Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis / Lauren BISHOP-FITZPATRICK in Journal of Autism and Developmental Disorders, 46-8 (August 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2707-2719 Titre : Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Lauren BISHOP-FITZPATRICK, Auteur ; Jinkuk HONG, Auteur ; Leann E. SMITH, Auteur ; Renee A. MAKUCH, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur Article en page(s) : p.2707-2719 Langues : Anglais (eng) Mots-clés : Heterogeneity  Daily living skills  Expressed emotion  Maternal warmth  Executive function Index. décimale : PER Périodiques Résumé : This study aims to extend the definition of quality of life (QoL) for adults with autism spectrum disorder (ASD, n = 180, ages 23–60) by: (1) characterizing the heterogeneity of normative outcomes (employment, independent living, social engagement) and objective QoL (physical health, neighborhood quality, family contact, mental health issues); and (2) identifying predictors of positive normative outcomes and good objective QoL. Findings of an exploratory latent class analysis identified three groups of adults with ASD–Greater Dependence, Good Physical and Mental Health, and Greater Independence. Findings indicate that better daily living skills, better executive function, and more maternal warmth are associated with assignment to better outcome groups. Findings have implications for interventions designed to enhance achievement of normative outcomes and objective QoL. En ligne : http://dx.doi.org/10.1007/s10803-016-2816-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 [article] Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis [Texte imprimé et/ou numérique] / Lauren BISHOP-FITZPATRICK, Auteur ; Jinkuk HONG, Auteur ; Leann E. SMITH, Auteur ; Renee A. MAKUCH, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur . - p.2707-2719. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2707-2719 Mots-clés : Heterogeneity  Daily living skills  Expressed emotion  Maternal warmth  Executive function Index. décimale : PER Périodiques Résumé : This study aims to extend the definition of quality of life (QoL) for adults with autism spectrum disorder (ASD, n = 180, ages 23–60) by: (1) characterizing the heterogeneity of normative outcomes (employment, independent living, social engagement) and objective QoL (physical health, neighborhood quality, family contact, mental health issues); and (2) identifying predictors of positive normative outcomes and good objective QoL. Findings of an exploratory latent class analysis identified three groups of adults with ASD–Greater Dependence, Good Physical and Mental Health, and Greater Independence. Findings indicate that better daily living skills, better executive function, and more maternal warmth are associated with assignment to better outcome groups. Findings have implications for interventions designed to enhance achievement of normative outcomes and objective QoL. En ligne : http://dx.doi.org/10.1007/s10803-016-2816-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290

