FINGERLIN, Auteur ; C. Robinson ROSENBERG, Auteur ; Laura A. CARPENTER, Auteur ; Li-Ching LEE, Auteur ; Ellen GIARELLI, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur Article en page(s) : p.1-9 Langues : Anglais (eng) Mots-clés : Self-injurious behaviors  Autism spectrum disorder  Autism  Predictors  Challenging behaviors  Prenatal Index. décimale : PER Périodiques Résumé : Background Studies that examine the role of factors documented before self-injurious behaviors (SIB) occur are important in establishing a temporal relationship between these factors and SIB. Using data from a population-based surveillance system of 8-year-olds with autism spectrum disorder (ASD), we: (1) explored potential associations between SIB and prenatal, perinatal, and neonatal factors identified from birth certificates, and 2) validated associations between SIB and developmental, behavioral, medical factors accounting for the above prenatal, perinatal, and neonatal factors. Methods We included 4343 children from the Autism and Developmental Disabilities Monitoring Network from the 2000, 2006, and 2008 surveillance years. Prenatal, perinatal and neonatal characteristics were obtained from birth certificates. SIB and other potential risk factors were abstracted from children's health or education records. The associations between SIB and various potential risk factors were tested using non-linear mixed models. Results Lower maternal educational attainment (adjusted odds-ratio [aOR]: 1.35 [95% confidence interval 1.10–1.67]), prenatal maternal cigarette smoking (1.47 [1.09–1.98]), and electronic fetal monitoring during labor (1.70 [1.02–2.84]) were associated with SIB. In addition, we validated previous associations between SIB and developmental regression, lower IQ, behavioral, sensory and sleep problems, co-occurring developmental and psychiatric diagnoses. Conclusions The associations between SIB and maternal smoking, low maternal education attainment may be due to various factors, including low SES and limited access to specialized ASD services. Electronic fetal monitoring may be a marker for unmeasured perinatal complications. Findings reported in this study have implications for better understanding of factors associated with SIB to guide prevention and interventions. En ligne : https://doi.org/10.1016/j.rasd.2019.01.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385 [article] Prenatal, perinatal, and neonatal factors associated with self-injurious behaviors in children with autism spectrum disorder [Texte imprimé et/ou numérique] / Gnakub Norbert SOKE, Auteur ; Steve A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha E. FINGERLIN, Auteur ; C. Robinson ROSENBERG, Auteur ; Laura A. CARPENTER, Auteur ; Li-Ching LEE, Auteur ; Ellen GIARELLI, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur . - p.1-9. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 61 (May 2019) . - p.1-9 Mots-clés : Self-injurious behaviors  Autism spectrum disorder  Autism  Predictors  Challenging behaviors  Prenatal Index. décimale : PER Périodiques Résumé : Background Studies that examine the role of factors documented before self-injurious behaviors (SIB) occur are important in establishing a temporal relationship between these factors and SIB. Using data from a population-based surveillance system of 8-year-olds with autism spectrum disorder (ASD), we: (1) explored potential associations between SIB and prenatal, perinatal, and neonatal factors identified from birth certificates, and 2) validated associations between SIB and developmental, behavioral, medical factors accounting for the above prenatal, perinatal, and neonatal factors. Methods We included 4343 children from the Autism and Developmental Disabilities Monitoring Network from the 2000, 2006, and 2008 surveillance years. Prenatal, perinatal and neonatal characteristics were obtained from birth certificates. SIB and other potential risk factors were abstracted from children's health or education records. The associations between SIB and various potential risk factors were tested using non-linear mixed models. Results Lower maternal educational attainment (adjusted odds-ratio [aOR]: 1.35 [95% confidence interval 1.10–1.67]), prenatal maternal cigarette smoking (1.47 [1.09–1.98]), and electronic fetal monitoring during labor (1.70 [1.02–2.84]) were associated with SIB. In addition, we validated previous associations between SIB and developmental regression, lower IQ, behavioral, sensory and sleep problems, co-occurring developmental and psychiatric diagnoses. Conclusions The associations between SIB and maternal smoking, low maternal education attainment may be due to various factors, including low SES and limited access to specialized ASD services. Electronic fetal monitoring may be a marker for unmeasured perinatal complications. Findings reported in this study have implications for better understanding of factors associated with SIB to guide prevention and interventions. En ligne : https://doi.org/10.1016/j.rasd.2019.01.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385

Relationships between multiple births and autism spectrum disorders, cerebral palsy, and intellectual disabilities: autism and developmental disabilities monitoring (ADDM) network - 2002 surveillance year / Kim VAN NAARDEN BRAUN in Autism Research, 1-5 (October 2008)  

