Age-related trends in treatment use for children with autism spectrum disorder / Sarah S. MIRE in Research in Autism Spectrum Disorders, 15-16 (July 2015)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 15-16 (July 2015) . - p.29-41 Titre : Age-related trends in treatment use for children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sarah S. MIRE, Auteur ; Natalie S. RAFF, Auteur ; Christie M. BREWTON, Auteur ; Robin P. GOIN-KOCHEL, Auteur Article en page(s) : p.29-41 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Age-related trends  Treatment  Simons Simplex Collection Index. décimale : PER Périodiques Résumé : Numerous and increasing treatment options face parents of children with autism spectrum disorder (ASD). This study sought to elucidate age-related trends in treatment use among children with ASD from the Simons Simplex Collection (SSC; n = 2758). Our goals were to: (a) explore frequencies of use for various treatment types between preschool and adolescence, and (b) statistically compare rates of treatment-type use by children of different ages. Results indicated high reliance on school-based treatments (e.g., speech and occupational therapies), though use of these types of treatments decreased with age. Use of most treatment types peaked during the preschool years and decreased with age, except psychotropic medication, which was used more by older children. A stable proportion of the sample across ages endorsed biomedical treatments (i.e., complementary alternative medicine; CAM). Percentages of treatment-type use at three different ages (representing early childhood, middle childhood, adolescence) via Pearson chi-square analyses indicated significant associations (? < .006) between age and use of these treatment types: private and school-based speech, private and school-based occupational therapy, intensive behavioral treatment, and psychotropic medication. Results are considered within an ecological-behavioral framework to offer potential explanations for age-related differences in treatment use (e.g., family factors, special education legislation). En ligne : http://dx.doi.org/10.1016/j.rasd.2015.03.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=260 [article] Age-related trends in treatment use for children with autism spectrum disorder [Texte imprimé et/ou numérique] / Sarah S. MIRE, Auteur ; Natalie S. RAFF, Auteur ; Christie M. BREWTON, Auteur ; Robin P. GOIN-KOCHEL, Auteur . - p.29-41. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 15-16 (July 2015) . - p.29-41 Mots-clés : Autism spectrum disorder  Age-related trends  Treatment  Simons Simplex Collection Index. décimale : PER Périodiques Résumé : Numerous and increasing treatment options face parents of children with autism spectrum disorder (ASD). This study sought to elucidate age-related trends in treatment use among children with ASD from the Simons Simplex Collection (SSC; n = 2758). Our goals were to: (a) explore frequencies of use for various treatment types between preschool and adolescence, and (b) statistically compare rates of treatment-type use by children of different ages. Results indicated high reliance on school-based treatments (e.g., speech and occupational therapies), though use of these types of treatments decreased with age. Use of most treatment types peaked during the preschool years and decreased with age, except psychotropic medication, which was used more by older children. A stable proportion of the sample across ages endorsed biomedical treatments (i.e., complementary alternative medicine; CAM). Percentages of treatment-type use at three different ages (representing early childhood, middle childhood, adolescence) via Pearson chi-square analyses indicated significant associations (? < .006) between age and use of these treatment types: private and school-based speech, private and school-based occupational therapy, intensive behavioral treatment, and psychotropic medication. Results are considered within an ecological-behavioral framework to offer potential explanations for age-related differences in treatment use (e.g., family factors, special education legislation). En ligne : http://dx.doi.org/10.1016/j.rasd.2015.03.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=260