Correlates of social functioning in autism spectrum disorder: The role of social cognition / Lauren BISHOP-FITZPATRICK in Research in Autism Spectrum Disorders, 35 (March 2017)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 35 (March 2017) . - p.25-34 Titre : Correlates of social functioning in autism spectrum disorder: The role of social cognition Type de document : Texte imprimé et/ou numérique Auteurs : Lauren BISHOP-FITZPATRICK, Auteur ; Carla A. MAZEFSKY, Auteur ; Shaun M. EACK, Auteur ; Nancy J. MINSHEW, Auteur Article en page(s) : p.25-34 Langues : Anglais (eng) Mots-clés : Theory of mind  Motor function  Second-order false belief  Adaptive behavior  Social impairment  Manipulative dexterity Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) experience marked challenges with social function by definition, but few modifiable predictors of social functioning in ASD have been identified in extant research. This study hypothesized that deficits in social cognition and motor function may help to explain poor social functioning in individuals with ASD. Method Cross-sectional data from 108 individuals with ASD and without intellectual disability ages 9 through 27.5 were used to assess the relationship between social cognition and motor function, and social functioning. Results Results of hierarchical multiple regression analyses revealed that greater social cognition, but not motor function, was significantly associated with better social functioning when controlling for sex, age, and intelligence quotient. Post-hoc analyses revealed that better performance on second-order false belief tasks was associated with higher levels of socially adaptive behavior and lower levels of social problems. Our findings support the development and testing of interventions that target social cognition in order to improve social functioning in individuals with ASD. Interventions that teach generalizable skills to help people with ASD better understand social situations and develop competency in advanced perspective taking have the potential to create more durable change because their effects can be applied to a wide and varied set of situations and not simply a prescribed set of rehearsed situations. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.11.013 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 [article] Correlates of social functioning in autism spectrum disorder: The role of social cognition [Texte imprimé et/ou numérique] / Lauren BISHOP-FITZPATRICK, Auteur ; Carla A. MAZEFSKY, Auteur ; Shaun M. EACK, Auteur ; Nancy J. MINSHEW, Auteur . - p.25-34. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 35 (March 2017) . - p.25-34 Mots-clés : Theory of mind  Motor function  Second-order false belief  Adaptive behavior  Social impairment  Manipulative dexterity Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) experience marked challenges with social function by definition, but few modifiable predictors of social functioning in ASD have been identified in extant research. This study hypothesized that deficits in social cognition and motor function may help to explain poor social functioning in individuals with ASD. Method Cross-sectional data from 108 individuals with ASD and without intellectual disability ages 9 through 27.5 were used to assess the relationship between social cognition and motor function, and social functioning. Results Results of hierarchical multiple regression analyses revealed that greater social cognition, but not motor function, was significantly associated with better social functioning when controlling for sex, age, and intelligence quotient. Post-hoc analyses revealed that better performance on second-order false belief tasks was associated with higher levels of socially adaptive behavior and lower levels of social problems. Our findings support the development and testing of interventions that target social cognition in order to improve social functioning in individuals with ASD. Interventions that teach generalizable skills to help people with ASD better understand social situations and develop competency in advanced perspective taking have the potential to create more durable change because their effects can be applied to a wide and varied set of situations and not simply a prescribed set of rehearsed situations. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.11.013 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304

Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports / Jinkuk HONG in Journal of Autism and Developmental Disorders, 46-4 (April 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1368-1378 Titre : Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports Type de document : Texte imprimé et/ou numérique Auteurs : Jinkuk HONG, Auteur ; Lauren BISHOP-FITZPATRICK, Auteur ; Leann E. SMITH, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur Article en page(s) : p.1368-1378 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Subjective quality of life  WHOQOL-BREF domains  Self-report  Maternal report Index. décimale : PER Périodiques Résumé : We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25–55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that adults with ASD rated their own QoL reliably. QoL scores derived from adult self-reports were more closely related to those from maternal proxy-report than from maternal report. Subjective factors such as perceived stress and having been bullied frequently were associated with QoL based on adult self-reports. In contrast, level of independence in daily activities and physical health were significant predictors of maternal reports of their son or daughter’s QoL. En ligne : http://dx.doi.org/10.1007/s10803-015-2678-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284 [article] Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports [Texte imprimé et/ou numérique] / Jinkuk HONG, Auteur ; Lauren BISHOP-FITZPATRICK, Auteur ; Leann E. SMITH, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur . - p.1368-1378. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1368-1378 Mots-clés : Autism spectrum disorder  Subjective quality of life  WHOQOL-BREF domains  Self-report  Maternal report Index. décimale : PER Périodiques Résumé : We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25–55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that adults with ASD rated their own QoL reliably. QoL scores derived from adult self-reports were more closely related to those from maternal proxy-report than from maternal report. Subjective factors such as perceived stress and having been bullied frequently were associated with QoL based on adult self-reports. In contrast, level of independence in daily activities and physical health were significant predictors of maternal reports of their son or daughter’s QoL. En ligne : http://dx.doi.org/10.1007/s10803-015-2678-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284

A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder / E. RUBENSTEIN in Autism Research, 12-1 (January 2019)  