Public ISBD [article]  inAutism Research > 1-5 (October 2008) . - p.266-274 Titre : Relationships between multiple births and autism spectrum disorders, cerebral palsy, and intellectual disabilities: autism and developmental disabilities monitoring (ADDM) network - 2002 surveillance year Type de document : Texte imprimé et/ou numérique Auteurs : Kim VAN NAARDEN BRAUN, Auteur ; Li-Ching LEE, Auteur ; Joyce S. NICHOLAS, Auteur ; Russell S. KIRBY, Auteur ; Ellen GIARELLI, Auteur ; Maureen DURKIN, Auteur ; Laura A. SCHIEVE, Auteur ; Jennifer A. PINTO-MARTIN, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Julie L. DANIELS, Auteur Année de publication : 2008 Article en page(s) : p.266-274 Langues : Anglais (eng) Mots-clés : developmental-disabilities multiple-births autism-spectrum-disorders intellectual-disabilities cerebral-palsy Index. décimale : PER Périodiques Résumé : Since the 1970s, the prevalence of multiple births (MBs) in the United States has increased significantly. This has been attributed, in large part, to iatrogenic MBs resulting from infertility treatments that include ovulation stimulation. A past study has indicated that children from MBs have an increased prevalence of cerebral palsy (CP). Other studies also have suggested an association between MBs and intellectual disabilities (ID) and autism spectrum disorders (ASDs); however, results have been inconsistent. From the Autism and Developmental Disabilities Monitoring (ADDM) Network, a surveillance project among several US populations, we obtained MB estimates among children born in 1994 and classified by 8 years of age as having: an ASD (n=1,626 total children from 11 sites; 50 born as part of an MB); CP (n=302 total children from 3 sites; 25 born as part of an MB); or ID (n=1,195 total children from 3 sites; 45 born as part of an MB). All three MB estimates were notably higher than age-adjusted expected estimates of naturally conceived MBs derived from 1971 US natality data. However, when MB estimates from the ADDM Network were compared with expected MB estimates derived from 1994 natality data for the states corresponding to the relevant ADDM Network sites, we observed no association with ASDs (observed/expected=1.08 [0.78-1.38]), a moderate, but not statistically significant association with ID (observed/expected=1.34 [0.95-1.73]), and a strong association with CP (observed/expected=2.96 [1.80-4.12]). Further investigation of specific types of MBs (natural vs. iatrogenic) is warranted. En ligne : http://dx.doi.org/10.1002/aur.41 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=933 [article] Relationships between multiple births and autism spectrum disorders, cerebral palsy, and intellectual disabilities: autism and developmental disabilities monitoring (ADDM) network - 2002 surveillance year [Texte imprimé et/ou numérique] / Kim VAN NAARDEN BRAUN, Auteur ; Li-Ching LEE, Auteur ; Joyce S. NICHOLAS, Auteur ; Russell S. KIRBY, Auteur ; Ellen GIARELLI, Auteur ; Maureen DURKIN, Auteur ; Laura A. SCHIEVE, Auteur ; Jennifer A. PINTO-MARTIN, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Julie L. DANIELS, Auteur . - 2008 . - p.266-274. Langues : Anglais (eng) in Autism Research > 1-5 (October 2008) . - p.266-274 Mots-clés : developmental-disabilities multiple-births autism-spectrum-disorders intellectual-disabilities cerebral-palsy Index. décimale : PER Périodiques Résumé : Since the 1970s, the prevalence of multiple births (MBs) in the United States has increased significantly. This has been attributed, in large part, to iatrogenic MBs resulting from infertility treatments that include ovulation stimulation. A past study has indicated that children from MBs have an increased prevalence of cerebral palsy (CP). Other studies also have suggested an association between MBs and intellectual disabilities (ID) and autism spectrum disorders (ASDs); however, results have been inconsistent. From the Autism and Developmental Disabilities Monitoring (ADDM) Network, a surveillance project among several US populations, we obtained MB estimates among children born in 1994 and classified by 8 years of age as having: an ASD (n=1,626 total children from 11 sites; 50 born as part of an MB); CP (n=302 total children from 3 sites; 25 born as part of an MB); or ID (n=1,195 total children from 3 sites; 45 born as part of an MB). All three MB estimates were notably higher than age-adjusted expected estimates of naturally conceived MBs derived from 1971 US natality data. However, when MB estimates from the ADDM Network were compared with expected MB estimates derived from 1994 natality data for the states corresponding to the relevant ADDM Network sites, we observed no association with ASDs (observed/expected=1.08 [0.78-1.38]), a moderate, but not statistically significant association with ID (observed/expected=1.34 [0.95-1.73]), and a strong association with CP (observed/expected=2.96 [1.80-4.12]). Further investigation of specific types of MBs (natural vs. iatrogenic) is warranted. En ligne : http://dx.doi.org/10.1002/aur.41 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=933

“Set in Stone” or “Ray of Hope”: Parents’ Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD / Marian REIFF in Journal of Autism and Developmental Disorders, 47-5 (May 2017)  

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The Study to Explore Early Development (SEED): A Multisite Epidemiologic Study of Autism by the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network / Diana SCHENDEL in Journal of Autism and Developmental Disorders, 42-10 (October 2012)  

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