Autism Spectrum Disorder, Developmental and Psychiatric Features in 16p11.2 Duplication / LeeAnne GREEN SNYDER in Journal of Autism and Developmental Disorders, 46-8 (August 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2734-2748 Titre : Autism Spectrum Disorder, Developmental and Psychiatric Features in 16p11.2 Duplication Type de document : Texte imprimé et/ou numérique Auteurs : LeeAnne GREEN SNYDER, Auteur ; Debra D’ANGELO, Auteur ; Qixuan CHEN, Auteur ; Raphael BERNIER, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Arianne S. WALLACE, Auteur ; Jennifer GERDTS, Auteur ; Stephen M. KANNE, Auteur ; Leandra N. BERRY, Auteur ; Lisa BLASKEY, Auteur ; Emily KUSCHNER, Auteur ; Timothy ROBERTS, Auteur ; Elliot SHERR, Auteur ; Christa L. MARTIN, Auteur ; David H. LEDBETTER, Auteur ; John E. SPIRO, Auteur ; Wendy K. CHUNG, Auteur ; Ellen HANSON, Auteur Article en page(s) : p.2734-2748 Langues : Anglais (eng) Mots-clés : 16p11.2 duplication  Genetics  Neuropsychological  Autism  Intellectual disability  Cognitive Index. décimale : PER Périodiques Résumé : The 16p11.2 duplication (BP4–BP5) is associated with Autism Spectrum Disorder (ASD), although significant heterogeneity exists. Quantitative ASD, behavioral and neuropsychological measures and DSM-IV diagnoses in child and adult carriers were compared with familial non-carrier controls, and to published results from deletion carriers. The 16p11.2 duplication phenotype ranges widely from asymptomatic presentation to significant disability. The most common diagnoses were intellectual disability, motor delays and Attention Deficit Hyperactivity Disorder in children, and anxiety in adults. ASD occurred in nearly 20 % of child cases, but a majority of carriers did not show the unique social features of ASD. The 16p11.2 duplication phenotype is characterized by wider variability than the reciprocal deletion, likely reflecting contributions from additional risk factors. En ligne : http://dx.doi.org/10.1007/s10803-016-2807-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=291 [article] Autism Spectrum Disorder, Developmental and Psychiatric Features in 16p11.2 Duplication [Texte imprimé et/ou numérique] / LeeAnne GREEN SNYDER, Auteur ; Debra D’ANGELO, Auteur ; Qixuan CHEN, Auteur ; Raphael BERNIER, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Arianne S. WALLACE, Auteur ; Jennifer GERDTS, Auteur ; Stephen M. KANNE, Auteur ; Leandra N. BERRY, Auteur ; Lisa BLASKEY, Auteur ; Emily KUSCHNER, Auteur ; Timothy ROBERTS, Auteur ; Elliot SHERR, Auteur ; Christa L. MARTIN, Auteur ; David H. LEDBETTER, Auteur ; John E. SPIRO, Auteur ; Wendy K. CHUNG, Auteur ; Ellen HANSON, Auteur . - p.2734-2748. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2734-2748 Mots-clés : 16p11.2 duplication  Genetics  Neuropsychological  Autism  Intellectual disability  Cognitive Index. décimale : PER Périodiques Résumé : The 16p11.2 duplication (BP4–BP5) is associated with Autism Spectrum Disorder (ASD), although significant heterogeneity exists. Quantitative ASD, behavioral and neuropsychological measures and DSM-IV diagnoses in child and adult carriers were compared with familial non-carrier controls, and to published results from deletion carriers. The 16p11.2 duplication phenotype ranges widely from asymptomatic presentation to significant disability. The most common diagnoses were intellectual disability, motor delays and Attention Deficit Hyperactivity Disorder in children, and anxiety in adults. ASD occurred in nearly 20 % of child cases, but a majority of carriers did not show the unique social features of ASD. The 16p11.2 duplication phenotype is characterized by wider variability than the reciprocal deletion, likely reflecting contributions from additional risk factors. En ligne : http://dx.doi.org/10.1007/s10803-016-2807-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=291

Brief Report: Further Examination of Self-Injurious Behaviors in Children and Adolescents with Autism Spectrum Disorders / Jack DEMPSEY in Journal of Autism and Developmental Disorders, 46-5 (May 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1872-1879 Titre : Brief Report: Further Examination of Self-Injurious Behaviors in Children and Adolescents with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Jack DEMPSEY, Auteur ; Allison G. DEMPSEY, Auteur ; Danielle GUFFEY, Auteur ; Charles G. MINARD, Auteur ; Robin P. GOIN-KOCHEL, Auteur Article en page(s) : p.1872-1879 Langues : Anglais (eng) Mots-clés : Self-injurious behaviors  Autism spectrum disorder  Anxiety  Repetitive behavior Index. décimale : PER Périodiques Résumé : Self-injurious behaviors (SIB) are problematic for many children with autism spectrum disorders (ASD). Existing models to explain factors contributing to SIB fail to account for a large proportion of variance in SIB. This study attempted to explain a greater proportion of variance in SIB by addressing methodological/theoretical limitations in previous research using a sample of 2341 youth with ASD. The model comprised of predictors identified by the prior study continued to explain only a small proportion of variance in the SIB score (R 2 = .13). Revisions to the model failed to substantially improve model fit. Results suggest that psychological, cognitive, and behavioral factors alone do not adequately explain common measures of SIB and highlight the need for further research. En ligne : http://dx.doi.org/10.1007/s10803-016-2704-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288 [article] Brief Report: Further Examination of Self-Injurious Behaviors in Children and Adolescents with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Jack DEMPSEY, Auteur ; Allison G. DEMPSEY, Auteur ; Danielle GUFFEY, Auteur ; Charles G. MINARD, Auteur ; Robin P. GOIN-KOCHEL, Auteur . - p.1872-1879. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1872-1879 Mots-clés : Self-injurious behaviors  Autism spectrum disorder  Anxiety  Repetitive behavior Index. décimale : PER Périodiques Résumé : Self-injurious behaviors (SIB) are problematic for many children with autism spectrum disorders (ASD). Existing models to explain factors contributing to SIB fail to account for a large proportion of variance in SIB. This study attempted to explain a greater proportion of variance in SIB by addressing methodological/theoretical limitations in previous research using a sample of 2341 youth with ASD. The model comprised of predictors identified by the prior study continued to explain only a small proportion of variance in the SIB score (R 2 = .13). Revisions to the model failed to substantially improve model fit. Results suggest that psychological, cognitive, and behavioral factors alone do not adequately explain common measures of SIB and highlight the need for further research. En ligne : http://dx.doi.org/10.1007/s10803-016-2704-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288