Public ISBD [article]  inAutism Research > 12-1 (January 2019) . - p.20-25 Titre : A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : E. RUBENSTEIN, Auteur ; Lauren BISHOP-FITZPATRICK, Auteur Article en page(s) : p.20-25 Langues : Anglais (eng) Mots-clés : aging  epidemiology  health  mental health Index. décimale : PER Périodiques Résumé : Relatively consistent findings from recent studies using population-level data identify heightened physical and psychiatric morbidity in autistic people compared to the general population. Health problems that commonly present with autism spectrum disorder (ASD) are generally discussed in the literature as "co-occurring" or "comorbid" regardless of their known or hypothesized causal mechanisms. In this commentary, we introduce a new temporally focused terminology to describe health conditions that present with ASD. Emphasizing the temporal development of health conditions in research will help the field understand whether conditions are (1) "truly co-occurring" (share an etiologic origin with ASD in utero and are a defining characteristic of a subphenotype), (2) "resulting" (caused by ASD related disparity or the health effect of behaviors developed to cope with ASD symptoms), or (3) "associated" (conditions more common in individuals with ASD with etiology not yet known or hypothesized, or an artifact of diagnostic process or trends). Whether a health condition is "truly co-occurring", "resulting", or "associated" has implications for how we design interventions to prevent and treat health conditions in people on the autism spectrum. Ultimately, we think that using clear and temporally focused language can set us on a path to better deduce etiology and develop effective prevention and intervention efforts for health conditions that impact the lives of autistic individuals. We hope that this approach to temporal language to describe health conditions that present with ASD promotes thought and discussion in research, advocate, and autistic communities. Autism Research 2019, 12: 20-25. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Research finds autistic people have more health problems than the general population but we do not understand why. In this commentary, we argue researchers need to use language describing the timing of health problems in autistic people, specifying whether problems truly co-occur (share a cause), result from autism-related disparities, or are more common in autistic people for an unknown reason. Clarifying language can provide more specificity in research and improve efforts to prevent and treat health problems in autistic people. En ligne : http://dx.doi.org/10.1002/aur.2010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=376 [article] A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder [Texte imprimé et/ou numérique] / E. RUBENSTEIN, Auteur ; Lauren BISHOP-FITZPATRICK, Auteur . - p.20-25. Langues : Anglais (eng) in Autism Research > 12-1 (January 2019) . - p.20-25 Mots-clés : aging  epidemiology  health  mental health Index. décimale : PER Périodiques Résumé : Relatively consistent findings from recent studies using population-level data identify heightened physical and psychiatric morbidity in autistic people compared to the general population. Health problems that commonly present with autism spectrum disorder (ASD) are generally discussed in the literature as "co-occurring" or "comorbid" regardless of their known or hypothesized causal mechanisms. In this commentary, we introduce a new temporally focused terminology to describe health conditions that present with ASD. Emphasizing the temporal development of health conditions in research will help the field understand whether conditions are (1) "truly co-occurring" (share an etiologic origin with ASD in utero and are a defining characteristic of a subphenotype), (2) "resulting" (caused by ASD related disparity or the health effect of behaviors developed to cope with ASD symptoms), or (3) "associated" (conditions more common in individuals with ASD with etiology not yet known or hypothesized, or an artifact of diagnostic process or trends). Whether a health condition is "truly co-occurring", "resulting", or "associated" has implications for how we design interventions to prevent and treat health conditions in people on the autism spectrum. Ultimately, we think that using clear and temporally focused language can set us on a path to better deduce etiology and develop effective prevention and intervention efforts for health conditions that impact the lives of autistic individuals. We hope that this approach to temporal language to describe health conditions that present with ASD promotes thought and discussion in research, advocate, and autistic communities. Autism Research 2019, 12: 20-25. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Research finds autistic people have more health problems than the general population but we do not understand why. In this commentary, we argue researchers need to use language describing the timing of health problems in autistic people, specifying whether problems truly co-occur (share a cause), result from autism-related disparities, or are more common in autistic people for an unknown reason. Clarifying language can provide more specificity in research and improve efforts to prevent and treat health problems in autistic people. En ligne : http://dx.doi.org/10.1002/aur.2010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=376

Participation in recreational activities buffers the impact of perceived stress on quality of life in adults with autism spectrum disorder / Lauren BISHOP-FITZPATRICK in Autism Research, 10-5 (May 2017)  