Cognitive Profiles in Youth with Autism Spectrum Disorder: An Investigation of Base Rate Discrepancies using the Differential Ability Scales—Second Edition / Kerri P. NOWELL in Journal of Autism and Developmental Disorders, 45-7 (July 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.1978-1988 Titre : Cognitive Profiles in Youth with Autism Spectrum Disorder: An Investigation of Base Rate Discrepancies using the Differential Ability Scales—Second Edition Type de document : Texte imprimé et/ou numérique Auteurs : Kerri P. NOWELL, Auteur ; G. Thomas SCHANDING, Auteur ; Stephen M. KANNE, Auteur ; Robin P. GOIN-KOCHEL, Auteur Année de publication : 2015 Article en page(s) : p.1978-1988 Langues : Anglais (eng) Mots-clés : Autism spectrum diagnosis  Intellectual functioning  Differential ability scales  Second edition  Children  Adolescents Index. décimale : PER Périodiques Résumé : Extant data suggest that the cognitive profiles of individuals with ASD may be characterized by variability, particularly in terms of verbal intellectual functioning (VIQ) and non-verbal intellectual functioning (NVIQ) discrepancies. The Differential Ability Scales, Second Edition (DAS-II) has limited data available on its use with youth with ASD. The current study examined data from 2,110 youth with ASD in order to characterize performance on the DAS-II and to investigate potential discrepancies between VIQ and NVIQ. A larger proportion of individuals in the ASD sample had significant discrepancies between VIQ and NVIQ when compared to the normative sample [early years sample ?2 (2) = 38.36; p < .001; school age sample ?2 (2) = 13.48; p < .01]. Clinical and research implications are discussed. En ligne : http://dx.doi.org/10.1007/s10803-014-2356-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261 [article] Cognitive Profiles in Youth with Autism Spectrum Disorder: An Investigation of Base Rate Discrepancies using the Differential Ability Scales—Second Edition [Texte imprimé et/ou numérique] / Kerri P. NOWELL, Auteur ; G. Thomas SCHANDING, Auteur ; Stephen M. KANNE, Auteur ; Robin P. GOIN-KOCHEL, Auteur . - 2015 . - p.1978-1988. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.1978-1988 Mots-clés : Autism spectrum diagnosis  Intellectual functioning  Differential ability scales  Second edition  Children  Adolescents Index. décimale : PER Périodiques Résumé : Extant data suggest that the cognitive profiles of individuals with ASD may be characterized by variability, particularly in terms of verbal intellectual functioning (VIQ) and non-verbal intellectual functioning (NVIQ) discrepancies. The Differential Ability Scales, Second Edition (DAS-II) has limited data available on its use with youth with ASD. The current study examined data from 2,110 youth with ASD in order to characterize performance on the DAS-II and to investigate potential discrepancies between VIQ and NVIQ. A larger proportion of individuals in the ASD sample had significant discrepancies between VIQ and NVIQ when compared to the normative sample [early years sample ?2 (2) = 38.36; p < .001; school age sample ?2 (2) = 13.48; p < .01]. Clinical and research implications are discussed. En ligne : http://dx.doi.org/10.1007/s10803-014-2356-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261

Developmental regression among children with autism spectrum disorder: Onset, duration, and effects on functional outcomes / Robin P. GOIN-KOCHEL in Research in Autism Spectrum Disorders, 8-7 (July 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-7 (July 2014) . - p.890-898 Titre : Developmental regression among children with autism spectrum disorder: Onset, duration, and effects on functional outcomes Type de document : Texte imprimé et/ou numérique Auteurs : Robin P. GOIN-KOCHEL, Auteur ; Amy ESLER, Auteur ; Stephen M. KANNE, Auteur ; Vanessa HUS, Auteur Article en page(s) : p.890-898 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Regression  Skill loss  Cognition  Adaptive functioning  Outcomes Index. décimale : PER Périodiques Résumé : Abstract Studies using varied methods report that developmental regression occurs in a sizeable proportion of children with autism spectrum disorder (ASD). Findings are equivocal as to whether regression is associated with poorer cognitive and adaptive functioning. This study examined retrospective parent report in 2105 Simons Simplex Collection participants with ASD. Children were classified as having “full” or “subthreshold” losses on language and/or other skills using items from the Autism Diagnostic Interview-Revised (ADI-R) and a supplemental interview to capture more subtle regressions. Overall, 36.9% of children had some type of regression (27.8% language, 27.0% other-skill loss), with the supplemental interview capturing 11.7% of losses that would have been missed using the ADI-R alone. This figure is consistent with previous parent-report studies but lower than clinician-observed rates in prospective investigations. Early language losses—either full or subthreshold—and full other-skill losses appear to be associated with more deleterious outcomes by middle childhood. Findings may signify the need for more immediate and/or intense therapies for children who have even minor skill losses, particularly in language skills. Results further demonstrate the utility of an expanded set of additional queries with slightly modified criteria to capture such early, subtle losses. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.04.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 [article] Developmental regression among children with autism spectrum disorder: Onset, duration, and effects on functional outcomes [Texte imprimé et/ou numérique] / Robin P. GOIN-KOCHEL, Auteur ; Amy ESLER, Auteur ; Stephen M. KANNE, Auteur ; Vanessa HUS, Auteur . - p.890-898. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-7 (July 2014) . - p.890-898 Mots-clés : Autism spectrum disorder  Regression  Skill loss  Cognition  Adaptive functioning  Outcomes Index. décimale : PER Périodiques Résumé : Abstract Studies using varied methods report that developmental regression occurs in a sizeable proportion of children with autism spectrum disorder (ASD). Findings are equivocal as to whether regression is associated with poorer cognitive and adaptive functioning. This study examined retrospective parent report in 2105 Simons Simplex Collection participants with ASD. Children were classified as having “full” or “subthreshold” losses on language and/or other skills using items from the Autism Diagnostic Interview-Revised (ADI-R) and a supplemental interview to capture more subtle regressions. Overall, 36.9% of children had some type of regression (27.8% language, 27.0% other-skill loss), with the supplemental interview capturing 11.7% of losses that would have been missed using the ADI-R alone. This figure is consistent with previous parent-report studies but lower than clinician-observed rates in prospective investigations. Early language losses—either full or subthreshold—and full other-skill losses appear to be associated with more deleterious outcomes by middle childhood. Findings may signify the need for more immediate and/or intense therapies for children who have even minor skill losses, particularly in language skills. Results further demonstrate the utility of an expanded set of additional queries with slightly modified criteria to capture such early, subtle losses. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.04.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233

Emergence of Autism Spectrum Disorder in Children from Simplex Families: Relations to Parental Perceptions of Etiology / Robin P. GOIN-KOCHEL in Journal of Autism and Developmental Disorders, 45-5 (May 2015)  

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Emotional and Behavioral Adjustment in Typically Developing Siblings of Children with Autism Spectrum Disorders / Allison G. DEMPSEY in Journal of Autism and Developmental Disorders, 42-7 (July 2012)  

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Expression of the Broad Autism Phenotype in Simplex Autism Families from the Simons Simplex Collection / Julie DAVIDSON in Journal of Autism and Developmental Disorders, 44-10 (October 2014)  

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Genetic and environmental influences on symptom domains in twins and siblings with autism / Carla A. MAZEFSKY in Research in Autism Spectrum Disorders, 2-2 (April-June 2008)  

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Lack of evidence for increased genetic loading for autism among families of affected females: A replication from family history data in two large samples / Robin P. GOIN-KOCHEL in Autism, 11-3 (May 2007)  

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Level of Functioning in Autism Spectrum Disorders: Phenotypic Congruence Among Affected Siblings / Robin P. GOIN-KOCHEL in Journal of Autism and Developmental Disorders, 38-6 (July 2008)  

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A Multi-Rater Study on Being Teased Among Children/Adolescents With Autism Spectrum Disorder (ASD) and Their Typically Developing Siblings: Associations With ASD Symptoms / Kerri P. NOWELL in Focus on Autism and Other Developmental Disabilities, 29-4 (December 2014)  

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“My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives / Barbara J. MYERS in Research in Autism Spectrum Disorders, 3-3 (July-September 2009)  

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Parental Beliefs About Causes of Autism Spectrum Disorder: An Investigation of a Research Measure Using Principal Component Analysis / Christie M. BREWTON in Research in Autism Spectrum Disorders, 87 (September 2021)  

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Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders / Robin P. GOIN-KOCHEL in Research in Autism Spectrum Disorders, 3-2 (April-june 2009)  

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