Public ISBD [article]  inAutism Research > 10-5 (May 2017) . - p.973-982 Titre : Participation in recreational activities buffers the impact of perceived stress on quality of life in adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Lauren BISHOP-FITZPATRICK, Auteur ; Leann S. DAWALT, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur Article en page(s) : p.973-982 Langues : Anglais (eng) Mots-clés : recreational and social activities  perceived stress  quality of life  adults with ASD Index. décimale : PER Périodiques Résumé : As the number of adults with autism spectrum disorder (ASD) grows, the need to identify modifiable correlates of positive outcomes and quality of life (QoL) gains in importance. Research indicates that perceived stress is significantly correlated with QoL in adults with ASD. Studies in the general population of individuals without disabilities indicate that greater participation in social and recreational activities may lessen the negative impact of perceived stress on well-being, and this association may also hold among adults with ASD. We hypothesized that: (1) perceived stress would be negatively associated with QoL; and (2) higher frequency of participation in social activities and recreational activities would moderate the relationship between perceived stress and QoL. We used data collected from 60 adults with ASD aged 24–55 and their mothers to address our hypotheses. Findings indicate that adults with ASD with higher perceived stress are likely to have poorer QoL. Furthermore, greater participation in recreational activities buffers the impact of perceived stress on QoL, but no buffering effect was observed for participation in social activities. These findings suggest that interventions and services that provide supports and opportunities for participation in recreational activities may help adults with ASD manage their stress and lead to better QoL. En ligne : http://dx.doi.org/10.1002/aur.1753 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=307 [article] Participation in recreational activities buffers the impact of perceived stress on quality of life in adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Lauren BISHOP-FITZPATRICK, Auteur ; Leann S. DAWALT, Auteur ; Jan S. GREENBERG, Auteur ; Marsha R. MAILICK, Auteur . - p.973-982. Langues : Anglais (eng) in Autism Research > 10-5 (May 2017) . - p.973-982 Mots-clés : recreational and social activities  perceived stress  quality of life  adults with ASD Index. décimale : PER Périodiques Résumé : As the number of adults with autism spectrum disorder (ASD) grows, the need to identify modifiable correlates of positive outcomes and quality of life (QoL) gains in importance. Research indicates that perceived stress is significantly correlated with QoL in adults with ASD. Studies in the general population of individuals without disabilities indicate that greater participation in social and recreational activities may lessen the negative impact of perceived stress on well-being, and this association may also hold among adults with ASD. We hypothesized that: (1) perceived stress would be negatively associated with QoL; and (2) higher frequency of participation in social activities and recreational activities would moderate the relationship between perceived stress and QoL. We used data collected from 60 adults with ASD aged 24–55 and their mothers to address our hypotheses. Findings indicate that adults with ASD with higher perceived stress are likely to have poorer QoL. Furthermore, greater participation in recreational activities buffers the impact of perceived stress on QoL, but no buffering effect was observed for participation in social activities. These findings suggest that interventions and services that provide supports and opportunities for participation in recreational activities may help adults with ASD manage their stress and lead to better QoL. En ligne : http://dx.doi.org/10.1002/aur.1753 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=307

Perception of Life as Stressful, Not Biological Response to Stress, is Associated with Greater Social Disability in Adults with Autism Spectrum Disorder / Lauren BISHOP-FITZPATRICK in Journal of Autism and Developmental Disorders, 47-1 (January 2017)  

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A Scoping Review of Health Disparities in Autism Spectrum Disorder / Lauren BISHOP-FITZPATRICK in Journal of Autism and Developmental Disorders, 47-11 (November 2017)  

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A Systematic Review of Psychosocial Interventions for Adults with Autism Spectrum Disorders / Lauren BISHOP-FITZPATRICK in Journal of Autism and Developmental Disorders, 43-3 (March 2013)  

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The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability / Lauren BISHOP-FITZPATRICK in Autism, 22-6 (August 2018)  

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The physical and mental health of middle aged and older adults on the autism spectrum and the impact of intellectual disability / Lauren BISHOP-FITZPATRICK in Research in Autism Spectrum Disorders, 63 (July 2019)  

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The Relationship Between Stress and Social Functioning in Adults With Autism Spectrum Disorder and Without Intellectual Disability / Lauren BISHOP-FITZPATRICK in Autism Research, 8-2 (April 2015)  

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Using machine learning to identify patterns of lifetime health problems in decedents with autism spectrum disorder / Lauren BISHOP-FITZPATRICK in Autism Research, 11-8 (August 2018)  

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